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Social Security survivor benefits with disabled child - FMB confusion and earnings limit questions

Lost my husband last year and trying to navigate the survivor benefits maze while also supporting our disabled son. My appointment with SSA is scheduled for 3/19, but I'm desperately trying to understand things beforehand so I don't make costly mistakes. My biggest questions: 1. My husband started SS around his FRA but possibly took the 6-month retroactive option. Is there any way to find this out before my appointment? It might affect my benefits, right? 2. I won't reach my FRA until 2026, so I know I'd face some reduction taking survivor benefits now. Currently job hunting after being laid off in October, and worried about the earnings limit if I find work. 3. Our disabled son currently receives 75% of his dad's SS benefit as a survivor. If I start receiving survivor benefits too, will that reduce his amount due to the family maximum benefit (FMB)? SSA told me yesterday that if my son switched to MY record, he'd only get 50% instead of the 75% he gets now. 4. Strategy question: Should I apply online for my OWN retirement benefits to start in January, then switch to survivors at my appointment? If I find work, I might earn around $62,000 annually - does that put me over some threshold? Or does the earnings limit only matter at FRA? The whole system feels deliberately confusing. I swear we need a mandatory SSA training class just to understand what we're entitled to.

Connor Byrne

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You're asking some great questions, and I can help clarify a few things: 1. Yes, you can find out if your husband took the 6-month retroactive option by checking his Social Security Statement (if you have access) or by asking during your appointment. This could affect your survivor benefit calculation. 2. Since you're under FRA, the earnings limit for 2025 is about $22,320. You'll lose $1 in benefits for every $2 you earn above that limit. At your potential $62,000 salary, you would lose a significant portion of your benefits temporarily (they'll be added back after you reach FRA). 3. There is indeed a family maximum benefit (FMB) for survivor benefits. It's typically 150-180% of the deceased's benefit. You and your son would need to share this maximum. The 75% your son receives is standard for a child survivor benefit. 4. I wouldn't recommend applying for your own benefits first unless they're higher than your survivor benefits (unlikely if you're not at FRA). Starting your own benefits early means a permanent reduction you can't undo later.

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Zainab Ahmed

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Thank you! This helps a lot. So if I understand correctly, with a $62k income, I'd be over the earnings limit by about $40k, meaning I'd lose about $20k in benefits for the year? That hardly seems worth it then. Do you know if my son's 75% would be reduced if I also start collecting survivors benefits? That's my biggest concern - I don't want to hurt his benefit amount.

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Yara Abboud

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i went thru something similar last yr when my wife passed. the family max is a real thing!! my daughter was getting 75% but when i started getting survivors they reduced hers to like 65% i think?? something like that. they explained it at the office but it was so complicated. they said together we cant get more than like 175% of my wifes benefit

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Zainab Ahmed

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Oh no, that's exactly what I was afraid of. I definitely don't want my son's benefits reduced. He depends on that income completely. Did they give you any options or was the reduction automatic once you started collecting?

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PixelPioneer

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The system is frustrating! When I finally got through to someone at SSA after calling for WEEKS, they explained that the FMB for survivors is typically between 150-180% of the deceased worker's benefit. So if your husband's benefit was $2000, the maximum your family could receive would be around $3000-$3600 total. Since your son is already getting 75% ($1500 in this example), if you were to get 100% ($2000), you'd exceed the FMB, so both benefits would be proportionally reduced. If you're going to earn $62K, the earnings test will significantly reduce your survivor benefit anyway. You might want to consider waiting until either you're not working or you reach FRA. I was in a similar situation and found it impossible to talk to SSA directly until I used Claimyr (claimyr.com). They got me connected to a real person at SSA in less than 15 minutes instead of waiting on hold for hours. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU. Totally worth it for getting these complex questions answered.

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Keisha Williams

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Is that service legit? I've been trying to get through to SSA for days about my mom's benefits and keep getting disconnected. So frustrating.

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PixelPioneer

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Definitely legit. I was skeptical too but my brother-in-law recommended it. They just help you skip the phone queue. The agent who helped me was a regular SSA employee who answered all my questions about our family maximum benefit situation.

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Paolo Rizzo

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EVERYONE IN THIS THREAD IS OVERTHINKING IT!!!! The SSA will calculate EVERYTHING for you at your appointment!!! You don't need to become an expert - that's THEIR job. Just bring your husband's death certificate, your marriage certificate, your birth certificate, and your son's information. They'll tell you exactly what you can get. And FYI, the earnings limit is $22,320 for 2025 if you're under FRA, so at $62k you're gonna lose a TON of benefits anyway. Probably not worth applying until you either earn less or reach FRA.

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Zainab Ahmed

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I appreciate your perspective, but I've heard so many horror stories about people getting incorrect information from SSA representatives. I'd rather go in prepared and understand my options. The last thing I want is to make an irreversible decision that hurts my disabled son's benefits.

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Paolo Rizzo

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Fair enough! But just remember different SSA agents give different answers sometimes. The RULES are clear but how they explain them isnt! Good luck!!

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Amina Sy

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I'm currently receiving survivor benefits while my daughter receives them too, so I can share my experience with the Family Maximum Benefit (FMB) situation. For survivors, the FMB is usually 150-180% of your husband's Primary Insurance Amount (PIA). The actual percentage depends on his earnings record. In our case, when both my daughter and I started receiving benefits, we both had our amounts proportionally reduced to stay under the FMB cap. She went from 75% to about 63%, and I got about 87% instead of 100% (I'm still under my FRA). Regarding the earnings limit: Since you're making $62,000, that's about $40,000 over the 2025 limit of $22,320. They withhold $1 for every $2 over, so you'd lose about $20,000 in benefits. If your potential survivor benefit is less than that, you might not receive anything at all while working. I suggest: 1. Wait to claim until you're either not working or earning less 2. Consider waiting until FRA when there's no earnings limit 3. Focus on protecting your son's benefits in the meantime

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Zainab Ahmed

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This is incredibly helpful, thank you! I think I'll wait until either my job situation changes or I reach FRA. I definitely want to protect my son's benefits above all else.

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Oliver Fischer

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Ugh the earnings limit is SO FRUSTRATING!!! I'm in a similar boat - 60 years old, widowed 2 years ago, and still working. The stupid $1 for $2 reduction basically means I can't collect ANYTHING until I either quit or hit FRA. And don't even get me started on how they calculate the family maximum - it's like they deliberately make it impossible to understand. And yes, if your disabled son is getting 75% of your husband's benefit, adding you to the mix will almost certainly reduce his amount. That's what happened with my sister-in-law and her kids. The total family amount stayed the same, it just got redistributed. It's so messed up how they penalize families like this.

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Connor Byrne

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Just to clarify - while it may feel like a penalty, the family maximum benefit cap exists because Social Security was designed to replace a portion of lost income, not the entire amount. But I agree the rules are unnecessarily complex and poorly communicated to beneficiaries.

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Keisha Williams

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Wait so your disabled son gets benefits from his dad? My situation is similar but nobody told me that was an option. How did you set that up? My son has autism and I'm divorced, his dad is still alive but we don't get any benefits???

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Amina Sy

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Different situation. Her son is receiving survivor benefits because his father passed away. For a child to receive benefits based on a parent's record, either the parent must be deceased (survivor benefits), the parent must be receiving Social Security retirement/disability benefits (dependent benefits), or the child must qualify for SSI based on disability and low income/resources. In your case, if your ex-husband isn't collecting benefits yet, your son wouldn't qualify for dependent benefits on his record.

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Connor Byrne

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Based on everything shared here, my advice for your appointment: 1. Ask for a complete breakdown of the FMB calculation for your family 2. Request an estimate of how your son's benefit would be affected if you file for survivors 3. Since you're job-hunting with potential earnings above the limit, consider these strategies: - Wait to file until you reach FRA in 2026 (no earnings limit then) - Only file if you end up with a lower-paying job or work part-time - If you file while earning $62K, be prepared for most of your benefits to be withheld 4. Bring documentation: your husband's death certificate, your marriage certificate, birth certificates, and your recent tax returns 5. Ask specifically about the 6-month retroactive payment your husband may have taken and how that affects your survivor benefit calculation Remember: Any benefits withheld due to the earnings test will increase your benefit amount once you reach FRA, so they're not permanently lost.

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Zainab Ahmed

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Thank you for this comprehensive list! I'm going to print it out and bring it to my appointment. You've really helped me understand what questions I need to ask.

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