Social Security Administration

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Social Security DAC benefits nightmare - daughter marked as deceased while application pending for a year

I'm at my wit's end with SSA and don't know what to do next. In January 2025, I applied for Disabled Adult Child (DAC) benefits for my 35-year-old severely autistic daughter under my late husband's record (he was a veteran). The SSA rep took all our information, warned it could take up to a year to process because of reviewing all her medical records, and gave me paperwork to complete about her medical history since diagnosis. They scheduled a phone appointment for March. Then in February, complete disaster - SSA sent a letter saying my daughter was DECEASED! She is very much alive! This threw everything into chaos. It's taken over 6 months just to get them to correct this error, despite them acknowledging the mistake and apologizing. Meanwhile, it's now been a full year since we first applied, and I can't get anyone on the phone to check the status or even make an appointment. It took interventions from my congressional office AND the ombudsman's office PLUS two hearings just to get the deceased status corrected. My daughter has been on SSI for 33 years, but she has significant health issues not covered by Medicaid. I'm on survivor benefits myself (for over 10 years) after becoming disabled from a fall while caring for her. An SSA worker advised me to take survivor benefits instead of disability since my own work credits were limited. Any advice on what to do next? How do I push this DAC application forward after all this chaos?

I've been through this exact nightmare with my brother. The DAC benefits are worth fighting for though. Have you followed up with the congressional office recently? They can request something called a "congressional inquiry status report" which forces SSA to provide updates. In our case, we found out the application was just sitting on someone's desk for MONTHS with no action. Also, don't forget to ask about retroactive benefits. Since your application has been pending for a year, they should backpay from the application date. Make sure they don't try to reset the clock because of their error!

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Thank you for mentioning backpay! I hadn't even thought about them potentially resetting the clock. I'll definitely bring this up in my next congressional inquiry. My rep's office said they'd check again in a month, but maybe I should ask them to follow up sooner.

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I'm so sorry you're dealing with this bureaucratic nightmare. As someone who works with disability advocates, I've seen the "deceased" error cause massive delays because it corrupts multiple database entries that need to be manually corrected across different SSA systems. A few additional suggestions beyond what others have mentioned: 1. Request a "case summary printout" from SSA showing all actions taken on your daughter's file since the original application. This will help you identify where exactly the process stalled. 2. Ask specifically if the DAC application is in "pending status" or if it needs to be resubmitted due to the death record error. Sometimes these errors require starting over completely. 3. Contact your state's Protection & Advocacy organization - they specialize in disability rights and often have direct contacts within SSA who can expedite complex cases like yours. 4. Document everything with timestamps. Create a log of every phone call, letter, and interaction. This becomes crucial evidence if you need to escalate further. The fact that your daughter has 33 years of established SSI history should work in your favor - there's no question about her disability status. The holdup is likely purely administrative at this point. Hang in there. These cases do eventually get resolved, especially with congressional pressure.

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Thank you all for the helpful information! I tried calling SSA this morning but couldn't get through after waiting for over an hour. I'll try again tomorrow and might try that Claimyr service if I can't get through. I'm still working and have decent income, so I'm not worried about my own benefits, but it bothers me if he's getting something he's not entitled to. I'll update once I learn more about what's actually going on.

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Definitely give us an update! I'm curious what you find out. And yeah, don't waste days trying to get through - that Claimyr service saved me SO much frustration.

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Just wanted to add some perspective from someone who works in benefits administration - this situation is actually more common than you might think. SSA processes millions of claims and sometimes errors do slip through, especially with complex eligibility rules like divorced spouse benefits. When you do get through to them, be prepared with specific information: your ex-husband's full name, approximate date he started receiving benefits, and the fact that he remarried before age 60 while still married. Also, don't be surprised if the first representative you speak with needs to transfer you to someone more specialized - divorced spouse benefit rules are tricky and not all front-line staff are fully trained on them. The good news is that once you report a potential issue, they take it seriously and will investigate thoroughly.

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This is really helpful advice! I'm new to navigating SSA issues and wasn't sure what information I'd need to have ready. I'll definitely write down all those details before I call. It's reassuring to know that errors do happen and they take reports seriously. I was worried they might think I was just being vindictive toward my ex, but it sounds like they're used to handling these kinds of situations. Thanks for the insider perspective!

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Hey Mateo! I went through this exact same nightmare a few months ago. Here's what finally worked for me: I called the SSA main number (1-800-772-1213) early in the morning (like 8 AM sharp) and kept pressing 0 to get to a human. It took several tries, but I eventually got through to someone who walked me through the new verification process. They can do identity verification over the phone now using a series of questions about your credit history and past addresses. Also, make sure you have your most recent SSA statement handy - they'll ask for specific info from it. Don't give up! The system is messy right now but there are ways through it.

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This is super helpful! I'm dealing with the same issue and had no idea they could do phone verification now. Quick question - do you remember roughly how long the phone verification process took once you got through to someone? And did they require any specific documents during the call?

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I'm dealing with this exact same issue right now! It's been such a headache since they stopped using ID.me. I tried calling multiple times but kept getting disconnected or stuck on hold forever. Reading through these comments, I'm definitely going to try the early morning calling strategy and see if I can get the phone verification process. Also thinking about reaching out to my congressperson's office like Giovanni suggested - didn't even know that was an option. Thanks everyone for sharing your experiences, it's helpful to know I'm not alone in this mess!

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A final important tip: keep very good records of your earnings throughout the year. I recommend creating a simple spreadsheet to track monthly income, and regularly check it against the annual limit. This makes it much easier when you need to communicate with SSA about your earnings and helps avoid surprises at tax time.

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That's excellent advice. I'll set up a tracking spreadsheet this weekend so we can monitor our progress toward the limit. Better to stay organized from the start!

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This is such valuable information! As someone who's been considering early retirement with my spouse, this thread has answered so many questions I didn't even know I had. The seasonal work approach sounds perfect for our situation too - we've been looking at summer work opportunities at national parks. It's reassuring to know that Social Security focuses on the annual total rather than monthly distribution. I'll definitely be bookmarking this discussion and setting up that tracking spreadsheet that Carter mentioned. Thank you all for sharing your experiences and knowledge!

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UPDATE: We took everyone's advice and tried multiple approaches simultaneously. We mailed in the SSA-1199 form with a voided check, AND used the Claimyr service mentioned above to get through by phone. The phone method worked fastest - got us connected to an agent in about 25 minutes, and they set up the direct deposit immediately. They confirmed it's now in the system and ready for any future payments or backpay if the WEP reform goes through. Thank you all for your help!

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DID THEY TELL YOU WHEN THE WEP REFORM WILL ACTUALLY HAPPEN??? Or are they just stringing us along AGAIN like they've done for 20+ YEARS???

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The agent couldn't provide any specific timeline on WEP reform since it's still pending legislation. She did confirm that IF it passes and IF we're eligible for adjusted payments, they'd automatically process everything once the direct deposit was set up. At least we're prepared now regardless of what happens with the legislation.

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As a fellow educator dealing with WEP, I wanted to share another option that worked for me. If you have a local SSA office that offers walk-in services (not all do anymore), you can sometimes get helped without an appointment during off-peak hours. I went to my local office at 2pm on a Tuesday and waited about 45 minutes, but the representative was able to set up my direct deposit on the spot. They also updated my address and verified all my information while I was there. It might be worth calling your local office first to confirm they still accept walk-ins for this type of service request. Having everything ready in one visit was definitely worth the wait time for me.

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