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Social Security benefits when autistic child turns 18 - what's next for disabled parent?

My situation is getting complicated and I need some advice. I'm currently receiving SSDI due to my disability, and my son (who has autism) receives benefits as my dependent child. He's turning 18 in March, and I was told his benefits will stop then. I'm really worried about our financial situation when this happens. Does anyone know what I need to do? Can he qualify for his own disability benefits? Do I need to file something special before his birthday? The local SS office is impossible to reach by phone and the earliest appointment is 2 months away. Any guidance would be so appreciated!

As someone who went through this exact transition with my autistic daughter two years ago, I want to emphasize something that really helped us - start keeping a detailed "Activities of Daily Living" journal RIGHT NOW. Document every single thing your son needs help with over the course of a week: Does he need reminders to shower? Help managing his schedule? Assistance with grocery shopping or meal planning? Problems with social interactions at work or school? The SSA disability examiners really focus on functional capacity, and having concrete examples of daily limitations is incredibly powerful. We kept a simple notebook for about a month before the application, writing down things like "needed help understanding bus schedule," "required step-by-step guidance to prepare a sandwich," "became overwhelmed and had meltdown when routine changed." This documentation was crucial during the interview process because it showed the real-world impact of his autism beyond just the medical diagnosis. The examiner specifically asked for examples of daily challenges, and we had pages of specific incidents to reference. Also, if your son has any repetitive behaviors, sensory issues, or communication difficulties that would interfere with work, make sure those are thoroughly documented by his doctors. Good luck - you're already ahead of the game by starting this process early!

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This is such practical advice! I never thought about keeping a detailed daily journal like that, but you're absolutely right - it would really help paint a clear picture of his actual functional limitations. I'm going to start documenting everything this week, from the obvious things like needing help with meal prep to the smaller stuff I might overlook, like how he struggles when his routine gets disrupted or needs constant reminders for basic tasks. The specific examples you mentioned really help me understand what kind of details would be most useful to include. Thank you for sharing what worked for your daughter - it gives me hope that with proper documentation, we can successfully navigate this transition!

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I'm going through this exact same situation right now with my 17-year-old son who has autism! Reading through all these responses has been so incredibly helpful - I had no idea about so many of these resources and requirements. I especially appreciate the advice about starting the Activities of Daily Living journal and contacting the developmental disabilities services office. My son needs help with so many things that I just do automatically now - like helping him understand social cues at his part-time job, reminding him to take breaks when he gets overstimulated, and walking him through any changes to his routine. One thing I wanted to add that our family support coordinator mentioned - if your son is currently receiving services through your state's autism waiver or similar program, those service coordinators are often really knowledgeable about the SSI transition process too. Ours has been helping us understand how his current support services might change or continue once he transitions to adult benefits. The timeline everyone mentioned (starting 3-4 months early) seems so important. I'm definitely going to try that Claimyr service to get through to SSA since our local office has been impossible to reach. Thank you all for sharing your experiences - it's making this scary transition feel much more manageable!

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Welcome to the community! It's great to see another parent going through this transition reaching out for support. The autism waiver service coordinator tip is really valuable - I hadn't thought about leveraging those existing relationships for SSI guidance. You mentioned your son has a part-time job, which actually brings up an important consideration for the SSI application. Make sure to document how much support and accommodation he needs to maintain that employment, as this can actually strengthen his case by showing he requires significant assistance to function in a work environment. Things like needing help with social interactions, requiring structured breaks, or needing someone to help him navigate workplace changes are all relevant functional limitations that SSA considers. The fact that you're already thinking about this with several months to spare puts you in a really good position. The combination of early preparation, proper documentation, and utilizing all these community resources should help make the transition as smooth as possible. Best of luck with the Claimyr service - several people here have had success with it when the local offices are unreachable!

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Will my SSDI benefits increase to match my FRA amount after approved at 63?

I started taking my Social Security retirement benefits early at 62 (last year) because I needed the income, even though I knew I was getting about 25% less than my full retirement amount. Now my health has gotten worse, and I just applied for SSDI at age 63. If I get approved for disability, will my monthly payment increase to what I would have received at my full retirement age (which is 67)? Or am I stuck with the reduced amount forever because I started collecting early? My reduced retirement benefit is $1,750 but at full retirement age it would have been around $2,400. I'm really confused about how this works and the SSA website isn't clear about my specific situation. Anyone gone through this before?

what medical condition do u have? my brother got approved for back problems but my friend with fibromyalga keeps getting denied

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I have severe rheumatoid arthritis that's affected my hands, feet, and spine, plus some heart complications from the medications. Some days I can barely grip a coffee cup or walk to the mailbox. I've had three surgeries in the last year.

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that sounds serious, you should get approved. make sure u have all the medical records and test results. my friend didnt have enough proof and thats why she kept getting denied

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One more important point: if your SSDI is approved, when you reach full retirement age (67), your benefit won't convert back to reduced retirement benefits. You'll continue receiving the full PIA amount. This is a significant advantage of qualifying for SSDI after taking early retirement. Also, the 5-month waiting period for SSDI may not apply to you since you're already receiving retirement benefits, but this depends on your established onset date. Make sure you understand how all this affects Medicare eligibility too.

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That's great to know! I already have Medicare Part A from turning 65, but I've been paying for Part B out of my reduced benefit. Would anything change with my Medicare if I get approved for SSDI?

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Your Medicare shouldn't change much since you're already enrolled. The main difference would be that your Part B premiums might be deducted from your higher SSDI payment instead of your reduced retirement benefit, so you'd have more money left over each month. Also, if you qualify for SSDI, you might become eligible for Medicare Part D Extra Help (Low Income Subsidy) depending on your total income, which could reduce your prescription drug costs.

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Social Security earnings limit confusion - monthly vs annual for early retirement at 65

I started collecting Social Security retirement benefits this January (2025) at age 63. My Full Retirement Age is 67 and 2 months, but I decided to take benefits early. Now I've been offered a great part-time position at my friend's business, and I'm confused about the earnings limit. The SSA rep I talked to mentioned something about different rules for the first year versus subsequent years. I think she said there's a monthly earnings limit (around $2,300/month) for the first calendar year, but then it switches to an annual limit (roughly $27,500/year) starting next January. Can someone confirm if I'm understanding this correctly? Does it really switch from monthly to annual after the first year? I don't want to accidentally trigger any benefit reductions or have to pay anything back. The job would pay about $2,000 per month.

Thanks everyone for all this helpful information! I'll make sure to keep my earnings under $2,340 each month during 2025, and then stay below the annual limit for 2026 and beyond. I'm going to keep careful records of all my earnings and I'll ask my employer to help make sure I don't accidentally go over. This part-time job sounds like it will work out perfectly with these limits. Really appreciate all the detailed explanations and personal experiences!

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Just wanted to add one more tip that helped me when I was in a similar situation - consider asking your employer if they can structure your pay to help you stay within the limits. For example, if you're close to the monthly limit in a particular month, they might be able to defer some pay to the next month (as long as it doesn't put you over that month's limit either). Also, make sure you understand what counts as "earnings" - things like bonuses, commissions, and overtime all count toward the limit, but vacation pay for unused time might be treated differently depending on when it was earned. The SSA has a detailed publication (Publication 05-10069) that explains exactly what income counts if you want the official guidance. Good luck with your new job! It sounds like you've got a good handle on the rules now.

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Can my younger husband claim on my Social Security at 62 while letting his benefit grow until FRA?

I've been researching spousal benefit options since my husband and I want to retire simultaneously despite our age gap. I'm 59 and he's 52 (7 years younger), and we're trying to map out the best Social Security strategy. My PIA will be around $2,650 while his will be approximately $2,900. If I claim at my FRA (67) and he claims at 62, could he initially take 50% of my benefit while allowing his own benefit to grow until he reaches his FRA? Would taking spousal benefits early permanently reduce his own retirement benefit when he switches to it? I've read conflicting information about whether this "claim now, claim more later" approach is still possible after the 2015 rule changes. Has anyone successfully navigated a similar spousal benefit situation with an age gap? Any alternative claiming strategies would be greatly appreciated!

Good question about the earnings test! Benefits withheld due to the earnings test are NOT permanently lost. Once you reach FRA, Social Security recalculates your benefit amount to credit you for months when benefits were withheld. Your monthly benefit amount increases to account for those months you didn't receive benefits.

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That's a relief! So many nuances to understand with Social Security. I appreciate everyone's insights - you've given us several approaches to consider. I think we'll need to run some numbers based on our specific financial situation and life expectancies to determine our optimal strategy.

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As someone who went through a similar situation with my spouse, I'd recommend creating a spreadsheet to model different scenarios with your actual numbers. Don't forget to factor in cost-of-living adjustments (COLA) and potential changes to your health insurance coverage when you retire. One strategy worth considering: since your husband's PIA is higher, you might explore having him delay until 70 (getting those 8% annual increases) while you claim at 67. This could maximize your household's total lifetime benefits AND provide you with the highest possible survivor benefit if he passes first. The math gets complex, but the peace of mind knowing you've optimized your strategy is worth the effort. Also, consider consulting with a fee-only financial planner who specializes in Social Security - they can often spot opportunities that aren't obvious from online calculators. Best of luck with your planning!

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When to file for Social Security at FRA while still working full-time - born in 1958

I'm trying to figure out the right timing for my Social Security application. I was born November 10, 1958, which puts my full retirement age at 66 and 8 months (I think?). I'm planning to keep working full-time for several more years, possibly until I'm 70 or so, but I'd still like to start collecting SS benefits at my FRA. My questions are: 1. When exactly should I submit my application? 3 months before? 6 months? 2. Will working full-time affect my benefit amount once I've reached FRA? 3. Is there any advantage to waiting until I stop working, or should I just start at FRA regardless? I've tried reading the SSA website but keep getting confused about the earnings test and whether it applies after FRA. Any advice from folks who've done this would be really appreciated!

Thanks everyone for the helpful responses! This has given me a lot to think about. I'm going to: 1. File about 3 months before my FRA date (so around July 2025) 2. Continue working without worrying about the earnings test 3. Talk to a tax professional about managing the tax implications 4. Consider the survivor benefit implications for my wife I really appreciate all the advice and personal experiences shared here!

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Great summary of your plan! One additional tip since you mentioned filing in July 2025 - double-check your exact FRA date. Born November 10, 1958 means your FRA is July 10, 2025 (66 years + 8 months). So filing 3 months early would be around April 2025, not July. You want your benefits to start the month you reach FRA, so timing the application correctly is important to avoid any delays or complications. Also, since you're planning to work several more years, keep an eye on your annual Social Security statement to see how those continued earnings might boost your benefit amount through the automatic recalculations mentioned earlier. Good luck with everything!

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