Social Security Administration

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Ask the community...

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Alice Fleming

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One more thing your neighbor should know - if the twins are turning 18 while still in high school, they can continue receiving benefits until they graduate or turn 19, whichever comes first. She'll need to provide proof of school enrollment to SSA. This might give her a few more months of the higher benefit amount to prepare for the decrease.

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Megan D'Acosta

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This is so important! My son almost lost benefits his senior year because I didn't know about the school enrollment form. Saved us about $4k by filing it!

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Sarah Ali

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dont the older kids qualify for benefits themselves if theyre disabled too? might be worth checking into if either of the older ones have any disabilities that might qualify them for SSI after they age out of the parent's benefit

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Steven Adams

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That's an interesting point, but fortunately (or unfortunately in this case I guess), none of the children have disabilities. The mom is the only one receiving SSDI due to her disability. I appreciate the suggestion though - it's definitely something others in similar situations should look into!

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Carmen Ruiz

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The whole system is rigged against regular people trying to retire with dignity! I worked 40+ years and paid in every paycheck and now they want to cut benefits if you try to still work a little to make ends meet??? And these complicated rules about WEP and GPO that nobody understands until its too late. Its designed to confuse us! Im sorry but im so tired of this system that takes and takes but doesnt want to give you what youve earned!

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StarStrider

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I feel your frustration. It's overwhelming trying to figure all this out, and there seem to be so many ways they can reduce benefits that you're counting on for retirement. I've contributed for 30+ years and it's scary to think my benefit could be much less than expected.

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Jamal Anderson

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To address the original question one more time with absolute clarity: 1. Pension income DOES NOT count toward the earnings limit. Only income from active work (wages or self-employment) counts. 2. If you work part-time after starting benefits, only those work earnings count. 3. The earnings limit is adjusted annually. For 2025, it will likely be around $22,680 if you're under Full Retirement Age the entire year. 4. At 62, your benefit is permanently reduced by about 30% compared to your Full Retirement Age benefit. 5. Given your pension situation, I strongly recommend contacting SSA directly about potential WEP impacts before making your final decision about when to claim benefits.

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StarStrider

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Thank you for the clear summary. I'm definitely going to contact SSA directly to understand my specific situation, especially regarding the WEP impact. Based on all the feedback, I'm now reconsidering my plan to claim at 62 and might wait longer to avoid such a significant permanent reduction.

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Ravi Gupta

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For your specific question about preparing for age 18: 1. Begin collecting comprehensive documentation now: - Full psychological/cognitive evaluations (within last 3 years if possible) - School records including IEPs and functional assessments - Medical records from all treating physicians - Documentation of therapies and interventions - Daily living skills assessments 2. Consider requesting a full neuropsychological evaluation before she turns 18 if her last IQ test was at age 9. Updated testing will strengthen her application. 3. Apply for adult SSI the month she turns 18 (you can start the process slightly before). 4. Look into whether she might qualify for SSDI under the Disabled Adult Child (DAC) provision if either parent is deceased, disabled, or receiving retirement benefits. 5. Prepare for the possibility of appeal - many first-time applications are denied and require reconsideration or hearing.

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StarStrider

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This is EXACTLY what I needed! Thank you so much. We definitely need updated testing - I'll talk to her doctor about referring us for a new neuropsych evaluation. Is there a specific form or report we should ask for that SSA prefers?

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Chloe Anderson

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my friends kid got turned down even tho he had autism because they said his iq was too high, it was like 85 i think. your daughter having 71 will probably help her case

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StarStrider

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That's good to know. Her functioning is definitely significantly impaired both academically and in daily living skills, so hopefully that will be clear in the evaluation.

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Amina Sow

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One additional resource to consider: Contact your state's SHIP (State Health Insurance Assistance Program) or P&A (Protection and Advocacy) organization. They often have benefits counselors who specialize in these complex situations involving disability benefits and Medicaid. They can provide free guidance on the Pickle Amendment application and other potential options for maintaining healthcare coverage. The transition periods you're concerned about (at age 16 and again at 18) require careful planning. A benefits counselor can help you map out the timeline and understand all available options. These services are free and often more knowledgeable than general SSA staff about these specific situations.

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GalaxyGazer

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yes! the P&A people helped us so much. regular ssa workers dont always know the special rules but the P&A people deal with this stuff everyday

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Oliver Wagner

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This whole system is DELIBERATELY complicated. They make it impossible to navigate so people give up. My daughter lost benefits for 8 months because of contradictory information from SSA. We finally got a lawyer who specializes in disability benefits and suddenly everything got fixed. Had to pay for the lawyer but it was worth it because we got backdated benefits. The government agencies work against disabled people, not for them.

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Paolo Conti

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THIS!!! 👆 they hope we give up. my cousin fought for 2 yrs to get proper benefits for her son. system is rigged against us caregivers

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Has anyone used the online appointment scheduler thingy on the website? I thought I saw something about that but couldn't find it again.

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Natalie Chen

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You might be thinking of the online benefit application, which is different from scheduling an appointment. Currently, SSA doesn't offer online appointment scheduling - you still need to call the 800 number to set up an appointment. They've talked about adding this feature for years but it hasn't happened yet.

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Maria Gonzalez

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I HATE calling Social Security!!! Was on hold for THREE HOURS last month trying to fix an underpayment issue. The whole system is BROKEN! They make it IMPOSSIBLE for seniors to get help! And don't even get me started on their website - looks like it was designed in 1995 and never updated! 😡

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Elijah Brown

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yep same here. tried calling 6 times last year about my widows benefits. gave up and just went in person

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Should I start Social Security immediately after retiring if I'm no longer earning income?

I just retired on April 1st this year and I'm confused about when to start my Social Security benefits. I haven't applied yet because I've always heard delaying increases your benefit amount. But then I noticed something on the SS.gov website that's making me question everything. It says the benefit estimates are "based on your earnings to date and assume you continue to earn the same salary per year until you start your benefits." Well, now my salary is ZERO since I'm fully retired. So if I'm not working anymore, am I actually losing money by waiting to claim? If they're assuming I'm still earning my previous salary ($78,500/year) in their calculations but I'm actually earning nothing, does that mean my monthly SS amount won't actually increase by waiting? It feels like I might be leaving money on the table by delaying. Why do they keep telling us we're better off waiting for a higher monthly amount if the calculation isn't actually increasing once we stop working? Does anyone understand how this really works? Should I have filed for benefits the moment I retired?

Ethan Wilson

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My neighbor started collecting at age 62 even though she was still working part-time and she got hit with that earnings limit thing where they took back some of her benefits. Make sure you understand that too!!! If you go back to work before your FRA there's a limit to how much you can earn (like $19k or something?) before they reduce your benefit. After FRA there's no earnings limit tho.

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NeonNova

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i got so confused by all the conflicting advice that i just went to my local ss office and had them explain everything. took half a day but worth it. way better than trying to figure it out online.

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Yara Sayegh

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Watch out for how they define 'earnings' too!!!! My frend had some vacation pay and sick time paid out when she left her job and SSA counted that toward her earnings limit even though it was bascially savings she had built up. Make sure u ask about that if ur getting any kind of separation pay or unused PTO payout!

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Oliver Schulz

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Yes! This happened to me too - had 6 weeks of vacation payout when I retired and it pushed me over the monthly limit for that month. The rule is that income counts when it's EARNED not when it's PAID, but certain types of payments like vacation/sick payouts count when received. It's confusing but really important to understand.

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Connor Murphy

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Let me clarify a few final points that might help you: 1. For the monthly test to apply, you need to be a "retired" beneficiary, which means having monthly earnings below the limit ($1,960 for 2025). 2. If you work in September making over $1,960, you won't get benefits for September, but could still get them for October-December if you stay under the limit those months. 3. The earnings limits adjust annually with inflation, so the 2026 limit will likely be higher than 2025's $23,500. 4. When you eventually switch to your own retirement benefits at FRA or later, the earnings test disappears completely - that's often overlooked but very valuable. The survivor-to-retirement switch strategy you're using is one of the smartest approaches for maximizing lifetime benefits, so kudos for planning ahead!

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Zainab Omar

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I can't thank you enough for all this guidance! I think I'll schedule my retirement for late August, then start survivor benefits in September while keeping my part-time work under the monthly limit. Then I'll reassess each year until I hit my FRA. You've helped me avoid what could have been a very costly mistake!

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im confused do u get more from his record than ur own? my sister tried to get her exes SS when he died but they told her her own was higher so she had to take that instead. might want to check the amounts before getting ur hopes up

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Chloe Robinson

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Great point. SSA will pay the higher amount between your own retirement benefit or the survivor benefit, not both. However, there's a strategy where you can take reduced survivor benefits early (as early as age 60) and then switch to your own unreduced retirement benefits at your Full Retirement Age (or even delay until 70 for maximum benefits). This works especially well if your own benefit at 70 would be larger than the survivor benefit.

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StarSurfer

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Thank you everyone for your helpful responses! I'm going to gather all my documents this weekend and try to schedule an appointment with SSA next week. I'll definitely ask about the strategy of taking survivor benefits now and possibly switching to my own later. And I'll check out that Claimyr service if I have trouble getting through on the phone. I'm so relieved to know I likely qualify for these benefits - it's been a tough year financially.

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good luck!!! just be prepared for a lot of waiting and paperwork. the money is worth it tho!!!

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Payton Black

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Just a follow-up on timing since you asked: There is a slight retroactivity allowed. Benefits can be paid retroactively for up to six months from the date of application. However, benefits cannot start before the month of the wage earner's death. So your ex-daughter-in-law hasn't missed out on anything yet, but it's still best to apply as soon as possible to start the process rolling. Also, the Social Security office might be able to help with expediting the application if they explain the financial hardship the children are experiencing after losing their father's income. Not guaranteed, but sometimes they can prioritize cases with demonstrated urgent need.

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Angel Campbell

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This is extremely helpful. I'll let her know about the six-month retroactive period but encourage her to apply as soon as possible. I believe they are experiencing financial hardship without my son's income, so I'll suggest she mention that during the application process. Thank you so much.

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Amun-Ra Azra

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My condolences on your loss. Dont forget that if youre helping financially with the grandkids, make sure to document everything in case you can claim them as dependents on your taxes. Might want to talk to a tax person about that situation.

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Gael Robinson

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This is an important point about taxes. Generally, the custodial parent claims the children as dependents, but there are exceptions if you're providing significant financial support. However, be aware that once the children start receiving survivor benefits, those benefits may count as their income (though much of it is likely exempt from taxation at their ages and benefit amounts). The mother, as representative payee, will receive tax forms for the benefits. This gets complicated, so consulting with a tax professional is excellent advice.

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Eduardo Silva

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I just remembered something important - ask the doctor to write a note specifically stating your husband cannot work! My husband's neurologist wrote a detailed letter about his limitations and I think that made a big difference in his approval.

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Isabella Costa

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Thank you everyone for the helpful advice. After showing my husband these responses, he finally agreed not to work during the application process. We're gathering all his medical records, VA disability documentation, and will be asking his doctors for detailed statements about his limitations. I'm nervous about our finances, but his health and securing these benefits is more important right now. I'll update once we get further in the process.

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Leila Haddad

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That's a wise decision. Remember that if he's approved, SSDI benefits can be paid retroactively for up to 12 months before the application date (depending on when disability began), which might help with financial concerns. Best of luck to you both during this challenging time.

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