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Can Medicaid eligibility be lost when DAC benefits increase after parent claims SS at age 70?

I'm trying to understand how Medicaid and DAC (Disabled Adult Child) benefits interact in Ohio. My sister (38) has been disabled since childhood and receives DAC benefits based on our dad's work record. Dad is turning 70 next month and plans to claim his Social Security then (he's been waiting to maximize his benefit). I've been trying to figure out if the resulting increase to my sister's DAC payment could push her over the Medicaid income limit in Ohio. She absolutely depends on Medicaid for her extensive medical needs. Dad's benefit will be substantially higher than mom's (who passed away 3 years ago), and I'm worried about how this might affect my sister's benefits overall. Has anyone dealt with this situation? Does the higher DAC payment based on the higher-earning parent potentially disqualify someone from Medicaid? Any advice is greatly appreciated - the SSA phone lines have been impossible to get through.

Luca Bianchi

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This is a complicated but important question. DAC (Disabled Adult Child) benefits can indeed increase when the parent whose record they're drawing from claims Social Security, especially if that parent delayed until 70. The good news is there are special Medicaid protections for DAC beneficiaries called 'Pickle Amendment' protections. If your sister was eligible for both SSI and Social Security benefits in the past, and later became ineligible for SSI due to an increase in her Social Security benefits (which could happen when your dad claims), she might qualify for continued Medicaid under these protections. Ohio definitely has these provisions. I'd recommend contacting your sister's Medicaid caseworker directly about this situation BEFORE your dad files. Make sure to specifically mention 'DAC beneficiary' and 'Pickle Amendment protections.'

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Zara Shah

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Thank you for such a helpful response! I've never heard of the Pickle Amendment before. I'll definitely mention it to the Medicaid caseworker. One quick follow-up - do you know if my sister needs to have been receiving SSI recently for this protection to apply? She was on SSI years ago but has only been receiving DAC benefits for about the last 6 years.

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ABSOLUTELY DO NOT let your dad file for SS until you get this figured out!!! My cousin lost his Medicaid when his DAC went up and it was a NIGHTMARE to get back!! The income limits for Medicaid in Ohio are SUPER low and most caseworkers DON'T KNOW about the special rules for DAC recipients. Your sister could lose her healthcare coverage for MONTHS while you try to straighten this out!!

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Nia Harris

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This happened to my brother too, but we got it fixed. The key is making sure the right documentation gets to the right people. In Ohio, you need to contact both the county JFS office AND submit documentation to the state Medicaid office about the DAC status. It took us about 6 weeks to get everything straightened out, but we did get his coverage reinstated retroactively.

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Mateo Gonzalez

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I just went through this exact situation with my son last year. Here's what you need to know: 1. When your dad claims at 70, your sister's DAC benefit will automatically recalculate based on his higher amount 2. This WILL likely put her over the standard Medicaid income limit in Ohio (which is only about $941/month for an individual) 3. However, there's a special Medicaid eligibility category for people in your sister's situation called the "DAC Medicaid Protected Group" 4. To qualify, she needs to have become disabled before age 22, be receiving DAC benefits, and have lost or be at risk of losing SSI due to receiving these benefits 5. Contact both the Ohio Department of Medicaid and your county Job & Family Services office. Be very specific that this is about the DAC Medicaid Protected Group The trick is finding someone who actually understands these rules - they're complex and not every caseworker knows them well. You might need to be persistent.

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Zara Shah

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This is incredibly helpful, thank you! Just to clarify - my sister already receives DAC benefits based on my mom's record, but they'll increase when dad claims his higher benefit. Do you know if the protected group still applies even though she's already receiving DAC, just at a lower amount?

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Aisha Ali

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have u tried calling ssa direct? they cn tell u exactly how much the new payment will b and then u can take that 2 medicaid office. my daughter gets dac 2 and we did this b4 my husband started his ss

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Zara Shah

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I've been trying to call SSA for days but can't get through. Always get a busy signal or the call drops after being on hold forever. Did you have any tricks for actually getting someone on the phone?

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Nia Harris

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Have you tried using Claimyr to get through to Social Security? It's been a lifesaver for me with these kinds of complex benefit questions. I was in a similar situation trying to figure out SSA rules for weeks and couldn't get through. I used their service at claimyr.com and got connected to a real agent in about 15 minutes. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU I found that speaking directly with an SSA representative was the only way to get accurate information about how the DAC benefit would be recalculated. The agent was able to run calculations based on your father's projected benefit at 70 and tell me exactly how it would affect the DAC amount.

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Zara Shah

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I've never heard of this service but I'm going to check it out right now. Getting accurate numbers would be incredibly helpful before we make any decisions. Thanks for the suggestion!

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Ethan Moore

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just wondering but did your sister ever check if she qualifies for a ABLE account? might help w/ the medicaid situation too since money in ABLE doesnt count for medicaid limits in ohio

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Zara Shah

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She does have an ABLE account! But my understanding is that only applies to assets, not to monthly income. The DAC benefit would be counted as income I think, which is what I'm worried about.

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Yuki Nakamura

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First, to directly answer your question - yes, DAC benefits can increase to a level that affects Medicaid eligibility. However, as others mentioned, there are protections in place. I work with clients in similar situations frequently, and here's what I recommend: 1. Contact Ohio Medicaid and specifically ask about the "Medicaid Buy-In for Workers with Disabilities" program as another potential option 2. Look into whether your sister might qualify for a 1619(b) status if she has any work history 3. Get a benefits analysis done through Ohio's Work Incentives Planning and Assistance (WIPA) program 4. Request a PASS plan evaluation from your local SSA office Also, make sure all paperwork clearly indicates she's a DAC recipient who previously received SSI. This status triggers specific protections under both federal and Ohio state law. The system is complex but navigable if you know which specific programs to ask about.

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Ethan Moore

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whats a PASS plan?

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Luca Bianchi

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To answer your follow-up question - the timing of when she received SSI can matter for certain protections. The key thing to verify is whether she meets the criteria for Section 1634(c) of the Social Security Act (this is the actual law behind what many call the DAC Medicaid Protection). Specifically, to maintain Medicaid eligibility under this protection, your sister must: 1. Be entitled to DAC benefits 2. Have lost SSI due to receiving or increasing DAC benefits 3. Still meet the disability criteria and other non-financial SSI eligibility requirements Ohio has implemented this federal protection. The fact that it's been 6 years since she received SSI doesn't automatically disqualify her, but you'll need to verify with Ohio Medicaid exactly how they apply this rule.

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Zara Shah

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Thank you for this detailed information. Would you happen to know if there's specific documentation we should gather before meeting with the Medicaid caseworker? I want to be as prepared as possible.

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Mateo Gonzalez

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In response to your question about documentation, here's what I recommend bringing to your Medicaid meeting: 1. SSA Award Letters - both the original DAC determination and any subsequent adjustments 2. Documentation showing when/why she stopped receiving SSI (ideally the SSA notice) 3. Any documentation about her original disability determination 4. Bank statements showing current DAC deposits 5. A calculation or estimate of what her increased DAC benefit will be after your father files at 70 Also, specifically request that the caseworker document in her file that she's a DAC recipient potentially eligible for 1634(c) protections. This creates a paper trail if you need to appeal later. Be prepared for the caseworker to be unfamiliar with these protections - they're not commonly dealt with. You might need to request a supervisor or specialist who handles unusual Medicaid categories.

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MAKE SURE to get EVERYTHING in WRITING!! Don't just take a caseworker's word for it! My cousin's caseworker SWORE he wouldn't lose coverage but didn't document anything, and then when he did lose coverage, suddenly nobody remembered saying that!

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