Social Security DAC vs SSI income limits - will my child lose benefits if they work?
Just retired this past February along with my husband, and we have a complicated situation with our two adult kids with disabilities. Both were on SSI before, but now they've been switched to Disabled Adult Child (DAC) benefits based on my husband's work record. I really want to encourage my son (31) to try working part-time at the grocery store down the street. The manager there is great with hiring people with disabilities. But I'm worried about how this affects his benefits. The DAC income limit seems SO much lower than what SSI allowed with their work incentives. If my son earns too much and loses his DAC benefits, would he automatically go back to SSI? Or would he have to reapply? And would this somehow affect my daughter's benefits too? She's 28 and has more severe disabilities, so she won't be working. I've tried calling SSA three times but can't get through to anyone who understands these complicated benefit transitions. Any advice from parents who've navigated this DAC/SSI situation?
22 comments


Rebecca Johnston
Your son would not automatically revert to SSI if he exceeds the Substantial Gainful Activity (SGA) limit for DAC benefits. The 2025 SGA amount is $1,550 per month for non-blind individuals. If he consistently earns above this amount, after a trial work period, his DAC benefits could terminate. To get back on SSI, he would need to file a new application and go through the eligibility determination process again. Keep in mind that SSI has both income AND resource limits (currently $2,000 in assets for an individual). Your daughter's benefits should not be affected by your son's work activity since DAC benefits are individually determined. Also, look into whether your son might benefit from the Ticket to Work program or PASS (Plan to Achieve Self-Support) which can provide work incentives while maintaining benefits during transition periods.
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KingKongZilla
•Thank you so much for this clear explanation. I didn't realize we'd have to reapply for SSI - that's concerning because the application process was such a nightmare the first time around. I also forgot about the asset limits for SSI being so much lower. Can you explain what the "trial work period" means for DAC benefits? How long would he be able to try working before risking his benefits?
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Nathan Dell
my cousin went thru this EXACT thing! it was a total disaster, he lost his DAC and then couldnt get back on SSI for like 8 months!!! the SS office kept loosing his paperwork and he had no health insurance during that time. be super careful!!!!!
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KingKongZilla
•Oh no, that's exactly what I'm afraid of! Was your cousin eventually able to get back on SSI? Did they have to move out or anything during that gap with no benefits?
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Maya Jackson
I've been in your exact situation with my adult son who's on DAC benefits. Here's what you need to know: 1. The Trial Work Period (TWP) allows your son to test his ability to work for 9 months within a 60-month period without losing benefits. In 2025, any month he earns more than $1,110 counts as a TWP month. 2. After the TWP, there's a 36-month Extended Period of Eligibility (EPE). During this time, he'll get benefits in months he earns below SGA ($1,550) and won't get benefits in months he earns above SGA. 3. Your daughter's benefits are completely separate and won't be affected. 4. There's no automatic reversion to SSI. It's a new application if needed. My advice is to have your son start with very part-time hours to stay under the limits. We found it helpful to meet with a benefits counselor through our local disability resource center who helped us calculate exactly how much my son could work.
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KingKongZilla
•Thank you for sharing your experience! The Trial Work Period sounds like a good safety net to let him try working without immediately losing everything. I'll look for a benefits counselor in our area - great suggestion. Did your son eventually increase his hours or did you keep him under the limits permanently?
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Tristan Carpenter
Warning: the system is RIGGED against people with disabilities who want to work!! My daughter tried working part-time and SS declared she wasn't disabled anymore even though she only worked 15 hours a week! Then they demanded $12,000 in "overpayments" because they said she should have reported her job sooner even though WE DID REPORT IT! It took 18 months and a lawyer to fix this mess. Make them document EVERYTHING and keep copies of EVERYTHING you send them. Don't trust a single thing they tell you over the phone.
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Amaya Watson
•This happened to my brother too! We reported his work activity every month for a year and they still said he never reported it. The whole system is designed to trip people up. We ended up with a $8,450 overpayment that we're still fighting 2 years later.
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Grant Vikers
have u looked into ABLE accounts?? my son has one and can save money without it counting for the SSI asset limit. might help if ur son needs to switch back to SSI later
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KingKongZilla
•We do have ABLE accounts set up for both kids, thankfully! That's one thing our financial advisor made sure we did a few years ago. Though I'm not sure how much my son would be able to save from a part-time job after expenses.
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Giovanni Martello
When my brother was transitioning between benefits, I found this impossible-to-reach person at our local SS office who actually knew all the rules. After trying to call for weeks, I tried Claimyr (claimyr.com) and got through to SSA in 20 minutes instead of waiting on hold for hours. They have this video showing how it works: https://youtu.be/Z-BRbJw3puU It was worth it to get an actual appointment with a technical expert who understood the DAC to SSI transition issues. The regular reps just gave us wrong information repeatedly until we found that one expert.
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KingKongZilla
•I've never heard of this service before! I'll definitely check it out because I'm getting nowhere with the regular number. Did they connect you with someone who specializes in disability benefits specifically?
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Giovanni Martello
Yes! When I got through using Claimyr, I specifically asked for a 'Technical Expert' who specializes in disability work incentives. Regular claims reps often don't understand the complexities of DAC and SSI transitions. Once I got the appointment, I prepared a list of specific questions about the trial work period and extended period of eligibility. Made all the difference having the right person to talk to.
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Maya Jackson
•I second this approach. Ask specifically for a Work Incentives Liaison or someone who specializes in work incentives. Not all offices have them, but if they do, these specialists are much more knowledgeable about these complex scenarios than regular claims representatives.
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Nathan Dell
wait im confused... i thought DAC benefits were better than SSI? why would u want him to go back to SSI? my friend gets DAC and its way more $$ than SSI was
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Rebecca Johnston
•You're right that DAC benefits are typically higher than SSI and don't have the same strict resource limits. The ideal scenario would be for the son to work but stay below SGA to maintain DAC benefits. Going back to SSI would usually only be considered if DAC benefits were terminated due to work activity AND the individual still needed some form of support.
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KingKongZilla
UPDATE: Thank you everyone for all the advice! I met with a benefits counselor at our local Center for Independent Living yesterday. She explained that my son could work part-time staying under the TWP threshold ($1,110/month) without immediately risking his benefits. We worked out that he could safely work about 20 hours per week at the current minimum wage and still be ok. The grocery store manager is willing to strictly limit his hours to stay under this amount. We're still waiting to get through to SSA to confirm all this (will try that Claimyr service!), but I feel much better having a clearer understanding of how this works. The benefits counselor is also going to help us create a reporting system to make sure we document everything properly to avoid any problems later.
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Rebecca Johnston
•Great update! Working with a benefits counselor is exactly the right approach. Just remember that the Trial Work Period is a limited time - those 9 months within a 60-month period. After the TWP, the Extended Period of Eligibility begins, which has different rules. Make sure you understand the long-term implications as well as the immediate situation.
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Caleb Stone
This is such great news! I'm so glad you found a benefits counselor who could walk through the numbers with you. The 20 hours/week plan sounds very reasonable and gives your son a real chance to build work experience without jeopardizing his benefits. One thing I'd add - make sure to keep detailed records of his actual hours and wages each month, not just what's planned. Sometimes retail schedules can fluctuate, and you want to make sure you're tracking if he accidentally goes over in any given month. Also, don't forget to report his work activity to SSA proactively, even though he's staying under the limits. It's better to over-communicate than have them think you're hiding something later. Good luck to your son with his new job opportunity!
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Omar Zaki
•This is such wonderful news! I'm so happy to hear you found a benefits counselor who could help you navigate this complex situation. As someone new to this community, I've been reading through all the responses and learning so much about DAC and SSI transitions. Your approach of being proactive and getting professional guidance before your son starts working seems really smart. The horror stories shared here about people losing benefits and facing overpayment demands are scary, but it sounds like you're taking all the right steps to avoid those pitfalls. I hope your son enjoys his new job opportunity at the grocery store! It's wonderful that you're encouraging him to work while being so careful to protect his benefits. Please keep us updated on how it goes - I'm sure other parents in similar situations would benefit from hearing about your experience.
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Mateo Martinez
As a newcomer to this community, I've been following this thread with great interest since I'm facing a similar situation with my own adult daughter who has disabilities. The information everyone has shared here is incredibly valuable. I wanted to add one thing that might be helpful - when you do connect with SSA (hopefully through that Claimyr service), ask them about getting a written confirmation of your son's work plan. Some offices will provide a letter stating that working X hours at Y wage should not affect benefits, which can be helpful documentation if any issues arise later. Also, I noticed several people mentioned the importance of keeping detailed records. Consider setting up a simple spreadsheet to track his monthly earnings, hours worked, and any communications with SSA. This has been a lifesaver for families I know who've had to dispute overpayments or other issues. Thank you to everyone who shared their experiences - both the success stories and the warnings. It's clear this system requires careful navigation, but it's encouraging to see that with the right preparation and professional guidance, it is possible for our kids to work while maintaining their benefits.
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Charlotte Jones
•Welcome to the community! Your suggestion about getting written confirmation from SSA is excellent - I wish I had thought of that when we were starting this process. Having something in writing would definitely provide peace of mind and protection if questions arise later. The spreadsheet idea is also really smart. We've been keeping paper records but a digital tracking system would probably be more organized and easier to reference if needed. Do you have any specific columns or categories you'd recommend including in the tracking spreadsheet? It's so helpful to have other parents going through similar situations. This thread has been a goldmine of practical advice that you just can't get from the official SSA materials. Thanks for adding your insights!
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