Social Security disability after age 70 with kidney disease - can I switch from SS retirement to SSDI?
I'm helping my sister navigate a complicated situation and hoping someone here understands both Medicare and Social Security rules. She's 72, has serious kidney disease requiring dialysis, and also gets arthritis treatments every two weeks. She's still working full-time but has been collecting Social Security since 62 (took the early reduction and also had benefits withheld while working). Her employer has decent health coverage (though she's not sure if it's an HMO or PPO), but with her worsening health, we're trying to figure out the best path forward. Can she get short-term disability through her job, then long-term disability, and possibly switch to SSDI even though she's already getting retirement benefits? Would that increase her monthly amount? Or should she just retire, keep her reduced retirement benefits, and switch to Medicare? The dialysis costs are enormous, and we're not sure which insurance option would provide better coverage. Any guidance would be so appreciated!
17 comments
Myles Regis
Since your sister is over FRA (Full Retirement Age), she can't switch from retirement benefits to SSDI. Once you reach FRA, SSDI and retirement benefits are essentially the same program with the same payment. The option to apply for disability to potentially get a higher benefit only works before FRA. Regarding medical coverage, with ESRD (End Stage Renal Disease) requiring dialysis, Medicare would actually provide excellent coverage regardless of age. In fact, Medicare covers about 80% of dialysis costs. She should absolutely enroll in Medicare Parts A & B if she hasn't already, even while working. Her employer plan would coordinate with Medicare as secondary or primary insurance depending on employer size.
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Khalil Urso
•Thank you so much! She has Medicare Part A already but not Part B. So you're saying even if she went on disability through her employer's insurance, there wouldn't be any advantage to applying for SSDI since she's already past full retirement age? She was hoping there might be some way to recoup some of what she lost by taking benefits early.
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Brian Downey
my sis had similar thing happen. the kidney dialysis automatically qualifies u for medicare even if ur under 65! doesnt matter if ur on SS already or not. tell her to talk to the social worker at the dialysis center they handle all the paperwork. the dialysis social worker did EVERYTHING for my sis and didnt cost her nothing. they deal with this stuff all day
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Khalil Urso
•That's incredibly helpful, thank you! I didn't even think about asking the dialysis center staff for help with the paperwork. I'll let her know right away.
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Jacinda Yu
Let me clarify a few things that might help your sister make better decisions: 1. Disability benefits (SSDI) convert to retirement benefits at Full Retirement Age (currently 66-67 depending on birth year). Since she's 72, she can't switch from retirement to disability - that option is no longer available. 2. For kidney failure patients, Medicare eligibility is special. She qualifies for Medicare regardless of age due to ESRD. Medicare will cover dialysis and kidney transplants with Part A and B. 3. If her employer has 20+ employees, her employer plan would be primary and Medicare secondary. If fewer than 20 employees, Medicare becomes primary. 4. The employer's STD/LTD policies are completely separate from Social Security and might still be valuable to her as income replacement if she stops working. The key decision is whether her current employer insurance provides better coverage than Medicare for her specific needs. With dialysis involved, Medicare's specialized coverage is often superior for that specific treatment.
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Landon Flounder
•Does this special Medicare eligibility have a waiting period for ESRD patients? I thought there was a 3-month waiting period after starting dialysis before Medicare kicks in? And don't they still need 40 work credits to qualify for Medicare even with kidney failure?
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Jacinda Yu
•Great questions. For ESRD, there is typically a 3-month waiting period after starting regular dialysis before Medicare coverage begins (though coverage can be retroactive). However, this waiting period can be waived if the person participates in a home dialysis training program or is admitted for a kidney transplant. Regarding work credits - this is a common misconception. While regular Medicare at 65 requires 40 credits for premium-free Part A, the ESRD Medicare provision does NOT require work credits. Someone can qualify for Medicare based solely on their ESRD diagnosis, even with zero work credits. They may have to pay premiums for Part A if they don't have sufficient work credits, but they can still enroll.
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Callum Savage
WHATEVER YOU DO, make sure she doesn't go more than 8 months without Medicare Part B coverage once she stops working!! I made that HUGE mistake when I retired at 68 and thought my retiree insurance was enough. When I tried to get Part B later they hit me with a LIFETIME PENALTY on my premiums that I'm still paying extra for EVERY MONTH!!! It's 10% MORE for each full 12-month period you could have had Part B but didn't sign up. The SSA doesn't care about your reasons or excuses!!
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Khalil Urso
•Oh wow, I had no idea there could be a permanent penalty! I'll make sure she knows about that. Did you have any luck appealing the penalty?
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Callum Savage
•Nope, no luck with appeal. SSA said I didn't qualify for a Special Enrollment Period because I didn't follow the rules exactly. Make sure she gets proper documentation from her employer about when her work coverage ends. That's what tripped me up - couldn't prove my dates exactly!
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Ally Tailer
Has your sister tried getting through to SSA? I had a similar Medicare question last month and called for 3 days straight before giving up. Their hold times are ridiculous!
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Aliyah Debovski
•Try using Claimyr (claimyr.com). It's a service that waits on hold with Social Security for you and calls you when an agent is on the line. Saved me hours last week when I had to sort out an overpayment issue. They have a video showing how it works here: https://youtu.be/Z-BRbJw3puU - totally worth it for complicated situations like this where you need to speak to an actual person.
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Landon Flounder
The most important thing your sister needs to know is that for ESRD patients, Medicare covers dialysis at 80% with NO CAPS. Most private insurance has annual or lifetime maximums that she could hit quickly with ongoing dialysis. If she has Part A already, adding Part B would mean Medicare could cover her dialysis treatments regardless of her employment status. Also, make sure she looks into Medicare Advantage plans that might have better coordination of care for her complex conditions. With both kidney disease and arthritis requiring regular treatments, she would benefit from a plan that helps manage multiple specialists.
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Brian Downey
•careful with advantage plans tho!! my mom switched to one and they wouldnt let her see the specialists she wanted. regular medicare let her go to ANY doctor that takes medicare. advantage plans have networks just like hmos
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Landon Flounder
•That's a fair point. Traditional Medicare with a good Medigap/supplemental plan might be better for someone with complex conditions who needs specific specialists. The tradeoff is that Advantage plans often include prescription drug coverage and sometimes extras like transportation to medical appointments, which can be valuable for someone getting regular dialysis. It really depends on whether her preferred providers are in-network with available Advantage plans in her area.
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Khalil Urso
Thanks for all this helpful information everyone! I spoke with my sister and we've decided that she's going to talk to the social worker at her dialysis center first thing tomorrow. She's also going to check with her HR department about exactly what kind of health coverage she has now and what her STD/LTD options look like. We now understand that switching to SSDI isn't an option at her age, but the information about Medicare's special provisions for kidney disease patients is a game-changer. I'm going to help her enroll in Part B right away to avoid any future penalties.
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Myles Regis
•That sounds like an excellent plan. One more tip: make sure she gets the Medicare coverage to start before ending her employment if possible. There's a special form her employer needs to fill out (CMS-L564) to verify she had creditable coverage through work, which will help her avoid any Part B penalties. Wishing her all the best with her health challenges.
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