Social Security Administration

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I work as a disability advocate and wanted to add a few practical tips that might help with your daughter's case: 1. **Document functional limitations**: Keep a daily diary of how her condition affects specific activities - getting dressed, attending school, concentrating on homework, participating in social activities. SSA needs to see concrete examples of how the disability impacts her daily functioning. 2. **Get supportive statements**: Ask teachers, counselors, therapists, and even family friends to write statements describing the limitations they've observed. These third-party observations carry weight. 3. **Request consultative exam strategically**: If SSA schedules a consultative exam (which they often do), prepare your daughter for what to expect. These exams are brief and the doctors may not be familiar with her specific condition. Bring a summary of her symptoms and limitations. 4. **Income/asset planning**: Since you mentioned medical bills have been crushing, be aware that SSA will count your household income and assets. If you're close to the income limits, consider timing the application strategically or consulting with a benefits planner about asset protection. The 2-year delay in diagnosis actually works in your favor for establishing onset date, even though SSI doesn't provide retroactive benefits. It shows a clear timeline of when symptoms began affecting her functioning. Good luck with the process!

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This is such valuable advice, especially about the daily diary! I never thought about documenting the everyday struggles but that makes total sense. Do you have any recommendations for how detailed these diary entries should be? Should I track things like how long it takes her to get ready for school or specific homework struggles? Also, regarding the consultative exam - is there anything I should avoid doing or saying that might hurt her case? I'm worried about inadvertently downplaying her symptoms or the examiner not understanding her condition since it took so long to get diagnosed in the first place. Thank you for taking the time to share your professional insights!

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@bf25a63e979d As someone who went through this process with my daughter, I can add some thoughts on your excellent advice about the consultative exam. One thing that really helped us was creating a one-page summary of her "bad days vs good days" to bring to the exam. The consultative exam might catch her on a relatively good day, which doesn't represent her true limitations. We documented things like: "On bad days she can't concentrate for more than 10 minutes, needs help with basic tasks, experiences severe fatigue" vs "On good days she can attend school but still struggles with..." Also, I'd recommend being very specific in the diary entries @Amaya Watson mentioned. Instead of had "a hard day, write" things like took "45 minutes to get dressed due to fatigue/pain, couldn t'complete math homework after 20 minutes of trying, fell asleep during dinner. The" more concrete and measurable, the better. For the consultative exam, don t'let your daughter push "through to" seem normal. That s'her natural instinct, but it won t'help her case. Let the examiner see her actual limitations. One last tip - if possible, try to schedule the SSA appointment when she s'having a typical or worse day, not on one of her better days.

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I'm so sorry you're going through this with your daughter. As a parent who navigated this process recently, I wanted to share a few things that might help: First, definitely apply for SSI as others mentioned - not SSDI. The process can feel overwhelming, but you're not alone in this. One thing I wish I'd known earlier: start documenting EVERYTHING now, even before you get the official diagnosis. Keep records of missed school days, activities she can't participate in, how her symptoms affect daily tasks like homework or chores. This creates a clear picture of functional limitations. Also, don't wait for the "perfect" moment to apply. Some parents think they need to wait until they have every single medical record organized, but you can start the application process and provide additional documentation as you get it. SSA will request records directly from doctors too. Regarding the 2+ years of symptoms - while you can't get retroactive SSI payments for that time, having that documented timeline actually strengthens your case by showing the progression and persistence of her condition. The financial stress is real, and I know the uncertainty about her future is scary. But getting SSI can provide not just monthly income support, but also Medicaid coverage which can help tremendously with ongoing medical costs. Take it one step at a time. Call SSA this week to start the process, and don't get discouraged if it takes time. You're advocating for your daughter's future, and that matters.

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Thank you so much for this thoughtful advice! You're absolutely right about not waiting for the "perfect" moment - I've been putting off calling because I felt like I needed to have everything perfectly organized first. The point about documenting everything even before official diagnosis is really smart. We actually do have a lot of records from the past two years of her struggling - missed school days, activities she's had to drop, times when homework became impossible. I didn't realize this could all be valuable documentation for her case. I'm going to call SSA tomorrow morning to get the ball rolling. It's scary not knowing what her future will look like, but you're right that getting the support available now is the most important first step. Did you find the SSA staff helpful during your application process, or did you need to be pretty persistent about following up on things?

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I went through this exact same situation about two years ago when I reached my FRA in the middle of the month. Everyone here is absolutely correct - Social Security benefits are paid monthly, not daily, so you'll get your full September benefit regardless of your birthday being on the 16th. When you apply online, you'll simply select September 2025 as your benefit start month. There's no option to pick specific days within the month. One additional piece of advice: make sure you understand the payment schedule. Your September benefit will actually be paid in October (Social Security pays benefits the month after they're earned). Since your birthday is on the 16th, your payments will arrive on the third Wednesday of each month going forward. Also, don't stress too much about the application process itself. The online system is pretty user-friendly and will guide you through everything step by step. Just make sure you have all your documents ready beforehand - tax returns, W-2s, bank information for direct deposit, etc. The whole thing took me about an hour to complete. Congratulations on making it to your FRA and maximizing your benefits - that patience will really pay off in the long run!

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Thank you for sharing your experience from two years ago! It's really helpful to hear from someone who went through this exact situation. I appreciate you mentioning the payment schedule detail about receiving September benefits in October on the third Wednesday - that's exactly the kind of specific information I was looking for. It sounds like the online application process is more straightforward than I was worried it would be. I'm definitely feeling much more confident about this whole process now after hearing from so many people who have actually been through it. Thanks for the congratulations too - it has required patience, but I'm glad to know it will be worth it!

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This has been such a helpful thread! As someone who's about a year away from my own FRA, I've learned so much from reading everyone's experiences. It's really reassuring to see the consistent advice that Social Security operates on a monthly basis - I was having similar concerns about my mid-month birthday affecting my benefits. The tips about applying 3-4 months early, setting up the my Social Security account ahead of time, and having all documents ready are definitely going on my to-do list. Thanks to Sofia for asking this great question and to everyone who shared their real-world experiences. It's so much more valuable than trying to decipher the official SSA website! I'm bookmarking this thread for when I get closer to my application date.

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I'm so glad this thread has been helpful for you too! It's amazing how much clearer everything becomes when you hear from real people who have actually navigated this process. I was honestly getting overwhelmed trying to understand all the SSA rules and regulations on their official website - it's written in such confusing government language. Having everyone share their actual experiences with specific details like payment schedules and application timelines has been invaluable. Good luck with your own application when the time comes! Sounds like you're already well-prepared by starting to think about it a year ahead.

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I'm so sorry for your loss, AstroAce. Going through this while grieving is incredibly difficult. Based on what others have shared, it sounds like you have some important decisions to make about timing. Given that you're earning significantly more than the $23,920 limit and plan to work 2-5 more years, you might want to ask SSA during your appointment about the pros and cons of waiting to apply. As StarStrider mentioned, applying now would lock in the 71.5% rate permanently, even if you receive $0 due to earnings. However, if you wait until closer to your FRA to apply for survivor benefits, you'd get a higher percentage. And since your own earnings history sounds strong, your personal retirement benefit at 70 might exceed the survivor benefit anyway. Key questions for your SSA appointment: - What would your survivor benefit be at different claiming ages? - What's your projected retirement benefit at 62, FRA, and 70? - Would a "claim survivor benefits later, switch to own benefit at 70" strategy work better? - If you reduce hours in 1-2 years, how would that affect your options? Document everything they tell you and get their employee ID. You're asking all the right questions - don't let them rush you into a decision during that call.

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This is such a comprehensive summary of all the key points raised in this thread - thank you Andre! I'm feeling much more prepared for my SSA appointment now. I think I was getting overwhelmed trying to figure everything out on my own, but breaking it down into those specific questions really helps. I'm definitely going to ask about that strategy of potentially waiting to claim survivor benefits until closer to my FRA, especially since it sounds like my own retirement benefit might be higher anyway given my earnings history. The idea of not locking in that 71.5% reduction rate if I'm not going to receive payments anyway makes a lot of sense. I'll make sure to have a notepad ready and ask for the employee ID like several people suggested. It's reassuring to know there are options and that I don't have to make any rushed decisions during that first call.

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I'm so sorry for your loss, AstroAce. Having gone through something similar myself a few years ago, I know how overwhelming all of this can feel when you're already dealing with grief. From reading through all the excellent advice here, it sounds like you're in a position where waiting might actually be beneficial. Since you're earning well above the earnings limit and planning to work several more years, applying now would lock you into that 71.5% rate permanently while potentially giving you $0 in actual benefits. One thing I didn't see mentioned - make sure to ask SSA about "protective filing." This allows you to establish an application date while giving you time to gather information and make a final decision. It can be helpful if you're unsure about timing. Also, given your strong earnings history, definitely ask them to run projections showing your own retirement benefit at different ages compared to the survivor benefit. Many people don't realize that their own benefit might end up being higher, especially if they've had a long, well-paying career. Take notes during your call, and don't feel pressured to make any immediate decisions. You have options, and the right choice depends on your specific numbers and circumstances. You're asking all the right questions - that's the hardest part.

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Thank you everyone for the advice. I'm going to try the app for my first paycheck next month and keep detailed records of everything. I'll try to make that verification call too, but it's good to know about Claimyr if I can't get through. Does anyone know if I need to report my job offer now before I even start, or just wait until I get my first paycheck?

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You're only required to report actual earnings, not job offers. So wait until you receive your first paycheck, then report through the app by the 6th of the following month. Make sure you're tracking your Trial Work Period months if this is your first work attempt while on SSDI. Any month you earn above $1,110 (2025 amount) counts as a TWP month.

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I'm also on SSDI and just started part-time work last year - the app has been a lifesaver for my anxiety too! One thing I'd add is that you can actually check if your wage reports went through by logging into your my Social Security account online. Under "Message Center" you'll sometimes see confirmations that they received your monthly reports. It's not instant, but usually shows up within a few days to a week. Also, don't stress too much about that verification call - I ended up never making mine and everything has worked fine for 8 months now. The app really does work as intended. Just keep those confirmation numbers and screenshot everything like others mentioned. Good luck with your new job!

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This is really helpful to know about checking the Message Center! I didn't realize you could verify your reports went through that way. That would definitely ease my anxiety about whether they actually received everything. Thanks for mentioning that - it sounds like the perfect middle ground between using the app and having to make phone calls.

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This is such a complex situation! I'm actually dealing with something similar with my parents right now. One thing that might help is using the SSA's online calculators or getting a personalized statement to run different scenarios. What really struck me from everyone's responses is how much that early filing penalty adds up over time - we're talking about potentially losing hundreds of dollars per month for the rest of her life. Have you considered what would happen if she worked part-time or found other income sources to bridge the gap until her FRA? Sometimes the math works out better to wait even if it means tightening the budget for a few years. Also, since you're planning to wait until 70 anyway, you might want to factor in cost of living adjustments (COLAs) that could increase both your benefits over time. The reduction percentages stay the same, but the base amounts they're applied to will likely grow. Good luck with your decision - this stuff is way more complicated than it should be!

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As someone new to understanding Social Security benefits, this thread has been incredibly eye-opening! I had no idea that filing early creates permanent reductions to BOTH your own retirement benefit AND future spousal benefits. Reading through everyone's explanations, it sounds like the key takeaway is that when your wife files at 62, she's essentially locking in reduction factors that will follow her for life (except for survivor benefits). The math showing she'd get around $1,414 instead of the full $2,175 spousal benefit really puts it in perspective - that's nearly $800 less per month! One question I have after reading all this: are there any scenarios where filing early for spousal benefits still makes sense? Like if someone has health concerns or really needs the income? Or is it almost always better to wait until FRA if you can manage it financially? Thanks to everyone who shared their knowledge here - this is exactly the kind of real-world insight that helps people make better decisions about their retirement planning!

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