Social Security Administration

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Thanks everyone for the helpful answers! I called Social Security using the Claimyr service that someone recommended, and it really did get me through quickly! The representative explained that since this is my first year on benefits, I can use the monthly test for the rest of 2025. That's perfect because I can limit my hours to stay under $1,770 each month, even during holiday seasons when I usually work more. Then next year I'll need to watch my annual total instead. They also told me that if I do go over, they don't immediately take money back - they adjust future payments. And the part about getting credited back after I reach full retirement age was news to me! Makes the whole system seem more fair. Thanks again for all the advice!

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I'm glad you got through to SSA and got clarity on your situation! That monthly test for the first year is really helpful for people with variable income. Just wanted to add one more thing - make sure to keep good records of your monthly earnings throughout the year. Even though you're using the monthly test, SSA may still want documentation if there are any questions later. I keep a simple spreadsheet with my hours and gross pay each month, plus copies of all my paystubs. It's saved me headaches during reviews. Good luck with managing your seasonal work schedule!

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That's really smart advice about keeping records! I'm definitely going to start tracking my monthly earnings more carefully now. Since I'm new to all this Social Security stuff, I have a quick question - when you say "gross pay," does that include tips? I sometimes get small tips at the bookstore during busy periods, and I want to make sure I'm counting everything correctly for the monthly limit.

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I'm just starting to navigate this world of disability benefits and housing arrangements, so this thread has been incredibly educational! Reading everyone's experiences has helped me understand how complex but manageable this process can be. One question I haven't seen addressed yet - for those who successfully set up separate living arrangements, how did you handle emergency situations? I'm thinking about scenarios where your adult child might need immediate assistance due to their disability. Does having a formal landlord-tenant relationship create any legal complications if you need to enter their space during an emergency? Also, I'm wondering about the long-term implications. If your daughter's condition changes over time (either improves or requires more support), how flexible is this arrangement in terms of modifying the living situation while preserving benefits? Thank you to everyone who has shared their experiences - it's clear that with proper planning and documentation, this can be a wonderful way to support independence while maintaining crucial benefits. The practical tips about separate bank accounts, detailed record-keeping, and getting everything properly documented from the start are so valuable!

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These are really thoughtful questions that I hadn't considered! For emergency situations, I think including an emergency access clause in the rental agreement would be smart - something that allows immediate entry for health/safety emergencies while still maintaining the formal arrangement for SSA purposes. The flexibility question is huge too. I'm wondering if anyone has experience with what happens if the adult child's needs change significantly over time. Like, if my daughter's condition requires more intensive support later, would we need to restructure the whole arrangement? Or if she improves and wants to move to fully independent housing elsewhere, how does that transition work with benefits? This thread has been such an eye-opener about all the details involved. I'm feeling more prepared but also realizing there are so many nuances to consider beyond just the basic rent and separate address setup!

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This thread has been incredibly helpful! As someone just starting to research this for my 17-year-old son with intellectual disabilities, I'm taking notes on all the practical advice shared here. One thing I'm curious about - has anyone dealt with this situation where the adult child receives both DAC and SSI? From what I'm reading, it sounds like the living arrangement might not affect the DAC portion but could definitely impact SSI. Is that correct? Also, I'm wondering about the transition period. When you first set up the separate living arrangement, did SSA require any kind of inspection or just accepted your documentation? I'm trying to understand if they physically verify the separate household setup or if it's mainly based on the paperwork you provide. The point about checking zoning laws first is so important - I definitely need to look into our local ADU regulations before getting too far into planning. Thanks to everyone sharing their real experiences rather than just general advice!

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Drake

You're absolutely right about the distinction between DAC and SSI! DAC benefits (based on the parent's work record) generally aren't affected by living arrangements, but SSI is very much impacted since it's needs-based. If your son gets both, you'll need to be extra careful about documenting the separate household arrangement to protect the SSI portion. From what I've seen in this thread and my own research, SSA typically doesn't do physical inspections for living arrangement verification - they rely on the documentation you provide (lease agreements, rent payment records, separate mailing address, etc.). However, they can be very detailed in their questioning during reviews, so having everything well-documented from the start is crucial. Starting your research now while your son is still 17 is smart! You'll have time to get all the zoning approvals, set up the physical space properly, and establish the documentation trail before his transition to adult benefits. The timing advice from earlier comments about setting this up before the 18th birthday review seems really valuable if you can manage it.

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I'm new to this community and just got my SSDI approval last month after a grueling 20-month fight! My back pay of $13,400 showed up in MySocialSecurity about a week ago and I've been obsessively checking my bank account every day. Reading through everyone's experiences here has been such a relief - I had no idea that 5-15 business days was normal for larger back payments, and nobody at SSA explained the manual review process for amounts over certain thresholds. It's incredibly frustrating that they don't communicate these delays upfront, especially after we've already waited so long for approval. Based on all the timelines people have shared, it sounds like I'm still well within the normal range at 7 days. This community is amazing for filling in all the information gaps that SSA leaves out - thank you everyone for sharing your experiences and helping newcomers like me understand what's actually normal versus what we should worry about!

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Welcome to the community and congratulations on finally getting approved after such a long fight! Your experience sounds very similar to what many of us have gone through. At 7 days for a $13,400 back payment, you're definitely still in the normal range based on everyone's shared timelines. It's really helpful to see another data point with a larger amount - it seems like anything over $10,000 consistently takes that 10-15 business day window due to the enhanced security reviews. You're absolutely right that SSA should explain these processes clearly upfront instead of leaving us all wondering if something went wrong. This community has been such a lifesaver for understanding how things actually work! Based on what others have shared with similar amounts, I'd expect yours to hit sometime in the next week. Hang in there - you've already made it through the hardest part!

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I'm also new to this community and currently going through the exact same waiting period! My SSDI back pay of $10,750 has been showing in MySocialSecurity for 8 days now and I've been checking my bank account constantly. Reading through everyone's experiences here has been incredibly reassuring - I had no idea that 5-15 business days was completely normal for larger back payments. The manual review process for amounts over $10,000 that several people mentioned explains perfectly why mine is taking longer. It's so frustrating that SSA doesn't explain any of these delays upfront, especially after already waiting over a year for approval! Based on all the timelines shared here, it sounds like we're all still well within the normal range. This community is amazing for providing the real information that SSA doesn't tell you. Thank you to everyone who has shared their experiences - it really helps those of us going through this process for the first time understand what's actually normal!

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As a newcomer to this community, I just wanted to say thank you to everyone who has shared their experiences in this thread! I'm scheduled for my auxiliary benefits phone appointment next week and was feeling pretty anxious about it, but reading through all these detailed accounts has been incredibly reassuring. The practical tips are gold - creating a cheat sheet with all the kids' info, having the SSDI award letter ready, preparing for questions about living arrangements and previous addresses, and definitely going the in-person route for document submission. It's also really helpful to know the typical timeline is 4-6 weeks from interview to first payment. One thing that stands out is how patient and thorough the SSA representatives seem to be during these calls. I was worried they'd be rushed, but it sounds like they really take the time to walk you through everything properly. For those still waiting on their processes - it's clear that being organized and having all your information ready makes a huge difference. Thanks again to everyone for creating such a supportive and informative discussion for newcomers like me!

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Welcome to the community! As another newcomer who was in your exact shoes just a few months ago, I can totally relate to that pre-call anxiety. This thread has been such a treasure trove of practical information - I wish I'd had access to all these detailed experiences when I was preparing for my appointment! The cheat sheet idea really is a game-changer. I made one too and it gave me so much confidence during the call. Having everything organized in front of you makes such a difference when you're already nervous. One small thing I'd add to everyone's great advice - don't be afraid to ask the representative to repeat something if you didn't catch it clearly. They're used to people being nervous and taking notes during these calls. I had to ask them to spell out a reference number twice and they were completely patient about it. You sound really well-prepared thanks to all the wisdom shared here. The hardest part is honestly just getting through to schedule the appointment - once you're in the actual process, it's much more straightforward than it seems. Best of luck with your call next week - you've got this!

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As a newcomer to this community who just went through the auxiliary benefits process 3 weeks ago, I wanted to add my voice to this incredibly helpful thread! I was terrified about my phone appointment but it ended up being much smoother than I anticipated. The interview took about 40 minutes and the representative was very patient and professional. One thing I haven't seen mentioned yet - they asked me about any joint bank accounts or savings accounts that have my children's names on them. It wasn't disqualifying, just for their records, but I wasn't expecting that question. They also asked if I had ever applied for or received auxiliary benefits before (even if denied), which was easy to answer but good to be prepared for. Another question that caught me slightly off guard was whether my children had ever been in foster care or lived with anyone else, even temporarily. I followed everyone's advice about creating a detailed cheat sheet and it made all the difference! I also had my phone on speaker with a notebook ready to jot down the claim number and any important details they mentioned. For documents, I absolutely recommend the in-person route. I went to my local SSA office 2 days after the call and the whole process took 15 minutes. They made copies, gave me detailed receipts, and the staff member even explained what would happen next in the process. Benefits started exactly 4 weeks after document submission, with full retroactive pay back to the application date. The kids were so excited about their first "Social Security payment"! Thank you to everyone in this thread for sharing such detailed experiences - it really made all the difference for a nervous newcomer like me.

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As someone who just started navigating this system myself, I really appreciate all the detailed explanations here! The distinction between the monthly test in your first benefit year versus the annual test is something I definitely didn't understand before reading through these comments. One question I have - for those of you who have been through the process of SSA calculating an overpayment, do they send you clear documentation showing exactly how they calculated what you owe? I'm worried about keeping good records but then having their calculations not match mine. Also, is there an appeals process if you disagree with their determination? I tend to be pretty meticulous with my record-keeping, but I want to make sure I know what to expect if there are discrepancies down the road. Thanks again to everyone sharing their experiences - this is exactly the kind of real-world insight that's hard to find on the official SSA website!

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Great question about the documentation! When SSA determines you have an overpayment, they'll send you a formal notice that breaks down their calculation, including your total reported earnings, the benefit amounts paid, and how much they're saying you owe. The notice will also explain your appeal rights - you typically have 60 days to request reconsideration if you disagree with their determination. I'd definitely recommend keeping detailed monthly records of your gross wages throughout the year, along with pay stubs and W-2s, so you can verify their calculations. If there are discrepancies, having your own documentation makes the appeal process much smoother. The appeals process has several levels (reconsideration, hearing before an administrative law judge, etc.) so you do have options if their numbers don't match yours.

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This thread has been incredibly helpful - thank you all for sharing your experiences! I'm in a similar situation and was completely overwhelmed by the earnings limit rules until reading through these explanations. One thing I wanted to add that might help others: I called my local Social Security office (not the national number) and was able to get an appointment to go over my specific situation in person. The representative there was much more helpful than trying to get answers over the phone, and she walked me through exactly how the calculations would work based on my expected earnings pattern. She also gave me a worksheet to track my monthly earnings throughout the year. For anyone feeling as confused as I was initially, it might be worth trying to schedule an in-person appointment if you have a local office nearby. Having someone look at your actual situation rather than trying to understand the general rules made a huge difference for me. Plus, you get everything in writing which helps when you're trying to keep those detailed records everyone's talking about!

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That's such a great tip about the local office appointments! I've been dreading trying to navigate the phone system after reading about everyone's experiences with long hold times and inconsistent information. Having someone walk through your specific situation in person and getting a worksheet sounds so much more manageable than trying to figure this all out on my own. I'm definitely going to look up my local office and try to schedule something. Did you need to bring any specific documents with you to the appointment, or just your general information about expected earnings? I want to make sure I'm prepared so I can get the most out of the meeting.

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