

Ask the community...
As a disability benefits specialist, I want to emphasize a few critical points that haven't been fully addressed yet: 1. **Asset limits matter**: If your son transitions from SSI to DAC, he'll no longer be subject to the $2,000 asset limit that restricts SSI recipients. This means he could potentially save money or receive gifts without losing benefits. 2. **State supplemental payments**: Some states provide supplemental payments to SSI recipients. Check if your son receives any state supplements, as these might be affected differently than federal benefits during the transition. 3. **ABLE accounts**: If your son doesn't already have one, consider opening an ABLE account before the transition. These accounts allow disabled individuals to save money without affecting benefit eligibility and can be especially valuable when moving from SSI to DAC. 4. **Medicare enrollment timing**: If your son qualifies for DAC, he'll be eligible for Medicare 24 months after his disability onset date for DAC purposes (not necessarily when he first became disabled). Understanding this timeline is crucial for maintaining continuous health coverage. The consensus here about exploring DAC benefits is absolutely correct - in most cases, it results in higher payments and more flexibility. Just make sure to get everything in writing from SSA and don't rely solely on phone consultations for such an important decision.
This is excellent additional information that really fills in some important gaps! The point about asset limits is huge - I hadn't thought about how transitioning from SSI to DAC would eliminate that $2,000 restriction. That could make such a difference for our son's long-term financial security. I'll definitely look into whether our son receives any state supplemental payments and how those might be affected. And the ABLE account suggestion is really smart - it sounds like opening one before the transition could provide additional financial flexibility. The Medicare timing detail is particularly helpful. So if our son transitions to DAC, the 24-month Medicare waiting period would start from when DAC benefits begin, not from his original disability onset? That's important to understand for planning his health coverage transition. Your emphasis on getting everything in writing really reinforces what others have said about documentation being crucial. Between the BPQY report, written documentation from SSA meetings, and working with a qualified benefits counselor, it sounds like we need to create a comprehensive paper trail throughout this process. Thank you for adding these professional insights - they're filling in details that could make a real difference in how we approach this transition!
I'm going through a very similar situation with my 29-year-old son who has cerebral palsy and currently receives SSI. My husband is 61 and we've been debating whether he should file at 62 or wait until his full retirement age. After reading all these responses, I'm realizing we need to seriously explore the DAC benefits option. Like your son, mine was disabled well before age 22, so he should qualify. The idea that his monthly payment could actually INCREASE rather than decrease is incredible - we had assumed any change would hurt him financially. I'm particularly interested in what several people mentioned about the Medicare/Medicaid dual coverage possibility with DAC benefits. Our son has significant medical needs, so maintaining comprehensive coverage is our top priority. One thing I'm curious about - for those whose children successfully transitioned from SSI to DAC, did you have to reestablish eligibility for any other programs like food assistance or utility help? Or do those programs typically recognize DAC as equivalent to SSI for eligibility purposes? Thank you for starting this discussion - it's opened my eyes to possibilities I never knew existed. I'm definitely going to request that BPQY report and find a benefits counselor before we make any decisions about my husband's retirement timing.
This thread has been incredibly helpful! I'm dealing with the exact same situation - had a large pension distribution in 2022 that I completely forgot would affect my 2024 Medicare costs. Like many others here, I overlooked the notification letter that came last fall. What I found really useful was calling my Medicare plan directly (not SSA) to confirm that my regular Part D premium was still being paid to them correctly, and that this new deduction was indeed just the IRMAA surcharge. They were able to explain that the two are completely separate - one goes to Social Security, one goes to the insurance company. It helped me understand that nothing was actually "wrong" with my coverage, just an additional cost I hadn't anticipated. For anyone still confused about whether this is an error, I'd recommend checking with your Part D plan provider too, just for peace of mind!
That's such a smart approach - calling your Part D plan directly to confirm everything was working correctly! I hadn't even thought to do that, but it makes total sense to verify that the regular premium payments are still going to the right place while this IRMAA surcharge is being handled separately by Social Security. It would definitely give peace of mind to know that your actual prescription coverage isn't affected by this additional charge. Thanks for that tip - I'm going to call my plan tomorrow just to double-check everything is set up properly on their end too. It's reassuring to hear from someone else who had a similar one-time distribution situation and got through the confusion successfully!
I'm so glad I found this thread! I'm 66 and just noticed the same thing on my Social Security statement - a new Medicare Part D deduction that wasn't there before. Reading through all these responses has been incredibly educational. I had no idea about IRMAA or how the 2-year income lookback works. In my case, I think it might be related to some stock sales I did in 2022 to help pay for home renovations. I definitely need to dig through my mail pile to look for that notification letter everyone mentioned. The advice about keeping a Medicare timeline and being more vigilant about October-December mail is so helpful. It's frustrating that this system isn't explained better during Medicare enrollment, but I'm grateful for everyone sharing their experiences here. Now I know this isn't an error and I have options like the SSA-44 form if my income situation has changed significantly since 2022. Thank you all for making this confusing topic so much clearer!
This is such a fantastic thread - I've learned more about IRMAA in the last 10 minutes than in months of trying to research this myself! I'm 64 and enrolling in Medicare next year, so this is perfectly timed. One question I haven't seen addressed: what happens if you have both traditional and Roth IRAs and want to take distributions from both in the same year? I assume the traditional IRA distribution would count toward IRMAA but the qualified Roth distribution wouldn't, so you could potentially take $50k from traditional (which counts) and another $50k from Roth (which doesn't count) and only the $50k would be considered for IRMAA purposes? This seems like it could be a powerful strategy for managing income in retirement while on Medicare. Also, does anyone know if there are good online calculators that factor IRMAA into retirement withdrawal planning?
You're absolutely correct, Christian! That's exactly how it works - you can mix distributions from both account types and only the traditional IRA portion would count toward IRMAA. So in your example, taking $50k from traditional and $50k from Roth would only show $50k of taxable income for IRMAA purposes. This mixed approach is incredibly powerful for fine-tuning your income to stay just under IRMAA thresholds while still accessing the retirement funds you need. As for calculators, I've had good luck with the New Retirement planner and FidSafe's Medicare premium calculator, though you'll need to manually input the IRMAA thresholds. Most generic retirement calculators don't factor in IRMAA, which is a huge oversight given how much it can impact your actual costs. A fee-only financial planner who specializes in retirement tax planning might be worth consulting to model different withdrawal strategies with IRMAA impacts included.
This has been an incredibly informative discussion! As someone who's been working in retirement planning for over a decade, I wanted to add one more important consideration that hasn't been mentioned yet: the impact of spousal planning on IRMAA strategies. For married couples, it's worth noting that if one spouse dies, the surviving spouse will file as single the following year, which means they'll hit IRMAA thresholds at roughly half the income levels they had when filing jointly. This can be a nasty surprise if most of your retirement assets are in the higher-earning spouse's name and they pass away first. The Roth strategy discussed here becomes even more valuable in this scenario - having substantial Roth assets that can provide "invisible" income to the surviving spouse can help avoid unexpected IRMAA surcharges during an already difficult time. It's another reason to consider front-loading those Roth conversions earlier in retirement, even if it means paying some IRMAA in the short term. Also, I'd strongly recommend keeping detailed records of all Roth contributions and conversions with dates. While the 5-year rule is usually straightforward, having clear documentation can save headaches if there are ever questions about whether distributions are truly qualified.
This is such an important point that I hadn't considered, Zadie! The surviving spouse scenario is a real eye-opener - going from joint filing to single filing essentially cuts the IRMAA thresholds in half. That could be a devastating financial surprise during an already emotionally difficult time. Your advice about front-loading Roth conversions makes even more sense now, even if it means accepting some IRMAA costs in the short term. It's like paying a premium for insurance against future Medicare cost spikes. I'm definitely going to discuss this with my spouse and our financial advisor. Do you happen to know if there are any special provisions or grace periods for surviving spouses when it comes to IRMAA calculations, or do the new thresholds apply immediately?
UPDATE: Finally got through to SSA this morning! The agent confirmed they can easily change my start date from January to March 2025. She said it happens all the time and won't affect my application processing. She also mentioned I'll receive a letter confirming the change within 2 weeks. Thanks everyone for your help and suggestions!
So glad you got it sorted out! This gives me confidence that when I need to call about my own application issues, it's actually manageable. Did you have to provide any specific documentation or was it just a matter of verifying your identity and requesting the change?
That's great news! Thanks for updating us with how it went. It's really helpful to know that the process was smooth and they'll send written confirmation. For those of us still figuring out our retirement timing, it's reassuring to see that SSA can handle these adjustments without major headaches. Did you end up calling right at 8am or later in the day?
That's fantastic news! Really glad to hear SSA was able to help you out so quickly. It's reassuring to know they handle these date changes routinely - definitely saves other folks from the stress of thinking they need to start over completely. The fact that you'll get written confirmation is great too. Enjoy your extra couple months before benefits start, and congrats on getting everything sorted out!
Thanks for sharing your success story! It's really helpful for the community to see these positive outcomes. I was also wondering about the timing - did you happen to call right when they opened at 8am like someone else suggested, or did you get through later in the day? Just trying to figure out the best strategy for when I need to call them about my own application.
This whole thread has been so helpful! As someone who's approaching retirement age myself, it's really reassuring to see that SSA can handle these kinds of adjustments without major drama. @Lena Müller - did the agent mention anything about whether this kind of date change affects the timeline for when you ll'receive your first payment, or does it just shift everything by those two months?
Giovanni Mancini
One thing to keep in mind with the withdrawal option - make sure you have the cash flow to handle both paying back the 4 months of benefits AND potentially waiting several more months for your contract payments to come in. Contract work can sometimes have delayed payment schedules, and you don't want to be caught short on funds. Also, since you mentioned this is lucrative work, consider setting aside money for self-employment taxes (15.3% for Social Security and Medicare) if you'll be working as an independent contractor rather than an employee. The tax hit on a $60K contract can be pretty substantial when combined with repaying your SS benefits.
0 coins
ThunderBolt7
•This is such valuable advice about cash flow planning! I hadn't fully considered the timing gap between repaying SS benefits and receiving contract payments. You're absolutely right about the self-employment tax burden too - that 15.3% on top of regular income tax can be a shock if you're not prepared for it. I'm going to create a detailed cash flow projection before I proceed with the withdrawal to make sure I can handle all these financial obligations without putting myself in a bind. Better to be over-prepared than caught short!
0 coins
Andre Laurent
Just a heads up - when you file Form SSA-521 for withdrawal, SSA will send you a letter showing the exact amount you need to repay, including any interest. You typically have 60 days to make the repayment, but they may grant extensions if needed. The process usually takes 4-6 weeks from when they receive your form to when they send the repayment letter. Also, make sure to keep detailed records of everything - the withdrawal form, repayment documentation, and any correspondence with SSA. You'll need these for your taxes and when you eventually reapply for benefits. Some people forget that the repayment amount might include spousal or survivor benefits if applicable, so double-check all the details before proceeding.
0 coins
Luca Bianchi
•This is incredibly helpful information about the timeline and documentation! The 4-6 week processing time is good to know for planning purposes. I'm definitely going to start organizing a dedicated folder for all SSA-related documents right away. One question - you mentioned the repayment amount might include interest. Do you know how they calculate that interest, or is it typically a small amount for someone who's only been collecting for 4 months? I want to make sure I budget accurately for the total repayment amount.
0 coins