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Social Security Family Maximum confusion with disabled adult child and child-in-care spousal benefits - smaller payments than expected

I'm really confused about our family benefit situation and hoping someone can clarify the Family Maximum rules. My husband (64) started collecting his reduced retirement benefits last year. I'm 61 and caring for our disabled son who's 26 and has been disabled since childhood. I recently applied for Child-in-Care spousal benefits on my husband's record, and we also filed for our son to receive Disabled Adult Child (DAC) benefits. Both applications were approved, but the monthly amounts are WAY lower than we expected! We thought each would be close to 50% of my husband's PIA, but they're significantly less. I think we're hitting the Family Maximum Benefit limit, but I'm confused about how this works. My questions are: 1) Is my husband's own retirement benefit counted as part of the Family Maximum cap? 2) If yes, is it his full PIA amount that counts toward the cap, or just his actual reduced benefit amount since he filed early? We're trying to budget for ongoing care expenses for our son, and the difference of several hundred dollars monthly is really significant for us. Any insights on how the Family Maximum works in this situation?

Lucas Turner

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Yes, the Family Maximum Benefit (FMB) is definitely what's affecting your benefits here. To answer your questions directly: 1) Yes, your husband's retirement benefit DOES count against the Family Maximum calculation 2) It's his actual reduced benefit amount that counts, not his PIA The FMB is typically between 150-180% of the worker's PIA. Since your husband took benefits early, his reduced amount counts toward this cap, but the cap itself is still calculated based on his PIA. This often creates a situation where auxiliary beneficiaries (you and your son) receive less than you might expect. Have you considered whether you might qualify for benefits on your own record instead? That wouldn't be subject to the family maximum on your husband's record.

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Eleanor Foster

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Thank you for the clear explanation. I do have my own work record, but my PIA would be significantly lower than my husband's. I was hoping the child-in-care benefit would be more substantial while we wait until I reach my FRA. So if I understand correctly, the cap is based on his PIA, but his actual reduced benefit counts against that cap, leaving less room for our benefits. That seems so unfair! Is there any way to appeal this calculation?

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Kai Rivera

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had the SAME ISSUE with my grandkids!!! the family max is a KILLER and they dont explain it well at all!! the social security people never mentioned it to me until AFTER everything was approved and the checks started coming. so frustrating!!!

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Eleanor Foster

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It really is frustrating! Did you find any way to get a clearer explanation or increase the benefits? I feel like we're being penalized for my husband taking his retirement early, even though we had no choice with our son's care needs.

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Anna Stewart

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I'd like to add a bit more technical detail on how the Family Maximum Benefit (FMB) calculation works, as it can be confusing. The FMB formula has four "bend points" and is calculated using the worker's Primary Insurance Amount (PIA). It's typically between 150-188% of the worker's PIA, depending on their earning history. When a worker files early, their own reduced benefit is counted first against the maximum. Then, any remaining amount in the "family pool" is divided proportionally among auxiliary beneficiaries (your child-in-care spousal benefit and your son's disabled adult child benefit). So yes, your husband's benefit counts against the maximum, and it's his actual reduced amount that's counted. This leaves less in the family benefit pool to be divided between you and your son. To verify all this is correct, you should request a detailed explanation of your benefit calculation from your local SSA office. They can provide a breakdown showing exactly how the FMB was applied in your specific situation.

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Layla Sanders

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wait i thought disabled children wernt subject to the family maximum?? i read that somewhere i think. or maybe thats only if the child was disabled before 22?? so confused by all these rules!!

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Anna Stewart

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That's a common misconception. Disabled Adult Children (DAC) benefits ARE subject to the Family Maximum just like other auxiliary benefits. You might be thinking of SSI (Supplemental Security Income), which is a different program and isn't affected by the Family Maximum. As long as the disability began before age 22 (which appears to be the case here), the son qualifies as a DAC on the parent's record, but these benefits are still subject to the FMB limits.

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The whole benefits system is DESIGNED to be confusing and shortchange families! I went through something similar when my sister's disability benefits were cut because my dad started collecting. We never got a straight answer from anyone at SS and spent hours on hold only to be told different things by different agents. The whole system seems rigged to pay out as little as possible to families.

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Eleanor Foster

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It really does feel that way sometimes! Each time I've called, I get slightly different explanations. One rep told me it was because of the child-in-care provision, another mentioned the family maximum, and a third just said it was "policy" without further details. So frustrating!

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Kaylee Cook

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I dealt with a similar situation last year. One thing that helped me was calling SSA directly to get a detailed breakdown of the Family Maximum calculation. However, I spent 3 weeks trying to reach someone who could actually explain it properly! I finally had success using Claimyr (claimyr.com) to get through to an SSA agent quickly. Their service connected me to SSA without the usual 2+ hour wait. Totally worth checking out their video demo (https://youtu.be/Z-BRbJw3puU) to see how it works. The agent I reached was able to provide a complete breakdown of how our family maximum was calculated and even found a small error in my son's benefit amount that was later corrected. Regarding your situation, I'd specifically ask for a "PEBES query" which shows the breakdowns of the PIA and family maximum calculations. Sometimes seeing the actual numbers helps make sense of why the benefits are lower than expected.

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Eleanor Foster

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Thank you! I hadn't heard of the PEBES query before - I'll definitely ask for that. And I appreciate the Claimyr suggestion. I've been trying to get through on the phone for days with no luck. It's worth trying something different at this point because I need actual answers, not more confusion.

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the claimyr thing really works i used it last month when my payments stopped suddenly. got through in 15 minutes instead of waiting all day!

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Lara Woods

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So Im in a slightly different but similar situation with disabled adult son and understanding the family maximum. Husband can file in 2 years and I'm wondering if we should delay his filing to maximize benefits for our son. Does anyone know if delaying the primary earner's benefits affects how much the disabled adult child would get, or is DAC benefit always 50% of PIA regardless of when primary files?

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Lucas Turner

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Great question, and something the original poster might want to consider too. The DAC benefit is based on 50% of the worker's PIA if the worker is alive (75% if deceased). However, if multiple people are collecting on one record, the Family Maximum will still apply. The key difference with delaying is that when the primary worker delays claiming past Full Retirement Age, they earn Delayed Retirement Credits which increase their benefit above their PIA. Importantly, these Delayed Retirement Credits do NOT increase the Family Maximum, which remains based on the worker's PIA. However, if the primary worker is receiving more, that leaves less of the family maximum "pool" for others. If maximizing total family benefits is your goal, you'd need to calculate whether the increased benefit from delaying would outweigh the reduction to auxiliary benefits due to the family maximum. This is definitely a situation where professional advice might help, as the calculations can get quite complex.

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Kai Rivera

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Whenever I call social security its a nightmare!!! waited 3 hours last time before I hung up. Anybody found a way to actually talk to a real person there without wasting your whole day??

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Kaylee Cook

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As I mentioned above, I had good results with Claimyr (claimyr.com). They got me through to an agent in about 10 minutes when I was dealing with my family maximum issue. They have a video that shows how it works: https://youtu.be/Z-BRbJw3puU Before that, I tried calling right when the office opened, calling different field offices, and even trying the 800 number at weird times like 4:30pm. Nothing worked until I tried this service.

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Eleanor Foster

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Quick update after speaking with SSA (finally got through!): The agent confirmed that my husband's reduced benefit is counting against the Family Maximum, which is why our son's DAC benefit and my child-in-care spousal benefit are both reduced. The agent explained that the Family Maximum is approximately 175% of my husband's PIA in our case. Since he took retirement 2 years early, his benefit is reduced to about 87% of his PIA. This means our son and I are splitting the remaining portion of the maximum (about 88% of PIA), and it's being divided proportionally between us. I also learned that if I were to wait until my FRA to claim regular spousal benefits (not child-in-care), my benefit would increase, but our son's would decrease further to stay within the maximum. The whole system seems designed to keep families from receiving full benefits! Thank you all for your help in understanding this complex issue.

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Anna Stewart

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Thanks for sharing this update! Your situation perfectly illustrates how the Family Maximum works. The 175% figure is typical, and you've now seen firsthand how it impacts multiple beneficiaries. One thing to consider for the future: when you reach your own Full Retirement Age, you might want to run calculations on whether claiming on your own record might be more advantageous than the spousal benefit, especially given the FMB constraints. If you've had significant earnings, your own benefit might provide more than the restricted spousal benefit after the family maximum is applied. Best of luck with everything!

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Layla Sanders

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glad u figured it out! the system is way too complicated, even the agents get confused sometimes. my aunt got 3 different answers from 3 different people at ssa about her widows benefits!!

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