Confused about DAC vs SSI rules for my disabled daughter - which benefit requirements apply?
I'm completely lost about which rules to follow for my disabled daughter (29) who receives benefits on two different programs. I'm 62 and not collecting Social Security yet, but my ex-spouse is 75 and already collecting his retirement. Our daughter currently gets $1,125 per month as a Disabled Adult Child (DAC) on her father's record plus $106 in SSI. I'm trying to figure out which program's rules we need to follow regarding her income limits, resource limits, and reporting requirements. Do we follow the stricter SSI rules about the $2,000 asset limit and reporting every bit of income? Or do the DAC rules take precedence since that's her larger benefit? I'm particularly confused about how my work income might affect her. If I keep working until my FRA, will that impact either of her benefits? Also, when I eventually file for my own retirement, will her benefits change? This dual-benefit situation is so complicated, and the SSA reps I've spoken with have given conflicting answers.
16 comments
Nathaniel Stewart
You have to follow BOTH sets of rules since she receives both benefits. For the SSI portion, all SSI rules apply - $2,000 resource limit, reporting all income, living arrangement questions, etc. For the DAC benefit (sometimes called CDB - Childhood Disability Benefit), different rules apply, but they're generally less restrictive than SSI. Your work income won't affect her DAC benefits at all. Those are based on your ex's record, not yours. For SSI, your income might be deemed to her only if you live together AND if she's under 18, which she isn't. So your work shouldn't affect either benefit. When you eventually file for your own retirement, the SSA will check if she would get a higher benefit on your record compared to her father's. If your benefit would result in a higher DAC payment, they'll switch her to your record.
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Lola Perez
•Thank you SO much for explaining this! So we have to track the $2,000 resource limit because of the SSI, even though it's just $106? That seems like a lot of restrictions for such a small amount.
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Riya Sharma
my daughter is in the same boat gets both cdb and ssi. yes you have to follow all the ssi rules even for that small amount!!!! it's ridiculous but thats how it is. if she goes over $2000 in her account they'll stop the ssi but not the dac. we just keep her account at like $1800 max to be safe.
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Lola Perez
•Thanks for confirming. It seems like a lot of reporting and restrictions for just $106, but I guess that extra bit helps. Do you know if we need to report every single change or just do the annual SSI reviews?
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Santiago Diaz
Here's the most important thing to understand: you're dealing with two completely separate programs that have different rules. For the DAC benefit (which is a Title II benefit based on your ex's work record): - No resource/asset limits - Her own work can affect it if she engages in Substantial Gainful Activity (SGA) - currently $1,470/month for non-blind individuals - Your work doesn't affect her DAC benefit at all - When you file for your own retirement, they'll check if she could get a higher DAC benefit on your record For the SSI (which is a Title XVI needs-based benefit): - Strict $2,000 resource limit - All income must be reported monthly - Living arrangement affects the benefit amount - Even small changes can affect payment amounts You must follow both sets of rules. If she violates the SSI rules, she'll lose the SSI portion but keep the DAC. If she violates the DAC rules (by working above SGA level for example), she could lose the larger benefit.
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Millie Long
•Don't forget that if she loses SSI she might also lose automatic Medicaid eligibility depending on the state! That's often more valuable than the small SSI payment itself.
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KaiEsmeralda
im in a similar situation with my son who gets both benefits. its SUPER frustrating dealing with SSA because half the time the rep doesnt understand dual benefits!!! weve been overpaid twice because they didnt process his income reports correctly.
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Debra Bai
•I had the same problem trying to reach them about my daughter's dual benefits. I was getting disconnected or waiting hours only to get someone who didn't understand the dual benefit rules. I finally used a service called Claimyr (claimyr.com) that got me connected to an agent in under 5 minutes without the usual waiting. They have a video that shows how it works: https://youtu.be/Z-BRbJw3puU. It saved me hours of frustration and I finally got someone who could explain the different reporting requirements for each benefit.
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Gabriel Freeman
Actually you can have her SSI terminated if you want to avoid all those strict SSI rules! The process is called voluntary termination. Because the SSI amount is so small compared to her DAC benefit, many families decide the extra $106 isn't worth the reporting burden and asset restrictions. But think carefully - depending on your state, SSI might automatically qualify her for Medicaid which could be worth more than the cash benefit itself.
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Lola Perez
•That's something to consider. We're in Ohio and she does get Medicaid through the SSI connection. I'd need to check if she would still qualify for Medicaid without the SSI. That $2,000 asset limit is so restrictive - she can't even save up for emergencies.
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Millie Long
Check if your state has an ABLE account program! This lets disabled people save money ABOVE the $2,000 SSI limit. My daughter has one and can save up to $100,000 without affecting her SSI eligibility. It's been life-changing for her independence.
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Nathaniel Stewart
•This is excellent advice! ABLE accounts are specifically designed for this situation. The money in an ABLE account doesn't count toward the $2,000 SSI resource limit. She can use the funds for a wide range of qualified disability expenses including housing, transportation, healthcare, education, and basic living expenses. Each state has different ABLE programs with different investment options and fees, so you'll want to research which one works best for your daughter.
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Riya Sharma
can someone explain this to me - if the mom files for SS early at like 62 would that lower what the daughter gets if they switched her to moms record later? im confused about how this all works with the disability benefits and family maximum!!!!
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Santiago Diaz
•Great question! If the mother files at 62 (reduced benefits), and IF the daughter's DAC benefit is later switched to the mother's record, then yes - the daughter's DAC benefit would be based on the mother's reduced PIA. DAC benefits are calculated at 50% of the parent's PIA while the parent is alive, and 75% after death. So if the parent takes reduced benefits, it doesn't directly reduce the DAC percentage, but it's based on a smaller starting amount. Also, family maximum limits might apply if there are multiple people drawing on one record.
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Lola Perez
Thank you all for the helpful responses! From what I understand: 1. We need to follow BOTH sets of rules since she receives both benefits 2. The SSI rules are stricter with the $2,000 asset limit and income reporting 3. My work income won't affect her benefits 4. When I file for retirement, they'll check if she'd get more on my record 5. ABLE accounts might be a solution for saving beyond the $2,000 limit I'm going to look into the ABLE account option right away and also consider whether keeping that small SSI payment is worth the restrictions. The Medicaid connection is important though, so I'll need to check with our state about that before making any decisions. This community is amazing - thank you for helping me understand this complicated situation!
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Gabriel Freeman
•Just a heads up - when you do apply for your own retirement benefits, make sure to mention to SSA that you have a disabled adult child who might qualify on your record. Sometimes they miss this connection if you don't explicitly point it out, especially if she's already receiving DAC on your ex's record. The computer systems don't always talk to each other effectively.
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