Social Security Administration

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Just wanted to share my recent experience since I see some conflicting advice here. My husband applied exactly 3 months before his intended start date and everything went smoothly. The online application really is the way to go - much faster than trying to get an appointment at the local office. One tip that helped us: create a my Social Security account first if you don't already have one. It makes the application process smoother and you can check the status afterward. Also, don't forget that once he starts receiving benefits, he'll get a 1099-SSA for tax purposes, so keep that in mind for next year's taxes. The payment schedule based on birth date is exactly right - since your husband was born on the 25th, expect payments on the 4th Wednesday of each month. Good luck with everything!

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Thanks for sharing your experience! It's really helpful to hear from someone who just went through this successfully. I didn't know about creating the my Social Security account first - that's a great tip. We'll definitely do that before starting the application. Also good point about the tax implications - we hadn't thought about the 1099-SSA yet but that's something we'll need to plan for. Your timeline of 3 months ahead sounds perfect for our situation.

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I went through this exact situation with my mother last year and wanted to share what we learned. First, definitely apply online - it's much more efficient than the office visits. Since your husband reaches FRA on March 25th, his first full month of eligibility would be April, so his first payment would arrive in May on the 4th Wednesday (since he was born on the 25th). One thing I'd strongly recommend is setting up the my Social Security account before you start the application - it makes everything smoother and you can track the status. Also, since his employer insurance ends when he retires, make sure to indicate this during the application so they can coordinate his Medicare Part B enrollment properly. The 3-month advance application window is generally recommended, but since you're cutting it close in November, I'd suggest applying as soon as possible. Don't panic though - they do allow some retroactive benefits if you're past FRA. Just make sure to call and confirm they received your application after submitting it online. Good luck!

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does ur husband have good retirement besides ss? my friend had to go back to work when her kid turned 16 cuz of this stupid rule

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He has a small pension but not enough to cover the gap. I'm already working part-time, so I'll probably need to increase my hours. Just wish they'd warned us about this when we first applied!

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I'm dealing with a similar situation and wanted to share some practical advice. When my oldest turned 18 last year, SSA automatically sent the school verification form (SSA-1372) about 2 months before his birthday. Make sure your school's registrar knows to expect this - some schools aren't familiar with the process and it can delay things. Also, regarding the benefit gap you'll face - I started planning for this 2 years ahead by gradually increasing my work hours and building up savings. The loss of your mother's benefits when your youngest turns 16 will be significant, so the earlier you can start preparing financially, the better. One thing that helped me was creating a timeline of when each benefit would end so I could budget accordingly. Your 17-year-old's benefits will stop at 18 (or 19 if still in school), then your 15-year-old's benefits will follow the same pattern. Planning ahead made the transition much smoother for our family.

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This is really helpful advice about planning ahead! I'm curious - when you say you gradually increased your work hours, how did that affect your mother's benefits? I'm working part-time now but worried that if I increase my hours too much before my youngest turns 16, it might impact my current benefits. Did you run into any earnings limit issues?

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Thank you everyone for your helpful responses. This clarifies so much for us. I'll make sure to work with the hospice social worker to look into the additional medical cost assistance programs mentioned, and I'll definitely make sure my dad has his direct deposit information on file with SSA. It sounds like there's no benefit to pursuing the compassionate allowance route in our situation, which helps us focus our energy on more productive paths. I truly appreciate all of your insights and experiences during this difficult time.

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Wishing your family strength during this difficult time. Please come back if you have any other questions as things progress.

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I'm so sorry about your mother's diagnosis. This is such a difficult time for your family. Just wanted to add one more thing that might be helpful - if your parents haven't already, make sure they have all the important paperwork organized (Social Security cards, Medicare cards, bank account info, etc.) in one place that your dad can easily access. When my grandmother was going through something similar, we found it really helpful to have everything ready ahead of time so my grandfather didn't have to search for documents while dealing with grief. Also, consider having your mom sign any necessary forms or authorizations now while she's still able to, so your dad can handle things on her behalf if needed later. The community here has given you excellent advice about the Social Security aspects - I hope some of the other assistance programs work out to help with costs.

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Thank you all so much for your advice and sharing your experiences. We're going to apply immediately and make sure her doctors document everything thoroughly. I've already started gathering all her medical records. One last question - does anyone know if private disability insurance through her employer affects the SSDI application? She has some short-term disability coverage through work.

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Great question. Private disability insurance doesn't affect SSDI eligibility. She can receive both simultaneously, though many private policies reduce their benefit by the amount received from SSDI (this is called an "offset"). Definitely have her apply for the short-term disability through her employer immediately. This can provide income during the SSDI waiting period. Just be aware that she'll need to report any SSDI payments to the private insurer once those begin, as specified in her policy.

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I'm going through a similar situation with my sister right now. She has Stage 4 ovarian cancer and we just got her SSDI approved through Compassionate Allowance last month - took about 7 weeks from application to approval letter. A few things that really helped us: 1) We applied online at ssa.gov - it was faster than going to the office 2) Her oncologist wrote a detailed letter specifically for the disability application explaining her prognosis and limitations 3) We made sure to include ALL treatment records, not just the diagnosis The key thing about working - she was doing freelance work (about $800/month) when we applied and it didn't hurt the application at all since it was under the SGA limit. They actually told us it was better to apply while she still had some work history rather than waiting. One tip: when you apply online, there's a section where you can upload documents. We scanned and uploaded everything immediately rather than mailing it later. I think this helped speed things up. Best of luck to you both. The waiting is horrible but don't give up hope.

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I'm so sorry you're going through this difficult situation. As someone who recently helped navigate similar challenges with my elderly parents, I wanted to add a few practical suggestions that haven't been mentioned yet: 1) **Document everything now while he can still communicate**: Create a detailed inventory of all accounts, insurance policies, investment accounts, and important contacts (doctors, financial advisors, etc.). Include account numbers, phone numbers, and any special instructions. 2) **Consider a medical alert system**: As his condition progresses, having a way for him to call for help if you're not home becomes crucial. Many have fall detection features too. 3) **Look into your state's SHIP program** (State Health Insurance Assistance Program) - they provide free counseling about Medicare benefits and can help you understand what services might be covered for dementia care. 4) **Banking considerations**: Make sure you have joint access to all accounts, but also consider setting up automatic bill pay for essential services now while he can still approve the setup. The credit card situation is tough, but being an authorized user does help build some credit history. You might also ask your bank about a secured credit card - they're easier to qualify for and can help establish your independent credit. You're being incredibly proactive by planning ahead. Take it one step at a time, and don't hesitate to lean on the support resources others have mentioned.

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This is such helpful practical advice! The medical alert system is something I hadn't considered but makes perfect sense. My biggest worry is what happens when I need to run errands and leave him alone. Creating that detailed inventory sounds overwhelming but I know it's necessary. He gets frustrated when I ask too many questions about our finances, so I'm trying to gather information gradually during his better moments. The automatic bill pay suggestion is brilliant - I'll set that up this week while he can still understand what we're doing. Thank you for mentioning SHIP. I had no idea that program existed. It sounds like exactly what I need to understand our Medicare options better. You're right about taking it one step at a time. Some days I feel completely paralyzed by everything I need to figure out, but posts like yours help me see there are concrete steps I can take.

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I'm going through a very similar situation with my mother who has early-stage dementia, so I completely understand how overwhelming this feels. A few additional things that have been lifesavers for us: **Financial Power of Attorney - get it done IMMEDIATELY**: Like others said, this becomes impossible once cognitive decline progresses. We waited just a few months too long and had to involve doctors to verify mom's capacity. **Social Security Representative Payee**: Since you mentioned your husband gets confused about financial matters, consider applying to become his representative payee now. This gives you legal authority to manage his SS benefits and can prevent issues if he becomes unable to handle his own affairs. **Credit cards**: Try applying for a secured card through your current bank - they already know your banking history. Also, many credit unions are more lenient with members who have limited credit history. **Important timing note**: You mentioned his doctor thinks his condition will progress faster than average. If that's the case, prioritize the legal documents (POA, healthcare directives) over everything else. The financial stuff can be figured out later, but once he can't legally sign documents, your options become much more limited and expensive. **One practical tip**: Start handling more of the day-to-day finances now (bill paying, bank visits, etc.) while he can still guide you through the process. This helps you learn the systems while he's available to help. You're doing everything right by planning ahead. It's hard, but future you will be so grateful for the preparation you're doing now.

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Thank you so much for sharing your experience with your mother - it helps to know I'm not alone in this. The timeline pressure you mentioned really hits home. My husband's neurologist used the phrase "aggressive progression" which honestly scared me more than I let on. I'm definitely prioritizing the POA this week. I've already scheduled an appointment with an elder law attorney for Friday, and I'm hoping we can get all the legal documents done while he's still having consistent good days. The Representative Payee program sounds like something I should look into soon. I've noticed he's already getting confused about some financial decisions, like last week he couldn't remember why we have certain automatic payments set up. Your point about learning the systems while he can still guide me is so important. I started taking over bill paying last month and there were so many little details I never knew about - like which utility company we use for what, or how he organizes the filing system. I'm trying to document everything as I learn it. Can I ask how the Representative Payee application process worked for your mom? Was it complicated or did SSA make it straightforward once you had the medical documentation?

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The Representative Payee application was actually more straightforward than I expected, though it did require some patience with the process. You'll need to fill out Form SSA-11 (Request to be Selected as Payee) and provide medical documentation of your husband's inability to manage his finances. The key thing that helped us was having his neurologist write a detailed letter explaining mom's cognitive limitations and how they specifically impact her ability to handle financial matters. SSA was pretty responsive once they had the medical evidence - the whole process took about 6-8 weeks from application to approval. One thing to note: you don't have to wait until he's completely incapacitated. If his doctor can document that the dementia is affecting his financial judgment (like the confusion about automatic payments you mentioned), that can be sufficient grounds for the application. Also, I'm glad you're getting the elder law attorney involved this week. They can help coordinate the POA and Representative Payee applications so they work together properly. Some attorneys will even help with the SSA paperwork as part of their service. You're being incredibly proactive - that "aggressive progression" timeline makes everything feel urgent, but you're tackling the most important things first. The legal protections will give you the foundation to handle everything else that comes up.

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