< Back to Social Security Administration

Can I get Childhood Insurance Care benefits while caring for adult son receiving SS survivor benefits?

My 24-year-old son has severe autism and receives Social Security survivor benefits (DAC) since his father passed away 3 years ago. I've had to cut back to only 15 hours per week at my job because he needs constant supervision and can't be left alone. His benefits barely cover our rent, and I'm struggling financially with the reduced income. Someone at my support group mentioned CIC (Childhood Insurance Care) benefits might be available to me as his caregiver, but I can't find clear information on the SSA website. Has anyone successfully applied for caregiver benefits while their adult disabled child gets survivor benefits? What documentation would I need? I'm desperate for any additional financial support.

Kyle Wallace

•

my sister gets something like that for taking care of her disabled daughter, but i think the daughter gets SSI not survivors. not sure if that makes a difference??

0 coins

Malia Ponder

•

Thanks for responding! Do you know what the benefit is called that your sister receives? I've heard so many different acronyms that I'm getting confused about what might apply to our situation.

0 coins

Ryder Ross

•

The benefit you're asking about is called the Mother's/Father's benefit (sometimes called a Parent's benefit). This is available to a parent who is caring for a child who receives Social Security benefits and is either under 16 OR disabled (at any age). Since your son is disabled and receiving DAC (Disabled Adult Child) survivor benefits from his father's record, you likely qualify IF: 1. You haven't remarried 2. You're not eligible for a higher benefit on your own record 3. You're providing care for a disabled child You should apply as soon as possible because there may be time limits. Bring your ID, your son's medical records showing his disability requires care, and your deceased spouse's information.

0 coins

Gianni Serpent

•

Wait, I thought Parent's benefits were ONLY if the child is under 16?? My cousin got denied when she applied and her son is 22 with severe disabilities. The SSA told her she couldn't get benefits once he turned 16, even though he's disabled. This system is SO confusing!!

0 coins

Henry Delgado

•

To clarify the confusion here: There are two different scenarios with Parent's Benefits: 1. A parent caring for a child under 16 can receive benefits on the record of a retired, disabled, or deceased worker. 2. A parent caring for a child who was disabled before age 22 can continue to receive these benefits even after the child turns 16 IF the benefits are from a deceased worker's record (survivor's benefits). In your specific case, since your son receives survivor's benefits from his deceased father and was disabled before age 22, you should be eligible for the Mother's benefit as his caregiver regardless of your son's current age. The requirement is that you must be providing care for your disabled adult child - meaning your caregiving responsibilities limit your ability to work, which clearly applies in your situation based on your reduced work hours. Call SSA directly to apply - 1-800-772-1213. Make sure to specifically ask about the "Mother's benefit for caring for a disabled adult child receiving survivor benefits."

0 coins

Malia Ponder

•

Thank you so much for this detailed explanation! This makes much more sense now. I'll definitely call SSA and specifically ask about the Mother's benefit. I've been trying to get through to them for days but can't seem to get past the automated system.

0 coins

Olivia Kay

•

I was in a very similar situation last year with my daughter. The Mother's benefit was a lifesaver for me. But calling SSA was absolutely IMPOSSIBLE!! I tried for weeks - constant busy signals, disconnects after waiting 2+ hours, and couldn't get an in-person appointment at my local office for 3 months. I finally used Claimyr (claimyr.com) which got me connected to a real SSA agent in about 20 minutes. They have this system that waits on hold for you then calls you when an agent is available. They have a video showing how it works here: https://youtu.be/Z-BRbJw3puU Once I got through to a real person, they confirmed I was eligible for the Mother's benefit while caring for my disabled adult daughter on survivor benefits. The backpay made a huge difference for us financially.

0 coins

Joshua Hellan

•

does that service actually work? sounds too good to be true lol. i spent 4 hours on hold with SSA yesterday and got disconnected

0 coins

Olivia Kay

•

@ConcernedMom55 - When you do reach an agent, make sure you emphasize that your caregiving prevents you from working full-time. They'll likely ask for documentation of your son's condition requiring care (medical records, doctor's statements) and proof that you've reduced your work hours specifically to provide care. I had to submit a letter from my employer confirming my reduced schedule.

0 coins

Malia Ponder

•

That's really helpful - I'll definitely get a letter from my employer. My son's psychiatrist already wrote a detailed letter about his supervision needs when we renewed his disability review last year, so I'm hoping I can use that documentation too.

0 coins

Gianni Serpent

•

This is exactly why I HATE dealing with Social Security!! Every person gets different information. I called THREE times about benefits as a caregiver for my disabled son who gets SSDI, and each agent told me something completely different. The first said I wasn't eligible at all, the second said I needed to apply in person, and the third said I could only get it if I was over 62!!! WHO IS RIGHT??? The whole system is designed to DENY benefits by confusing people!

0 coins

Henry Delgado

•

You're right that the information can be inconsistent, which is frustrating. The key distinction is what type of benefit your son receives. If he receives SSDI on his OWN work record (not as a DAC on a parent's record), then different rules apply than in the original poster's situation where her son receives survivor's benefits from his deceased father. The specific benefit type matters tremendously in determining eligibility.

0 coins

Jibriel Kohn

•

yes i get this benefit! its called the mother's benefit. my son has downs and gets survivors benefits from his dad who died. i get about $1125/month which helps so much. the key is your son MUST be getting survivors benefits specifically (not SSI or regular SSDI) and you have to be unmarried. they will ask for proof that you provide care and supervision. good luck!!

0 coins

Malia Ponder

•

Thank you! This gives me hope. My son definitely receives survivor benefits from his father's record, and I'm not remarried. May I ask what kind of proof they required from you about providing care and supervision?

0 coins

Jibriel Kohn

•

they asked me for a letter from his doctor about his care needs and why he cant be left alone. i also gave them his guardianship papers and IEP from when he was in school showing his severe disability. and my work schedule showing i only work part time now to care for him

0 coins

Kyle Wallace

•

does anyone know if this works if youre the grandparent? my daughter passed and i take care of her disabled son who gets her survivor benefits...

0 coins

Ryder Ross

•

To answer the recent question - grandparents can qualify for this benefit in place of parents if they are the legal guardian providing care for a disabled individual receiving survivor benefits. The same criteria apply regarding care requirements and work limitations. One important note for everyone: If approved, the Mother's/Father's benefit is generally 75% of the deceased person's primary insurance amount, but may be reduced by the family maximum benefit limit if multiple people receive benefits on the same earnings record. This is something to be aware of when calculating potential benefit amounts.

0 coins

Malia Ponder

•

That's good to know about the 75% amount. In our case, it's just my son and potentially me receiving benefits on his father's record, so hopefully we wouldn't hit the family maximum. I'm going to gather all our documentation and try to get an appointment at the local office.

0 coins

TaxRefund AI

Expert Assistant
Secure

Powered by Claimyr AI

T
I
+
6,872 users helped today