Social Security Administration

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I'm going through a very similar situation with my 29-year-old son who has cerebral palsy and currently receives SSI. My husband is 61 and we've been debating whether he should file at 62 or wait until his full retirement age. After reading all these responses, I'm realizing we need to seriously explore the DAC benefits option. Like your son, mine was disabled well before age 22, so he should qualify. The idea that his monthly payment could actually INCREASE rather than decrease is incredible - we had assumed any change would hurt him financially. I'm particularly interested in what several people mentioned about the Medicare/Medicaid dual coverage possibility with DAC benefits. Our son has significant medical needs, so maintaining comprehensive coverage is our top priority. One thing I'm curious about - for those whose children successfully transitioned from SSI to DAC, did you have to reestablish eligibility for any other programs like food assistance or utility help? Or do those programs typically recognize DAC as equivalent to SSI for eligibility purposes? Thank you for starting this discussion - it's opened my eyes to possibilities I never knew existed. I'm definitely going to request that BPQY report and find a benefits counselor before we make any decisions about my husband's retirement timing.

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Welcome to the community! Your question about other benefit programs is really important and something I've been wondering about too as I navigate this situation. From what I've learned in other discussions, most federal programs like SNAP (food assistance) recognize DAC benefits similarly to SSI for eligibility purposes, but the higher payment amount from DAC could potentially affect income limits for some programs. For state and local utility assistance programs, it really varies by location. Some look at the type of benefit (SSI vs SSDI/DAC) while others just look at total income. This is definitely another question to add to the list for the benefits counselor! The dual Medicare/Medicaid coverage aspect has me excited too. From what others have shared, many states have programs that allow people to keep Medicaid as secondary insurance even when they get Medicare through DAC benefits. This could actually provide better coverage than just Medicaid alone. I'm in the same boat with my spouse being 61 - reading through all these experiences is making me think we should seriously consider waiting until his full retirement age if it means significantly higher DAC benefits for our adult child. The financial impact over a lifetime could be substantial. Have you found any good resources for calculating the potential difference between filing at 62 vs full retirement age, specifically considering the impact on potential DAC benefits?

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I'm new to this community and currently dealing with a very similar situation. My 28-year-old daughter has autism and receives SSI, and my husband just turned 62 last month. We've been going back and forth about whether he should file now or wait. Reading through all these responses has been incredibly enlightening - especially about the DAC benefits possibility! I had no idea this could actually result in HIGHER payments rather than the benefit reduction I was dreading. My daughter was diagnosed at age 3, so she definitely meets the before-age-22 requirement. I'm particularly grateful for the practical tips about requesting the BPQY report and finding SOAR-certified benefits counselors. The emphasis on getting everything in writing and documenting all interactions with SSA seems crucial based on everyone's experiences. One question for those who've been through this transition - did you find that having an autism diagnosis made the DAC application process any different compared to other disabilities? I'm wondering if there are any specific documentation requirements I should be preparing. Also, for those whose spouses waited until full retirement age instead of filing at 62, was the financial difference significant enough to justify the 5-year delay when factoring in the higher DAC benefits? Thank you all for sharing such detailed experiences. This thread is giving me so much more confidence about navigating this transition!

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Welcome to the community, Lindsey! Your situation sounds almost identical to what many of us have navigated. Regarding autism-specific documentation, I haven't found the diagnosis type to matter much for DAC applications - what's most important is having clear medical records showing the disability onset before age 22. Since your daughter was diagnosed at 3, you should be in great shape documentation-wise. As for the timing question about waiting until full retirement age - this is something I've been wrestling with too. From what I've learned in this thread, if your husband's full retirement age benefit would be significantly higher (potentially 30% more than filing at 62), and that increase would also apply to your daughter's DAC benefit, the lifetime financial impact could be substantial. A benefits counselor should be able to run calculations comparing both scenarios. I'd definitely recommend requesting that BPQY report others mentioned and getting a consultation with a SOAR-certified counselor before making the final decision. The fact that you're researching this thoroughly puts you way ahead of where most families start this process!

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I'm new to this community but unfortunately very familiar with the frustration of navigating Social Security's family maximum rules. My husband filed for early retirement at 62, and we have a disabled adult son who qualifies for DAC benefits. Like so many others here, we were completely blindsided by how much the family maximum would reduce our son's benefits. What really strikes me about reading through everyone's experiences is how consistently SSA fails to explain these rules upfront. The fact that the primary worker's reduced early retirement benefit counts against the family maximum - leaving less for auxiliary beneficiaries - is such a fundamental aspect of the calculation, yet it's rarely mentioned during the application process. @Eleanor Foster - your detailed breakdown after speaking with SSA was incredibly helpful. That 175% family maximum divided between your husband's 87% reduced benefit and leaving 88% to split between you and your son really illustrates the math in a way that makes sense. It's frustrating that families have to work so hard to get this basic information! I ended up using the Claimyr service mentioned by several people here, and it was a game-changer for actually reaching a knowledgeable representative. The agent was able to provide a written computation breakdown that showed exactly how our family maximum was calculated - something I never would have gotten through the regular phone lines. For anyone still in the planning stages, I can't emphasize enough how important it is to understand these calculations BEFORE making any filing decisions. The irreversible nature of early retirement filing combined with the family maximum impacts can significantly affect your family's long-term financial security. This community's shared experiences and resources have been more valuable than anything I've gotten from official SSA sources!

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Welcome to the community! Your experience unfortunately echoes what so many of us have discovered - that the family maximum rules are poorly explained (if at all) during the application process, leaving families shocked by lower-than-expected benefits after it's too late to change course. I'm glad to hear that Claimyr worked well for you too! It's become such a valuable resource mentioned throughout this thread. Having that written computation breakdown makes all the difference in actually understanding what's happening with the calculations versus getting vague explanations from different representatives. Your point about the irreversible nature of early retirement filing is so crucial. Once that decision is made, families are locked into the family maximum implications for years to come. It really highlights the importance of getting professional guidance or at least very detailed SSA documentation before filing - something that shouldn't be necessary but clearly is given how complex these rules are. Thanks for sharing your experience with getting the written breakdown through Claimyr. Real examples like yours help other families know what to ask for and how to actually get the information they need. This community has definitely become an invaluable resource for navigating these challenges together!

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I'm new to this community and unfortunately joining because I'm dealing with a very similar family maximum situation. My wife is 63 and we're trying to decide whether she should file for early retirement benefits now or wait, given that we have a 25-year-old disabled son who would qualify for DAC benefits. Reading through this entire thread has been both incredibly helpful and deeply concerning. The consistent theme of families being blindsided by how the family maximum actually works - with the primary worker's reduced benefit counting against the cap and leaving less for auxiliary beneficiaries - is exactly what we're worried about. @Eleanor Foster - thank you so much for sharing your detailed experience and that follow-up breakdown from SSA. Understanding that the 175% family maximum gets divided with your husband's 87% reduced benefit counting first, leaving only 88% to split between you and your son, really helps visualize the math. It's shocking that this crucial information isn't clearly explained upfront. @Kaylee Cook - I'm definitely going to try Claimyr to get through to an actual knowledgeable representative. The PEBES query suggestion seems essential for getting concrete numbers before making any irreversible decisions. This thread has convinced me that we absolutely need professional consultation before my wife files. The potential long-term impact on our son's financial security is too important to leave to SSA's inconsistent explanations. It's frustrating that families already dealing with disability care responsibilities have to become experts in these complex rules just to understand what we're entitled to, but this community's shared knowledge is invaluable. Thank you all for being so open about your experiences!

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Just joined this community after having the exact same panic everyone's describing! I created my SSA account this morning and my heart dropped when I saw $0 for 2024 - I was absolutely convinced my employer had been failing to withhold Social Security taxes all year. I was already drafting emails to HR and preparing for hours on hold with SSA! Reading through all these responses has been such a relief. It's incredible how consistent everyone's experiences are with the September/October timeline for when earnings finally appear. Like everyone else has mentioned, it's honestly shocking that SSA doesn't include even a basic disclaimer explaining this delay - literally one sentence could save thousands of people from unnecessary panic every year! Thank you all for sharing your knowledge and experiences. This community seems like an amazing resource for getting real answers about these government processes that often seem designed to stress us out. I'll definitely check back next fall and will share this information with friends who might have the same concern!

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Just joined this community and I'm so relieved to have found this thread! I literally just logged into my SSA account for the first time this week and had that exact same moment of panic when I saw $0 for my 2024 earnings. I was convinced my employer had somehow messed up my payroll withholdings or that there was a major glitch in the system. I was already preparing to call SSA tomorrow and interrogate my HR department! Reading through everyone's shared experiences has been such a huge relief - it's amazing how universal this concern is among new users. The consistent September/October timeline that everyone keeps mentioning is really helpful to know for planning when to check back. Like so many others have said, it's honestly frustrating that the SSA website doesn't include even a simple "Current year earnings will appear after the following year's tax season" disclaimer - would save so many people from unnecessary stress! Thank you all for creating such an informative discussion and sharing your experiences. This community already seems like an incredible resource for navigating these confusing government processes.

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Welcome to the community! As someone who's also new to Social Security planning and reading through this incredibly detailed thread, I wanted to share what I've learned and ask a follow-up question. I'm 67 and planning to retire from my accounting job in about 5 months. This discussion has been so reassuring - the consistent advice about applying 2-3 months before you want benefits, no penalties for working past FRA, and planning for payment delays has really helped clarify the process for me. What struck me most was learning about all the interconnected pieces - HSA restrictions, state tax variations, employer-specific policies, Medicare coordination, and even which Wednesday you get paid based on your birth date! It's amazing how many details affect the timing. One thing I haven't seen mentioned that might help others - I recently learned that if you're planning to move to a different state after retirement, it's worth researching both states' tax treatment of Social Security benefits before you finalize your application timing. The tax implications could influence whether you want benefits to start before or after your move. Also, the advice about creating that month-by-month transition budget seems crucial. I'm going to map out my final paychecks, potential vacation payout, estimated SS payment dates, and any moving expenses to make sure I have adequate cushion. Thanks to everyone for sharing such detailed, practical experiences. This thread has transformed what felt like an overwhelming process into something much more manageable!

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As someone new to this community and just starting to research Social Security timing, this thread has been absolutely incredible! I'm about 10 months away from turning 67 and have been putting off learning about the application process because it seemed so complicated. Reading through everyone's real experiences has made this so much clearer. The consistent advice about applying 2-3 months before you want benefits to start seems like the perfect sweet spot, and knowing there are no penalties for working while collecting past FRA takes away so much of my anxiety about the timing. I'm particularly grateful for all the "hidden" details people have shared - the HSA contribution restriction once benefits start, how your birth date determines your payment Wednesday, the importance of checking your complete earnings history for accuracy, and even considerations about state taxes on SS benefits. These are exactly the kinds of practical insights you can't get from official SSA publications! The advice about using the my Social Security account to start a draft application and get familiar with the process months ahead seems brilliant. That way I can gather all my documents and information without the pressure of actually submitting anything until I'm in that optimal 2-3 month window. As someone who's worked multiple jobs over the years, I'm definitely going to spend time reviewing my earnings record carefully before applying. Thank you all for creating such a comprehensive resource - this discussion should be bookmarked by anyone approaching retirement!

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I'm new to this community and just started collecting Social Security at 62 about 8 months ago. I haven't suspended my benefits yet, but reading through everyone's experiences here has been so enlightening! I had no idea about all these different types of mystery payments that could show up. I'm particularly interested in the Medicare premium refund explanation - that connection never would have occurred to me. Since I'm also paying Part B premiums through my SS deductions ($170/month), it's really helpful to know that if I ever need to suspend my benefits, I might get some of that refunded. The 7am calling strategy seems to be the consensus here for actually getting through to SSA, and that detailed breakdown letter sounds like exactly what everyone needs to make sense of these payments. It's frustrating that SSA doesn't provide clear explanations upfront, but this community discussion has been way more helpful than anything on their official website. Thanks to everyone who shared their experiences - it's really reassuring to know these random payments are normal adjustments rather than errors to worry about!

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Welcome to the community! It's really smart of you to be reading up on all this stuff early in your Social Security journey. I wish I had found discussions like this when I first started collecting - would have saved me so much confusion later on! The Medicare premium connection was definitely an "aha moment" for me too when I finally figured it out. Since you're already paying Part B through deductions, you'll definitely want to keep this thread bookmarked in case you ever need to suspend benefits in the future. The peace of mind from knowing these mystery payments are totally normal (and not mistakes you'll have to pay back) is huge. This community has been way more helpful than any official government resource I've tried to use!

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I'm new to the community and this thread has been incredibly helpful! I'm 61 and planning to start collecting Social Security next year, but I'm also considering continuing to work part-time. Reading about everyone's experiences with these mystery payments has given me a much better understanding of what to expect. The Medicare Part B premium refund explanation makes so much sense - I never would have connected those dots on my own. And the fact that SSA does continuous earnings recalculations while you're working is really good to know ahead of time. I'm definitely saving that 7am calling tip and the advice about requesting a detailed breakdown letter. It's frustrating that their online portal doesn't explain these payments better, but at least now I'll know not to panic if I get random payments in the future. Thanks to everyone who shared their experiences - this discussion has been way more informative than anything I could find on the official SSA website!

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