Can we get combined estimates for retirement, DAC and CIC Social Security benefits in one appointment?
My wife and I are in a situation where I'm planning to file for Social Security retirement this September (I'll be 65). Our daughter (now 29) has been disabled since age 17 and has received SSI since she turned 18. We want to understand how to transition her to Disabled Adult Child (DAC) benefits when I retire, plus my wife hopes to receive Child-in-Care (CIC) spousal benefits. I'm completely confused about the appointment process. Should we: 1. Schedule one joint appointment for all three of us? 2. Make separate appointments for each person? 3. Request a specific department that handles family benefit situations? 4. Go in-person or can this be handled by phone? We really need to get accurate benefit estimates for our financial planning, especially understanding how much our daughter's benefits might increase switching from SSI to DAC. The SSA website is confusing me with all these different benefit types. Has anyone navigated this kind of family benefits situation before?
25 comments
Ravi Gupta
Make ONE in-person appointment for your family situation. Bring ALL documentation: your work history, proof of marriage, daughter's medical records and SSI approval letters, and her disability determination paperwork. Request to speak with a Technical Expert who specializes in family benefits if possible. They can calculate your retirement benefit, your daughter's potential DAC benefit, and your wife's CIC benefit all together during the same appointment. The complexity comes from how the family maximum formula works - all these benefits need to be considered together, not separately.
0 coins
StarStrider
•Thanks for this advice! I didn't know about Technical Experts. Will SSA be able to tell us how my daughter's Medicare eligibility will change when she switches from SSI to DAC? Also, do you know if my wife's CIC benefits will reduce my retirement amount?
0 coins
Freya Pedersen
When I called SSA about my son's DAC benefits last year, they kept transferring me to different departments and nobody could give me a straight answer about benefit amounts!! So frustrating. Eventually I HAD to go in person and even then they couldn't tell me exact numbers until we actually filed. The system is absolutely maddening. And they told me different things each time I called!!!
0 coins
StarStrider
•Oh no, that's what I'm afraid of. Did you eventually get it sorted out? How long did the whole process take from appointment to getting benefits started?
0 coins
Omar Hassan
u need to bring birth certificates for everyone + marriage certificate + all the disability paperwork from when your daughter was first approved. my brother is on DAC benefits and they wanted EVERYTHING even though they should already have it in their system. bring extra copies.
0 coins
StarStrider
•That's good to know - I'll make copies of everything. We have her original disability determination from when she was 18, but should I also bring her more recent medical records?
0 coins
Chloe Anderson
I went through this exact situation with my son two years ago. Here's what you need to know: 1. Schedule ONE appointment for all family members 2. Definitely go IN PERSON - this is too complex for phone 3. Ask specifically for a Technical Expert who handles DAC claims 4. Bring ALL documentation including: - Your work history and ID - Marriage certificate - Daughter's birth certificate - ALL disability documentation from her initial determination - Recent medical records showing continuing disability - Her SSI award letters The benefits calculation is complex because of the Family Maximum Benefit (FMB) which caps the total amount your family can receive. Your retirement won't be reduced, but your wife's CIC and daughter's DAC might be reduced under the family maximum. Your daughter will likely receive more on DAC than SSI and will get Medicare after 24 months on DAC. The transition can take 2-3 months, so plan accordingly. Also, understand that your daughter will lose Medicaid when switching to DAC unless your state has a Medicaid buy-in program.
0 coins
StarStrider
•This is incredibly helpful! I hadn't even thought about the Medicaid issue. Our daughter relies on Medicaid for her support services. Do you know if there's a way to calculate the family maximum ahead of time so we can estimate what everyone might receive?
0 coins
Diego Vargas
My husband and I tried calling SS for weeks to get an appointment about our disabled son's benefits. Impossible to reach anyone! Our calls kept dropping after 2+ hours on hold. We finally used Claimyr.com to get through to a rep immediately. They have this service where they wait on hold with SSA for you and call you when a rep gets on the line. Saved us days of frustration! There's a video showing how it works at https://youtu.be/Z-BRbJw3puU. Best money I ever spent because we finally got our appointment scheduled.
0 coins
StarStrider
•That sounds helpful. We've been trying to get through on the phone with no luck. I'll check out that service if we keep having trouble. Did you eventually get an in-person appointment?
0 coins
CosmicCruiser
•I used that service too! It's crazy that we need a third-party service just to talk to a government agency we pay taxes to support. But it DOES work. I was skeptical at first but I got through to SSA in about 20 minutes instead of spending my whole day on hold.
0 coins
Anastasia Fedorov
i think ur wife might not qualify for CIC if ur daughter is 29, even if disabled. i thought those benefits were only for young children?? someone should double-check that...
0 coins
Chloe Anderson
•Actually, the age of the disabled child doesn't matter for CIC benefits as long as the child qualifies as a Disabled Adult Child. The spouse can receive CIC benefits at any age if caring for a child of any age who has a disability that began before age 22. It's one of the less known aspects of spousal benefits.
0 coins
Ravi Gupta
One important thing to consider: When your daughter transitions from SSI to DAC, her benefit amount will likely increase, but she may lose SSI-related Medicaid. Depending on your state, she might have to wait 2 years for Medicare to kick in after starting DAC. Some states have Medicaid buy-in programs for people with disabilities that can help during this gap. Ask the SSA representative specifically about this transition and what it means for her healthcare coverage.
0 coins
StarStrider
•This healthcare gap is scary. Do you know if we can delay her transition to DAC until we figure out the Medicaid situation? Or is it automatic once I file for retirement?
0 coins
Omar Hassan
when my dad retired last year his benefit was like $2100 and my disabled sister got almost $1300 as DAC which was way better than her SSI. but we had to wait almost 3 months for everything to process and the backpay was confusing.
0 coins
StarStrider
•That's good to know about the potential increase! Did your sister have any issues with the transition? Was there a gap in payments?
0 coins
Chloe Anderson
To answer your follow-up questions: 1. The transition to DAC is mandatory when a parent retires if it would result in a higher benefit. It's not optional. 2. The Family Maximum is approximately 150-180% of your Primary Insurance Amount (PIA), but varies based on your earnings history. So if your retirement benefit is $2000, the family maximum might be around $3000-$3600 total for all family members combined. 3. Your daughter's Medicaid options depend entirely on your state. Some states have 1619(b) provisions or Medicaid buy-in programs that allow people with disabilities to maintain Medicaid after losing SSI. This is CRUCIAL to research before making any changes. 4. Your retirement benefit won't be reduced - family maximum reductions only affect auxiliary benefits (your wife and daughter). I strongly recommend contacting your state's Disability Rights organization or a benefits counselor before your SSA appointment. They can help you understand the Medicaid implications specific to your state.
0 coins
StarStrider
•Thank you so much for this detailed information. I'll definitely contact our state's Disability Rights organization. One last question - should we apply for retirement/DAC/CIC all at the same appointment, or just get estimates first and apply later?
0 coins
Freya Pedersen
The SSA reps WILL NOT give you accurate information by phone - I wasted months trying that route. They kept giving me different answers every time I called. Some said my son would get 50% of my benefit, others said 75%, one even said he'd get nothing! And then they gave me completely wrong info about Medicaid. GO IN PERSON and INSIST on speaking with someone who knows about DAC benefits specifically!
0 coins
Ravi Gupta
•This is unfortunately common. The phone representatives often don't have specialized training in complex situations like DAC and family maximum calculations. In-person at your local office with a Technical Expert is definitely the way to go for this situation.
0 coins
Chloe Anderson
Regarding your last question - I'd recommend just getting estimates first rather than applying during the initial appointment. The transition from SSI to DAC requires careful planning, especially regarding Medicaid. Once you have the benefit estimates, you can consult with a benefits planner about the best timing. You might want to coordinate with your state's Medicaid office before finalizing anything. Also, if you're only 65, remember that filing now means taking a reduced retirement benefit before your Full Retirement Age (FRA). This reduction also affects your daughter's DAC benefit. Sometimes it makes financial sense to wait until your FRA to maximize both benefits, but it depends on your specific situation.
0 coins
StarStrider
•You're right about the reduced benefits. I hadn't considered how my early filing would affect my daughter's DAC amount. I think we definitely need to get estimates first and then carefully consider the timing. This is all so complicated!
0 coins
Omar Hassan
don't forget about the ASSET LIMITS - my sister had to spend down savings when she went on SSI but when she switched to DAC those limits went away and she could finally save money without losing benefits. that was a huge positive for us.
0 coins
StarStrider
•That's actually great news! My daughter has always been limited by the $2000 SSI asset limit. If she can save money on DAC without restrictions, that would be a big improvement for her financial independence.
0 coins