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Grace Patel

Social Security DAC benefits for adult child with autism - switching between parent records

My family's situation is a bit complex, and I'm trying to plan ahead for retirement. I'm 55 with limited work history (stopped working in 2015 to care for my autistic son, who's now an adult). My husband is 48 and the primary earner ($165K/year). According to my SSA calculations, my FRA PIA would be around $1,450 at age 67, and I'd get a spousal top-up of about $375 to reach half of my husband's benefit (his PIA is approximately $3,650). He's adamant about retiring at his FRA, not a day later. My main question is about our adult son with autism. Could he qualify for Disabled Adult Child (DAC) benefits on MY record initially, then switch to my husband's record once he starts collecting? What timing would maximize our family's benefits? I know there are strict rules about DAC eligibility and I'm confused about how the coordination between different family members' records works.

ApolloJackson

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Yes, your son might qualify for DAC benefits if his disability began before age 22, which sounds like the case with autism diagnosed in childhood. The way switching between records works is that your son would be eligible for 50% of your PIA when you start collecting retirement benefits, but could later switch to 50% of your husband's larger benefit when your husband files (up to 75% if your husband is deceased). The optimal strategy depends on several factors: 1. When you plan to take your own retirement (62? FRA?) 2. The severity of your son's disability (must be unable to perform SGA) 3. Whether your son receives SSI currently If your son qualifies for DAC benefits, the earliest he could receive them is when you file for your own retirement, even if that's early at 62. Then when your husband files, your son could switch to the higher amount based on your husband's record.

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Grace Patel

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Thank you! His disability definitely started before 22 - he was diagnosed at age 5. He doesn't receive SSI currently because our household income is too high, but we've documented his disability thoroughly with his doctors. I was planning to file at 62 (in 7 years), but would it make more sense to wait until my FRA if that helps my son get more? My husband won't reach his FRA until I'm 74, so there would be quite a gap between when I could start benefits and when he would.

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I went through something similar with my disabled daughter. The SSA made it INCREDIBLY DIFFICULT to get the DAC benefits approved!!! They denied us TWICE before finally approving on appeal. Make sure you have EXTENSIVE medical documentation going back to childhood showing the disability started before 22. Also they will check if your son can do "substantial gainful activity" which was $1,550/month in 2024 (probably higher now). If he earns more than that they will deny him regardless of diagnosis!!! The whole system is BROKEN and designed to deny deserving people!!

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Rajiv Kumar

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this is so true! my brother has downs syndrome and we got denied the first time too. we had to get a lawyer to help with the appeal and then they finally approved it. the SSA workers dont even know their own rules half the time

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The key thing to understand is that your son can draw DAC benefits on your record when you file for retirement, then later switch to your husband's record when he files. This is specifically allowed under Social Security rules. I would consider these factors for maximum family benefits: 1. If you file at 62, your benefit would be reduced to about $1,015 (70% of your FRA amount), and your son would get 50% of that ($507). 2. When your husband files at his FRA, your son could switch to his record and receive 50% of $3,650 ($1,825) - a significant increase. 3. There's also the family maximum to consider - typically 150-180% of the worker's PIA. This might limit the total benefits your family can receive on one record. If maximizing your son's lifetime benefits is the goal, you might consider filing early while your husband delays, giving your son access to benefits sooner while eventually allowing him to switch to the higher amount.

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Grace Patel

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Thank you for breaking down the numbers - that really helps. I didn't think about the fact that filing early would reduce not just my benefit but also what my son could receive on my record. But I suppose getting something earlier might still be better than waiting several more years for the full amount? Does the family maximum apply even when it's just me and my son on my record (not my husband)? I'm trying to understand if there would be any reduction there.

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Liam O'Reilly

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my cousin has an autistic son too and he gets benefits on her record. but they made him go through so many evaluations it was exhausting. they want to see if he can work at all. does your son have a job? if he does they might say he doesnt qualify even with autism. its really frustrating honestly

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Grace Patel

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He's never been able to hold a job - he's participated in some vocational programs through his school but hasn't been able to function independently in a workplace environment. He needs substantial support for daily living activities. Did your cousin have to provide specific documentation about employability? I'm trying to prepare for what they might ask for.

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Chloe Delgado

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I struggled with the SSA phone lines for WEEKS trying to get answers about my disabled son's benefits. The hold times were ridiculous - 3+ hours only to get disconnected! Finally I found Claimyr (claimyr.com) which got me through to a real SSA agent in under 20 minutes. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU The agent I spoke with explained that DAC benefits require proving disability onset before 22 AND continuous disability. For my son, we needed to provide school records, medical evaluations, and statements from doctors establishing his inability to perform substantial work. They were actually really helpful once I could speak to someone! Sounds like your son would qualify based on what you've shared, especially if his autism severely limits his ability to work.

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Grace Patel

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Thank you for the tip about Claimyr! I've been dreading making those calls because I've heard how difficult it is to get through. Did they explain what kind of medical documentation was most important? We have his original diagnosis, IEP records from school, and ongoing psychiatric evaluations.

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Chloe Delgado

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The most valuable documentation according to the agent I spoke with was: 1) the original diagnosis showing onset before 22, 2) recent medical assessments (within the past year) explicitly stating how his condition prevents substantial gainful activity, and 3) a detailed statement from his current doctor about specific functional limitations. The IEP records are also extremely helpful as they document educational accommodations needed throughout school years. Make sure everything is dated and signed by medical professionals.

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Ava Harris

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just wondering but doesnt the family maximum benefit rule come into play here? i think thats like 150-180% of the primary workers benefit or something like that. might limit what everyone gets.

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Yes, the family maximum does apply. For retirement benefits, it's typically around 150-180% of the worker's PIA. So on the mother's record with a PIA of $1,450, the family maximum might be around $2,610 (180%). With just her and her son, they'd be under that limit since her benefit plus 50% for her son would total about $2,175. On the husband's record with PIA of $3,650, the family maximum might be around $6,570. With him, his wife getting spousal benefits, and their son getting DAC benefits, they'd total about $7,300 without the family maximum ($3,650 + $1,825 + $1,825), so they might see some reduction. However, these are approximations and the exact family maximum formula is complex and varies based on the PIA amount.

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Rajiv Kumar

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when my sister was figuring this out for her kid, she applied for SSI first and got denied because of family income but then she used all that paperwork for the DAC application later. might be worth applying for SSI even knowing you'll get denied just to get the disability determination process started. less headache later.

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Grace Patel

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That's a really smart approach I hadn't considered. Getting the disability determination process started now, even through an SSI application we know will be denied, could save us trouble later. I'll look into that. Did your sister need a lawyer to help with the process?

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Rajiv Kumar

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she didnt need a lawyer for the SSI part but did get one for the actual DAC application. lawyer took like 25% of the backpay but it was worth it cuz they know exactly what forms and medical stuff to submit. honestly the whole thing is so complicated id recommend a lawyer who specializes in SS disability

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ApolloJackson

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Let me address your specific timing question. If you're 55 now and considering filing at 62 (in 7 years), your husband would be 55 at that time and 12 years away from his FRA. Let's map this out: - When you're 62: You could file for reduced benefits (~$1,015/month) and your son could receive DAC benefits on your record (~$507/month) - When you're 74: Your husband reaches FRA, files for his full benefit ($3,650), and your son can switch to his record for higher benefits ($1,825/month), while you receive spousal top-up benefits Is waiting until your husband files at his FRA worth it? That's 19 years from now. If your son received $507/month on your record for 12 years, that's approximately $73,000 in benefits he would receive before switching to the higher amount. Another consideration: if your husband becomes disabled before his FRA or passes away, your son could access benefits on his record sooner. Not something anyone wants to think about, but it's part of comprehensive planning.

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Grace Patel

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Thank you for laying out this timeline - seeing the years and amounts really helps clarify things. You're right that 19 years is a long time to wait, and getting at least some benefits flowing to my son sooner rather than later makes sense. I hadn't even considered the possibility of my husband becoming disabled before his FRA, but that's definitely something to factor into our planning. Would my son's benefit amount be different if my husband filed for disability rather than retirement benefits?

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I'm new to this community but have been following DAC benefits discussions closely as my adult daughter with intellectual disabilities will likely need to apply in the future. From what I've researched, if your husband filed for disability benefits rather than retirement, your son would actually receive the same 50% of his PIA - the calculation doesn't change based on whether it's SSDI or retirement benefits. The key advantage would be timing since disability benefits can start much earlier than retirement benefits. One thing I haven't seen mentioned yet is that you might want to consider consulting with a Social Security attorney who specializes in DAC cases. Many offer free consultations and can help you map out the optimal filing strategy for your specific situation. They can also help ensure you have all the right documentation in place before you apply. Also, have you looked into whether your son might qualify for state disability services or programs? Sometimes having those established can help support the federal DAC application by providing additional documentation of his functional limitations. The timing strategy you're considering (filing at 62 to get some benefits started, then switching your son to your husband's record later) sounds reasonable given the long wait otherwise. Every family's situation is different, but getting something started while planning for the bigger benefit later seems practical.

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Shelby Bauman

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Welcome to the community! Thank you for sharing your research - it's really helpful to know that the benefit calculation stays the same whether it's SSDI or retirement benefits. I hadn't thought about consulting with a Social Security attorney for strategy planning, but that makes a lot of sense given how complex our situation is. Regarding state disability services, my son has received some services through our state's developmental disabilities program, so we do have that documentation. I'll make sure to gather all of that when we start the application process. Your point about the timing strategy being practical really resonates with me. The alternative of waiting 19 years for my husband to reach FRA just seems unrealistic, especially when we could be getting at least some support for my son much sooner. Do you happen to know if there are any downsides to switching between records later, or is it pretty straightforward once both parents are receiving benefits?

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Zara Malik

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From what I understand, switching between records is generally straightforward - Social Security will automatically pay whichever benefit is higher once both parents are receiving benefits. Your son wouldn't need to reapply or go through the disability determination process again since that would already be established from the first application. The main thing to keep in mind is that there might be a brief processing period when the switch happens, but no loss of benefits. I've read that SSA is supposed to handle this automatically, though it never hurts to follow up and make sure it goes smoothly. One other consideration - if your son is receiving any means-tested benefits now or in the future (like Medicaid), the increase in his DAC benefits when switching to your husband's record could potentially affect his eligibility for those programs. Something to discuss with that Social Security attorney when you consult with them. The state disability services documentation you already have will definitely strengthen your case. It shows a pattern of needing support services which helps establish the severity of his limitations for work purposes.

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As someone new to navigating Social Security benefits, I wanted to share what I've learned from my research that might help your situation. One thing that hasn't been mentioned yet is that you should consider requesting a Social Security Statement for both you and your husband to verify the PIA estimates you're working with. Sometimes the online calculators can be slightly off, and having the exact numbers will help you make the best timing decision. Also, I'd suggest documenting your son's daily living needs and work limitations now, even before you apply. Keep a journal or log of the assistance he requires - this type of real-world documentation can be very powerful when establishing his inability to perform substantial gainful activity. Given your timeline, starting the DAC application process about 6 months before you plan to file for your own benefits at 62 might be wise. The disability determination can take several months, and you want everything aligned so benefits can start as soon as you're eligible. Your strategy of filing early to get some benefits flowing while planning for the larger benefit later when your husband files really does make financial sense. That's potentially 12 years of benefits ($507/month = over $73,000 total) that would otherwise be lost by waiting.

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Rami Samuels

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This is really excellent advice, especially about getting the official Social Security Statements to verify the PIA numbers. I've been working with estimates from the online calculators, but you're absolutely right that having the exact figures would give us a clearer picture for planning. The idea of keeping a daily living journal is brilliant - I wish I had started that years ago! I'll begin documenting his daily needs and the level of assistance required for different activities. That kind of concrete evidence about his functional limitations could really strengthen our case. Your suggestion about starting the DAC application 6 months before I plan to file at 62 is very practical. I hadn't realized the disability determination could take that long, so coordinating the timing will be crucial to avoid any gaps in benefits. It's reassuring to hear another perspective that the early filing strategy makes financial sense. When you put it in terms of $73,000 over 12 years, it really highlights how much we'd be giving up by waiting for my husband's FRA. Thank you for breaking this down so clearly!

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Lilah Brooks

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I'm new to this community but wanted to share some insights from my recent experience helping my sister navigate DAC benefits for her adult son with developmental delays. One thing that really helped us was creating a comprehensive timeline showing when his disability began and how it progressed. We included medical records, school evaluations, therapy reports, and even photos/videos from different ages that documented his limitations. The SSA representative told us this chronological approach made it much easier for them to establish the "onset before age 22" requirement. Also, regarding your timing question - we discovered that once your son is approved for DAC benefits on your record, he becomes eligible for Medicare after 24 months of receiving those benefits (just like other SSDI recipients). This could be valuable healthcare coverage independent of your family's employer insurance, especially if you're transitioning to retirement. Your plan to file at 62 and then have your son switch to your husband's record later sounds solid. The key is getting that initial disability determination completed - everything else flows from there. We found that being very organized with documentation and following up regularly (but politely) with SSA helped move things along. One last tip: consider reaching out to your local Area Agency on Aging or disability advocacy organizations. They often have staff who are very familiar with SSA processes and can provide guidance specific to your state's resources.

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Tyrone Hill

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Welcome to the community! Your experience helping your sister is incredibly valuable. The chronological timeline approach you mentioned sounds like exactly what I need to organize - we have documentation scattered across different providers and school systems over the years, so putting it all together in a clear timeline showing progression would definitely help establish that onset before 22. The Medicare eligibility after 24 months is something I hadn't considered at all, but that could be huge for our family's healthcare planning. Right now he's on our employer insurance, but having independent Medicare coverage would give us much more flexibility, especially as we transition toward retirement. I really appreciate the suggestion about Area Agency on Aging and disability advocacy organizations. I hadn't thought to reach out to local resources, but having someone who knows the state-specific processes could be invaluable. Did your sister end up working with any particular type of advocate, or was it more informal guidance? Your point about being organized and following up regularly really resonates - it sounds like this process requires a lot of persistence and attention to detail. Thank you for sharing your family's experience!

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Carmen Vega

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I'm new to this community and wanted to share some additional considerations that might help with your planning. One thing I learned while researching DAC benefits is that the "switching" between records isn't always automatic - you may need to specifically request the higher benefit when your husband begins collecting. It's worth noting this in your calendar to follow up with SSA when the time comes, rather than assuming they'll handle it automatically. Also, regarding your concern about the gap between when you file at 62 and when your husband reaches FRA - have you considered whether your husband might be eligible to file for benefits earlier than his FRA? While his benefit would be reduced, if your son could access the higher amount on his record sooner, it might be worth running those numbers. Sometimes filing at 62 vs FRA isn't a huge difference when you factor in years of additional benefits. Another strategic consideration: once your son is established on DAC benefits, he may also become eligible for certain state Medicaid waiver programs that have different income rules than regular Medicaid. These programs can provide additional support services and might have asset limits that work better for your family's situation. The documentation advice from others here is spot-on. I'd also suggest getting a letter from your son's current doctor specifically addressing his ability to work - not just his diagnosis, but a clear statement about why his condition prevents substantial gainful activity. This type of functional assessment carries a lot of weight with SSA.

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Ethan Taylor

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Welcome to the community! Your point about the switching not being automatic is really important - I definitely don't want to assume SSA will handle that transition seamlessly. I'll make sure to mark my calendar and be proactive about requesting the higher benefit when my husband starts collecting. That's an interesting thought about my husband potentially filing earlier than his FRA. I hadn't considered that option because he's been so focused on waiting until 67, but you're right that we should run the numbers. If the reduction in his benefit is outweighed by my son getting access to the higher DAC amount sooner, plus the additional years of benefits, it could actually work out better financially for our family overall. The information about state Medicaid waiver programs is completely new to me - thank you for bringing that up! My son currently doesn't receive any Medicaid services because of our income, but if DAC benefits open up different pathways with different income rules, that could provide valuable additional support services. I really appreciate the advice about getting a specific functional assessment letter from his current doctor. We have diagnostic information and treatment records, but having a clear statement focused specifically on work limitations and substantial gainful activity sounds much more targeted for what SSA needs to see. I'll schedule an appointment to discuss this with his psychiatrist. This community has been incredibly helpful in thinking through all these strategic considerations I wouldn't have known to ask about!

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I'm new to this community and wanted to add something that might help with your DAC application strategy. One thing I discovered while researching for my own family situation is that you can actually submit a "protective filing" for DAC benefits up to 6 months before you're eligible to receive your own retirement benefits. This establishes your son's application date and can help ensure there's no delay in benefits starting when you do file for retirement at 62. Also, regarding the medical documentation everyone's mentioned - I found that SSA gives significant weight to "Activities of Daily Living" assessments. If your son's doctors haven't already completed one of these formal evaluations, it might be worth requesting. These assessments specifically measure things like ability to manage personal care, handle money, use public transportation, etc. - all directly relevant to determining work capacity. One more consideration for your timing strategy: if you file for retirement at 62 and your son begins receiving DAC benefits on your record, but then your husband experiences a qualifying disability before his planned FRA, your son could potentially switch to his record even earlier than you're currently planning for. While nobody wants to think about disability scenarios, it's worth knowing this flexibility exists within the system. Your approach of starting benefits at 62 rather than waiting 19 years really does make the most sense given your family's circumstances. The certainty of getting some benefits flowing now versus the uncertainty of what might happen over nearly two decades seems like sound financial planning.

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Welcome to the community! The protective filing information is incredibly valuable - I had no idea you could establish an application date up to 6 months before being eligible. That could really help ensure a smooth transition when I do file at 62. The Activities of Daily Living assessment is something I definitely need to pursue. My son struggles with money management, can't use public transportation independently, and needs assistance with many personal care tasks, but we've never had a formal ADL evaluation done. Having that documented assessment specifically focused on work-related capabilities sounds like it would strengthen our application significantly. Your point about the flexibility if my husband were to become disabled is reassuring - it's good to know there are options if circumstances change unexpectedly. While we're planning around his intended FRA retirement, life doesn't always go according to plan. Thank you for reinforcing that starting benefits at 62 makes sense given our timeline. When I think about waiting 19 years versus getting support flowing now, especially with an adult child who needs ongoing care, the choice becomes much clearer. The protective filing strategy you mentioned will definitely be part of our approach. This community has been amazing in helping me understand all these nuances I never would have known to research on my own!

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