Caught between SS Disability denial and early retirement at 63 - with disabled husband and no income since October
I'm in a really tough spot and don't know what to do anymore. I'm 63 and have been unable to work since mid-2022 due to congestive heart failure. My cardiologist has permanently restricted me from returning to my nursing job of 30+ years. I initially received short-term disability through my employer for 6 months, then transitioned to long-term disability insurance with Principal Financial. They required me to apply for SSDI about 2 years ago, which has resulted in two denials so far. I finally got a hearing scheduled for February 14th, but just found out it's been postponed until JULY due to some administrative backlog! Meanwhile, Principal Financial suddenly terminated my LTD benefits in December claiming I could do "sedentary work from home" despite my doctor's documentation. I've had ZERO income since December and my emergency savings are nearly gone. To make things worse, my husband (69) was just diagnosed with stage 3 colon cancer and starts intensive treatment next week. He's on Medicare but the supplemental costs are still substantial. I know I could apply for early retirement benefits instead of waiting for my FRA at 67, but every time I try to research what my payment would be, I only find SSDI information. Would starting early retirement benefits now hurt my disability case? Can I switch to higher disability benefits if eventually approved? I called the SSA office but can't get an appointment until March! Should I hire an attorney at this point? I was planning to work until 67 but clearly life had other plans. Any advice would be deeply appreciated.
18 comments
Charlotte White
I went through something similar with my SSDI case and early retirement. Here's what you need to know: Yes, you can apply for early retirement benefits at 63 while your SSDI case is pending. If you're later approved for SSDI, they'll adjust your payment to the higher disability amount retroactively. BUT, taking early retirement reduces your monthly benefit by about 0.5% for each month before your FRA. At 63, that's roughly a 20-25% permanent reduction. My advice: 1. Apply for early retirement immediately to get some income flowing 2. Continue pursuing your SSDI case 3. Definitely get an attorney for your SSDI hearing if you don't already have one - most work on contingency and only get paid if you win Also, check if you qualify for SSI in the meantime based on limited resources. And don't forget to look into whether your husband qualifies for any additional assistance with his cancer treatments.
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Anthony Young
•Thank you so much for this clear explanation. Do you know if I'll need to visit the SSA office in person to apply for early retirement, or can I do it online? I'm hesitant to take the reduction, but we literally can't pay next month's mortgage without some income. I do have an attorney for the SSDI case, but they haven't been very helpful with this early retirement question.
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Admin_Masters
u can definitely apply online for retirement!!! i did mine last yr during covid never stepped foot in an office. just go to ssa.gov and click the retirement button. takes like 30 min tops if u have all ur info ready. my sister was also waiting for disability and took early retirement at 62 - they eventually approved her disability and paid her the difference for all those months she was waiting
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Anthony Young
•That's a huge relief to hear I can do it online! Did your sister have any issues with the transition from retirement to disability? I'm worried they'll use the fact that I applied for retirement against me somehow in my disability case.
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Matthew Sanchez
Your situation sounds incredibly stressful and I'm so sorry you're going through this. I was in a similar position 2 years ago. The LTD insurance companies are NOTORIOUS for cutting people off right around the 2-year mark because that's when many policies switch from "own occupation" to "any occupation" disability definitions. They don't care if you're actually able to work! One thing I wanted to mention - when you apply for early retirement, you'll be asked whether you're disabled. MAKE SURE to indicate YES and provide your pending SSDI information. This helps preserve your disability claim. Also, depending on your work history and earnings record, your SSDI amount might actually be HIGHER than your reduced retirement benefit, plus SSDI automatically converts to full retirement benefits at your FRA without the reduction. Have you appealed the LTD termination decision? Most policies have a 180-day appeal window.
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Anthony Young
•Thank you for the tip about indicating I'm disabled on the application - I would have completely missed that! And yes, I did appeal the LTD termination with more documentation from my cardiologist, but Principal denied it again saying I could do "computer work" despite my documented cognitive issues from low cardiac output. It feels like they just wanted to get out of paying.
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Ella Thompson
The Social Security system is BROKEN!! My hearing was rescheduled THREE TIMES and took 2.5 years total to get approved. The whole time I had NO INCOME while fighting cancer. These insurance companies work hand in hand with SSA to deny claims and save money. They don't care if we lose our homes or can't afford medications. I ended up having to move in with my daughter and her family because I couldn't pay rent anywhere. The system is designed to make you give up!!!
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JacksonHarris
•This is sadly true. My mom's disability claim took over 3 years to get approved, and by then she had lost her house. The backlog is insane right now.
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Jeremiah Brown
Have you considered reaching out to Claimyr? When I was in a similar situation trying to reach someone at Social Security, I used their service and got through to an agent in less than 20 minutes after spending weeks trying on my own. They can help you get an earlier appointment than March. Check out their website at claimyr.com - they have a video demo at https://youtu.be/Z-BRbJw3puU showing how it works. It was honestly worth it when I was desperate to talk to someone at SSA about my pending SSDI claim while considering early retirement. Regarding your situation, one important point: if you're approved for SSDI, you'll be eligible for Medicare after 24 months of disability (counted from your established disability onset date), which could help with your husband's supplemental costs if you can add him to your policy. Don't give up on your disability claim even if you start taking early retirement benefits.
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Anthony Young
•I've never heard of Claimyr before, but I'll definitely check out that video. Getting an earlier appointment would be so helpful right now! And thank you for the Medicare information - I hadn't even thought about that benefit of SSDI approval.
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Royal_GM_Mark
my mom took early retirement at 62 while waiting for disability approval. when ssdi was finally approved they calculated the difference between what she got in retirement and what she should have gotten in disability and paid her a lump sum for the difference. then her monthly check increased to the disability amount. when she reached full retirement age nothing changed because disability benefits are already calculated at your full benefit amount. you might want to ask about restricted application too since your husband is already collecting ss.
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Charlotte White
•Good point about the restricted application, but unfortunately that option is only available to people born before January 2, 1954. Since the original poster is 63 now (in 2025), they were born around 1962 and wouldn't qualify for that filing strategy. The rules changed with the Bipartisan Budget Act of 2015.
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Admin_Masters
the worst part about all this is the waiting!!!! when i applied for disability they denied me 2 times then i got a lawyer for my hearing and STILL had to wait almost 9 months for the actual hearing date. then another 2 months for the decision. it's like they WANT us to die before they approve anything smh
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Matthew Sanchez
•This is tragically accurate. The system seems designed to discourage people by making the process as lengthy and difficult as possible. Statistics show that a significant percentage of valid claims are abandoned simply because people can't survive the wait. It's especially difficult for people with serious medical conditions who need income and medical coverage immediately.
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Ella Thompson
Have you looked into your state's emergency assistance programs? Some states have emergency funds for people waiting on SSDI decisions. Also check with your county's Department of Social Services - they might have emergency housing assistance to help with your mortgage payment. Don't be too proud to apply for SNAP benefits (food stamps) too - that's what these programs are for!
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Anthony Young
•Thank you for these suggestions. I haven't looked into state assistance yet - it feels strange needing help after working my whole life, but you're right that pride won't pay the bills. I'll look into SNAP and emergency assistance programs tomorrow.
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Charlotte White
One more important thing to consider: If you take early retirement at 63, your benefit is reduced by about 20-25% permanently. However, if your SSDI is approved later, you'll receive the full disability benefit (which equals your FRA benefit amount with no reduction). The difference between these amounts over years could be significant. For context: If your FRA benefit would be $2,000/month, early retirement at 63 might give you around $1,500/month permanently. But SSDI would give you the full $2,000/month, plus back pay for the waiting period. That's a $500/month difference for the rest of your life. Have you checked your estimated benefit amount on your my Social Security account at ssa.gov? That would give you a better idea of what you're looking at financially.
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Royal_GM_Mark
•this is so true! my aunt took early retirement and got stuck with the reduced amount forever. she had no idea that waiting would have given her almost $600 more every month! that adds up to thousands of dollars over the years.
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