Confused about Social Security retirement with disabled adult son on SSDI - CiC eligibility and account lockout issues
I'm at my wits' end dealing with Social Security today! I've been trying to figure out my retirement options since I have a disabled adult son who receives SSDI benefits. I finally got a callback from SSA after waiting SIX HOURS (called at 1:30pm, got callback at 7:30pm), and then the call disconnected right at 8pm before I could get all my questions answered! Here's my situation - I'm divorced from my son's father and I'm struggling with being both a full-time worker and caregiver for my disabled adult son whose behavior has become increasingly difficult to manage. Since I was a stay-at-home parent for most of my marriage, my Social Security contributions are pretty limited. I need to understand: 1. Since my son receives SSDI, how will that affect what I qualify for when I retire? 2. Can I receive Childhood in Care (CiC) benefits while still working? 3. If I qualify for retirement and CiC, can I collect both or just one? To make matters worse, I'm locked out of my MySocialSecurity account so I can't even check basic information online! Has anyone navigated this situation before? Any advice on how to get specific benefit estimates without spending another entire day waiting for callbacks that disconnect?
18 comments
Charlotte Jones
First, I'm so sorry you're dealing with all this stress. Let me try to help with what I know about your situation: 1. If your son is receiving SSDI based on his own work record, that doesn't directly impact your retirement benefits. But if he's receiving benefits based on his father's record, that's a different situation. 2. Childhood in Care (CiC) benefits are available to divorced spouses who care for the child of a worker who is disabled, retired or deceased. You can receive these until your child turns 16 typically, but since your son is an adult with disabilities, different rules may apply. 3. As for collecting both - generally, you'll receive whichever amount is higher, not both. For account lockout issues, try the "forgot password" option first. If that doesn't work, you'll need to contact SSA directly or visit a local office.
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Logan Greenburg
•Thank you for the detailed response! My son is 27 and receives SSDI on his own record (he did work for a few years before his condition worsened). I wasn't aware that his benefits wouldn't impact mine directly - that's a relief. Do you know if there's any way to get concrete numbers without waiting for hours on the phone? I really need to plan my finances if I'm going to cut back work hours to care for him.
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Lucas Bey
omg the 8pm cutoff is THE WORST! happened to me 2 times already!!! they just hang up no matter where you are in the conversation. so rude!!
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Harper Thompson
•It's not rudeness, it's their system. SSA phone lines automatically disconnect at 8:00pm Eastern time. The agents literally can't keep talking even if they want to - the system boots them out. They're supposed to warn you when it's getting close to cutoff time, but sometimes they forget or there's not enough time. Always call EARLY in the day!
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Caleb Stark
I've been through similar with my daughter! The benefit situation is complicated when you have adult disabled children. From what I understand, if your son is receiving SSDI on his OWN record (not as a disabled adult child on yours or ex's record), then your benefits are calculated separately. The real question is whether you qualify for spousal benefits on your ex's record if you were married 10+ years. That might be higher than your own retirement benefit if you were out of workforce for a while.
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Logan Greenburg
•We were married for 14 years, so I should qualify for ex-spouse benefits. I just don't know if those would be better than my own retirement benefits since I've been working full-time for the last 9 years since our divorce. And I'm still confused about whether the CiC benefits apply since my son is an adult (though disabled).
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Jade O'Malley
To answer your specific questions: 1. Your retirement benefits are calculated based on YOUR work record (or potentially your ex-spouse's if you were married 10+ years and that would give you a higher amount). Your son's SSDI doesn't reduce your retirement benefit. 2. CiC benefits (Child-in-Care spousal benefits) typically only apply when caring for a child under 16 OR a disabled child who became disabled before 22. But here's the key - if you're collecting CiC benefits, you ARE subject to earnings limits if you're under your Full Retirement Age (FRA). For 2025, you can earn up to $22,300 without reduction, but benefits are reduced $1 for every $2 earned above that. 3. You can't collect both your own retirement and CiC/spousal benefits simultaneously at their full amounts. SSA will pay the higher of the two. For your account lockout - call the dedicated tech support line at 1-800-772-1213, press "4" for the automated service password reset option.
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Logan Greenburg
•This is so helpful! My son's disability did start before he was 22, so sounds like I might qualify for CiC. I earn about $56,000 currently, so it sounds like my benefits would be reduced significantly if I tried to collect CiC while still working full-time. I think I need to get exact numbers to figure out if reducing my hours would make financial sense with partial CiC benefits.
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Hunter Edmunds
When I was dealing with similar SSA phone issues, I found a service called Claimyr that got me through to an agent in about 20 minutes instead of waiting all day. It basically calls SSA for you and then connects you when an agent answers. Saved me hours of frustration! They have a video showing how it works here: https://youtu.be/Z-BRbJw3puU and their website is claimyr.com Regarding your situation, definitely find out if you're eligible for benefits on your ex's record. Since you were married over 10 years, you should be, and if he was a higher earner it might be more than your own benefit amount.
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Lucas Bey
•does this really work?? i'm gonna try it next time cuz i CANNOT deal with another 4hr wait
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Hunter Edmunds
•Yes, it worked for me when I needed to talk to someone about my widow's benefits. Just used it again last month when I had questions about taxability of my benefits. Both times got through in under 30 minutes instead of waiting all day.
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Ella Lewis
DONT WASTE UR TIME WITH THE PHONE!!! Just go to ur local SSA office, you can make an appointment through the website. The people at my office were super helpful and gave me a print out of all my different benefit options with actual numbers. Take all ur ids and paperwork about ur son's disability status.
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Logan Greenburg
•I tried making an appointment, but the earliest they had was 6 weeks out! That's why I tried calling. But maybe I should just take the appointment and wait. Thanks for the suggestion.
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Harper Thompson
I think there's some confusion in this thread about CiC benefits. Child-in-Care benefits are specifically for when you're caring for a child under 16. What you're likely thinking of are disabled adult child benefits (DAC), which continue past age 18 if the disability began before age 22. Also, regarding your MySocialSecurity account, lockouts typically expire after 24 hours. If it's been longer, you may need to create a new account. The online account is essential for getting benefit estimates without calling, so I'd prioritize fixing that issue.
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Jade O'Malley
•Actually, there's a specific provision where a divorced spouse caring for a disabled adult child (who became disabled before 22) of the worker can receive spousal benefits even before retirement age. It's an extension of the Child-in-Care provisions. You're right that the terminology gets confusing though - SSA often calls them mother's/father's benefits rather than CiC in their internal documentation.
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Caleb Stark
For your account lockout - try using a different browser or clearing your cookies. That fixed mine last time. They've been having a lot of website issues lately.
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Charlotte Jones
One other important thing to consider: if you do qualify for benefits as a divorced spouse caring for a disabled adult child, and you decide to reduce your work hours to stay under the earnings limit, make sure to calculate how that will affect your own future retirement benefit. Those reduced earnings years will be part of your benefit calculation. Sometimes it's better financially to keep working and wait until your own retirement age to claim benefits.
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Logan Greenburg
•That's a really good point I hadn't considered. I'm 58 now, so any reduction in earnings could affect my own benefit calculation. I definitely need to get some concrete numbers to make an informed decision. Thank you!
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