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I'm dealing with a similar situation right now and this thread has been incredibly helpful! I'm 64 and took early retirement last year, but recently developed chronic kidney disease that's progressing rapidly. My nephrologist says I'll likely need dialysis within the next 6 months, which would make working impossible. Reading about the disability freeze and potential benefit increase gives me hope that I might have options. Has anyone here dealt specifically with kidney disease for SSDI approval? I'm wondering if conditions that worsen over time (rather than sudden onset) face different challenges in the approval process.
I'm sorry to hear about your kidney disease diagnosis. Progressive conditions like CKD can actually be easier to document for SSDI purposes because there's typically a clear medical timeline showing deterioration. The SSA has specific listings for chronic kidney disease (Section 6.02) that include criteria for creatinine clearance levels and need for dialysis. Your nephrologist's documentation will be crucial - make sure they document your current kidney function levels, prognosis, and how the condition limits your daily activities and work capacity. Since you're still under your FRA, you're in a good position to apply. The key is establishing that your kidney disease reached disabling levels before you reach full retirement age. Keep all your lab results and specialist reports - they'll be essential evidence for your case.
Jessica, I wanted to add to what Amaya shared - kidney disease cases often have good outcomes with SSDI because the medical evidence is so objective. My brother-in-law went through this process two years ago when his kidney function dropped below 30%. The key things that helped his case were: 1) Regular lab work showing declining GFR over time, 2) Documentation from his nephrologist about fatigue and other symptoms affecting his work capacity, and 3) Records showing he was placed on the transplant waiting list. Since you're already working with a nephrologist who can document the progression, you're in a much better position than people trying to prove subjective pain conditions. The fact that dialysis is anticipated actually strengthens your case significantly - SSA recognizes dialysis as automatically disabling under their listings. Don't wait too long to apply though, since you need to establish the disability onset before your FRA. Good luck!
I've been following this discussion as someone who went through a similar process recently. One thing I haven't seen mentioned yet is the importance of timing your application strategically. Since you're already 65 and receiving reduced retirement benefits, you have a limited window to apply for SSDI before reaching your full retirement age (which sounds like it's 66 and 6 months for you). What really helped in my case was filing the SSDI application as soon as possible after my diagnosis, even while I was still gathering medical records. SSA allows you to submit additional evidence after filing, but they can't backdate your application beyond when you actually filed. Given that you mentioned your health has "gotten much worse" since starting retirement benefits, you'll want to establish a clear timeline showing when your conditions became disabling. Also, don't be discouraged if you get conflicting information from different SSA representatives - this is unfortunately common with these crossover cases between retirement and disability. The policy is clear that you can apply, but not all front-line staff are familiar with these more complex situations. Stay persistent and document everything!
This is such valuable advice about the timing aspect! I'm actually in a very similar boat - turned 65 recently and started getting reduced retirement benefits, but my health situation has deteriorated significantly since then. Reading through all these responses has been eye-opening because I honestly didn't even know this was an option. The part about not all SSA staff being familiar with these crossover cases really resonates - I called twice last month and got completely different answers from different representatives. One told me it was impossible, another said "maybe" but couldn't explain how it would work. It sounds like I need to be more persistent and maybe ask specifically to speak with someone who handles disability applications rather than just general customer service. Thank you for emphasizing the importance of filing quickly even while gathering records - I was thinking I needed everything perfect before applying but that could cost me precious time!
Thanks everyone for the helpful responses! This is much clearer now. I'll make sure to stay under the $1,950 monthly limit after I start collecting in June, and I won't worry about what I earned earlier in the year. I really appreciate all the advice!
Just wanted to add that it's a good idea to keep detailed records of your monthly earnings after you start benefits. I recommend creating a simple spreadsheet or using a notebook to track your gross wages each month - this will help you stay under the $1,950 limit and give you documentation if SSA ever questions your earnings. Also, if you have any months where you might go over (like if you get overtime or a bonus), you can always reduce your hours that month to stay under the limit. The key is being proactive about monitoring it!
That's excellent advice about keeping detailed records! I was just thinking I should probably start tracking this stuff now even before I begin benefits in June. Do you think it's worth setting up some kind of alert or reminder system too? Like maybe a weekly check-in to see how I'm tracking against that $1,950 monthly limit? I tend to be forgetful about this kind of administrative stuff, so having a system in place from the start seems smart.
I'm sorry for your family's loss. As someone new to navigating these benefits, I found this thread incredibly helpful. The GPO rules are so complex and it sounds like even with the offset, it's still worth applying since every situation can be different. I had no idea about the time limits for retroactive benefits or the appeals process. Thank you everyone for sharing your knowledge and experiences - it really helps those of us trying to figure out this system for our elderly parents. Wishing your father the best outcome with his application!
Thank you for your kind words! This community has been such a valuable resource. I'm also relatively new to navigating these benefits for elderly family members, and threads like this really help demystify the process. It's encouraging to see people sharing their real experiences rather than just the confusing official documentation. Best of luck to you as well if you're dealing with similar situations for your family!
I'm also dealing with a similar situation for my elderly father who was a federal employee. What I've learned from researching this is that even though the GPO typically reduces benefits significantly, there can be exceptions or special circumstances that aren't immediately obvious. For instance, if your mother had any periods where she worked for government but also paid into Social Security, or if there were any calculation errors in the original benefit amount, it could affect the final determination. I'd definitely recommend getting that official SSA calculation done - sometimes the actual numbers work out differently than the rough estimates we can do ourselves. Also, don't forget to ask about any potential one-time death benefits (like the $255 lump sum) that might not be subject to GPO. Good luck with the application process!
That's really valuable information about potential exceptions and special circumstances! I hadn't thought about the possibility of calculation errors or mixed employment situations. The one-time death benefit is also something I should ask about - every little bit helps with his medical expenses. It's reassuring to know that others are going through similar situations with federal employee parents. This whole process feels overwhelming when you're trying to help an elderly parent navigate it, but hearing from people who've been through it makes it feel more manageable. Thank you for taking the time to share those specific details to look out for!
As someone who's been through the SSA maze myself, I can confirm what others have said - you absolutely CAN choose the higher survivor benefit between your ex-husband and current husband when the time comes. The 10+ year marriage rule for your first marriage is key here, and since you were married almost 12 years, you're covered. One thing I'd add that hasn't been mentioned much is to keep detailed records of BOTH spouses' work histories if possible. When I applied, having information about approximate earnings helped the SSA representative give me a better estimate during my appointment. Also, don't forget that if you're still working when you start collecting survivor benefits before your Full Retirement Age, there are earnings limits that could reduce your benefits temporarily. The strategy that @Zara Khan mentioned about potentially taking a reduced survivor benefit first and switching later is really smart - it's called "claim and switch" and can maximize your lifetime benefits in some situations. Definitely worth exploring with a benefits counselor when you get closer to 60!
Thank you for mentioning the earnings limits - that's something I hadn't thought about! I'm planning to continue some self-employment work past 60, so I'll need to factor that in. The "claim and switch" strategy sounds really intriguing. It's amazing how many variables there are to consider with Social Security planning. I'm grateful for communities like this where people share their real experiences navigating these complex decisions. It gives me confidence that I'll be able to make informed choices when the time comes.
I wanted to add something that might be helpful for your planning - consider also looking into whether either of your husbands has or will have government pensions (federal, state, local). If so, the Government Pension Offset (GPO) could reduce any spousal or survivor benefits you might receive by 2/3 of the pension amount. This doesn't affect your own Social Security benefit, but it could significantly impact which survivor benefit option gives you the most money. Since you're in a planning phase, it's worth asking both spouses about any government employment in their work history. I learned about this the hard way when my friend's teacher's pension nearly eliminated her Social Security survivor benefit. The SSA website has a GPO calculator that can help you estimate the impact if this applies to your situation.
Zainab Mahmoud
I'm new here but dealing with a similar situation, so this thread has been incredibly helpful! I'm 63 and started collecting early retirement last year, then got diagnosed with a chronic condition and applied for SSDI. Still waiting on approval, but reading everyone's experiences gives me hope. One quick question for those who've been through this - when SSA converts your payment from retirement to disability, do you get any kind of notification letter explaining the change? I want to make sure I understand exactly what's happening with my benefits if/when my SSDI gets approved. Also, QuantumQuest, have you considered reaching out to your local SSA field office in addition to calling the main number? Sometimes it's easier to get face-to-face help, especially for complex situations like ours. Just a thought!
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Ivanna St. Pierre
•Welcome to the community! Yes, SSA should send you notification letters when they process benefit changes like converting from retirement to disability payments. You'll typically get an award letter for your SSDI approval that explains your new benefit amount and effective date. They should also send a separate notice explaining how your benefits are being coordinated. That's a great suggestion about visiting the local field office! I've been so focused on trying to call that I didn't even think about going in person. Sometimes face-to-face really is the way to go for these complex situations. Thanks for the tip, and good luck with your SSDI application - sounds like you're on the right track!
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Ava Garcia
I'm also new to this community and this thread has been incredibly informative! I'm currently going through a very similar situation - I'm 64, started early retirement last year, and just got approved for SSDI due to a combination of chronic back issues and diabetes complications. One thing I wanted to add that I learned through my own research: make sure you keep detailed records of ANY work you do, even if it's just a few hours here and there. SSA can ask for this information going back several years, and having good documentation can save you a lot of headaches later. Also, regarding the Trial Work Period that several people mentioned - I was told by my disability attorney that even if you don't use all 9 trial work months, it's still good to be conservative with your earnings. The last thing you want is to accidentally trigger a review of your disability status right when you're getting back on your feet financially. QuantumQuest, your situation with the heart condition improving is actually pretty common - many people worry that if their condition gets better, they'll automatically lose SSDI. But as long as you follow the work rules and report your activity, you should be able to test the waters with part-time work safely. Good luck!
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