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Social Security Disability consultative exam for MS and neuropathy - what to expect?

I filed for Social Security disability benefits back in April due to my multiple sclerosis and severe neuropathy in both legs and feet. I'm 51 and can barely walk some days. After waiting for months, SSA finally scheduled me for what they call a 'consultative examination' with their doctor tomorrow. I'm really nervous and don't know what to expect. Has anyone gone through one of these exams, especially for neurological conditions? What kinds of tests do they do? Should I bring my medical records even though they should already have them? Do these SSA doctors usually understand MS symptoms or should I expect to have to explain everything? Any advice would be incredibly helpful because I'm stressing out about this appointment.

I went through this last year. The consultative exam (CE) is very normal in the SSDI process - it doesn't mean anything negative about your case. The doctor is hired by SSA to provide an independent evaluation, not to treat you. My exam for neuropathy was about 30 minutes. They checked my reflexes, had me walk across the room, tested my grip strength, and asked about my daily limitations. Bring a list of your medications and doctors, but don't worry about bringing all your records - they should have those. Be honest about your limitations - don't exaggerate but don't minimize your symptoms either. If you're having a 'good day' tomorrow, make sure to explain what your bad days are like. Good luck!

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Thank you! This is so helpful. I was worried it meant they didn't believe me or something. I'll definitely mention my bad days even if tomorrow happens to be better. Did they ask you a lot of questions about your daily activities? I can do some things on good days but then I'm usually wiped out for days afterward.

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my brother had 1 of these for his back problems. dont worry to much they just wanna see how bad ur condition is. the doctor barely talked to him just did some tests and that was it. he got approved 2 months later

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Thanks for sharing about your brother's experience. That's reassuring. Did they make him do physical tests that caused pain? I'm concerned they'll ask me to do something that will cause a flare-up.

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I've been through THREE of these exams during my SSDI journey. Here's what you need to know: these doctors are PAID BY SSA and spend about 15-20 minutes with you max. They often don't understand complex conditions like MS. DOCUMENT EVERYTHING. If the doctor dismisses symptoms, write it down. If they rush you, note the time. When I finally got approved, my lawyer said my detailed notes about the consultative exams actually HELPED my case because they showed how inadequate they were. The system is DESIGNED to discourage you. Don't let it. And for god's sake, don't say you can do more than you actually can reliably do.

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This is really good advice about taking notes. I hadn't thought of that. I'll bring a notebook to document everything. My symptoms fluctuate so much with MS that I'm worried about capturing the full picture in a short appointment.

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CEs (consultative exams) are standard procedure when SSA doesn't feel they have enough medical evidence to make a determination, or when they need more recent findings. A few recommendations for your appointment: 1. Be completely honest about your limitations 2. Describe your worst days in detail 3. Explain how your symptoms affect specific work activities 4. Mention side effects of medications 5. Discuss how often you need to rest or lie down 6. Bring a list of all treatments you've tried The CE physician will submit a report to DDS (Disability Determination Services) that becomes part of your medical evidence. This is just one piece of your overall application - not the final decision maker.

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Thank you for the detailed advice. I'll make sure to cover all these points. I'm especially concerned about explaining how unpredictable MS can be - some days I seem fine and others I can't even get out of bed. I'll make sure to emphasize that tomorrow.

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i had one and it was a joke!! doctor spent maybe 10 mins with me, barely looked at me, asked like 3 questions and i still got denied!! had to appeal. system is broken!!!

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Unfortunately, this happens more often than it should. If you're denied, the appeal process actually provides a better opportunity to present your case fully. About 65% of initial SSDI applications are denied, but approval rates increase significantly at the hearing level when you can speak directly to an Administrative Law Judge.

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After struggling to get proper assessments from two consultative exams, I almost gave up on my disability claim. Couldn't reach anyone at SSA to explain my situation or get status updates - kept getting disconnected after waiting on hold for hours. Then I discovered Claimyr (claimyr.com) and it completely changed my experience. Their service got me connected to an actual SSA representative in about 15 minutes instead of the hours I was wasting before. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU After speaking with SSA directly, I was able to explain issues with my consultative exam report and request additional consideration of my medical evidence. I definitely recommend having a way to actually speak with SSA throughout this process rather than just waiting in the dark.

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Thanks for the tip. The waiting and uncertainty is definitely the hardest part. I've tried calling the local office several times but always end up in voicemail. I'll check out that service if I need to follow up after this exam.

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One more important thing about your consultative exam - the doctor will observe you from the moment you enter until you leave. They notice how you walk in, if you need assistance sitting/standing, your ability to fill out forms, etc. This isn't to trick you, but to get a complete picture of your functioning. Many people with MS have what's called "invisible symptoms" that the standard quick tests don't capture well, like fatigue, cognitive issues, and pain. Make sure to verbalize these symptoms clearly since they won't be apparent in basic tests. Also, if you use any mobility aids regularly, bring and use them at the appointment.

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That's really helpful to know they're observing the whole time. I do use a cane on bad days but sometimes try to push through without it. I'll definitely bring it tomorrow and be upfront about all my invisible symptoms. The cognitive fog and fatigue are actually more debilitating than my mobility issues some days.

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Had my CE last month. The doctor was actually pretty thorough and kind. Don't go in assuming it's going to be terrible! Just answer honestly and be yourself. My decision is still pending but I felt the exam itself was fair.

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ur lucky!! mine was awful the doc barely looked at me and asked like 2 questions. got denied first time.

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IMPORTANT: The wait times after your CE can be EXCRUCIATING. My first application took 7 months after the CE to get a decision (denied, of course). Second time was 5 months. Third time with a lawyer was still 4 months. The SSA disability system is BROKEN and DESIGNED to wear you down. After your exam, you need to stay on top of your case. Call for updates regularly. If you can't get through, which is LIKELY, that's when many people use a call service to connect with SSA. The regular phone system is a JOKE.

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this is so true!! i waited 8 months after my exam and then got a form letter denial. nobody would explain why. had to start all over with appeals.

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One technical point about MS and SSDI that's important to understand: MS is one of the conditions listed in SSA's "Blue Book" Listing of Impairments (specifically 11.09). However, meeting this listing can be challenging as it requires specific documentation of: 1. Disorganization of motor function in two extremities resulting in extreme limitation in ability to stand up, balance, or use arms, OR 2. Marked limitation in physical functioning AND in one of the following: understanding/remembering/applying information; interacting with others; concentrating/persisting/maintaining pace; or adapting/managing oneself. This is why the consultative exam is important, but also why you should ensure all symptoms are thoroughly documented by your treating neurologist. The CE is one piece of evidence, but your ongoing specialist records often carry more weight.

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Thank you for explaining the technical requirements. My neurologist has documented my condition thoroughly, including both the physical limitations and the cognitive impacts. I'll make sure to mention both aspects during the exam tomorrow. Would it help to bring a letter from my neurologist to the consultative exam?

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You can bring a letter, but the CE doctor is unlikely to include it in their report. Instead, ensure your neurologist sends updated records directly to SSA (they can fax them to your local office with your name and SSN clearly marked). After your CE, I'd recommend contacting your neurologist to send the most recent documentation with specific comments addressing those listing criteria I mentioned. This creates a stronger overall file than anything you might bring to the CE appointment itself.

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