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This is a complex situation with concurrent benefits, and it sounds like you're being very proactive! A few thoughts that might help: 1. For the immediate rental agreement issue - consider if you can structure it so the rent amount works with the reduced SSI payment initially, then adjust once DAC payments begin. Some landlords are understanding about benefit timing. 2. During your 9/3 appointment about fair share expenses, make sure to document everything your son will be paying for (rent, utilities, food, etc.). The more expenses he can legitimately claim as his fair share, the less the ISM reduction will impact his SSI. 3. Since DAC is retroactive to 6/1/25, there should be a catch-up payment once it's processed. You might want to ask SSA about the timeline for DAC processing during your 9/3 call. 4. Keep detailed records of all expenses and the rental agreement for the fair share calculation. This will be crucial for maintaining his SSI eligibility. 5. Consider consulting with a disability benefits attorney if things get too complex - many offer free consultations for SSI/SSDI cases. You're doing great advocating for your son! The fact that you're planning ahead for when his father retires shows excellent long-term thinking about preserving his Medicaid eligibility.

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@16d90c5c1270 This is really helpful advice! I'm new to navigating SSA benefits and had a question about the fair share expenses documentation you mentioned. When documenting expenses for the fair share calculation, do you know if there are specific forms SSA prefers, or is it okay to just keep receipts and create our own expense log? Also, regarding the rental agreement timing - would it be beneficial to have the rental agreement show a start date that coincides with when the DAC payments are expected to begin, or does that create other complications? I'm trying to learn as much as possible since this is all very new to our family. Thanks for taking the time to share your knowledge!

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One more thing to consider: if either of you worked in jobs not covered by Social Security (like some government positions), the WEP (Windfall Elimination Provision) or GPO (Government Pension Offset) might affect your benefits. These provisions can reduce benefits for people who receive pensions from non-SS-covered employment. Just mentioning it in case that applies to your situation.

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Thankfully neither of us fall under WEP or GPO! All our work has been in SS-covered employment. I've heard those provisions can really complicate things, so I'm grateful we don't have to worry about that aspect.

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Your understanding is correct! Since your benefit ($1,900) is higher than 50% of your husband's benefit ($1,050), you won't receive any spousal benefit top-up. You'll just get your own retirement benefit. This is actually a good problem to have - it means you both had strong earnings histories! The spousal benefit really only helps when someone has a much lower benefit or no work record. As others mentioned, you might want to explore strategies like having your husband delay until 70 to maximize survivor benefits, since that could provide you with a higher monthly amount if you outlive him.

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Based on everything you've shared, here's a step-by-step plan that combines the best advice from this thread: 1. Call SSA using Claimyr (to avoid the wait) and request BOTH the formal written denial explanation AND the specific calculation worksheets mentioned (PEBES/SSNBF and spousal benefit worksheet) 2. Return to your Senator's office with copies of all your documentation AND the information you receive from step 1, requesting a senior caseworker who specializes in federal benefits 3. Simultaneously contact your House Representative to open a second Congressional inquiry with the specific questions you want answered 4. Contact your local AARP chapter for additional advocacy support 5. If all else fails within 30 days, consider contacting the SSA Inspector General's office The key is to pursue multiple avenues simultaneously while gathering the specific documentation needed for a formal appeal. Remember that the squeaky wheel gets the grease in these situations!

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Thank you so much for this comprehensive plan! I really appreciate you taking the time to put together these steps. This gives me a clear roadmap to follow instead of feeling like I'm just flailing around. I'll start with step 1 tomorrow morning and work my way through the list. Will update this thread if I make any progress!

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I went through something very similar about 6 months ago, and what finally broke the logjam was getting a referral to a Social Security disability attorney who also handles retirement benefit disputes. I know it sounds expensive, but many of them work on contingency for these cases - they only get paid if they recover additional benefits for you. The attorney I worked with had direct contacts within SSA and knew exactly which forms to file and which specific regulations to cite. Within 3 weeks of hiring them, I had my spousal benefit corrected and received a lump sum payment for the months I should have been receiving it. If you're interested, I can share the name of the firm I used (they handle cases nationwide). Sometimes having professional representation is what it takes to get SSA to take your case seriously instead of just giving you the runaround. Also, document EVERYTHING from here forward - dates, times, names of representatives you speak with, reference numbers. This documentation becomes crucial if you do end up needing to pursue formal appeals or legal action.

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One more thing to understand: The "top-off" spousal benefit (getting the difference between your benefit and half of your spouse's) requires that your spouse is already receiving their retirement benefit. If your spouse is only receiving SSDI but hasn't converted to retirement benefits yet, that might cause confusion in the application process. Just something to check if the representative seems confused about your eligibility when you call back.

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Ev Luca

My husband is already receiving retirement benefits - he's 68 and I'm 66, so we're both at FRA. But that's a good point that might help others in different situations. The SSA rep did confirm I was eligible during my first call, so hopefully that part is clear in their system.

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I'm dealing with something similar right now! Applied for spousal benefits two weeks ago, went through the whole SSI screening even though I clearly stated we have too much in assets to qualify. The rep said I'd get a letter about scheduling my spousal benefit appointment, but so far I've only received the predictable SSI denial letter. Reading through everyone's experiences here, it sounds like I need to be more proactive about following up rather than waiting around. It's frustrating that this seems to be such a common issue - you'd think they could streamline the process better so people don't fall through the cracks between different benefit programs.

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After reading through all this, I can see why this is confusing. Look at it this way: if your late husband's benefit would be around $2,500/month at his full retirement age, and your own benefit might only be $1,400/month, that's a $1,100 monthly difference - or $13,200 per year. Over 20+ years of retirement, that's a quarter million dollars at stake. No wonder people are telling you to wait. But this is also why talking to SSA directly is so important - those numbers I just made up might be completely different in your actual situation.

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When you put it in actual dollars like that, it really puts things in perspective. I had no idea the difference could be so substantial. I'm definitely going to get actual numbers before making any decisions. Thank you all for the helpful advice!

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I went through this exact situation 8 years ago and chose to wait until 60 to remarry. Best financial decision I ever made! My late husband's survivor benefit is about $1,800/month, which is way more than I would have gotten on my own record or as a spouse. Here's what really helped me: I went to my local Social Security office in person (avoid the phone lines if possible) and asked them to run the numbers for all my options. They were actually very helpful once I got face-to-face with someone. Bring your late husband's death certificate, your marriage certificate, and your Social Security cards. Also, talk to your boyfriend about this openly. If he truly loves you, he'll understand that waiting makes financial sense for both of your futures. My husband (we married on my 60th birthday!) was completely supportive because he realized it meant more security for both of us in retirement. Six years might seem long, but it goes by faster than you think, and the peace of mind is worth it.

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Thank you for sharing your experience! This is exactly what I needed to hear from someone who actually went through it. The idea of going to the local office in person is great - I hadn't thought of that but it makes so much sense to avoid the phone hassles. Can I ask how you and your boyfriend handled the waiting period? Did you live together or keep separate places? I'm worried about how to navigate the relationship side of this decision.

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