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Confused about Social Security retirement with disabled adult son on SSDI - CiC eligibility and account lockout issues

I'm at my wits' end dealing with Social Security today! I've been trying to figure out my retirement options since I have a disabled adult son who receives SSDI benefits. I finally got a callback from SSA after waiting SIX HOURS (called at 1:30pm, got callback at 7:30pm), and then the call disconnected right at 8pm before I could get all my questions answered! Here's my situation - I'm divorced from my son's father and I'm struggling with being both a full-time worker and caregiver for my disabled adult son whose behavior has become increasingly difficult to manage. Since I was a stay-at-home parent for most of my marriage, my Social Security contributions are pretty limited. I need to understand: 1. Since my son receives SSDI, how will that affect what I qualify for when I retire? 2. Can I receive Childhood in Care (CiC) benefits while still working? 3. If I qualify for retirement and CiC, can I collect both or just one? To make matters worse, I'm locked out of my MySocialSecurity account so I can't even check basic information online! Has anyone navigated this situation before? Any advice on how to get specific benefit estimates without spending another entire day waiting for callbacks that disconnect?

One other important thing to consider: if you do qualify for benefits as a divorced spouse caring for a disabled adult child, and you decide to reduce your work hours to stay under the earnings limit, make sure to calculate how that will affect your own future retirement benefit. Those reduced earnings years will be part of your benefit calculation. Sometimes it's better financially to keep working and wait until your own retirement age to claim benefits.

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That's a really good point I hadn't considered. I'm 58 now, so any reduction in earnings could affect my own benefit calculation. I definitely need to get some concrete numbers to make an informed decision. Thank you!

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I went through something very similar with my disabled son a few years ago! Here's what I learned that might help: The key thing is getting your MySocialSecurity account working again - that's your best bet for getting benefit estimates without the phone nightmare. Try the account recovery process first, but if you're still locked out after 24 hours, you might need to create a completely new account with a different email address. For your specific situation, since your son became disabled before 22 and you were married 10+ years, you likely have multiple benefit options to compare. The earnings test is brutal though - at $56K you'd lose a lot of any early spousal benefits, so running the numbers is crucial. One thing that helped me was requesting a "benefit verification letter" for my son through HIS MySocialSecurity account (if he has one or can create one). It shows his benefit type and amount, which can help clarify how his benefits might interact with yours. Also, if you do end up going to the local office, ask specifically for a "retirement estimate" that shows ALL your options - your own benefits, ex-spousal benefits, and any caregiver benefits you might qualify for. They can run scenarios for different claiming ages too. Hang in there - the system is frustrating but once you get the right information, you can make a solid plan!

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Excess earnings hit on Social Security - will SS take from spouse when filing taxes jointly?

I'm in a complicated situation with my Social Security benefits and need advice. I started taking my retirement benefits at 62, but at 64 I returned to my previous employer full-time. For 2025, I'll be over the earnings limit by about $50K. I know I'll have to repay some benefits, but I'm worried about how this affects my tax filing status. If I file jointly with my current husband, will the SSA take some of HIS benefits to cover what I owe them? We both collect on our own earnings records. I'm asking because my ex-husband and his new wife both had their checks completely withheld when he went over the earnings limit in 2024 - even though she draws on his record. Should I file married filing separately to protect my husband's benefits? Has anyone dealt with this situation before? I'm so confused about how the SSA handles this during tax season!

My sister went thru this and she said the problem was that her husband collected SS on HER record not his own thats why they both got hit when she made to much $. if ur hubby gets his own check based on his own work then ur fine!!!!

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This is exactly right. The critical factor is which earnings record the benefits are paid from, not the tax filing status. If benefits are paid from the same earnings record (like a worker and their spouse who receives spousal benefits), then excess earnings by the worker affects both payments.

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Thank you all for the helpful responses! I feel much better understanding that our tax filing status doesn't affect how Social Security handles the earnings limit. I'll file jointly with my husband since it won't put his benefits at risk. I'm still worried about how much they'll take from my benefits next year, but at least I know it won't affect my husband. Does anyone know if they just withhold future payments or do they sometimes send a bill asking for the money back in a lump sum?

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Typically, SSA will give you options. They usually prefer to withhold future monthly payments until the overpayment is recovered. However, you can request to pay it back as a lump sum if that works better for you. If the withholding would cause financial hardship, you can also negotiate a lower monthly recovery rate. Just be aware that withholding stops once you reach your Full Retirement Age - after that, the earnings test no longer applies.

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That's really helpful to know about the options! I was picturing them just sending me a huge bill that I'd have to pay all at once. Being able to have it taken out of future payments sounds much more manageable. And it's good to know the earnings test goes away at full retirement age - I'll be 67 in two years so at least there's light at the end of the tunnel!

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Can my ex claim Social Security spousal benefits with CSRS pension and insufficient quarters?

I'm trying to figure out a complicated Social Security situation involving my ex, our disabled adult child, and a federal pension. My ex-spouse worked for the federal government for 31 years under the Civil Service Retirement System (CSRS) and doesn't have the 40 quarters needed for Social Security benefits on his own record. We were married for 29 years before divorcing about 5 years ago, and he hasn't remarried. I've worked in the private sector my whole career and will be eligible for my own Social Security retirement benefits when I turn 62 next year. Our adult son has severe medical conditions requiring ongoing expensive treatments that are creating significant financial strain. I'm wondering if my ex would be eligible to file for Social Security ex-spouse benefits based on my earnings record once I turn 62, even with his CSRS pension? Would the Government Pension Offset (GPO) completely eliminate any potential benefits? I'm trying to explore every possible financial option to help cover our son's medical expenses. Any insights on how this works with CSRS pensions and divorced spouse benefits would be greatly appreciated.

One other aspect to consider regarding your son's situation: If he qualifies for DAC benefits on your record, he would also become eligible for Medicare after receiving SSDI for 24 months, regardless of his age. This could significantly help with his medical expenses. Also, while your ex-spouse likely won't receive benefits due to GPO, it's still worth having him check with SSA directly about his specific situation. The calculations can be complex, especially with the interplay between CSRS, divorced spouse benefits, and how GPO is precisely applied. Occasionally, if someone has some quarters of Social Security coverage (even if less than 40), the calculation might result in a small benefit remaining after GPO.

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The Medicare eligibility is HUGE!!!! My brother is on DAC benefits and the Medicare coverage made a MASSIVE difference for his healthcare. Definitely look into this!!

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As someone who went through a similar situation with my disabled daughter, I can't stress enough how important it is to pursue the DAC benefits that others have mentioned! The Medicare eligibility after 24 months of SSDI is absolutely life-changing for covering medical expenses. One thing I learned the hard way - start the DAC application process as soon as possible after you file for retirement benefits. The paperwork can take months to process, and you'll want to gather all medical documentation showing your son's disability onset before age 22. Also, regarding the special needs trust question - we worked with an elder law attorney who specializes in disability planning. They're usually more knowledgeable about the specific rules that protect benefits eligibility. The National Academy of Elder Law Attorneys has a good directory on their website. For your ex-spouse, even though the GPO will likely eliminate benefits, it might still be worth having him apply just to get an official determination. Sometimes there are small amounts that survive the offset, and you never know until you get the actual calculation from SSA.

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WEP/GPO repeal impact on my reduced SS benefits - Can I get spousal benefits now?

After 20+ years working for the county health department, I retired in 2023 at age 68. My SS benefits took a massive hit because of WEP - started claiming at FRA (67) in 2022 while still working and got $1,200 monthly, but after retirement it got slashed to $540 because of my government pension ($3,100/month). With Medicare premiums, I'm only seeing about $400 in actual SS payments. Here's where I'm confused - I've been hearing about this WEP/GPO repeal, and I don't know if it helps someone in my situation. My husband collected maximum SS benefits (around $3,800 monthly) before he passed away last year. When I asked about survivor benefits, they told me GPO made me ineligible since I have my own pension. With this new legislation: 1) Can I now apply for survivor benefits based on my late husband's record? 2) How would I even start this process? Do I need to call SSA or can I do this online? I tried to find clear answers on ssa.gov but got completely lost in the technical language. Has anyone else in a similar situation figured this out yet?

wait so if you get survivor benefits do you still get your own ss payment too or just the higher one?

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You only receive the higher of the two benefits, not both combined. If your survivor benefit (after any GPO reduction) is higher than your own retirement benefit (after any WEP reduction), you'll receive the survivor benefit amount. If your own benefit is higher, you'll keep receiving that. In the original poster's case, based on the numbers shared, the GPO-reduced survivor benefit would likely be higher than her WEP-reduced retirement benefit, so she would switch to receiving the survivor benefit instead.

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I'm in a very similar situation and wanted to share what I learned during my recent SSA appointment. I was a federal employee for 28 years and my husband passed away 6 months ago. Like you, I was told I couldn't get survivor benefits due to GPO. After reading the helpful responses here, I called SSA using the tip about calling right at opening time - got through in about 15 minutes! The representative calculated that even with the GPO reduction, I would still receive about $800 monthly in survivor benefits (compared to my current $620 WEP-reduced benefit). What really surprised me was that they were able to process everything over the phone since I already had most documents on file from previous applications. I didn't need an in-person appointment. They said I should see the first payment within 4-6 weeks, and yes - I'm getting retroactive payments back to the month after my husband passed away. Don't give up hope! Even with these unfair GPO rules still in place, you very likely qualify for benefits that would significantly help your financial situation. The math shared by others here seems spot-on based on my experience.

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Unexpected extra Social Security deposit & uneven COLA increase between me and spouse - what's going on?

I'm so confused about what's happening with our Social Security payments this month. Yesterday I received my regular monthly SS retirement benefit with the new COLA increase (went up about $63 from last year). But today I woke up to another small deposit from SSA for $147 that I wasn't expecting at all! Even stranger, my husband's payment (which also came yesterday) didn't seem to include any COLA increase at all. His amount is exactly the same as December. Could this random extra payment be his COLA adjustment coming separately for some reason? We've been receiving benefits for 3 years and never had anything like this happen before. Has anyone else experienced getting COLA increases as separate payments? I know I'll probably need to call SSA eventually, but dreading the hold times. Any insight would save me hours of frustration!

Just to follow up on this thread - the reason this happens is that SSA processes retirement benefits and COLA adjustments in batches according to your Social Security number and benefit type. For couples, if you have different last names or were enrolled at different times, your records might be in different processing batches. The good news is that by February, everything should normalize and both payments will include the correct COLA amount as part of the regular monthly benefit. The separate payment is perfectly normal and not a mistake you need to worry about. I recommend checking your benefit verification letters in your MySocialSecurity accounts in early February - they should reflect the updated amounts going forward.

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Thank you for the detailed explanation! We do have different last names, so that might explain it. I'll check our benefit verification letters next month as you suggested.

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I work for a local senior services organization and we've been getting a lot of calls about this exact situation! You're definitely not alone - we've heard from probably 20+ people in the past week with the same pattern of getting their regular payment with COLA, then a separate smaller deposit a day or two later. From what we've learned from SSA, this is happening more frequently this year because they updated their payment processing system. The separate deposit is almost certainly your husband's COLA adjustment. The system prioritizes getting regular payments out on schedule, then catches up with the COLA calculations in a second wave. One tip: if you use direct deposit, the separate COLA payment might show up with a slightly different description on your bank statement (something like "SSA COLA ADJ" instead of just "SSA"). That's another way to confirm what it is without having to call and wait on hold!

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