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Neurologist recommended I apply for SSDI but got rejected - anyone appealed successfully?

I'm at my wit's end. My neurologist has been treating me for multiple sclerosis for the past 3 years, and my condition has gotten significantly worse in the last 8 months. I'm having severe fatigue, mobility issues, and cognitive problems that make working my IT job impossible some days. My doctor actually told me 'You need to apply for disability' and wrote a detailed letter explaining my limitations. I just got the rejection letter yesterday. They said 'based on your age (42) and work history, we've determined you can perform other work.' What other work?! I can barely drive some days and they think I can just switch careers? Has anyone else been rejected even with strong medical evidence? Did you appeal? I have 60 days to file an appeal and I'm not sure if it's even worth the hassle or if I should just hire a lawyer right away. This whole process is so demoralizing.

Yeah, welcome to the club! The SSA rejects almost EVERYONE on the first application. It's like their default position is NO unless you're literally on your deathbed. I have Lupus and got rejected TWICE before finally getting approved. Don't give up!!

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Luca Bianchi

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Really? Even with doctor documentation? That's so depressing. How long did the whole process take you from first application to approval?

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From my first application to final approval was about 18 months. And YES I had THREE doctors all saying I couldn't work. The system is BROKEN!!

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Nia Harris

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i got rejected 2 im only 36 but have rheumatoid arthritis real bad. think they expect eveyone to just keep working no matter what

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Mateo Gonzalez

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Initial denials are unfortunately very common with SSDI applications, even with strong medical evidence. The key with appeals is understanding the SSA is looking for very specific documentation that proves you cannot perform any substantial gainful activity (SGA). For your appeal, you should definitely: 1. Request a reconsideration first (this is the first level of appeal) 2. Gather additional medical evidence - especially functional capacity evaluations 3. Get your neurologist to specifically address why you cannot perform even sedentary work 4. Document your daily limitations in detail 5. Consider additional specialist opinions if possible Your MS diagnosis is certainly a qualifying condition, but the SSA needs to see documentation that it prevents you from working any job, not just your current one. Make sure your medical records specifically address cognitive limitations, fatigue levels, and mobility restrictions.

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Luca Bianchi

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Thank you, this is really helpful! What's a functional capacity evaluation exactly? Is that something my neurologist can do or do I need to see a different doctor for that?

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Mateo Gonzalez

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A Functional Capacity Evaluation (FCE) is typically performed by a physical therapist or occupational therapist who documents your specific physical and sometimes cognitive limitations. It measures things like how long you can sit/stand/walk, lifting capabilities, fine motor skills, etc. Your neurologist should be able to refer you to someone who performs these evaluations. They're very valuable for SSDI cases because they translate your medical condition into specific work limitations that SSA reviewers understand.

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Aisha Ali

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YES, absolutely appeal! I was denied twice for my fibromyalgia and POTS before getting approved at my hearing. It's frustrating but almost part of the process now. You only have 60 days to request reconsideration from the date on your denial letter, so don't wait! Things that helped me: - Getting a lawyer (they only get paid if you win) - Having my doctors fill out an RFC (Residual Functional Capacity) form - Keeping a daily journal of my symptoms and limitations - Getting statements from family/friends about how they see my condition affecting me Also, at 42, they're scrutinizing you more because you're under 50. The system has these "grid rules" where it's actually easier to get approved when you're older. Stupid but true.

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Nia Harris

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what's POTS? never heard of that one

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Aisha Ali

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POTS is Postural Orthostatic Tachycardia Syndrome - basically my heart rate shoots up when I stand and I get dizzy, nauseated, etc. It's often misdiagnosed and goes along with other conditions. A lot of MS patients have it too, actually.

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Ethan Moore

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Sorry to jump in, but I was in a similar situation with my rheumatoid arthritis. Got denied first try too, even though I could barely use my hands some days (I was a dental hygienist). My sister went through the same thing with her MS.

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Luca Bianchi

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Did you end up appealing? What happened?

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Ethan Moore

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Yes! I did the reconsideration first and got denied again. Then went to the hearing level with a lawyer. Got approved there. Took about 14 months total but got backpay to my application date. Definitely worth fighting for!

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Yuki Nakamura

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I couldn't believe how hard it was to even talk to someone at SSA when I was going through this process. Calling their regular number was a nightmare - hours on hold only to get disconnected. I finally used a service called Claimyr (claimyr.com) that got me through to a real person at Social Security in under 5 minutes. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU Saved me so much frustration during the appeal process when I needed to check on status and documents. Made a huge difference being able to actually talk to someone instead of waiting forever.

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Luca Bianchi

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That sounds really helpful. I tried calling yesterday and gave up after 40 minutes on hold. I'll check it out - thanks!

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StarSurfer

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I work as a paralegal at a disability law firm, and I can tell you that about 65-70% of initial applications are denied, regardless of the strength of the medical evidence. The reconsideration level (first appeal) has an even higher denial rate of about 85%. However, at the hearing level (where you appear before an Administrative Law Judge), approval rates improve significantly to about 50%. Based on what you've described, you have a legitimate case worth pursuing. MS is a listed impairment with the SSA, but they're looking for specific documentation of how it limits you. Here's what I recommend: 1. File your Request for Reconsideration immediately (form SSA-561) 2. Consider obtaining legal representation now (most lawyers won't charge unless you win) 3. Focus on documenting your bad days - how many per month, severity, recovery time 4. Get your neurologist to specifically document cognitive limitations, not just physical ones 5. If you have MRIs or other objective testing, make sure those are submitted The process is frustrating but designed to weed out all but the most persistent claimants. Don't give up - many deserving people get denied initially.

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Luca Bianchi

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Do you think it's better to get a lawyer now or wait until after the reconsideration? And how do I find a good disability lawyer?

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StarSurfer

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I personally recommend getting representation now because a good attorney will help strengthen your case during reconsideration by identifying and addressing gaps in your medical evidence. They can advise which additional tests or specialist opinions would be most valuable. To find a good disability attorney: 1. Look for someone who ONLY does Social Security Disability (not a general practice firm) 2. Check reviews specifically for disability cases 3. Ask if they handle the case themselves or pass it to paralegals (hands-on attorneys tend to be more effective) 4. Verify they work on contingency (typically 25% of backpay with a $7,200 cap) 5. National firms like Allsup or Disability Group are fine, but local attorneys often provide more personalized service The consultation should be free, so interview a couple before deciding.

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Nia Harris

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anybody know if u can work part time while waiting for disability? i need some income while i wait

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Aisha Ali

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You can work but you have to stay under the SGA limit (Substantial Gainful Activity). For 2025 it's around $1,550 per month. If you earn more than that, they'll just say "see, you can work" and deny you. Keep track of all your hours and any accommodations you need too!

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Ethan Moore

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just wanna say hang in there. the system is designed to wear us down. took me 2 years but i finally got approved.

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Mateo Gonzalez

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One important thing to understand about the SSDI process: the SSA has what they call the "sequential evaluation process" - five steps they use to determine disability: 1. Are you working above SGA level? ($1,550/month in 2025) 2. Is your condition "severe"? 3. Does your condition meet or equal a medical listing? 4. Can you do your past work? 5. Can you do any work in the national economy? Based on your description, they denied you at step 5 - they're saying despite your MS, they believe you can do some type of work. This is where you need to focus your appeal. For MS specifically, compile evidence related to: - Fatigue levels throughout the day (time-specific documentation) - Cognitive issues like memory problems, focus, concentration - Motor control difficulties - Vision problems if applicable - Need for rest periods throughout the day Demonstrate why these symptoms make even sedentary work impossible to sustain consistently.

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Luca Bianchi

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This is incredibly helpful - thank you! I didn't realize they had such a specific process for evaluating claims. I'll focus on documenting exactly how my symptoms would impact ANY job, not just my current one.

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