Social Security Administration

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As a newcomer to this community, I'm amazed by how helpful and detailed everyone's responses have been! I'm in a similar situation with my adult nephew who has intellectual disabilities, and this thread has been incredibly educational. One thing I wanted to add based on my recent research - if your son has never worked or hasn't worked enough to qualify for SSDI on his own record, but his father has a work history, the Disabled Adult Child benefits could potentially provide a much higher monthly payment than SSI. DAC benefits are based on the parent's earning record, so they're often significantly more than the current SSI federal benefit rate of $943/month. Also, unlike SSI, DAC benefits don't have the strict $2,000 resource limit, which would completely solve your Roth IRA concern! Your son could keep the IRA and still receive benefits. Given that his father is approaching retirement age, I'd definitely recommend exploring the DAC option first before going through the SSI spend-down process. You can apply for both simultaneously and let SSA determine which program(s) he qualifies for. @Marcus Marsh - you mentioned feeling terrible about waiting to apply, but honestly, learning about these different benefit options before applying puts you in a much better position than many families who rush into the process without understanding all their choices. Your son is lucky to have such a thoughtful advocate!

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@Ana Erdoğan Thank you for highlighting the DAC benefits option! This is exactly the kind of information I was hoping to find. The idea that he could potentially keep the Roth IRA AND receive higher benefits is incredible - I had no idea this program existed. You re'absolutely right that we should explore DAC first before going through any spend-down process. Since his father is 63 and planning retirement soon, this timing could work out perfectly. I m'going to contact SSA about both programs but definitely lead with asking about Disabled Adult Child benefits. It s'such a relief to know that taking time to research and ask questions was actually the right approach rather than rushing into something. This community has been invaluable in helping me understand options I never would have discovered on my own. I feel so much more confident about moving forward now with a clear plan of action. Thank you again for the encouragement - it really helps to hear from others who understand how overwhelming this process can feel initially!

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As someone new to navigating disability benefits, I'm incredibly grateful for this detailed discussion! I'm helping my adult sister explore her options after a workplace injury left her with cognitive impairments, and I had no idea there were so many different programs and considerations. The information about DAC benefits is particularly eye-opening - I never realized that adult children with disabilities could potentially receive benefits based on their parent's work record without the strict asset limitations of SSI. This could be a game-changer for families who have been trying to navigate the $2,000 resource limit. I also wanted to mention that some states have additional programs that work alongside federal benefits. For example, some states offer waiver programs that provide additional support services for people with developmental or cognitive disabilities, and these often have different eligibility requirements than SSI. @Marcus Marsh - your situation with the childhood TBI at age 7 actually puts your son in a potentially strong position for multiple benefit programs. The early onset means he'd qualify for an ABLE account, and if he's never been able to work substantially due to his disability, that supports both SSI and DAC eligibility criteria. One practical tip I learned from our local disability advocacy center: when you do apply, consider filing for everything you might qualify for simultaneously rather than trying to pick the "best" option upfront. SSA is supposed to award the highest benefit amount you're eligible for, so let them do the calculations and comparisons. This thread has been so educational - thank you everyone for sharing your knowledge and experiences!

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Thanks everyone for all the helpful information! I think I understand now - my FRA is 66 and 10 months (not a "max age"), and I can get delayed retirement credits up until age 70. I'm still working, so I'll probably wait at least until my FRA to avoid the earnings limit. Since my family tends to live into their 90s, waiting until 70 might be the best financial decision for me. I'll check my mySocialSecurity account to get my specific benefit estimates at different ages.

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Sounds like you've got a solid plan, Ravi! One thing to double-check when you log into your mySocialSecurity account - make sure to look at the "View Estimated Benefits" section which will show you the exact dollar amounts at different claiming ages. Also, since you mentioned your family longevity, you might want to consider spousal benefits too if you're married. The timing of when you claim can affect survivor benefits for your spouse. Good luck with your decision!

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That's really helpful advice about checking the exact dollar amounts in mySocialSecurity! I hadn't thought about the spousal/survivor benefits angle either. My wife is a few years younger than me, so the timing of my claim could definitely impact her future benefits. I'll need to look into that when I'm doing my calculations. Thanks for pointing that out!

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@Ava Johnson great point about the spousal benefits! I m'actually married and my wife is 3 years younger than me. I hadn t'really thought about how my claiming strategy would affect her survivor benefits down the road. Do you know if there are any good resources for calculating the optimal claiming strategy when you have to consider both spouses? This is getting more complex than I initially thought!

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To address your original question about appointments - yes, you should definitely schedule one rather than just showing up. As others have mentioned, wait times can be extremely long, especially in busy offices. If you're having trouble getting through on the 800 number, try calling right when they open (8:00 AM Eastern time) or in the last hour before they close (5:30-6:30 PM Eastern). Thursdays and Fridays tend to have slightly shorter wait times than Mondays. Alternatively, check if your local office has a direct number listed. Some do provide direct lines on their local office pages that can be found through the SSA office locator: https://secure.ssa.gov/ICON/main.jsp

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I tried calling at 8:00 AM today and still couldn't get through - just got the message that all representatives are busy. I'll try looking up my local office through that link. Thanks!

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I'm so sorry for your loss, Luca. Going through this process while grieving is incredibly difficult. Based on what others have shared, I wanted to add a few practical tips that might help: Since you're having trouble getting through on the phone, consider visiting your local office first thing in the morning when they open - many offices allow walk-ins for urgent matters like survivor benefits, and you'll avoid the afternoon rush. Bring a book or tablet to keep yourself occupied during the wait. Also, when you do get your appointment, ask about expedited processing. Survivor benefits for children are considered priority cases, and they may be able to fast-track your application given your circumstances. One thing I haven't seen mentioned - make sure to ask about any lump-sum death benefit ($255) that may be available. It's not much, but every bit helps during this difficult time. Take care of yourself during this process. The paperwork and waiting can be frustrating, but you're doing the right thing by getting these benefits for your kids. They'll provide important financial support as you all navigate this new chapter.

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Thank you so much, Sergio. The suggestion about going first thing in the morning is really helpful - I hadn't thought about timing it that way. And I definitely want to ask about expedited processing and that lump-sum benefit. Every bit of support helps right now. I appreciate everyone taking the time to share their experiences and advice. It's making this overwhelming process feel a bit more manageable.

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Great summary Anna! You've got all the key points right. One small addition - since you mentioned you might need another $10k from your 401k before year-end, that's totally fine and won't affect your Social Security benefits at all. The earnings test really is just about wages and self-employment income, so you can withdraw as much as you need from retirement accounts without penalty from SSA. Just keep track of your consulting income to make sure that stays under the limit. Sounds like you're in great shape!

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This whole thread has been incredibly helpful! As someone who just started receiving Social Security benefits myself, I had similar concerns about retirement account withdrawals. It's reassuring to see such clear explanations from experienced members. The distinction between earned income and other types of income for the earnings test is something I wish SSA made clearer in their own materials. Thanks to everyone who contributed - this is exactly the kind of practical advice that makes this community so valuable!

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One thing I'd add that might be helpful - if you're doing consulting work, make sure you're properly tracking your expenses! Since it's self-employment income, you can deduct legitimate business expenses which will reduce your net earnings for the SSA earnings test. Things like office supplies, mileage, equipment, etc. So if you made $14,000 but had $2,000 in valid business expenses, only $12,000 would count toward the limit. Just make sure you keep good records in case SSA ever asks. This could give you even more breathing room under that $22,320 threshold!

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That's such a great point about business expenses! I hadn't even thought about deducting legitimate expenses from my consulting income. I definitely have some mileage and office supply costs I could track. Do you know if there are any specific forms or documentation SSA requires if they audit the self-employment income, or do they just go off what's reported on your tax return?

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Don't overthink this. At your asset level ($1.8M), the SS decision isn't going to make or break your retirement either way. You're in an enviable position where you'll be fine regardless. I tend to favor taking it at 62 because it gives you more flexibility early in retirement when you're most active and can enjoy it. Just my two cents having been on both sides of the decision.

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That's a really good perspective. I think I'm getting too caught up in optimizing every last dollar when, as you point out, I'm fortunate to be in a position where either choice leads to a secure retirement. Maybe the peace of mind from having SS locked in is worth more than potential optimization.

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As someone who's been through this exact decision process, I'd encourage you to consider one more angle: spousal benefits and survivor protection. If you're married, delaying your SS benefit doesn't just affect you - it also determines the maximum survivor benefit your spouse could receive. Given your excellent health and family longevity, this could be significant. That said, your financial position is strong enough that you really can't make a "wrong" choice here. I've seen too many people stress over optimizing SS while missing opportunities to enjoy their early retirement years. The difference between claiming at 62 vs 67 might be $200K over 30 years, but you already have nearly $2M in assets. My suggestion: Run the numbers one more time factoring in taxes and your specific withdrawal strategy, then go with whatever gives you the most peace of mind. The "perfect" mathematical choice isn't worth losing sleep over when you're already in such a secure position.

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Mei Lin

This is such valuable insight, especially about the survivor benefits angle. I hadn't fully considered how my SS decision would impact my spouse's potential survivor benefit down the road. That's definitely another factor to weigh in this decision. You're absolutely right that I'm overthinking this from a position of financial security - it's easy to get caught up in optimization when the reality is I'll be fine either way. Sometimes the best choice is simply the one that lets you sleep better at night. Thank you for the perspective check!

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