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Just wanted to give a quick update. I called SSA today and spoke with a rep who confirmed what most of you have said. As long as I apply in January WITH January as my benefit month, I can use the annual earnings test for all of 2025. I made sure to specifically tell them I wanted January 2025 as my benefit month, not February. The rep did initially try to set it for February saying "that's our normal procedure" but I politely insisted on January, and they were able to do it. So relieved I don't have to track monthly earnings! Thanks for all your help everyone.
Congratulations on getting it sorted out! You made the right call pushing for January as your benefit month. I'm a retired SSA employee and can confirm this is one of those rules that even some current staff get confused about, which is why that rep initially tried to set you up for February. One small tip for the year ahead: even though you're using the annual limit, I'd still recommend keeping a simple running total of your earnings throughout the year. Not for monthly reporting, but just so you know where you stand. With variable income, it's easy to lose track and accidentally go over that $25,410 threshold. Also, remember that if you do exceed the annual limit, SSA will ask for overpayment recovery the following year, so it's much better to stay aware and avoid that situation entirely. Enjoy your semi-retirement!
I'm also navigating SSI issues as a newcomer here and this thread has been incredibly informative. What strikes me is how many families are dealing with this exact same problem - it seems like there's a real gap in how SSA handles custody changes and ensures benefits follow the child's actual living situation. For anyone starting this process, I'd suggest creating a simple spreadsheet to track everything: dates your child is with you, expenses you cover, medical appointments, therapy sessions, school activities, etc. Having this organized from day one will make the SSA application much smoother. Also, if your custody agreement specifies overnight percentages like 70/30, make sure you have certified copies - SSA will want official documentation. One question for those who have been through this: did any of you face retaliation from the other parent during the process? I'm worried about potential complications with visitation or other custody issues while pursuing the payee change.
That's a great suggestion about the spreadsheet - I wish I had started tracking everything systematically from the beginning! Regarding your concern about retaliation, I haven't gone through this process yet but from reading other people's experiences here, it seems like SSA makes decisions based on what's best for the child, not the parents' relationship dynamics. @Carmen Lopez mentioned that SSA doesn t'require the other parent s'permission for the change, which is reassuring. @Julia Hall also noted that you don t need'your ex s cooperation.'I d suggest'documenting any attempts at retaliation too, as that could actually work in your favor if it shows the other parent is putting their own interests above the child s welfare.'The key seems to be keeping everything focused on your child s needs'and living situation rather than the conflict between parents.
I'm new to this community but have been following this discussion closely as I'm in a very similar situation. My 13-year-old son with intellectual disabilities receives SSI, but his mother is the representative payee even though he lives with me about 65% of the time following our recent custody modification. Reading through all these responses has given me so much valuable information - especially about Form SSA-11 and the fact that SSA typically prefers to assign payee status to whoever has majority physical custody. I had no idea about the annual Representative Payee Report requirement either, or that SSA can investigate how current benefits are being used. What really resonates with me is how many families are dealing with this exact issue. It seems like there's a systemic problem where SSA doesn't automatically review payee arrangements when custody situations change. I'm definitely going to start documenting everything like everyone has suggested - expenses, overnight stays, medical appointments, therapy sessions - and look into that Claimyr service to actually get through to SSA. Thank you all for sharing your experiences and advice. It's encouraging to know that others have successfully navigated this process and gotten the benefits properly allocated to follow their child's actual living situation. The money should be supporting our kids wherever they spend their time, not just benefiting one parent's household.
Welcome to the community! Your situation with 65% custody definitely gives you strong grounds for becoming the representative payee. I'm also new here and have learned so much from this thread - it's eye-opening how common this issue is and how many families are struggling with the same problem. The systematic documentation approach everyone's mentioned seems crucial. I'm going to start that spreadsheet tracking method @Dmitry Popov suggested right away. It s'really encouraging to see that multiple people have successfully gone through this process, even when it seemed daunting at first. One thing that stood out to me from @Julia Hall s advice'is that SSA will investigate the current payee s use'of funds during the process. That seems like it could work in our favor if we can show we re covering'the majority of our children s expenses'while the benefits aren t being'used proportionally. Best of luck with your case - it sounds like you have all the right elements in place with the custody modification and majority physical custody. Keep us updated on how it goes!
That's fantastic news! So happy to hear your appeal was successful. Thanks for updating us - it's helpful for others who might face similar issues in the future.
Congratulations on winning your appeal! This is such encouraging news for families dealing with similar situations. Your experience really highlights how important it is to gather comprehensive documentation and not give up after the initial denial. The fact that you got backpay too is huge - that makes such a difference for families who rely on these benefits. Thanks for taking the time to update everyone with the successful outcome and the specific steps that worked. This thread is going to be incredibly valuable for other parents navigating SSA's confusing policies around non-traditional schools.
I'm in a very similar situation and this thread has been incredibly informative! I'm 63 and took early retirement 8 months ago due to degenerative disc disease and chronic pain, but I'm now realizing I might be able to get disability benefits to remove that early retirement penalty. A few things I wanted to add based on my research: **Work while waiting** - You can continue part-time work during the application process as long as you stay under the SGA limit ($1,530/month for 2025). However, SSA will look at your work activity as evidence of your capabilities, so document everything about how difficult those work days are for you. **Medical evidence timeline** - Make sure you have recent medical evidence (within the last year) that supports your disability claim. Even if you have years of documentation, they'll want to see current status of your conditions. **Functional limitations** - From what I've learned, SSA cares more about what you CAN'T do than what conditions you have. So when you see your doctors, make sure they're documenting things like: difficulty lifting/carrying, problems with prolonged sitting or standing, concentration issues, attendance problems due to flare-ups, etc. **Pain management records** - Keep detailed records of all treatments you've tried and failed. This shows you've made good faith efforts to manage your conditions. The fact that you have multiple conditions (osteoarthritis, fibromyalgia, PTSD) that can be evaluated together really strengthens your case. I'm planning to apply next month after reading everyone's experiences here. Good luck to both of us!
This is such valuable information, thank you! Your point about documenting the difficulty of work days really resonates with me. Even though I'm only working 2-3 days a week, those days are absolutely brutal. By the time I get home, I can barely function - I'm usually in bed with a heating pad by 7 PM and completely useless the next day. I should definitely start keeping a daily log of how work affects my pain levels and functioning. The timeline aspect you mentioned is important too. My last MRI was about 8 months ago showing the bone-on-bone deterioration, but I should probably get updated imaging to show current status. My rheumatologist has been great about documenting my functional limitations, but I want to make sure everything is as current and comprehensive as possible. It's encouraging to know there are others going through this same process. The early retirement penalty really adds up over time - getting back to the full benefit amount would make such a difference in quality of life. Best of luck with your application next month! Feel free to update us on how it goes.
I'm so glad I found this thread! I'm dealing with a very similar situation - took early retirement at 62 due to severe degenerative joint disease in my knees and shoulders, plus chronic fatigue syndrome. I've been on early retirement for about 4 months now and just learned about the possibility of switching to disability benefits to get the full amount. Reading everyone's experiences here has been incredibly helpful and encouraging. A few things that really stood out to me: **The 12-month backpay limit** - I had no idea about this! It sounds like I need to move quickly if I'm going to apply. **Documentation of functional limitations** - This seems to be the key. I've been focusing on getting my doctors to document my diagnoses, but I need to make sure they're also writing down specifically how these conditions prevent me from working (like how long I can stand, lift, concentrate, etc.). **Multiple conditions working together** - Like the original poster, I have several conditions that individually might not be severe enough, but together make working impossible. It's reassuring to hear that SSA evaluates the combined impact. One question for those who have been through this process: How detailed should I be in the application about my daily limitations? I can barely get through basic household tasks most days, but I don't want to sound like I'm exaggerating. Also, has anyone had experience with the online application versus going to an SSA office? I'm wondering which approach works better for this type of situation where you're already receiving benefits. Thank you all for sharing your experiences - this community has been more helpful than any official SSA resource I've found!
Welcome to the community and I'm glad you found this thread helpful! Your situation sounds very similar to what many of us have gone through. Regarding your question about detailing daily limitations - be completely honest and specific, but stick to facts. Don't worry about "sounding like you're exaggerating" if you're telling the truth. SSA needs to understand your real-world limitations. For example, instead of saying "I can barely do household tasks," be specific: "I can only stand for 5-10 minutes before severe knee pain forces me to sit, I can't lift more than 5 pounds due to shoulder pain, doing laundry requires multiple rest breaks over several hours," etc. For the application method, many people here have had success with the online application - it's often faster than trying to get an appointment at an office, and you can take your time to be thorough. Just make sure you have all your medical provider information and work history details ready before you start. The 4-month timeline you mentioned puts you in a good position for backpay if approved, but definitely don't delay much longer given that 12-month limit. With degenerative joint disease and chronic fatigue syndrome, you likely have a strong case, especially with proper documentation of your functional limitations. Good luck with your application! This community is great for ongoing support and questions as you go through the process.
Aisha Patel
As someone who just went through this process myself, I can confirm everyone here is absolutely correct - Social Security uses your highest 35 years of earnings, not your last 5 years. I was in a similar situation where I reduced my hours in my late 50s due to health issues and was worried it would tank my benefits. What really helped me was not just looking at the earnings record on ssa.gov, but also understanding that they "index" your older earnings for inflation. So that $15,000 you made in 1985 might be worth $40,000+ in today's calculation. This indexing process ensures your older full-time earnings aren't unfairly penalized compared to recent years. One tip: if you have any years showing zero earnings that you think should show income, definitely contact SSA to get those corrected. Missing or incorrect earnings records can definitely impact your benefit calculation since they need those 35 years of data.
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Dmitry Kuznetsov
•Thank you for sharing your experience! The indexing part is really important and not well understood. I had no idea that my earnings from decades ago would be adjusted upward for inflation - that makes such a difference in the calculation. Your tip about checking for zero earnings years is spot on too. I actually found one year from the early 90s that was showing zero when I know I worked that year. Definitely going to get that corrected before I apply. It's reassuring to hear from someone who actually went through this recently!
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Isaac Wright
I'm so glad you asked this question because I was told something similar by a family member and it had me panicking too! It's incredible how widespread this misinformation is about Social Security calculations. Just to add one more perspective - I actually spoke with a Social Security representative last month when I had questions about my own benefits, and they confirmed what everyone here is saying. The 35-year calculation has been the standard for decades. They also mentioned that this is one of the most common misconceptions they hear from people approaching retirement age. What's really helpful is that once you create your my Social Security account, you can actually see how different scenarios would affect your benefits. For example, you can see what would happen if you worked a few more years versus claiming early. It's a great tool for planning, especially when you're dealing with health issues like you mentioned. Don't let your buddy's misinformation stress you out - sounds like you're in a much better position than you thought!
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Lindsey Fry
•That's so reassuring to hear from someone who spoke directly with SSA! It really is amazing how this "last 5 years" myth keeps spreading - I wonder where it even comes from originally. I'm definitely feeling much more confident about my retirement planning now. The my Social Security account tool sounds really useful for playing around with different scenarios. I think I'll spend some time this weekend exploring those "what if" calculators to see how a few more months or a year of part-time work might impact things. Thanks for sharing your experience - it's so helpful to hear from people who have actually been through this process recently!
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