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Savannah Weiner

Will my SSDI DAC benefits decrease when mom claims Social Security spousal benefits?

I'm currently receiving Disabled Adult Child (DAC) benefits through Social Security because of my father's SSDI. My payment is exactly 50% of his monthly benefit amount. My mom has never worked outside the home and is planning to file for spousal benefits when she turns 67 next year. I'm really worried about the family maximum limit affecting my benefits once she starts collecting. Does anyone know if spousal benefits count against the family maximum calculation differently than child benefits? Will my payment go down when my mom starts receiving her benefits? This is stressing me out because I rely completely on my DAC benefits for living expenses.

yes this will affect ur payment. family max is family max no matter what type benefit ppl get from the same record. ur mom gets 50% too so that puts u over the max usually. sorry to be the bearer of bad news

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Oh no... that's what I was afraid of. Do you know roughly how much my payment might go down? Are we talking a small adjustment or a significant cut?

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There's a bit more nuance to this situation. Family Maximum Rules do apply across all auxiliary beneficiaries on a single worker's record, which includes both spouse and child benefits. However, the exact impact depends on your father's Primary Insurance Amount (PIA) and what the Family Maximum actually is for his record. Typically, the Family Maximum ranges from 150% to 180% of the worker's disability benefit. If your father is receiving $2,000 monthly, for example, the family maximum might be around $3,000-$3,600. Since you're already receiving 50% ($1,000 in this example) and your mother will claim another 50%, the total would exceed 100% but might still fall within the family maximum. If the total does exceed the family maximum, then the auxiliary benefits (yours and your mother's) would be proportionally reduced. The worker's benefit (your father's) is never reduced under these rules. I'd recommend calling SSA directly to ask about the specific family maximum on your father's record. This will give you a clearer picture of potential reductions.

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Thank you so much for explaining this! My dad gets about $2,450/month, so I receive around $1,225. Do you know if there's any way to calculate the exact family maximum online, or do I really need to call SSA to find out? Their phone lines are always so backed up.

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I went through something similar when my wife started collecting on my record! You definitely need to be prepared for some reduction. Based on your dad's benefit amount of $2,450, if the family maximum is 180% (which is typical), that would be about $4,410 total allowable benefits for all of you combined. Your dad gets $2,450, you get $1,225, and your mom would be eligible for $1,225. That totals $4,900, which exceeds the family maximum by $490. In this case, only the auxiliary benefits get reduced proportionally. So you and your mom would each see a reduction of about $245 per month from what you'd otherwise receive. This is just an estimate though - your actual family maximum could be different. One important thing to note: your mom might want to consider if claiming at exactly 67 is her best option. If she waits until 70, her spousal benefit won't increase (unlike retirement benefits), so there's usually no advantage to waiting past Full Retirement Age for spousal benefits.

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This is excellent information, but there's one additional factor to consider. If the parent receiving SSDI (the father) is not yet at Full Retirement Age, the family maximum calculation uses a different formula that's typically lower than the retirement family maximum. For SSDI family maximums, the formula is approximately: - 85% of the first $1,308 of the worker's AIME (Average Indexed Monthly Earnings) - 150% of the remaining AIME up to a certain threshold This often results in a lower family maximum than the retirement calculation, which means the reduction to auxiliary benefits might be greater than estimated above. The only way to know the exact amount is to contact SSA and ask specifically about the Disabled Worker Family Maximum on this record.

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my brother lost almost $300 when my mom filed!!! no one told us it would happen either and it totally screwed him up financially for months. call SSA ahead of time to get the EXACT amount so u can plan.

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That's terrible! I'm sorry your brother had to go through that. I'm definitely going to try to find out the exact amount before my mom files. I can't afford to suddenly lose hundreds of dollars from my monthly check.

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I tried calling Social Security about a family maximum question last month and spent THREE DAYS trying to get through. Kept getting disconnected or told the wait time was over 2 hours! Finally I found a service called Claimyr (claimyr.com) that got me connected to an agent in about 15 minutes instead of hours of holding. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU Totally worth it for getting a complicated question answered. The agent I spoke with looked up my specific family maximum and told me exactly how much each person would receive.

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I've heard of that service! Does it actually work? I'm always suspicious of things that sound too good to be true lol

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Yeah it definitely worked for me! The agent I got was really helpful too - gave me precise numbers for our situation which was a huge relief. So much better than stressing for weeks not knowing.

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I'm in a somewhat similar situation with my daughter receiving DAC benefits and my wife now eligible for spousal benefits. One thing that hasn't been mentioned - if you're receiving Medicare, make sure you account for that too when budgeting. If your premium is currently deducted from your SSDI payment and your benefit amount decreases, the percentage of your check going to Medicare will increase. Also, if you're receiving any means-tested benefits like SNAP, housing assistance, or Medicaid (not Medicare), a reduction in your SSDI might actually increase some of those benefits to partially offset the loss. It's complicated but worth looking into ALL your benefits to see the total financial impact.

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That's a really good point about Medicare! I am on Medicare and have the premium taken out of my check. And I do get a small amount of SNAP benefits too. I should probably talk to my benefits counselor about all of this to see how everything will be affected.

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One more thing to consider - if your mother has ANY work history at all, even just a few years of work, she might be able to claim her own retirement benefit if it would be higher than the reduced spousal benefit after the family maximum is applied. It's worth having her check her own Social Security statement online to see if she has enough credits for even a small retirement benefit. Sometimes people forget about work they did decades ago.

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Thanks for suggesting this. My mom did work for about 3 years back in the 80s before I was born, but I don't think it was enough to qualify for her own benefits. But I'll definitely have her check her statement to make sure.

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I work with families in this exact situation. Here's what you should do: 1. Call SSA and specifically ask for the "family maximum amount on your father's record" and then ask "what the auxiliary benefit reduction would be when another beneficiary is added" 2. If there will be a reduction, ask your mom to request a "month-by-month benefit projection" showing what both you and she would receive after she files 3. Consider having your mother schedule her application 3-4 months in advance through a phone appointment, and specifically request that the claims representative make a note about the family maximum calculation 4. If you rely on these benefits for essential expenses, start budgeting now for the potential reduction One important note: if your father passes away in the future, the family maximum calculation changes again, and survivor benefits have a different maximum formula than disability benefits.

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Thank you so much for these specific steps! This gives me a clear plan of action. I especially appreciate the tip about having my mom request the month-by-month projection - I wouldn't have known to ask for that. And I'll definitely start setting aside some money now just in case there's a significant reduction.

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wait i'm confused... I thought DAC benefits were only for adults who became disabled before age 22? Is that what ur situation is? Or are u just a minor child getting regular benefits? The rules might be different.

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You're right that DAC (Disabled Adult Child) benefits are for adults who became disabled before age 22. Based on the original post, it appears they are receiving DAC benefits, not minor child benefits. The family maximum rules apply to both situations, but you're correct that it's important to be clear about which benefit type is involved as some other rules do differ.

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Yes, I became disabled when I was 19, and I'm 34 now. So I receive DAC benefits because my disability began before I turned 22. Sorry if that wasn't clear!

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btw has ur dad been on SSDI for 2 years already? cuz if he just got approved recently and is still in his 24month medicare waiting period, that could change things too. the whole system is so COMPLICATED!!!!!

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Yes, my dad has been on SSDI for about 5 years now, so we're well past the Medicare waiting period. But you're right - this system is INCREDIBLY complicated! Every time I think I understand one part, I discover there are ten more rules I didn't know about.

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I'm so sorry you're dealing with this stress! I went through something very similar when my husband started collecting spousal benefits on my record. The uncertainty was awful because I needed to know exactly how much my budget would be affected. One thing that really helped me was creating a spreadsheet with three scenarios: best case (no reduction), worst case (maximum possible reduction), and most likely case (based on the estimates people have given you here). This helped me prepare mentally and financially for any outcome. Also, when you do call SSA, ask them to mail you a written statement of the family maximum calculation after your call. Sometimes having it in writing helps avoid confusion later, and it's useful if you need to reference it when your mom actually files. The waiting and not knowing is the hardest part, but once you have the actual numbers, you can make a plan. Hang in there!

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That's such a smart idea about the spreadsheet with different scenarios! I'm definitely going to do that. It would help me feel more prepared and less anxious about the unknown. And I hadn't thought about asking for a written statement - that's really good advice too. Thank you for the encouragement, it means a lot to know others have gotten through similar situations!

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I just wanted to add something that might be helpful - if you're concerned about the financial impact, you might want to look into whether your state has any disability-specific financial assistance programs that could help bridge the gap if your benefits are reduced. Some states have supplemental programs for people receiving federal disability benefits. Also, when your mom does file, make sure she asks the SSA representative to explain exactly when the family maximum reduction would take effect. Sometimes there can be a delay between when someone files and when the reduction actually happens to existing beneficiaries, which could give you a little more time to adjust your budget. The whole situation is really stressful, but it sounds like you're being smart by researching this ahead of time instead of being caught off guard. That preparation will definitely help you get through this!

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Thank you for mentioning state supplemental programs - I hadn't even thought about that possibility! I'll definitely look into what might be available in my state. And that's a great point about asking when exactly the reduction would take effect. Even having a few extra weeks or months to prepare could make a big difference in adjusting my budget. I really appreciate everyone's advice here - this community has been so helpful in preparing me for what's ahead!

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I'm really glad you're getting all this information ahead of time! One thing I wanted to mention that I don't think anyone has covered yet - if your benefits do get reduced due to the family maximum, you should know that the reduction would typically go into effect the month after your mom's spousal benefits begin. So if she files in January and her benefits start in February, your reduction would likely also start in February. Also, something that might help with the stress - SSA is required to send you a notice before any reduction takes effect. The notice should explain exactly how much your new benefit amount will be and when it starts. This gives you at least some advance warning, though not as much as you're getting by planning ahead like this. One last tip - if you do experience a significant reduction and it creates a financial hardship, some local disability advocacy organizations or Area Agencies on Aging might be able to connect you with emergency assistance programs or help you navigate other benefit programs that could partially offset the loss. It's worth reaching out if you need support getting through the transition period. You're doing everything right by researching this thoroughly. The uncertainty is tough, but being prepared will make whatever happens much more manageable!

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This is all such valuable information! I really appreciate you mentioning the timeline - knowing that the reduction would start the month after my mom's benefits begin helps me plan better. And it's reassuring to know that SSA will send advance notice, even though I'm trying to get ahead of it now. The tip about disability advocacy organizations is really helpful too. I didn't realize there might be emergency assistance available during the transition period. I'm going to look up what organizations are in my area now so I know who to contact if needed. Thank you so much for all the detailed advice! This whole thread has been incredibly helpful. I'm still nervous about the potential reduction, but I feel so much more prepared and less alone in dealing with this situation. It's amazing how much support and knowledge this community provides!

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I just wanted to share a resource that helped me when I was dealing with family maximum questions - your local SOAR (SSI/SSDI Outreach, Access, and Recovery) program might have benefits counselors who specialize in these exact situations. They're free and really know the ins and outs of how different benefits interact. Also, if you haven't already, you might want to document your current monthly budget and expenses now, so you can quickly identify what adjustments you'll need to make if there is a reduction. Having that baseline will make it easier to plan for any changes. The anxiety of not knowing is really tough, but it sounds like you're handling this so well by getting informed ahead of time. Most people get blindsided by family maximum reductions, so you're already way ahead of the game by planning for this!

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Thank you for mentioning SOAR programs! I hadn't heard of those before but that sounds like exactly the kind of specialized help I could use. I'm going to look up if there's one in my area. And you're absolutely right about documenting my current budget - I should do that this week while I'm waiting to get the exact numbers from SSA. It'll be much easier to figure out what I might need to cut or adjust if I have everything written down clearly. I really appreciate everyone in this thread sharing their experiences and knowledge. Even though this situation is stressful, having all this information and support makes it feel much more manageable. At least I won't be caught completely off guard like so many people apparently are!

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I'm going through a very similar situation right now! My mom is planning to file for spousal benefits next year too, and I've been worried sick about how it might affect my DAC benefits. Reading through all these responses has been incredibly helpful - I had no idea about some of these details like the different family maximum calculations for SSDI vs retirement benefits, or that there might be state supplemental programs available. One thing I wanted to add that might help you (and others in similar situations) - I found out that some Social Security field offices will do "what if" calculations over the phone if you ask specifically. They can tell you hypothetically what would happen to your benefits if another person were added to the record. It might be worth asking for this when you call. Also, if you're comfortable sharing, it would be really helpful if you could update this thread once you get the actual numbers from SSA. I'm sure there are other people in similar situations who would benefit from knowing how the process went and what kind of timeline to expect. Thanks for posting this question - it's made me realize I need to stop putting off making that call to SSA myself!

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I'm so glad this thread has been helpful for you too! It's reassuring to know I'm not the only one dealing with this situation. The "what if" calculation idea is brilliant - I'm definitely going to ask about that when I call SSA. That might be exactly what I need to get a clear picture without having to wait until my mom actually files. And yes, I'll absolutely update this thread once I get the actual numbers! I know how stressful it is to be in this position with so many unknowns, and if sharing my experience can help others prepare better, I'm happy to do that. You should definitely make that call soon - I've learned from everyone here that the earlier you know what to expect, the better you can prepare. Even if the news isn't great, at least you can start planning for it. We're in this together!

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