Child-in-Care benefits while caring for disabled adult child - when can I qualify for Social Security?
My situation feels like a maze of Social Security rules. My ex-spouse (58) just filed for early retirement benefits, and our disabled son (28) has been approved for Disabled Adult Child (DAC) benefits on my ex's record. My son has autism and requires constant supervision - I've been his full-time caregiver since our divorce 15 years ago. I'm only 52, but someone mentioned I might be eligible for Child-in-Care (CIC) benefits since I'm caring for our disabled son. Is this true? Does the primary parent (me) have to be a certain age to qualify for these benefits when the disabled adult child starts receiving DAC? The SSA website is confusing me with all these acronyms and different rules. Has anyone navigated this successfully?
30 comments


Harmony Love
Yes, you can qualify for Child-in-Care benefits as the caregiver of a disabled adult child, but there are specific requirements. Here's what you need to know: 1. You don't need to be any specific age to qualify for CIC benefits 2. You must be providing care for your disabled adult child who receives DAC benefits 3. You must be unmarried or married to someone who is not the child's parent 4. Your ex-spouse must be entitled to retirement or disability benefits Since your ex has already filed for retirement benefits and your son is receiving DAC benefits on his record, you should qualify as long as you haven't remarried. Contact SSA right away to apply.
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McKenzie Shade
•Thank you so much for this clear explanation! I haven't remarried, so it sounds like I might qualify. Do you know if there's a specific form I need to fill out? And will my benefits reduce what my son receives from his DAC?
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Rudy Cenizo
my sister had this EXACT same situation!!!! the SSA person told her wrong info 3 times and kept saying she couldnt get benefits till 62. finally someone who knew the rules helped her. u definitely CAN get CIC no matter ur age if ur caring for DAC kid. they backdated her payment 8 months after she finally got approved.
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McKenzie Shade
•That's so frustrating but also gives me hope! Did your sister have to keep appealing or did she just need to find the right person at SSA who understood the rules?
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Rudy Cenizo
•she just kept calling till she got someone who knew what they were talking about!! took like 5 calls i think. some of them had never even heard of CIC benefits for DAC situations which is crazy
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Natalie Khan
I'm a former SSA claims specialist, and I can confirm that there is no minimum age requirement for Child-in-Care benefits when caring for a disabled adult child. To apply, you'll need to submit Form SSA-5-BK (Application for Mother's or Father's Benefits) and specify that you're applying as a caregiver for a disabled adult child. Bring documentation showing your caregiving relationship. Important to note: CIC benefits are subject to the family maximum limit. This means the total benefits paid to all beneficiaries on one worker's record cannot exceed a certain amount. Your benefits won't reduce your son's DAC benefits directly, but if the total exceeds the family maximum, all auxiliary benefits (except the worker's) are proportionally reduced.
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McKenzie Shade
•Thank you for this detailed information! Do you know approximately what percentage of the ex-spouse's full retirement amount I would receive as a CIC benefit? And would receiving these benefits impact any future retirement benefits on my own record?
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Natalie Khan
•You would receive 50% of your ex-spouse's Primary Insurance Amount (PIA), which is their benefit amount at full retirement age, regardless of when they actually claimed. These CIC benefits won't affect your own future retirement benefits. You can receive CIC benefits now and later switch to your own retirement benefits at 62 or later if your own benefit would be higher. The years spent as a caregiver might create gaps in your earnings record, but that's a separate issue from benefit eligibility.
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Daryl Bright
I was in a similar situation but got denied because my ex didnt have enough work credits. Make sure your ex has enough quarters of coverage for both DAC and CIC benefits. Also the family maximum is a real thing - between your son's DAC and your CIC you might hit that ceiling and get less than you expect.
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Sienna Gomez
•This isn't quite right. The ex-spouse already qualified for retirement benefits, which means they have enough work credits. And the disabled son has already been approved for DAC benefits, so that requirement is satisfied. The family maximum could reduce the benefits proportionally, but everyone will still receive something.
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Kirsuktow DarkBlade
The whole Social Security system is designed to make it IMPOSSIBLE to understand on purpose!!! They hope you'll give up and not claim what you deserve. My cousin went through this exact thing with her disabled daughter and the local office kept telling her wrong information for TWO YEARS before she finally got what she was entitled to!
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Abigail bergen
•I've had the same experience trying to get through to SSA lately - constant busy signals, disconnected calls, and when I finally reach someone, they give contradictory information. I discovered a service called Claimyr (claimyr.com) that helped me actually get through to SSA without the endless waiting. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU It was the only way I could actually talk to someone knowledgeable about my complex situation with survivor benefits. Might be worth it for something as complicated as DAC and CIC benefits where general representatives often give incorrect information.
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Ahooker-Equator
One thing nobody mentioned yet - if you're providing care for a disabled adult child who gets DAC benefits, you should also look into whether you qualify for the Medicaid Caregiver Exemption which protects some of your assets if you ever need long-term care yourself. It's related to your caregiver status, not directly to the Social Security benefits, but it's another protection worth knowing about.
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McKenzie Shade
•I had no idea this existed! Thank you so much for mentioning it. I'll definitely look into this as well. Do you know if this is something I would ask the SSA about or is it through a different agency?
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Ahooker-Equator
•This would be through your state's Medicaid office, not SSA. Each state administers it differently, but generally you'd need to document that you've been providing care for at least 2 years before you apply for Medicaid yourself. It's definitely worth researching alongside your Social Security benefits.
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Rudy Cenizo
wait i just realized...what happens to ur CIC benefits when ur ex spouse dies? does everything switch to survivors or what? anyone know??
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Sienna Gomez
•Good question. If the ex-spouse dies, both the caregiver and the disabled adult child would transition to survivor benefits. The disabled adult child would receive 75% of the deceased's PIA as a survivor benefit (instead of 50% as DAC). The caregiver would receive mother's/father's benefits at the same 75% rate. The family maximum would still apply but is calculated differently for survivors.
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CyberSiren
As someone who just went through this process last year, I want to echo what others have said - you absolutely CAN get Child-in-Care benefits at 52! The key is being persistent with SSA because not all representatives are familiar with these rules. A few practical tips from my experience: - When you call, specifically ask to speak with someone who handles "auxiliary benefits" or "child-in-care benefits for disabled adult children" - Have your son's DAC award letter ready when you apply - Document your caregiving role (medical appointments, daily care activities, etc.) - The application process took about 6 weeks for me, but I received backpay to when my application was filed Also, since your ex filed for early retirement at 58, your CIC benefit will be based on his full retirement age amount (PIA), not his reduced early retirement amount - that's actually better for you! Don't let anyone tell you that you have to wait until you're older. You've been caring for your son for 15 years and deserve these benefits now.
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NeonNova
•This is incredibly helpful - thank you for sharing your real experience! I'm feeling much more confident about moving forward. Just to clarify, when you say the benefit is based on his PIA rather than his reduced amount, does that mean I'll get 50% of what he WOULD have received at full retirement age, not 50% of what he's actually getting now at 58? That would definitely be better than I expected! And I love the tip about asking specifically for someone who handles auxiliary benefits - that seems like it could save me a lot of frustration.
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Vince Eh
•Yes, exactly! Your CIC benefit will be 50% of his Primary Insurance Amount (PIA) - what he would receive at full retirement age, not the reduced amount he's getting now. So if his full retirement benefit would have been $2,000 at age 67, you'd get $1,000 even though he's only getting around $1,600 by claiming early at 58. I learned this the hard way when I initially calculated my expected benefit wrong. The SSA representative explained that auxiliary benefits (like CIC) are always calculated from the worker's unreduced PIA to ensure family members aren't penalized for the worker's decision to claim early. One more thing - when you call, have your ex's Social Security number ready along with your son's. They'll need to verify the connections between all the records. And don't be discouraged if the first person you talk to seems confused - I had to call three times before I got someone who immediately knew what I was talking about!
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Javier Hernandez
I want to add something important that hasn't been mentioned yet - make sure you understand the earnings test implications if you're working while receiving CIC benefits. Since you're under full retirement age, if you earn more than the annual exempt amount ($22,320 for 2024), your CIC benefits will be reduced by $1 for every $2 you earn over that limit. This is different from your son's DAC benefits, which aren't subject to the earnings test because he's disabled. But as the caregiver receiving CIC benefits, your work earnings could impact your monthly payment. If you're currently working or planning to work while caring for your son, factor this into your decision-making. Also, I'd recommend calling SSA early in the morning (right at 8 AM local time) to avoid long hold times. The representatives tend to be more helpful when they're not rushed from a busy day of calls. Good luck with your application - you've been an amazing caregiver for 15 years and you deserve these benefits!
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Andre Lefebvre
•This is such valuable information about the earnings test - thank you for bringing this up! I'm currently not working because of my caregiving responsibilities, but I've been wondering if I could pick up some part-time work to supplement income. It sounds like I need to be really careful about that $22,320 limit. Do you know if the earnings test applies to all types of income, or just wages from employment? And is that limit for the entire year or does it get prorated if you start receiving benefits mid-year? I want to make sure I understand all the implications before I apply. The 8 AM calling tip is gold too - I'll definitely try that!
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Malik Johnson
•The earnings test applies specifically to wages from employment and net earnings from self-employment - not to other types of income like investment returns, pensions, or other Social Security benefits. So if you do decide to work part-time, make sure to track only your actual work earnings against that $22,320 limit. Regarding the timing, the earnings test is applied on an annual basis, but there's actually a monthly test that can work in your favor during your first year of benefits. In the year you start receiving CIC benefits, you can earn any amount in the months before you start receiving benefits, and then the monthly limit applies only to months when you're actually receiving payments. The monthly limit for 2024 is $1,860 ($22,320 divided by 12). This monthly test can be really helpful if you start receiving benefits mid-year and want to work part-time. Just keep detailed records of your monthly earnings to make sure you stay under the limit. SSA will ask for this information on their annual earnings report, so good documentation will save you headaches later!
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Kai Santiago
I've been following this discussion and wanted to add one more important consideration that could affect your timeline. Since your son is already receiving DAC benefits and your ex-spouse has filed for retirement, there might be a "protective filing date" opportunity if you call SSA soon. When you first contact SSA to inquire about CIC benefits, they can establish a protective filing date that preserves your right to receive benefits from that date - even if it takes weeks or months to complete the actual application process. This is especially important because CIC benefits can be paid retroactively up to 6 months from your application date. Given that your son's DAC benefits likely started when your ex-spouse filed for retirement, you may have already "missed" some months of CIC benefits you were entitled to. The sooner you establish that protective filing date, the more backpay you could potentially receive. Also, don't forget to ask about Medicare eligibility while you're at it. After receiving CIC benefits for 24 months, you'll qualify for Medicare even though you're only 52. This could be a significant benefit given the costs of healthcare, especially as a caregiver. The system is complex, but you've gotten great advice here. Take notes before you call, be persistent, and don't let anyone discourage you from claiming what you're legally entitled to!
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Sofia Peña
•Wow, I had no idea about the protective filing date! This is exactly the kind of information I needed. You're right that I might have already missed some months since my son's DAC benefits probably started when my ex filed. I'm definitely calling first thing Monday morning at 8 AM to establish that protective filing date before I do anything else. The Medicare eligibility after 24 months is another huge benefit I hadn't considered. Between potential backpay, ongoing CIC benefits, and future Medicare coverage, this could really change our financial situation. I've been so focused on just making ends meet as a caregiver that I didn't realize all these programs existed. Thank you to everyone who shared their experiences and expertise here. I'm taking notes on all of this and feel so much more prepared to navigate the SSA system. It's amazing how this community has turned what felt like an impossible maze into a clear path forward. I'll update this thread once I get through the application process in case it helps other caregivers in similar situations.
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Owen Devar
I just want to emphasize something that might get overlooked in all this great technical advice - don't underestimate the emotional toll of navigating SSA while being a full-time caregiver. I went through this process two years ago with my disabled son, and between the confusing information, multiple phone calls, and paperwork, it can be overwhelming when you're already stretched thin. A few things that helped me stay organized: - Keep a dedicated notebook just for SSA calls (date, time, representative name, what they told you) - Ask for reference numbers for every conversation - If someone gives you information that contradicts what you've heard before, ask them to note it in your file The system IS confusing by design, but you're not alone in this. The fact that you found this community and asked the right questions shows you're advocating well for yourself and your son. That protective filing date tip is crucial - call Monday and get that established even if you're not ready to complete the full application yet. You've been an incredible caregiver for 15 years. You deserve these benefits, and your persistence will pay off. Keep us posted on how it goes!
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Grace Durand
•This is such thoughtful advice, Owen. As someone new to this community, I'm really struck by how supportive everyone has been with sharing their experiences. The emotional aspect you mention is so real - I've been putting off dealing with this for months because every time I tried to research it online, I felt more confused and overwhelmed. Your suggestion about keeping a dedicated notebook is brilliant. I can already see how easy it would be to mix up what different representatives tell you, especially when you're getting contradictory information. Having that paper trail will definitely help me stay organized and advocate more effectively. Reading through everyone's responses here has given me more clarity in one thread than months of trying to navigate the SSA website on my own. I'm feeling much more confident about making that call on Monday. Thank you for acknowledging the caregiving challenge too - sometimes it feels like the system expects you to be a benefits expert on top of everything else you're managing.
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Luca Conti
I want to add something that might help with your application process - consider requesting a face-to-face appointment at your local SSA office instead of trying to handle everything over the phone. I know it's an extra step, but for complex situations like yours involving CIC benefits for a disabled adult child, having all your documents reviewed in person can prevent delays and misunderstandings. When you go, bring: - Your son's DAC award letter - Your ex-spouse's Social Security number and retirement claim information - Documentation of your caregiving role (medical records showing you as primary contact, etc.) - Your divorce decree showing custody arrangements - Proof that you haven't remarried The in-person representatives tend to be more experienced with unusual benefit combinations, and you can get immediate clarification if there are any issues with your application. Plus, you'll have a paper receipt showing exactly when you applied, which helps with that protective filing date everyone mentioned. I did this for my sister's similar situation last year, and while the appointment took about 2 hours, she walked out knowing her application was complete and correct. Sometimes the extra time upfront saves weeks of phone tag later. Either way though, definitely call Monday to establish that protective filing date first!
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Rachel Clark
•This is excellent advice about the in-person appointment! As someone who's been navigating various government services for my family, I can't stress enough how much more effective face-to-face meetings can be for complex cases like this. Phone representatives often have to put you on hold to consult supervisors, but in-person staff usually have more authority to handle unusual situations on the spot. Your document checklist is spot-on too. I'd also suggest bringing a copy of your son's original disability determination letter if you have it, since that shows the onset date of his disability. Sometimes they need to verify that his disability began before age 22 for DAC eligibility, even though he's already approved. One thing I learned the hard way - if your local office is busy, you might be able to get a faster appointment at a nearby office in a different town. When I needed to file for my mother's Medicare appeals, our local office was booking 6 weeks out, but an office 30 minutes away had availability the following week. Worth calling multiple locations if timing is important for maximizing your backpay potential.
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Miguel Silva
I'm also caring for a disabled adult child and went through the CIC application process recently. One thing I want to emphasize that hasn't been fully covered - make sure you understand the difference between "child in care" for CIC benefits versus just being a caregiver. SSA has specific criteria for what constitutes having a child "in your care" for benefit purposes. For a disabled adult child, you generally need to show that you're providing personal services (help with daily activities like bathing, dressing, meal preparation) OR that you're exercising parental control and responsibility for the child's welfare. Since your son has autism and needs constant supervision, you'll likely meet these requirements easily, but be prepared to document this relationship clearly. I had to provide a detailed statement about my daughter's daily care needs and my role in meeting them. Also, something I wish I had known earlier - if you've been informally providing this care without any official documentation, start gathering evidence now. Things like being listed as emergency contact on medical forms, attending medical appointments, managing his benefits or finances, etc. The more you can show an ongoing pattern of care and responsibility, the stronger your case will be. The good news is that once you're approved, the benefits continue as long as you're providing care and remain unmarried (or married only to the child's other parent). There's no age limit where they stop, unlike some other Social Security benefits.
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