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Can I get Social Security benefits as caregiver to my disabled adult daughter receiving DAC from ex-husband?

Hi everyone, I need some advice about a somewhat complicated family situation with Social Security benefits. My daughter is 37 and was determined disabled before she turned 18. She currently receives Disabled Adult Child (DAC) benefits based on my ex-husband's record. He started collecting his Social Security at 62 and is now 74. I'm 63, still working full-time, but I'm also my daughter's primary caregiver since she lives with me full-time. I have two questions I'm hoping someone can help with: 1) Since I'm her caregiver, are there any benefits I might qualify for through Social Security, even though I'm divorced from her father (the number holder)? 2) If I were to remarry in the future, would that affect anything related to her benefits or any potential benefits for me? I'm trying to plan ahead as retirement gets closer. Thanks so much for any insights!

Savannah Glover

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Your situation is actually fairly common. As her caregiver, you wouldn't qualify for any special Social Security benefits simply for being her caregiver. Social Security doesn't have specific caregiver benefits. However, when you retire, you could potentially file for divorced spousal benefits if you were married to your ex for at least 10 years and haven't remarried. But if you remarry, you would lose eligibility for any divorced spousal benefits from your ex. Your daughter's DAC benefits wouldn't be affected by your remarriage though - those continue regardless of your marital status as long as she remains eligible.

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Kevin Bell

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Thank you for explaining this! We were married for 23 years, so I guess I would qualify for divorced spousal benefits. Would it make more sense to take those or my own retirement when I eventually stop working? I've been working continuously except for about 3 years when my daughter needed more intensive care.

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Felix Grigori

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my sister gets DAC benefits too and my mom got nothing extra for taking care of her. its really unfair how they dont help the caregivers at all!! you might want to check with your state tho because some states have caregiver programs that pay family members. not social security but still something

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Kevin Bell

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Thanks for mentioning that about state programs. I should definitely look into that! It is frustrating that there's not more support for caregivers through SSA directly.

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Felicity Bud

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I went thru something similar. Social Security doesn't care AT ALL about caregivers!!! I took care of my disabled son for 30+ yrs and got ZERO help from them. The system is BROKEN!!! Check if your state has a Medicaid waiver program - some will pay family caregivers. Also look into whether your daughter might qualify for SSI in ADDITION to her DAC (sometimes possible if the DAC amount is low). That might at least help with household expenses.

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Kevin Bell

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I'm sorry you've had such a difficult experience. I'll definitely check about the Medicaid waiver program. Her DAC payment is about $1,425/month, so I'm not sure if she'd qualify for additional SSI, but worth looking into.

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Max Reyes

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To answer your questions more specifically: 1) There are no caregiver benefits through Social Security itself, but you should look into: - Your state's Home and Community Based Services (HCBS) waiver program - If your state offers a Paid Family Caregiver program through Medicaid - Tax credits for dependent care (speak with a tax professional) 2) About remarriage: Your ex's benefits to your daughter continue regardless of your marital status. However, if you were planning to claim divorced spousal benefits on your ex's record when you retire, those would terminate if you remarry. You should compare your own work record benefit to what you'd get as a divorced spouse (50% of his FRA amount) and choose the higher option when you retire. One other consideration - if you're providing more than 50% of your daughter's support, you might be able to claim her as a dependent on your taxes which could be beneficial.

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Mikayla Davison

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This is so helpful. My brother is in almost the same situation with his disabled daughter. Does the amount the daughter gets from DAC count as income when determining if he provides more than 50% support for tax purposes?

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Adrian Connor

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getting thru to SSA to ask these questions is almost impossible these days! I spent 3 hours on hold last week and then got disconnected

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Aisha Jackson

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I had the same frustrating experience trying to sort out my mom's benefits! I finally used a service called Claimyr (claimyr.com) that got me connected to a real SSA agent in under 10 minutes. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU. Totally worth it for complicated questions like these where you need to speak to an actual person who can look at your specific situation. The agent I spoke with was really helpful with my complicated family benefit questions.

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Mikayla Davison

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I think your working might actually be the best thing right now. My mom was in a similar situation with my disabled brother. When she stopped working, her own SS benefit was actually higher than what she would have gotten from my dad's record (they were also divorced). Keep building up your own earnings record as long as you can!

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Kevin Bell

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That's good to know! I do worry about how long I can keep working while caring for her, but I'm trying to hang in there as long as possible.

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Max Reyes

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One more important point: If your ex-husband passes away, your daughter's DAC benefit would increase to 75% of his full benefit amount. And if you're still unmarried at that point and over 60, you might qualify for surviving divorced spouse benefits. The remarriage rules are different for surviving divorced spouses versus regular divorced spouse benefits - you can remarry after 60 and still collect surviving divorced spouse benefits.

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Kevin Bell

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That's really valuable information I hadn't considered. So if I understand correctly, if I remained unmarried until at least 60 (which I already am), I could remarry afterward and still potentially receive surviving divorced spouse benefits if my ex passes away? That's quite different from what I thought!

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Adrian Connor

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my friend got some kind of moms benefit when her son was getting disability but i dont remember what it was called

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Savannah Glover

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That was likely a Mother's or Father's benefit, which is available to a parent caring for a disabled child who is receiving benefits, but only if the child is receiving benefits because their parent (the number holder) is either disabled, retired, or deceased. They don't apply just for being a caregiver to someone on DAC benefits in this situation.

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Felicity Bud

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I know this isn't strictly about Social Security, but have you looked into becoming her paid caregiver through your state's Medicaid program? My cousin does this for her disabled daughter in Arizona and it's been a lifesaver financially. The pay isn't amazing but it acknowledges the work you're already doing. Every state has different rules though.

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Kevin Bell

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I haven't explored that option yet! That's a great suggestion. We're in Michigan, so I'll need to research our state's specific programs. Thank you!

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