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Mei Wong

Will I get 100% of husband's Social Security after his dementia progresses? Never had my own credit card

My husband (69) was recently diagnosed with early-stage dementia, and I'm trying to prepare financially for what's ahead. We've been married 31 years and I've always been a stay-at-home mom. Here's my situation: I'm 65 and receiving my own Social Security retirement (about $1,100/month) while my husband gets $2,750/month. I realized that I don't have ANY credit in my name - we've always shared accounts with him as primary. When I tried explaining this to my husband, he got confused and upset (understandable given his condition). Two urgent questions: 1) When my husband eventually passes, what percentage of his Social Security will I receive as a survivor? Will I lose my current benefit completely? 2) Should I be applying for credit cards in my own name NOW while he can still help with applications? I haven't had my own credit card since 1990! I feel completely unprepared. Are there other financial steps I should be taking immediately while he still has some good days? His doctor thinks his condition will progress faster than average.

Liam Sullivan

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First, I'm sorry about your husband's diagnosis. You're smart to be planning ahead. To answer your questions: 1) As a widow, you'll be eligible to receive 100% of your husband's SS benefit OR continue receiving your own benefit - whichever is HIGHER. You don't get both. So in your case, you'd receive his $2,750 instead of your $1,100. 2) Yes, establishing credit in your name is extremely important right now. Apply for 2-3 cards, starting with your existing bank. Also make sure your name is on all property titles, bank accounts, and investments. Many widows face credit problems when their spouse passes. Other crucial steps: - Get financial and medical power of attorney documents in place ASAP - Review all beneficiary designations on life insurance, retirement accounts - Create a comprehensive list of all accounts, passwords, insurance policies - Consider consulting an elder law attorney about asset protection if long-term care becomes necessary

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Mei Wong

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Thank you for the clear explanation about the survivor benefits. That's a relief to know I'd get his full amount. I hadn't even thought about power of attorney or checking beneficiaries - that's going on my to-do list immediately. Our bank turned down my first credit card application yesterday (insufficient credit history). Should I try a secured card instead?

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Amara Okafor

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my mom went thru this exact thing!!! dad had alzheimers and she never had credit either. biggest mistake was waiting to long to get POA!!!! by the time they tried dad couldn't sign his name anymore and it was a NIGHTMARE with the courts. do this first before anything else trust me

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Mei Wong

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Oh no, that sounds awful! I'll call our family attorney tomorrow. My husband is still having good days where he can understand and sign documents, so sounds like we need to move quickly on the POA.

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As someone who worked at SSA for 26 years, let me clarify the survivor benefit situation. You'll receive the higher of either your own benefit or up to 100% of your husband's benefit (if you're at full retirement age when you claim survivors). Since you're already collecting your own retirement, SSA will automatically switch you to survivors benefits when they're notified of his passing. But there's something else you should look into NOW - if your husband's condition requires care, you might be eligible for spousal benefits while he's still living. If your own benefit is less than 50% of his, you could potentially receive additional benefits as a spouse. This would require a call to SSA to discuss your specific situation.

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Mei Wong

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Wait - I might be eligible for additional benefits NOW? I had no idea! I've been struggling to reach someone at SSA though. I've called multiple times but keep getting disconnected or told the wait time is over 2 hours. Is there a better way to get through?

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Mei Wong

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Thank you! I'll check that out. I've been trying for weeks to get through about another issue too. I really need to speak with someone who can look at our specific situation.

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StarStrider

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I was skeptical about Claimyr but used it last month when my wife's payment was wrong. Got through in 15 minutes after spending THREE DAYS trying on my own. Just another option if you're in a hurry.

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DONT FORGET ABOUT MEDICARE!!!! If he has dementia he might qualify for home health services now through Medicare. My uncle got help with bathing and stuff for his wife. Ask his doctor about a referral to Medicare home health ASAP.

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Mei Wong

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I hadn't even thought about Medicare possibly covering some home care. That would be such a help. I'll definitely ask his neurologist about this at our appointment next week. Thank you!

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Sofia Torres

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You've gotten great advice about the financial aspects, but I'd also recommend contacting your local Alzheimer's Association chapter right away. They offer free care consultations, support groups, and resources specific to your situation. Their helpline is 800-272-3900 and available 24/7. Also, while establishing credit is important, consider adding your name to existing accounts rather than just opening new ones. And one thing often overlooked: if your husband has been handling the taxes, start working with his accountant or tax preparer now to understand that process. We went through this with my father-in-law, and the earlier you prepare, the better positioned you'll be.

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Mei Wong

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The Alzheimer's Association is a great suggestion. I feel so overwhelmed with all of this. And yes, my husband has always handled our taxes! I have no idea where he keeps all the records or how to file. Adding that to my list of things to discuss with him on his next good day.

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StarStrider

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Been thru this. The SSA will fight you on EVERYTHING so keep ALL paperwork. My mom had dementia and they kept sending her confusing letters she couldn't understand. Then they claimed she was overpaid by $4,500 which was complete BS!!! Took months to fix. Make sure you intercept his mail from SSA so you can deal with it.

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This is misleading. SSA doesn't "fight you on everything." Overpayment issues can occur when changes aren't reported timely. The Representative Payee program is designed specifically to help in situations like dementia. OP should consider applying to be a Representative Payee for her husband, which allows her to manage his benefits if he becomes unable to handle his own finances.

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StarStrider

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Maybe YOUR office was good but our local SSA was horrible!!! They lost paperwork twice and kept sending threatening letters. Just warning OP that she needs to stay on top of everything.

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Liam Sullivan

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One critical financial step: talk to an elder law attorney ASAP about Medicaid planning. If his dementia progresses to needing nursing home care (currently averaging $9,500+ per month), you need to understand how to protect assets for yourself while potentially qualifying him for Medicaid. There's a 5-year lookback period for asset transfers, so planning needs to happen early. Also, research long-term care insurance immediately if you don't already have it, though it may be difficult to obtain with a dementia diagnosis. Lastly, regarding credit: while establishing your own credit is important, also ensure you're an authorized user on his existing credit cards. This helps build your credit history while giving you access to established credit lines.

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Mei Wong

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The potential nursing home costs terrify me. I had no idea they were that expensive. We have about $310,000 in retirement savings plus our home (worth about $275,000). I've been added as an authorized user on his cards but was told that's not the same as having my own credit history. Will look into elder law attorneys in our area today.

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Amara Okafor

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just wondering did u work at all during your marriage? even part time? because if you worked 10 years total in your life you might have more SS options!! my aunt didn't know this and was leaving money on the table!!

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Mei Wong

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I worked part-time for about 15 years when the kids were in school, which is why I qualify for my own benefit. It's just much smaller than my husband's because I earned less and worked fewer years. But good point for others reading this thread!

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I'm so sorry you're going through this difficult situation. As someone who recently helped navigate similar challenges with my elderly parents, I wanted to add a few practical suggestions that haven't been mentioned yet: 1) **Document everything now while he can still communicate**: Create a detailed inventory of all accounts, insurance policies, investment accounts, and important contacts (doctors, financial advisors, etc.). Include account numbers, phone numbers, and any special instructions. 2) **Consider a medical alert system**: As his condition progresses, having a way for him to call for help if you're not home becomes crucial. Many have fall detection features too. 3) **Look into your state's SHIP program** (State Health Insurance Assistance Program) - they provide free counseling about Medicare benefits and can help you understand what services might be covered for dementia care. 4) **Banking considerations**: Make sure you have joint access to all accounts, but also consider setting up automatic bill pay for essential services now while he can still approve the setup. The credit card situation is tough, but being an authorized user does help build some credit history. You might also ask your bank about a secured credit card - they're easier to qualify for and can help establish your independent credit. You're being incredibly proactive by planning ahead. Take it one step at a time, and don't hesitate to lean on the support resources others have mentioned.

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Brian Downey

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This is such helpful practical advice! The medical alert system is something I hadn't considered but makes perfect sense. My biggest worry is what happens when I need to run errands and leave him alone. Creating that detailed inventory sounds overwhelming but I know it's necessary. He gets frustrated when I ask too many questions about our finances, so I'm trying to gather information gradually during his better moments. The automatic bill pay suggestion is brilliant - I'll set that up this week while he can still understand what we're doing. Thank you for mentioning SHIP. I had no idea that program existed. It sounds like exactly what I need to understand our Medicare options better. You're right about taking it one step at a time. Some days I feel completely paralyzed by everything I need to figure out, but posts like yours help me see there are concrete steps I can take.

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Gianna Scott

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I'm going through a very similar situation with my mother who has early-stage dementia, so I completely understand how overwhelming this feels. A few additional things that have been lifesavers for us: **Financial Power of Attorney - get it done IMMEDIATELY**: Like others said, this becomes impossible once cognitive decline progresses. We waited just a few months too long and had to involve doctors to verify mom's capacity. **Social Security Representative Payee**: Since you mentioned your husband gets confused about financial matters, consider applying to become his representative payee now. This gives you legal authority to manage his SS benefits and can prevent issues if he becomes unable to handle his own affairs. **Credit cards**: Try applying for a secured card through your current bank - they already know your banking history. Also, many credit unions are more lenient with members who have limited credit history. **Important timing note**: You mentioned his doctor thinks his condition will progress faster than average. If that's the case, prioritize the legal documents (POA, healthcare directives) over everything else. The financial stuff can be figured out later, but once he can't legally sign documents, your options become much more limited and expensive. **One practical tip**: Start handling more of the day-to-day finances now (bill paying, bank visits, etc.) while he can still guide you through the process. This helps you learn the systems while he's available to help. You're doing everything right by planning ahead. It's hard, but future you will be so grateful for the preparation you're doing now.

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Thank you so much for sharing your experience with your mother - it helps to know I'm not alone in this. The timeline pressure you mentioned really hits home. My husband's neurologist used the phrase "aggressive progression" which honestly scared me more than I let on. I'm definitely prioritizing the POA this week. I've already scheduled an appointment with an elder law attorney for Friday, and I'm hoping we can get all the legal documents done while he's still having consistent good days. The Representative Payee program sounds like something I should look into soon. I've noticed he's already getting confused about some financial decisions, like last week he couldn't remember why we have certain automatic payments set up. Your point about learning the systems while he can still guide me is so important. I started taking over bill paying last month and there were so many little details I never knew about - like which utility company we use for what, or how he organizes the filing system. I'm trying to document everything as I learn it. Can I ask how the Representative Payee application process worked for your mom? Was it complicated or did SSA make it straightforward once you had the medical documentation?

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Callum Savage

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The Representative Payee application was actually more straightforward than I expected, though it did require some patience with the process. You'll need to fill out Form SSA-11 (Request to be Selected as Payee) and provide medical documentation of your husband's inability to manage his finances. The key thing that helped us was having his neurologist write a detailed letter explaining mom's cognitive limitations and how they specifically impact her ability to handle financial matters. SSA was pretty responsive once they had the medical evidence - the whole process took about 6-8 weeks from application to approval. One thing to note: you don't have to wait until he's completely incapacitated. If his doctor can document that the dementia is affecting his financial judgment (like the confusion about automatic payments you mentioned), that can be sufficient grounds for the application. Also, I'm glad you're getting the elder law attorney involved this week. They can help coordinate the POA and Representative Payee applications so they work together properly. Some attorneys will even help with the SSA paperwork as part of their service. You're being incredibly proactive - that "aggressive progression" timeline makes everything feel urgent, but you're tackling the most important things first. The legal protections will give you the foundation to handle everything else that comes up.

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