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My mother (68) was just diagnosed with terminal pancreatic cancer last month and her oncologist says she likely has 6-8 months. She's been on Social Security retirement since she was 66, but her hospice coordinator mentioned something called 'compassionate allowance' for SSDI that might provide more benefits. I'm completely confused about whether this is even an option for someone already collecting retirement. Specifically, I need to understand: 1) Can someone switch from SS retirement to disability benefits if they develop a terminal illness? 2) Would the compassionate allowance program potentially provide higher monthly payments than her current retirement benefit? 3) How would this affect my dad's survivor benefits when she passes? Would he receive more if she were on disability vs. retirement? She stopped working completely in November when she started having symptoms, before the official diagnosis. Any guidance would be deeply appreciated - we're trying to make sure both my parents have the financial support they need during this difficult time.
I'm turning my full retirement age (66 and 8 months) this September and trying to figure out exactly when I should expect my first full Social Security check. I'm confused about the timing and months. If September is when I reach FRA, would my first FULL check be for May (since that would technically be the 8th month in the calculation), or would it be June, or even July? I've read about the month of entitlement versus the payment month and now I'm totally confused. Anyone who's recently gone through this know how it actually works? I don't want to mess this up by applying at the wrong time!
Everyone keeps talking about "reduced benefits" before FRA but no one mentioned exactly HOW reduced. For someone with an FRA of 66 and 8 months, taking benefits just 4 months early (in May instead of September) would result in a reduction of about 2.2% from your full benefit amount. That's PERMANENT - meaning for the rest of your life, your benefit would be 97.8% of what it could have been. Whether that trade-off is worth it depends on your financial situation. Just something to consider!
Just wanted to add one more important detail that might help with your planning - when you do apply (whether it's for September benefits or earlier), make sure to have all your documents ready ahead of time. You'll need your birth certificate, W-2 forms or tax returns, and bank account information for direct deposit. The application process itself can take a few weeks to process, so don't wait until the last minute! I applied about 2 months before I wanted my benefits to start and it worked out perfectly timing-wise. Also, once you start receiving benefits, you'll get a letter each year showing your payment schedule for the upcoming year, which really helps with budgeting.
Hi everyone, I'm in a bit of a confusing situation with Social Security and could use some expert advice. Basically, I don't qualify for regular Social Security retirement benefits because I spent most of my adult life as a military spouse and full-time caregiver. My husband served 23 years active duty in the Air Force, and after raising our children, I became the primary caregiver for my sister who needed 24/7 care (she had her own finances from a settlement, so I couldn't claim her as a dependent). My husband plans to claim his Social Security at 62 in 2028, and he already receives military retirement and VA disability. A friend suggested I might qualify for SSI now, so I submitted an online application. Here's where I'm confused: I keep getting updates from SSA just telling me I don't have enough work credits for regular Social Security or Medicare - which I already knew when I applied for SSI specifically. The messages don't address my SSI eligibility at all. Should I just wait for them to eventually make a decision (probably a denial based on these messages)? Would it be better to schedule an in-person appointment? Or am I just out of luck until my husband starts collecting his Social Security in 2028, when I might qualify for spousal benefits? Any advice would be really appreciated!
Wait i thought military spouses get some kinda special social security credit or something? my cousin said something about that once, but maybe it was a different benefit
You might be thinking of the Special Earnings Credit for military service members (not spouses), where military members get additional Social Security wage credits for active duty time from 1957-2001. Or possibly the Military Spouse Career Advancement Accounts (MyCAA) program, which provides education funding, but isn't related to Social Security. Unfortunately, there's no special Social Security credit program specifically for military spouses. This is why waiting for spousal benefits when her husband claims retirement is likely her best option.
I'm sorry you're dealing with this frustrating situation! As a fellow military spouse, I completely understand how confusing the SSA system can be. Based on what others have shared here, it sounds like your household income from your husband's military retirement and VA disability ($5,600/month) would likely put you over the SSI income limits. The SSI program has very strict income and asset requirements for couples. Your best bet really does seem to be waiting until 2028 when your husband claims his Social Security at 62. At that point, you'll be eligible for spousal benefits up to 50% of his Primary Insurance Amount - and this is typically much more generous than SSI anyway. One thing to consider: since your husband is planning to claim at 62 (before his full retirement age), his benefits will be permanently reduced, which would also reduce your spousal benefit. You might want to run some numbers to see if it would be worth it for him to wait longer, especially since you already have his military retirement and VA disability to live on. Have you looked into whether you qualify for any VA benefits as a military spouse? Sometimes there are programs available that people don't know about. Good luck with everything!
My husband passed away in February at age 70. He had waited to claim SS until his 70th birthday last October, so he was receiving maximum benefits for just a few months before his death. I'm currently 64 and started receiving my own retirement benefits in July 2024 at age 64, before my full retirement age of 67 and 2 months. I called Social Security about survivor benefits and they requested our marriage certificate, which I sent 3 weeks ago. Still waiting to hear back. From what I've been reading online, I think I'll receive reduced survivor benefits since I hadn't reached my FRA when I filed for my own benefits earlier this year. I'm confused about how much I'll actually receive - will it be a percentage of his full benefit amount? Will my early filing permanently reduce what I can get? Anyone with experience navigating survivor benefits who started their own benefits early? Any information would be really helpful right now.
Thank you all so much for the helpful information. I'm going to try calling SSA again tomorrow and ask specifically about: 1. The exact amount I would receive if I switch to survivor benefits now vs. at my FRA 2. Whether I should continue with my own benefit or switch to survivor benefits 3. That $255 death benefit I hadn't heard about I'll ask to speak with a technical expert if the representative seems unsure. I'm feeling much more prepared now thanks to all your explanations. I'll update here once I get some answers from SSA.
I'm so sorry for your loss, Isabella. You're asking all the right questions and it sounds like you're getting great advice here. One additional thing to consider - when you call SSA tomorrow, also ask about retroactive benefits. Since your husband passed in February and you're just now getting this sorted out, you may be entitled to survivor benefits dating back to the month after his death. This could result in a lump sum payment for the months you've missed. The SSA doesn't always mention this automatically, so make sure to specifically ask about it. Also, bring a copy of the death certificate when you visit in person if the phone calls don't work out - sometimes having all documentation in hand speeds up the process. Wishing you the best with this difficult situation.
I'm really confused about how my SSDI benefit amount was calculated. I was approved for disability in February 2024 with an established onset date of December 20, 2023. After completing the 5-month waiting period, my payments finally started this July. Here's my concern: I worked through most of 2023 before becoming disabled in December, and I had pretty good earnings that year. When I got my award letter, I noticed the benefit calculation doesn't seem to include ANY of my 2023 income. I'm guessing this is because I hadn't filed taxes for 2023 yet when they made their decision in February 2024? I was expecting some kind of automatic recalculation this October to include those 2023 earnings, but nothing has happened. Do SSDI benefits get automatically recalculated to include that final year of earnings? If so, when does this typically happen? Or do I need to request this review somehow? My monthly payment is about $320 less than I think it should be based on my earnings record.
One tip nobody's mentioned: when you do contact SSA about this, ask for both the recomputation AND a PEBES (Pre-Entitlement Benefit Earnings Statement). This will show you exactly which years of earnings they're using in your calculation. Super helpful for understanding if they've included all your work years properly!
Hey Ravi! I went through something very similar about 2 years ago. My SSDI was approved in early 2022 but they didn't include my 2021 earnings in the initial calculation. I was missing about $280/month. Here's what I learned: SSA typically runs their AERO (automatic recomputation) process between October and December each year. Since you're expecting about $320 more per month, that's definitely significant enough to trigger an automatic adjustment - they only need a $1 minimum increase. However, don't just wait passively. I'd recommend calling SSA in early December if you haven't seen any changes by then. When you call, specifically ask for: 1. A benefit recomputation to include 2023 earnings 2. Your PEBES statement (like Chloe mentioned) to verify which years they're using 3. Confirmation of your computation date The good news is that if they do increase your benefit, you'll get retroactive payments back to when your payments started in July. That could be a nice chunk of back pay! The whole process took about 6-8 weeks once I got through to them. Good luck, and don't give up if the first person you talk to doesn't seem to understand what you need - sometimes you have to ask to speak with someone in the computation unit.
Diego Flores
Thank you everyone for your helpful responses. This clarifies so much for us. I'll make sure to work with the hospice social worker to look into the additional medical cost assistance programs mentioned, and I'll definitely make sure my dad has his direct deposit information on file with SSA. It sounds like there's no benefit to pursuing the compassionate allowance route in our situation, which helps us focus our energy on more productive paths. I truly appreciate all of your insights and experiences during this difficult time.
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Nia Wilson
Wishing your family strength during this difficult time. Please come back if you have any other questions as things progress.
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Elijah Jackson
I'm so sorry about your mother's diagnosis. This is such a difficult time for your family. Just wanted to add one more thing that might be helpful - if your parents haven't already, make sure they have all the important paperwork organized (Social Security cards, Medicare cards, bank account info, etc.) in one place that your dad can easily access. When my grandmother was going through something similar, we found it really helpful to have everything ready ahead of time so my grandfather didn't have to search for documents while dealing with grief. Also, consider having your mom sign any necessary forms or authorizations now while she's still able to, so your dad can handle things on her behalf if needed later. The community here has given you excellent advice about the Social Security aspects - I hope some of the other assistance programs work out to help with costs.
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