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As a newcomer to this community, I wanted to share a resource that might be particularly relevant for your situation with Medicaid waiver payments. I recently helped my aunt navigate a similar issue where she was receiving payments as a family caregiver, and we discovered that the Social Security Administration has a specific internal manual section (POMS DI 10505.010) that addresses how various state Medicaid waiver payments are treated for SSI and SSDI purposes. While this is more technical than some of the other resources mentioned, it could be helpful to reference when you're speaking with SSA representatives to ensure they're applying the correct policy. Also, given all the excellent advice in this thread about timing and coordination, I wanted to mention that you might want to ask about "month of entitlement" rules when you speak with SSA or your Benefits Counselor. These rules determine exactly when your retirement benefits would begin and could affect the timing of when your daughter might be eligible to switch to DAC benefits if that turns out to be advantageous. One practical tip from our experience - when you do apply, consider asking the SSA representative to annotate your file with notes about the Medicaid waiver payment exclusion and any references to the POMS sections people have mentioned. This can help prevent confusion if different representatives handle your case during processing. This thread has been incredibly informative - it's amazing how supportive and knowledgeable this community is. Best of luck with your decision!
Thank you for sharing that specific POMS reference (DI 10505.010) - having the exact manual section that addresses Medicaid waiver payments for family caregivers will be incredibly helpful when I meet with SSA representatives. I really appreciate you mentioning the importance of asking them to annotate my file with notes about the waiver payment exclusion and POMS references. That's such a smart way to prevent confusion if different representatives handle my case during processing - I never would have thought to ask for that! The "month of entitlement" rules you mentioned sound like another crucial timing detail I need to understand, especially given how much coordination might be needed between my retirement application and my daughter's potential DAC benefits. With my 62nd birthday coming up next month, understanding exactly when benefits would begin could make a real difference in our overall planning. This entire discussion has been absolutely transformative for my understanding of this process. I started with one simple question about whether Medicaid waiver payments count toward earnings limits, and now I have a comprehensive list of resources, timing considerations, documentation requirements, and strategic factors I never knew existed. The knowledge and generosity of this community has been amazing - I feel so much more confident about navigating this complex situation now. Thank you to everyone who has shared their experiences and expertise!
As a newcomer to this community, I wanted to thank everyone for creating such an incredibly comprehensive and helpful discussion! I'm currently in my early 60s and dealing with some similar benefit coordination questions for my disabled adult son, so reading through all of these responses has been tremendously educational. One additional resource I wanted to mention that might be helpful - the National Academy of Social Insurance has some excellent publications that explain Social Security benefit interactions in plain language. Their "Social Security Brief" series includes documents specifically about family benefits and earnings tests that could complement all the great technical references people have shared here. Also, based on everything I've read about the importance of timing and documentation, you might want to consider creating a simple checklist of all the steps you need to take based on this thread - things like contacting Kentucky DAIL, gathering the POMS references, setting up consultations with advisors, etc. Having a concrete action plan can help ensure you don't miss any of the valuable suggestions people have made. Your situation really highlights how complex these benefit interactions can be, but also shows what an amazing resource this community is for people navigating these challenges. The generosity of everyone sharing their knowledge and experiences has created an incredible roadmap for you. Best of luck with your decision-making process!
I'm so sorry for your loss. Going through this while grieving is incredibly difficult, and you're being very wise to research everything thoroughly before making decisions. I wanted to add something that hasn't been mentioned yet - when you do finally get through to SSA (whether through traditional phone lines or services like Claimyr that others mentioned), ask specifically about "protective filing." This allows you to establish an intent to file date while you're still gathering information and making your final decision. It can protect you from losing any potential back benefits if you decide to claim retroactively later. Also, since you mentioned making $68k annually and are concerned about the earnings test, consider whether your income varies significantly by month or if you have any control over the timing of bonuses, commissions, or other variable income. In the year you reach FRA, strategic timing of when you receive certain income could help you stay under the $59,520 limit for the months before your FRA. One more practical tip: if you have access to your late husband's Social Security statement or know his earnings history, you might be able to get a rough estimate of your survivor benefit amount using online calculators before speaking with SSA. This can help you verify whether the amounts they quote you are in the right ballpark. The strategy others outlined (survivor benefits at FRA, then switching to your own at 70) does sound promising based on your situation, but definitely get those exact numbers confirmed in writing before proceeding.
This is such valuable information, thank you! The protective filing concept is something I definitely need to understand better - it sounds like it could provide some peace of mind while I'm still working through all the details. Your point about strategic timing of income in the year I reach FRA is really smart. I do receive an annual bonus in December, so if I'm reaching FRA mid-year, I might be able to time things to stay under that $59,520 limit for the months that count. I actually do have access to my husband's Social Security statements, so I'll look into those online calculators you mentioned. Having a rough estimate before talking to SSA would definitely help me spot if they're giving me incorrect numbers. The protective filing option especially appeals to me because it feels like it would give me some breathing room to make sure I fully understand my options without worrying about missing out on benefits. I'll definitely add that to my list of specific questions. Thank you for thinking of these practical details that I wouldn't have known to ask about otherwise. This community has been incredibly helpful in preparing me for these conversations with SSA!
I'm so sorry for your loss. Having navigated this myself when my spouse passed, I wanted to share a few additional considerations that might help with your planning. Since you're making $68k annually and planning to continue working, one thing to consider is how your survivor benefit amount might affect your overall tax bracket and retirement savings strategy. If taking survivor benefits at FRA allows you to reduce or redirect your current retirement contributions (401k, IRA, etc.) while still maintaining your lifestyle, you might be able to optimize your tax situation over the long term. Also, I noticed you mentioned your husband passed last year - depending on when exactly that was, you might have some timing flexibility for when you want to start survivor benefits. There's no requirement to start them immediately at FRA if waiting a few months works better with your work schedule or other life circumstances (though they don't grow with delayed credits like your own retirement benefits would). One more thing about the earnings test that I learned the hard way - if you have any consulting income, rental property, or other "self-employment" income alongside your W-2 job, make sure you understand how ALL of your earnings count toward those limits. The SSA counts more than just your regular salary when applying the earnings test. The community here has given you excellent advice about documenting everything and getting multiple opinions. Trust your instincts - if something doesn't sound right, keep asking until you get consistent answers from SSA representatives.
As a newcomer to this community, I'm blown away by the depth of knowledge and support shared in this thread! Coming into this discussion without much understanding of Social Security benefits, I've learned so much about DAC eligibility for stepchildren. The combination of professional expertise, real success stories, and detailed documentation strategies has created an incredible resource. What particularly stands out to me is how the community emphasizes both persistence and proper preparation - showing that while these cases are complex, they're absolutely winnable with the right approach. The practical tips about gathering everything from medical professional letters to state disability service records, plus understanding concepts like protective filing and technical expert reviews, give families a clear path forward. Thank you all for sharing your experiences so generously - this kind of community support is invaluable for navigating these challenging government processes!
Welcome to the community! I'm also new here and have been absolutely amazed by how comprehensive and helpful this entire discussion has been. As someone who knew virtually nothing about Social Security benefits before reading this thread, I feel like I've gotten a crash course in DAC eligibility for stepchildren. What really impresses me is how everyone has shared not just the technical requirements but also the emotional support and encouragement needed to navigate what can clearly be a challenging process. The real-world examples of successful documentation strategies - from organizing financial records to getting professional letters from medical providers and case managers - make this feel so much more achievable. I'm particularly grateful for the emphasis on persistence and not accepting initial denials, plus learning about resources like technical expert reviews. This community truly demonstrates how sharing knowledge and experiences can make such a difference for families dealing with complex government benefits. Thank you for highlighting how valuable this discussion has been!
As a newcomer to this community and someone just learning about Social Security benefits, this entire discussion has been absolutely invaluable! I had no idea that stepchildren could potentially qualify for DAC benefits, and the wealth of information shared here has given me such a comprehensive understanding of what's involved. What strikes me most is how everyone has emphasized that while the documentation requirements are extensive, success is definitely achievable with proper preparation and persistence. The real-world examples - from gathering financial records showing indirect support to getting professional letters from medical providers - create such a clear roadmap. I'm particularly encouraged by the success stories shared, especially knowing that initial denials can be overcome with thorough documentation and technical expert reviews. The professional insights about protective filing and the importance of both financial dependency and "living as family" evidence have been eye-opening. Thank you all for creating such a supportive environment where families can learn from each other's experiences and get the guidance they need to navigate these complex government processes!
I'm dealing with a very similar situation right now and your post really helped me understand that I'm not alone in this confusion! After reading through all these responses, I think I finally have a clear picture of what's happening. Like many others here, I've gotten completely different answers from SSA phone reps about whether COLA adjustments are included in spousal benefit calculations. It's incredibly frustrating when you're trying to plan your retirement and can't get consistent information from the agency itself. Based on everyone's experiences shared here, it's clear that YES - your spousal benefit should definitely be calculated using your husband's current PIA with ALL the COLA adjustments applied since his 2021 FRA. Your $175 monthly difference calculation sounds very realistic given what others have reported with similar timeframes. I'm planning to follow the advice that multiple people have given: visit my local SSA office in person with my spouse's benefit statements and use the specific phrase "current PIA with all COLA adjustments applied since FRA." It seems like the in-person representatives are much more knowledgeable than the phone staff. One thing I've learned from reading this thread is how important it is to get written documentation of whatever calculation they give you. Too many people have experienced getting different numbers each time they call. Thanks for starting this discussion - it's been incredibly valuable for those of us navigating this confusing system!
I'm so glad you found this thread helpful! As someone who's also new to navigating Social Security, it's been eye-opening to see how many people have struggled with getting accurate information about COLA adjustments and spousal benefits. The consistency in everyone's experiences - especially the frustration with phone reps giving conflicting answers - really validates that this isn't just user error but a real problem with how information is communicated. What strikes me most is how significant the financial impact can be. When you're talking about $175+ per month difference over potentially decades of retirement, that's tens of thousands of dollars! It really drives home why it's so important to get this right and not just accept the first answer you get. I'm definitely going to follow the collective wisdom here about visiting the local office in person with all the documentation and using that specific phrase about "current PIA with all COLA adjustments applied since FRA." It sounds like that's the only reliable way to cut through the confusion and get accurate calculations. Thank you for highlighting the importance of written documentation too - I hadn't thought about how crucial that would be for future reference and consistency. This community has been invaluable for learning the real-world strategies that actually work!
I just wanted to add my perspective as someone who recently went through the appeals process for a similar COLA-related miscalculation. After months of getting inconsistent information from phone reps, I discovered that SSA had been using my spouse's original 2020 PIA instead of the COLA-adjusted amount for my spousal benefit calculation. The difference was substantial - about $180 per month, very similar to your $175 calculation. What really helped my case was that I had kept detailed records of all the COLA percentages and had calculated the correct amount myself beforehand. When I finally got to speak with a supervisor at my local office, she acknowledged the error immediately and explained that this type of mistake happens more often than it should, especially when representatives are rushing through calculations or using outdated information in their systems. My advice based on this experience: Don't just get the correct calculation - also ask them to review any previous estimates or applications you may have submitted to make sure they're using the right PIA. If you've already applied or received preliminary estimates based on the wrong number, you may need to request a formal review or correction. The good news is that once it's corrected, they can backdate any adjustments. But it's definitely worth double-checking everything given how common these errors seem to be. Your persistence in questioning the calculations could save you thousands of dollars over the course of your retirement!
DeShawn Washington
As someone who's been helping family members navigate Social Security questions, I wanted to add that this thread has become such a valuable resource! The consistent message from everyone - including CPAs, federal benefits advisors, and people who've actually been through this exact situation - is crystal clear: selling your primary residence will NOT affect your Social Security benefit amount. I think what makes this so confusing initially is that we're used to thinking "any income might affect benefits," but the key is understanding that SSA only cares about "earned income" from working, and only if you're under full retirement age. House sales are capital gains, not earned income, so they're completely off SSA's radar for benefit calculations. At 67, you're already past full retirement age anyway, so even if this were somehow considered earned income (which it's not), the earnings test wouldn't apply. Your monthly checks will stay exactly the same. The peace of mind alone makes it worth understanding these distinctions!
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Diego Rojas
•This thread has been such an eye-opener for me as someone who's completely new to understanding Social Security! I'm in my late 20s and nowhere near retirement, but seeing how many people share this same worry about home sales affecting benefits really shows how important it is to understand these distinctions early. The way everyone has explained the difference between "earned income" and capital gains has been so educational - I never realized SSA was only concerned with work-related income for their calculations. It's also really impressive how this community has come together to provide such consistent, reassuring information backed up by real experiences and professional expertise. I'll definitely be saving this thread as a reference for when I eventually need to help my parents navigate these decisions in the future. Thanks to everyone for making such a potentially confusing topic so much clearer!
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Morita Montoya
I'm new to this community but have been following this discussion with great interest as my mother is in a very similar situation. She's 68 and has been agonizing over whether to sell the family home for months, terrified it would affect her Social Security benefits. After reading through all these incredibly detailed and consistent responses from people who've actually been through this, plus professional confirmation from CPAs and federal benefits advisors, I feel confident explaining to her that her monthly SS checks will remain unchanged. The key insight that really clicked for me is that Social Security Administration only looks at "earned income" from actual work when determining benefit reductions, and even then only for people under full retirement age. Since house sales are capital gains (not earned income) and she's already past full retirement age anyway, she's protected on both fronts. This thread has been such a goldmine of real-world experiences and professional expertise. Thank you to everyone who took the time to share their knowledge - it's going to save my mom months of unnecessary stress!
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