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Getting representative payee status for sister with Alzheimer's - did we miss anything with Social Security?

My older sister (62) was diagnosed with early-onset Alzheimer's and vascular dementia last month. We're trying to get everything organized while she's still able to participate in decisions. Last week, we went on ssa.gov where she designated me as #1 and her husband as #2 for 'advance designation' (thought this was the right approach). When we called SSA to confirm yesterday, the agent told us that wasn't sufficient and asked my sister several questions about her condition. They said it would take about 8 weeks to process everything to make me her representative payee. I handle all her medical appointments, medication management, and financial tracking since her husband is honestly overwhelmed and has stepped back from managing these aspects. She wants to ensure I can communicate with Social Security on her behalf and make necessary decisions as her condition progresses. Does anyone know if there are additional steps we need to take with Social Security specifically? Do we need any additional documentation beyond what we've already submitted? Do I need a power of attorney in addition to representative payee status? This feels like such a maze to navigate, and I want to make sure we're not missing anything critical. Thanks for any advice!

dont forget about the spending requirements! my cousin was rep payee for her mom and she got in trouble for using the money wrong. u gotta spend it only on your sister and keep all the receipts!

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This is absolutely correct. The SSA has very specific guidelines for how benefits can be used by a representative payee. The order of priority is: 1. Current basic needs (food, shelter, clothing, medical care) 2. Dental care, rehabilitation expenses, and special needs 3. Personal comfort items and recreation needs 4. Savings for future needs Anything that doesn't directly benefit the beneficiary could be considered misuse. Common mistakes include combining funds with your own money, using funds for shared household expenses without clear allocation, or making purchases that primarily benefit someone else. Best practice is maintaining a separate dedicated account solely for her benefits.

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I went through this exact process with my dad last year when he was diagnosed with Alzheimer's. A few things that really helped us: 1. **Documentation timing is critical** - Get all the POA paperwork done NOW while your sister can still understand and sign. We waited just 2 months too long and had to go the guardianship route which cost us $8,000+ and took 6 months. 2. **For the SSA rep payee application** - They'll likely request a "Statement of Claimant's Medical Sources" (Form SSA-787) that her doctors need to fill out. Get this from her neurologist/psychiatrist who diagnosed the dementia - general practitioners sometimes aren't detailed enough for SSA. 3. **Set up a dedicated checking account** for her benefits BEFORE you get approved. This makes the annual reporting so much easier. I use a simple spreadsheet to track every expense with receipt photos. 4. **Contact her Medicare plan administrator** too - rep payee status doesn't automatically give you authority to handle Medicare issues, and you'll likely need to deal with coverage decisions as her condition progresses. The 8-week timeline is pretty accurate in my experience. Hang in there - it's overwhelming at first but getting organized now will save you so much stress later!

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Can my 14-year-old receive Social Security benefits while I delay until 70? Parents with age gap question

I'm turning 68 next month and currently retired, while my wife (57) is still working full-time. We have a 14-year-old daughter who's starting high school this fall. I've been planning to wait until 70 to start my Social Security retirement benefits to get that 32% increase over my FRA amount. But yesterday, a friend mentioned that my daughter might be eligible for benefits NOW because of my retirement status, even if I'm not collecting yet. Is this actually possible? From what I understand, I would need to file for my own benefits for her to receive anything. And if I do start collecting, would she get 50% of my benefit amount? Does this change my strategy about waiting until 70? Also wondering about the practical stuff—is there special paperwork beyond the regular SS application? And do the payments have to go into an account in her name, or could they be deposited with my benefits since we pay for everything anyway? I'm trying to figure out if getting her benefits for the next 4 years would offset what I'd lose by filing before 70. Any insights from people who've navigated this family benefits situation?

To answer your follow-up question: No, if you file for benefits and then suspend them (using the voluntary suspension option available after Full Retirement Age), ALL benefits based on your record - including your daughter's - would stop during the suspension period. This is due to changes made by the Bipartisan Budget Act of 2015. So unfortunately, there's no way to "have your cake and eat it too" in this situation. You either: 1. File now at 68 - you get reduced benefits for life but your daughter gets benefits until 18 2. Wait until 70 - you get maximum benefits for life but your daughter gets nothing until you file (by which time she'll be 16, so only 2 years of eligibility) Given your family history of longevity (parents living to their 90s), waiting until 70 might still be your best financial strategy, despite missing out on some child benefits. At age 90, you would have received substantially more by waiting, even accounting for your daughter's benefits.

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Noah Ali

Author

This really clarifies things - thank you. Given my family history and the permanent reduction if I file before 70, I'm leaning toward sticking with my original plan to wait. I appreciate everyone's insights and specific details about how this works.

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I'm a newcomer here but have been researching this exact situation for my own family. One thing I haven't seen mentioned yet is the family maximum benefit cap. Social Security has a limit on the total amount that can be paid to a family based on one worker's record - typically 150-180% of the worker's PIA. In your case with just you and your daughter receiving benefits, you probably won't hit this cap, but it's worth asking SSA about when you call. Also, since your wife is still working and younger, you might want to consider how her future benefits factor into your overall retirement income strategy. Another consideration: if your daughter plans to attend college, those child benefits could help with education expenses during her last few years of eligibility. Some families find it helpful to have that guaranteed income stream for college planning, even if the overall math slightly favors waiting until 70. Have you considered doing a consultation with a Social Security claiming strategist? Given the complexity and the dollar amounts involved, it might be worth the fee to get personalized analysis.

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Does Social Security automatically check ex-spouse benefits at FRA or do I have to request it?

I've been trying to figure out if the Social Security Administration automatically checks my ex-spouse's earnings record when I apply for retirement benefits at my full retirement age. I was married for 15 years before divorcing in 2008, and I haven't remarried. My own work history is decent, but I suspect my ex earned significantly more throughout our careers. Two friends recently mentioned they had no idea they were eligible for ex-spouse benefits until someone happened to mention it - they'd been collecting lower benefits for years! I'm turning 67 next February (my FRA) and planning to file then. Will SSA automatically compare both records and give me the higher amount, or do I need to specifically request they check my ex's record? I don't want to leave money on the table for years like my friends did!

isnt there a thing where if you claim on your ex they get notified? my ex would be furious if he knew i was getting benefits from his record lol

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No, your ex will NOT be notified if you claim on their record. This is a common misconception. The SSA keeps this information private, and your claim doesn't affect your ex's benefits whatsoever. They'll never know unless you tell them.

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Based on everyone's experiences here, it's clear that while SSA should ask about marital history during your application, you absolutely cannot rely on them to automatically check ex-spouse benefits. I'd recommend being very proactive when you apply in February: 1. Fill out the marital history section completely if applying online 2. Explicitly tell them you want benefits calculated on both your own record AND your ex-spouse's record 3. Bring your marriage certificate and divorce decree showing the 15-year marriage 4. Follow up after submitting to confirm they're checking both records The stories here about people missing out on hundreds of dollars per month for years are exactly what you want to avoid. Since you were married 15 years (well over the 10-year requirement) and haven't remarried, you should definitely be eligible. Better to be overly clear about what you want than to assume they'll figure it out for you!

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Should wife take reduced Social Security at 65 while I wait until 70 for maximum benefits?

I'm trying to figure out the best Social Security strategy for my wife and me (we're both 66). I plan to delay claiming until I'm 70 to maximize my benefit (currently estimated around $3,100/month if I wait). My wife's benefit is pretty small - she qualifies for only about $642/month now, and if she waits until her Full Retirement Age in 7 months, it would only increase to about $675. Not much difference. I'm wondering if there's any downside to her just taking her reduced benefit now? My understanding is that when I file at 70, she'd be eligible for the spousal benefit (half of my FRA amount) if that's higher than her own benefit. And then if I pass away before her, she'd get my full benefit amount as a survivor benefit. Am I missing something or is there any reason she shouldn't just take her benefit now? Thanks for any advice!

my mom got widows benefits and they messed up her payments THREE TIMES!! had to keep calling and fixing it. make sure you check EVERY STATEMENT when you get benefits!!!

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As a newcomer here, I just wanted to say how helpful this discussion has been! I'm in a similar situation with my spouse and had been agonizing over the timing decision. The math breakdown showing it would take 11+ years just to break even by waiting 7 months for that small $33 increase really puts it in perspective. One question though - when people mention "spousal benefit is 50% of FRA amount," does that mean 50% of what the higher earner would get at their full retirement age, or 50% of what they actually get when they claim at 70? I want to make sure I'm understanding this correctly for our own planning. Thanks to everyone who's shared their knowledge here!

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Why is Social Security reducing my expected benefits by 30% despite what ssa.gov calculator showed?

I feel completely blindsided today! Been planning my retirement carefully for June 2025 and have been checking my estimated benefits on the ssa.gov calculator regularly. According to their graphs, I was expecting about $3050/month. Felt pretty good about it and made all my budget plans accordingly. But I just got off the phone with an SSA rep who dropped a bombshell saying my actual payment will be reduced by 30%!!! That's nearly $915 less per month than I was counting on. I'm completely panicking now because this throws ALL my retirement plans into chaos. I specifically asked her why there's such a huge difference between what their website shows me and what she's telling me, and she gave some explanation about WEP or GPO that I honestly didn't fully understand because I was so shocked. Has anyone else experienced this kind of discrepancy between the ssa.gov benefit estimates and what you actually received? Could the rep be wrong? I'm seriously considering delaying retirement now because I can't afford to live on 30% less than I'd planned for.

I just wanted to thank everyone for the helpful advice. I called SSA this morning (finally got through after trying for 2 hours) and got confirmation that it's definitely WEP affecting my benefits. The agent walked me through my earnings record and confirmed I have 22 years of substantial earnings under Social Security. The good news: working just 3 more years would reduce my WEP penalty by about $300/month! That makes a huge difference, so I'm now planning to work until 2028 instead of retiring in 2025. Not ideal, but better than trying to live on significantly reduced benefits for the rest of my life. For anyone else in this situation - definitely call and ask for a detailed WEP calculation and how additional working years would change it. The differences can be substantial!

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That's excellent news about reducing your WEP penalty significantly with just 3 more years of work! It's always worth getting the personalized calculation. One additional tip: make sure your earnings for each year exceed the "substantial earnings" threshold (which increases annually with inflation). If you work part-time and don't meet the threshold, the year won't count toward reducing your WEP penalty.

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I'm so glad you were able to get through to SSA and get clarity on your situation! Your experience really highlights how important it is for people to understand WEP before making retirement plans. Just to add to what others have shared - you might also want to check if your state has any supplemental programs or if your teacher's pension system offers any additional benefits that could help offset the WEP reduction. Some states have created programs specifically to help public employees who are affected by WEP/GPO. Also, when you're planning those additional 3 years of work, consider whether maximizing your earnings during those years (if possible) could provide any additional benefit beyond just meeting the substantial earnings threshold. Every little bit helps when you're dealing with WEP reductions. Thanks for sharing your update - it's really helpful for others who might be facing the same shock you experienced!

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