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Andre Lefebvre

Will I get my husband's full SSDI benefits when he passes or lose my reduced retirement?

My husband has been on Social Security Disability (SSDI) since 2022 after suffering a severe stroke. I decided to take early retirement at 62 this past March so I could stay home and help with his care. Currently I'm only getting about $1,050 monthly (roughly half of what his disability payment is). I'm confused about what happens with our benefits if he passes away before me. Would I just lose my smaller retirement benefit and start receiving his full SSDI amount instead? Or does it work differently because his benefit is disability rather than retirement? I'm trying to prepare financially for potential scenarios but can't find clear information about disability-to-survivor transitions. Thanks for any guidance.

Yes, if your husband passes away, you would receive his full benefit amount as a widow instead of your reduced benefit. It doesn't matter that his benefit is SSDI rather than retirement - the survivor benefits work the same way. When someone on disability passes, their benefit essentially converts to a survivor benefit for the eligible spouse. Since you're already collecting your own benefit, SSA would automatically switch you to the higher survivor benefit amount.

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That's such a relief to hear! I was worried there might be some reduction or complication because I took my retirement early. Do I need to do anything special to prepare for this transition, or does SSA handle it automatically when the time comes?

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When my dad died (he was on disabilty), my mom got his full amount. But she had to go to the office with the death certificate and fill out forms. It took like 6 weeks I think before she got paid.

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This is correct. You don't automatically get switched - you have to apply for survivor benefits. And make sure to do it quickly because SSA only gives you a limited retroactive period.

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I went through this last year and it was a NIGHTMARE trying to get through to Social Security after my husband passed!! Called for WEEKS and just got busy signals or disconnected. I was so stressed about bills piling up while waiting for the higher survivor benefit to start. My neighbor told me about Claimyr.com which got me connected to a real SSA agent in about 20 minutes instead of waiting on hold for hours. You can see how it works here: https://youtu.be/Z-BRbJw3puU Once I finally got through, they were very helpful and explained everything. But definitely save yourself the headache when the time comes.

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I'm sorry for your loss, and thank you for sharing that resource. I've been trying to call SSA about some questions and haven't been able to get through either. I'll look into this service.

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There's a bit more nuance to this that people aren't mentioning. If you're between age 60 and your Full Retirement Age when your husband passes, you'll get somewhere between 71.5% and 100% of his benefit amount, depending on your exact age when you claim survivor benefits. Only at your FRA would you get 100% of his benefit. Also, if you're working and under your Full Retirement Age, the earnings test applies to survivor benefits too, so some benefits could be withheld if you earn above the annual limit ($22,320 in 2025).

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This is why the SSA system is so confusing!!! So she doesn't automatically get 100% of his benefit?? Why do they make everything so complicated with all these rules and percentages? 🤦‍♀️

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To add to this discussion - when your husband passes, you should contact SSA right away. You can't report a death online - you'll need to call them at 1-800-772-1213 or contact your local office. Bring the death certificate when you go. You'll need to apply for the survivor benefits - they don't automatically switch you over. And as someone mentioned, the amount you'll get depends on your age at the time. If you're already at your Full Retirement Age, you'll get 100% of his benefit. If you're younger, it will be reduced somewhat, but still likely higher than your current reduced retirement benefit.

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I just went thru this exct situaton last winter. My husban was on SSDI for 5 yrs before he passed. When I applied for survivors they did give me his full amount BUT they also took away TWO MONTHS of payments during the transition!!! They said something about not being able to get benefits for the same months under 2 different claims. Nobody warned me about this so we had no savings set aside for the gap. Almost couldnt pay rent!!!

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My sister thot the same thing but when her husband died (he wasnt on disability tho) she was only 58 and they told her she had to wait until 60 to get ANY widow benefits? Is that different if the person was on disability??

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The rules are the same regardless of whether the deceased spouse was on disability or retirement benefits. Widow(er)s can generally claim survivor benefits as early as age 60 (or age 50 if disabled themselves). The only exception is if there are dependent children under 16 - then a widow(er) caring for those children can receive benefits at any age. Your sister was told correctly that she needed to wait until age 60 if she had no dependent children.

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watch out for the tax implications too! i started getting my husbands ssdi after he passed (it was higher than my own benefit) and suddenly my tax bill went way up because his benefit amount pushed me into a higher bracket. nobody from ssa warned me about this!

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What happens to his back pay if he has any? My uncle was on disability and when he died there was some back pay owed to him and I don't think my aunt ever got it...

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Any underpaid benefits owed to the deceased person can be paid to eligible survivors, typically following this order: surviving spouse living with the deceased at the time of death, surviving spouse not living with the deceased, surviving child/children, surviving parent(s), legal representative of the estate. Your aunt should have been first in line if she was living with your uncle at the time of death - she might want to contact SSA about this.

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Thank you all for the helpful information! So it sounds like I would get his benefit instead of mine (which is good since his is higher), but I need to be prepared for a potential gap in payments during the transition. I'll also need to consider how my age affects the percentage I'll receive. This has been really enlightening - the SSA website doesn't explain these specific situations clearly at all. I appreciate everyone sharing their experiences.

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One thing I haven't seen mentioned yet is that you might want to consider whether taking your survivor benefits immediately when the time comes is the best financial decision. If you're younger than your Full Retirement Age, you could potentially delay claiming the survivor benefits (if you have other income sources) and let them grow until you reach FRA to get the full 100%. However, given that your current benefit is only about half of his, it would probably still make financial sense to switch right away even with the age reduction. You might also want to consult with a financial advisor or use the SSA's online calculators to run different scenarios based on your specific ages and benefit amounts.

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That's a really good point about potentially delaying survivor benefits! I hadn't thought about that strategy. Given that my current benefit is so much lower than his ($1,050 vs around $2,100), it probably would make sense to switch right away even with a reduction. But you're absolutely right that I should run some calculations to see the exact numbers based on my age at the time. The SSA calculators sound like a good starting point. Thanks for bringing up this perspective!

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Just wanted to add another important detail that might help with your planning - when you do eventually apply for survivor benefits, you'll want to ask SSA about the "widow's limit." There's a family maximum that can affect how much you receive, especially if there are other family members (like dependent children) who might also be eligible for benefits on your husband's record. In most cases for a surviving spouse without dependent children, this won't be an issue, but it's worth understanding all the rules. Also, keep detailed records of all your interactions with SSA - dates, names of representatives you speak with, and what was discussed. This can be incredibly helpful if there are any delays or complications with your claim. The transition period can be stressful enough without having to reconstruct conversations from memory.

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That's really valuable advice about the widow's limit and keeping detailed records! I hadn't considered that there might be family maximums that could affect benefits. Fortunately, we don't have any dependent children, so hopefully that won't be a complicating factor in my case. The tip about documenting all SSA interactions is especially helpful - I've already had some frustrating experiences trying to get clear answers from them about other questions. It sounds like having that paper trail could save me a lot of headaches down the road. I'm going to start keeping a notebook dedicated to all Social Security related calls and visits from now on. Thanks for thinking of these practical details that aren't obvious to someone who hasn't been through this process before!

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I'm sorry you're going through such a difficult situation with your husband's health. From what I understand, you should be able to receive survivor benefits based on his SSDI record when the time comes. One thing that might be helpful to know is that you can actually contact your local SSA office now to ask hypothetical questions about survivor benefits - they can often provide estimates and explain the process without needing to file an actual claim. This might help you plan better financially. Also, since you mentioned struggling to find clear information, the SSA's publication "Survivors Benefits" (Publication No. 05-10084) has detailed explanations of how these transitions work. You can request a copy or download it from their website. It's worth having all this information organized ahead of time so you're not trying to figure it out during an already stressful period.

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Thank you for the compassionate response and the practical suggestions! I hadn't realized I could contact SSA now to ask hypothetical questions about survivor benefits - that's such a helpful tip. Getting estimates and understanding the process ahead of time would definitely help reduce stress later. I'll also look into that SSA publication you mentioned. Having all this information organized beforehand makes so much sense rather than trying to navigate it all while grieving. I really appreciate you taking the time to provide these resources and thinking about the emotional aspect of this situation too.

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I want to add something that might be helpful for your situation. Since you mentioned your husband has been on SSDI since 2022, his benefit amount is likely already at the maximum he would receive (disability benefits don't increase with delayed retirement credits like regular retirement benefits do). This means when you eventually receive survivor benefits based on his record, you'll be getting the full value of what he earned through his work history. Also, once you start receiving survivor benefits, you'll be eligible for Medicare at age 65 just like any other Social Security beneficiary, which is important for healthcare planning. Given that you're caring for your husband at home, you might also want to look into whether your state offers any caregiver support programs or respite care services that could help with the financial and emotional burden you're carrying right now.

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This is really helpful information, especially about Medicare eligibility at 65 - I hadn't thought that far ahead but healthcare coverage is definitely something I need to plan for. The point about his SSDI benefit already being at maximum value is reassuring too. I appreciate you mentioning caregiver support programs as well. The daily care responsibilities have been overwhelming at times, and I didn't realize there might be state resources available to help. I'll look into what's available in our area. It's comforting to know that others understand how challenging this whole situation is, both financially and emotionally.

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I'm so sorry you're dealing with this difficult situation. One thing I'd like to add that hasn't been fully addressed is the timing aspect of when you can actually start receiving the survivor benefits. There's typically a one-month waiting period after your husband passes before survivor benefits can begin, which means you might not receive your first survivor benefit payment until the second month after his death. This is on top of any processing delays others have mentioned. Also, if you're still working when you become a widow, remember that the earnings test will apply to your survivor benefits if you're under Full Retirement Age - so if you earn more than the annual limit, some of your benefits could be withheld temporarily (though you'll get credit for those months later). It might be worth calculating now whether continuing to work part-time versus relying solely on the higher survivor benefit would make more financial sense for your specific situation.

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Thank you for bringing up the one-month waiting period - that's another important detail I hadn't heard before! It sounds like there could be quite a gap between when my husband passes and when I actually start receiving the higher survivor benefit, especially with processing delays on top of the waiting period. The point about the earnings test is also crucial since I wasn't planning to stop working entirely. I'll need to calculate whether any part-time income would be worth it given the potential benefit withholding. This is exactly the kind of specific timing and financial information that's so hard to find elsewhere. I really appreciate everyone sharing these real-world details that go beyond what you can find in the basic SSA materials.

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One more thing to consider that I haven't seen mentioned - if your husband was receiving any Medicare premiums deducted from his SSDI payments, those will transfer over with your survivor benefits too. So you'll want to factor that into your financial planning since your net survivor benefit amount will be his gross benefit minus any Medicare premiums. Also, if you're currently receiving spousal benefits on his record in addition to your own retirement benefit (which some people do if it results in a higher total), those spousal benefits would end when he passes, but obviously the survivor benefit should more than make up for that loss. Just wanted to mention these details since every dollar matters when you're trying to plan your budget around these potential changes.

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That's a really important point about Medicare premiums being deducted from survivor benefits! I hadn't thought about that at all - I was just thinking about the gross benefit amounts. Since my husband does have Medicare premiums deducted from his SSDI, I'll need to factor that into my calculations. It's good to know that detail now rather than being surprised later. I don't think I'm receiving any spousal benefits currently since I took my own retirement benefit, but I'll double-check that with SSA when I call to ask those hypothetical questions someone mentioned earlier. These kinds of specific financial details are exactly what I was hoping to learn about. Thank you for thinking through all these practical aspects!

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I want to emphasize something important that might give you some peace of mind - even though there are various rules and potential complications that people have mentioned, the basic answer to your original question is still yes: you will receive a higher benefit when your husband passes. Whether it's 100% of his amount (if you're at Full Retirement Age) or a somewhat reduced percentage (if you're younger), it will almost certainly be significantly more than your current $1,050 monthly payment. I'd also suggest calling SSA's main number (1-800-772-1213) during off-peak hours (early morning or late afternoon often work better) to discuss your specific situation. Even though others have mentioned long wait times, getting official information directly from SSA about your particular circumstances - your ages, benefit amounts, and timeline - will be more reliable than trying to piece together general rules from various sources. Don't let all the complexity discourage you from the main takeaway: you're building a safety net by understanding this process now, which is exactly the right thing to do while you're caring for your husband. Take care of yourself during this difficult time.

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Thank you so much for this reassuring summary! You're absolutely right that despite all the complexities everyone has mentioned, the main point is that I'll be better off financially than I am now. Sometimes when you're learning about all these rules and exceptions, it's easy to lose sight of the big picture. I really appreciate you emphasizing that the fundamental answer to my question is positive - that gives me a lot of comfort. I'll definitely try calling SSA during those off-peak hours you suggested to get official information about my specific situation. And thank you for the kind words about taking care of myself. This whole process of trying to plan for difficult scenarios while managing daily caregiving responsibilities has been overwhelming, but having this community share their knowledge and experiences has been incredibly helpful. It's made me feel much more prepared and less anxious about the financial aspects of what we might face.

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I'm going through a very similar situation right now - my husband has been on SSDI for about 3 years after a heart attack, and I also took early retirement to help care for him. Reading through everyone's responses has been incredibly educational! One thing I wanted to add that might be helpful: when I spoke with our local SSA office a few months ago (just to understand our options), the representative mentioned that it's worth keeping copies of all your husband's medical records and disability determination documents. She said sometimes there can be questions during the survivor benefit application process, and having that documentation readily available can help speed things up. Also, if you haven't already, you might want to make sure you're listed as his representative payee or at least have power of attorney for financial matters. This can make it easier to handle the transition when the time comes. Wishing you and your husband strength during this challenging time. It's clear you're being very thoughtful about planning ahead, which will serve you well.

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Thank you for sharing your experience - it's both comforting and helpful to connect with someone in such a similar situation. The tip about keeping copies of all the medical records and disability determination documents is really smart. I hadn't thought about potential questions coming up during the survivor benefit application process, but it makes sense that having that documentation organized and easily accessible could prevent delays. I should definitely look into the representative payee and power of attorney suggestions too. We've been so focused on the day-to-day care aspects that I haven't fully considered all the administrative preparations that could make things smoother later. It sounds like you've been really proactive about understanding your options by speaking with your local SSA office. That gives me more confidence about reaching out to them directly with my questions. Thank you for the kind words and for taking the time to share these practical insights. It really does help to know others are navigating similar challenges. Wishing you and your husband all the best as well.

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I'm so sorry you're going through this difficult situation. As someone who works in elder care advocacy, I wanted to add a few practical points that might help with your planning. First, regarding the transition - while you will likely receive a higher benefit amount, there's often a processing period where you might experience a temporary reduction or gap in payments while SSA switches your records from one benefit type to another. Having 2-3 months of expenses saved if possible can help bridge this period. Second, consider requesting a "benefit verification letter" for both you and your husband from SSA now (you can get these online through your my Social Security accounts). These documents show your exact benefit amounts and can be helpful references when you eventually need to apply for survivor benefits. Finally, many local Area Agencies on Aging offer free counseling specifically about Social Security benefits and transitions. They often have staff who specialize in these complex situations and can walk through scenarios with you at no cost. This might be worth looking into as another resource alongside calling SSA directly. You're doing the right thing by planning ahead during such a challenging time. Take care of yourself - you can't pour from an empty cup.

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Thank you so much for this incredibly practical advice! As someone new to navigating these systems, I really appreciate the specific action steps you've outlined. The suggestion about saving 2-3 months of expenses to bridge any processing gaps is something I definitely need to prioritize - that kind of buffer would give me so much peace of mind during what's already going to be a difficult time. I had no idea about benefit verification letters or that I could access them online through my Social Security account. That sounds like exactly the kind of documentation that could be helpful to have organized ahead of time. And the tip about Area Agencies on Aging offering free counseling is wonderful - I didn't know that resource existed. Having someone who specializes in these transitions walk through scenarios with me sounds incredibly valuable, especially since every situation seems to have its own nuances. Your point about not being able to pour from an empty cup really resonates with me. It's easy to get so focused on planning and caregiving that I forget to take care of my own needs too. Thank you for the reminder and for taking the time to share your professional expertise. Resources like this are exactly what I was hoping to find.

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I want to add one more important consideration that I haven't seen mentioned yet - the potential impact on any other benefits you might be receiving. If you're getting any means-tested benefits like SNAP, Medicaid, or housing assistance, the increase in your Social Security income when you switch to survivor benefits could affect your eligibility for those programs. It's worth contacting those agencies ahead of time to understand how the change in income might impact your benefits, so you can plan accordingly. Some programs have asset limits too, so if you receive any lump sum payments during the transition, you'll want to understand how that might affect your eligibility. Also, don't forget that survivor benefits are subject to the same cost-of-living adjustments (COLAs) that other Social Security benefits receive, so your benefit amount should continue to grow over time to help keep up with inflation. I know it seems like there are so many details to consider, but you're asking all the right questions and gathering the information you need to be prepared. That's going to make a huge difference when the time comes.

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