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The SSA can be TERRIBLE about this stuff! My mom has dementia but not "bad enough" according to them initially. We had to get multiple doctor letters and it took MONTHS before they approved a payee. Meanwhile she lost almost $5000 to scammers!! Ask for a supervisor if they give you any runaround.
This is unfortunately common. Make sure the doctor's letter specifically addresses her ability to manage finances (not just general cognitive status). Use phrases like "unable to understand the consequences of financial decisions" or "cannot manage benefit payments due to cognitive impairment." This specific language helps expedite the process.
Thank you everyone for all this helpful information! I've made notes on everything and will be contacting her doctor tomorrow for that documentation. I'll try to schedule an appointment with SSA using the Claimyr service since it sounds like getting through is the first big hurdle. I'm relieved to hear this is possible without full guardianship. I think my aunt will agree once I explain everything carefully - she was actually in tears last week after realizing she'd been scammed, so I think she knows she needs help even if it's hard to admit. I'll update once we get through the process in case it helps others in the same situation.
Good plan! One more thing - when you meet with SSA, bring recent examples of financial issues (bank statements showing overdrafts, bills that went unpaid, receipts from scams if you have them). This concrete evidence of financial mismanagement can be very persuasive in borderline cases. Wishing you and your aunt all the best.
One strategy some people use is to file at 62 if they anticipate working less in the coming years. For example, if you're planning to go part-time at 63, it might make sense to file at 62, have some benefits withheld the first year, then start collecting when your income drops below the threshold. This works best if: 1. You're planning to reduce work hours soon after 62 2. You want to retire before FRA but after 62 3. Your life expectancy is uncertain due to health concerns Just remember the reduction is permanent - the adjustment at FRA only accounts for months benefits were completely withheld, not the early claiming reduction itself.
Another important consideration is tax efficiency in retirement planning. If you're still working full-time at a good salary, adding Social Security income could push you into a higher tax bracket. Up to 85% of your Social Security benefits become taxable when your combined income exceeds certain thresholds. For 2025, if your combined income (adjusted gross income + nontaxable interest + half of SS benefits) exceeds $34,000 (single) or $44,000 (married filing jointly), 85% of your benefits are subject to income tax. So claiming early while working could not only reduce your lifetime benefit but also result in higher taxes during those working years compared to waiting until you've stopped working or reduced your hours.
The tax angle is something I hadn't considered at all! Since I'm making $85K now, adding Social Security on top would definitely push me into that 85% taxable range. So I'd essentially be taking a reduced benefit AND paying more taxes on it. Waiting is sounding better and better. Thanks everyone for helping me understand this. I was focused on that earnings test adjustment without seeing the bigger picture. I think I'll definitely wait until at least my FRA before filing.
To directly answer your questions: 1. Yes, your SSDI benefit amount is your PIA (Primary Insurance Amount) 2. Yes, you can receive a "top-up" spousal benefit but only if 50% of your husband's PIA exceeds your own PIA 3. Yes, your husband must file for his own benefits before you can receive any spousal benefits, even though you're on SSDI If your husband delays until 70, you won't be able to receive any spousal benefits until he files. This creates a dilemma for many couples - maximize one spouse's benefit by delaying, or file earlier so the disabled spouse can receive the spousal portion sooner. I recommend scheduling an appointment with SSA to get benefit estimates based on different filing scenarios. This will help you make the best decision for your specific situation.
One more thing - when you do reach your full retirement age, nothing really changes with your benefit. Your SSDI simply converts to retirement benefits automatically, but the amount stays exactly the same. The only difference is that after FRA, the earnings limits no longer apply if you were to work.
my neighbor said they sending them late this year cuz of the cola increase? had to recalculate everything or something
I had this problem every year until I finally created my MySocialSecurity account online. Now I just download the PDF version and give it to my tax preparer. Much easier than waiting for the mail! The SSA customer service rep told me they mail them out in batches throughout January, and some don't go out until early February. But the online version is available by January 31st for everyone.
Fatima Al-Qasimi
Does anybody know if this impacts the earnings test? I'm 63 getting SS but still teaching part-time and they take back some of my benefits whenever I make over the limit. SOOOO FRUSTRATING!!!!
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Giovanni Colombo
•That's a different issue than what the original poster was asking about. The earnings test is separate from WEP/GPO. If you're under Full Retirement Age (66-67 depending on birth year) and still working, SSA reduces benefits by $1 for every $2 you earn above the annual limit ($22,320 in 2025 for those under FRA). Once you reach FRA, there's no more earnings test.
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CosmicCommander
Update: I finally spoke with someone at Social Security. They confirmed there haven't been any changes to the GPO rules that would affect my situation. The agent explained that any legislation would need to specifically address retroactive changes to current beneficiaries like me. She suggested I check the SSA website every few months for updates or sign up for their email newsletter. Thanks everyone for your helpful responses!
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Dylan Cooper
•Thanks for updating us! Did they say anything about if there might be changes coming soon?
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CosmicCommander
•The agent wasn't allowed to speculate about potential future legislation, but said there are always proposals being discussed in Congress. She just couldn't promise if or when anything might change.
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