Social Security DAC benefits for adult child with autism - switching between parent records
My family's situation is a bit complex, and I'm trying to plan ahead for retirement. I'm 55 with limited work history (stopped working in 2015 to care for my autistic son, who's now an adult). My husband is 48 and the primary earner ($165K/year). According to my SSA calculations, my FRA PIA would be around $1,450 at age 67, and I'd get a spousal top-up of about $375 to reach half of my husband's benefit (his PIA is approximately $3,650). He's adamant about retiring at his FRA, not a day later. My main question is about our adult son with autism. Could he qualify for Disabled Adult Child (DAC) benefits on MY record initially, then switch to my husband's record once he starts collecting? What timing would maximize our family's benefits? I know there are strict rules about DAC eligibility and I'm confused about how the coordination between different family members' records works.
18 comments
ApolloJackson
Yes, your son might qualify for DAC benefits if his disability began before age 22, which sounds like the case with autism diagnosed in childhood. The way switching between records works is that your son would be eligible for 50% of your PIA when you start collecting retirement benefits, but could later switch to 50% of your husband's larger benefit when your husband files (up to 75% if your husband is deceased). The optimal strategy depends on several factors: 1. When you plan to take your own retirement (62? FRA?) 2. The severity of your son's disability (must be unable to perform SGA) 3. Whether your son receives SSI currently If your son qualifies for DAC benefits, the earliest he could receive them is when you file for your own retirement, even if that's early at 62. Then when your husband files, your son could switch to the higher amount based on your husband's record.
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Grace Patel
•Thank you! His disability definitely started before 22 - he was diagnosed at age 5. He doesn't receive SSI currently because our household income is too high, but we've documented his disability thoroughly with his doctors. I was planning to file at 62 (in 7 years), but would it make more sense to wait until my FRA if that helps my son get more? My husband won't reach his FRA until I'm 74, so there would be quite a gap between when I could start benefits and when he would.
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Isabella Russo
I went through something similar with my disabled daughter. The SSA made it INCREDIBLY DIFFICULT to get the DAC benefits approved!!! They denied us TWICE before finally approving on appeal. Make sure you have EXTENSIVE medical documentation going back to childhood showing the disability started before 22. Also they will check if your son can do "substantial gainful activity" which was $1,550/month in 2024 (probably higher now). If he earns more than that they will deny him regardless of diagnosis!!! The whole system is BROKEN and designed to deny deserving people!!
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Rajiv Kumar
•this is so true! my brother has downs syndrome and we got denied the first time too. we had to get a lawyer to help with the appeal and then they finally approved it. the SSA workers dont even know their own rules half the time
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Aria Washington
The key thing to understand is that your son can draw DAC benefits on your record when you file for retirement, then later switch to your husband's record when he files. This is specifically allowed under Social Security rules. I would consider these factors for maximum family benefits: 1. If you file at 62, your benefit would be reduced to about $1,015 (70% of your FRA amount), and your son would get 50% of that ($507). 2. When your husband files at his FRA, your son could switch to his record and receive 50% of $3,650 ($1,825) - a significant increase. 3. There's also the family maximum to consider - typically 150-180% of the worker's PIA. This might limit the total benefits your family can receive on one record. If maximizing your son's lifetime benefits is the goal, you might consider filing early while your husband delays, giving your son access to benefits sooner while eventually allowing him to switch to the higher amount.
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Grace Patel
•Thank you for breaking down the numbers - that really helps. I didn't think about the fact that filing early would reduce not just my benefit but also what my son could receive on my record. But I suppose getting something earlier might still be better than waiting several more years for the full amount? Does the family maximum apply even when it's just me and my son on my record (not my husband)? I'm trying to understand if there would be any reduction there.
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Liam O'Reilly
my cousin has an autistic son too and he gets benefits on her record. but they made him go through so many evaluations it was exhausting. they want to see if he can work at all. does your son have a job? if he does they might say he doesnt qualify even with autism. its really frustrating honestly
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Grace Patel
•He's never been able to hold a job - he's participated in some vocational programs through his school but hasn't been able to function independently in a workplace environment. He needs substantial support for daily living activities. Did your cousin have to provide specific documentation about employability? I'm trying to prepare for what they might ask for.
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Chloe Delgado
I struggled with the SSA phone lines for WEEKS trying to get answers about my disabled son's benefits. The hold times were ridiculous - 3+ hours only to get disconnected! Finally I found Claimyr (claimyr.com) which got me through to a real SSA agent in under 20 minutes. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU The agent I spoke with explained that DAC benefits require proving disability onset before 22 AND continuous disability. For my son, we needed to provide school records, medical evaluations, and statements from doctors establishing his inability to perform substantial work. They were actually really helpful once I could speak to someone! Sounds like your son would qualify based on what you've shared, especially if his autism severely limits his ability to work.
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Grace Patel
•Thank you for the tip about Claimyr! I've been dreading making those calls because I've heard how difficult it is to get through. Did they explain what kind of medical documentation was most important? We have his original diagnosis, IEP records from school, and ongoing psychiatric evaluations.
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Chloe Delgado
•The most valuable documentation according to the agent I spoke with was: 1) the original diagnosis showing onset before 22, 2) recent medical assessments (within the past year) explicitly stating how his condition prevents substantial gainful activity, and 3) a detailed statement from his current doctor about specific functional limitations. The IEP records are also extremely helpful as they document educational accommodations needed throughout school years. Make sure everything is dated and signed by medical professionals.
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Ava Harris
just wondering but doesnt the family maximum benefit rule come into play here? i think thats like 150-180% of the primary workers benefit or something like that. might limit what everyone gets.
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Aria Washington
•Yes, the family maximum does apply. For retirement benefits, it's typically around 150-180% of the worker's PIA. So on the mother's record with a PIA of $1,450, the family maximum might be around $2,610 (180%). With just her and her son, they'd be under that limit since her benefit plus 50% for her son would total about $2,175. On the husband's record with PIA of $3,650, the family maximum might be around $6,570. With him, his wife getting spousal benefits, and their son getting DAC benefits, they'd total about $7,300 without the family maximum ($3,650 + $1,825 + $1,825), so they might see some reduction. However, these are approximations and the exact family maximum formula is complex and varies based on the PIA amount.
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Rajiv Kumar
when my sister was figuring this out for her kid, she applied for SSI first and got denied because of family income but then she used all that paperwork for the DAC application later. might be worth applying for SSI even knowing you'll get denied just to get the disability determination process started. less headache later.
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Grace Patel
•That's a really smart approach I hadn't considered. Getting the disability determination process started now, even through an SSI application we know will be denied, could save us trouble later. I'll look into that. Did your sister need a lawyer to help with the process?
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Rajiv Kumar
•she didnt need a lawyer for the SSI part but did get one for the actual DAC application. lawyer took like 25% of the backpay but it was worth it cuz they know exactly what forms and medical stuff to submit. honestly the whole thing is so complicated id recommend a lawyer who specializes in SS disability
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ApolloJackson
Let me address your specific timing question. If you're 55 now and considering filing at 62 (in 7 years), your husband would be 55 at that time and 12 years away from his FRA. Let's map this out: - When you're 62: You could file for reduced benefits (~$1,015/month) and your son could receive DAC benefits on your record (~$507/month) - When you're 74: Your husband reaches FRA, files for his full benefit ($3,650), and your son can switch to his record for higher benefits ($1,825/month), while you receive spousal top-up benefits Is waiting until your husband files at his FRA worth it? That's 19 years from now. If your son received $507/month on your record for 12 years, that's approximately $73,000 in benefits he would receive before switching to the higher amount. Another consideration: if your husband becomes disabled before his FRA or passes away, your son could access benefits on his record sooner. Not something anyone wants to think about, but it's part of comprehensive planning.
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Grace Patel
•Thank you for laying out this timeline - seeing the years and amounts really helps clarify things. You're right that 19 years is a long time to wait, and getting at least some benefits flowing to my son sooner rather than later makes sense. I hadn't even considered the possibility of my husband becoming disabled before his FRA, but that's definitely something to factor into our planning. Would my son's benefit amount be different if my husband filed for disability rather than retirement benefits?
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