

Ask the community...
my friends kid got turned down even tho he had autism because they said his iq was too high, it was like 85 i think. your daughter having 71 will probably help her case
I'm a disability advocate and wanted to add some perspective on the classification question. You're right to be confused - SSA's categorization system doesn't always align with how we typically think about disabilities in educational or medical settings. The key thing to understand is that SSA uses a "listings" approach where they have specific criteria for different conditions. Your daughter would likely be evaluated under both Listing 12.10 (Autism Spectrum Disorder) AND potentially 12.05 (Intellectual Disorder) given her IQ and functional level. What really matters for approval is demonstrating that she has "marked" limitations in at least two areas of functioning, or "extreme" limitation in one area. With her academic functioning at 1st grade level at age 15, this should be well-documented. One tip: when she applies at 18, make sure to emphasize her adaptive functioning deficits, not just academic ones. SSA looks at things like money management, social interaction, following complex instructions, maintaining hygiene independently, etc. These daily living skills are often more predictive of work capacity than IQ scores alone. The transition at 18 can actually work in your favor since they'll evaluate her independently of family income. Start preparing those records now!
one other thing about the special needs kids - make sure you look into setting up a special needs trust if you havent already. if they qualify for SSI (not SSDI) when they're adults then having assets in their name could disqualify them. my sister's kid lost benefits for 6 months because of this!!
I'm a newcomer here but wanted to share what I learned from a similar situation. I had to navigate survivor benefits with special needs children too, and one thing that really helped was getting everything documented early. For the disability determination process, start collecting medical records NOW - not just recent ones, but going back to when their disabilities were first diagnosed. The SSA looks for evidence that the disability began before age 22, so having that complete medical timeline is crucial. Also, don't overlook vocational rehabilitation services. My state's VR program helped my special needs son get job training that actually INCREASED his allowable work activity under SSA rules, which meant he could earn some income without losing benefits. One more tip - if you decide to use a service like Claimyr to get through to SSA faster, make sure you have all your documents ready (marriage certificates, death certificates, kids' SSNs, medical records) before you call. They can run scenarios quickly if you have everything at hand. Good luck with this complex situation - it's overwhelming but you'll get through it!
Just to clarify one more thing - the monthly earnings limit only applies to the first year you receive benefits. In 2026 and beyond, they'll use the annual test until you reach your full retirement age of 67. Also, remember that the earnings limit only applies to wages and self-employment income. It doesn't count pensions, investments, interest, annuities, capital gains or other government benefits. And once you hit your FRA, there's no earnings limit at all.
Just wanted to add one more important point - make sure you apply for benefits about 3 months before you want them to start (so around March for June benefits). This gives SSA time to process your application and ensures your first payment arrives on time. When you apply online or in person, there's a specific question about when you plan to retire - that's where you'll indicate June 2025. The system should automatically apply the monthly earnings test for your first year. Also keep documentation of your final day of work in case you ever need to prove your retirement date later on.
I'm so sorry for your loss. This is exactly the kind of confusing situation that adds unnecessary stress during an already difficult time. Based on what others have explained about Social Security's payment timing, it sounds like you're absolutely entitled to keep that March payment since your father was alive for the entire month it covers. I went through something similar with my mother-in-law, and the key thing I learned is to document everything carefully. Keep records of when you report the death to SSA, save any confirmation numbers they give you, and consider keeping a simple log of all the steps you take. This not only protects you legally but also helps you stay organized when you're grieving and everything feels overwhelming. That $2,350 can definitely help with funeral costs - you've got enough to worry about without adding financial stress on top of everything else.
Thank you so much for the kind words and practical advice about documentation. You're absolutely right that keeping detailed records is important - I've been so focused on the immediate decisions that I hadn't thought about creating a proper paper trail. I'll start a simple log today documenting all my calls to SSA, any confirmation numbers, and the steps I'm taking. It's reassuring to hear from someone who went through a similar situation and came out okay on the other side. The stress of potentially making the wrong financial decision on top of grieving has been really overwhelming, so knowing that this March payment can legitimately help with the funeral costs is such a relief.
I'm so sorry for your loss. This is an incredibly stressful situation to navigate while you're grieving. I want to echo what others have said - that March payment that arrived on April 15th is legitimately part of your father's estate. Social Security pays benefits the month after they're earned, so that payment was for March when your father was alive the entire month. One thing I'd suggest is calling SSA first thing in the morning (8 AM sharp) when wait times are typically shorter. When you do get through, ask them to walk you through exactly what happens next and request they send you written confirmation that the death has been properly recorded in their system. This gives you documentation for the estate records. That $2,350 can absolutely be used for funeral expenses - you have enough to deal with right now without worrying about money that rightfully belongs to the estate. Take care of yourself during this difficult time.
I'm so sorry for your loss as well. Your advice about calling at 8 AM is really valuable - I've been trying to get through during midday and the wait times have been impossible. I'll definitely set my alarm early tomorrow and try right when they open. Getting that written confirmation sounds like a smart move for the estate records. It's been such a relief reading everyone's consistent explanations about the March payment being legitimate - the funeral director really had me worried that I'd be doing something wrong by using it for expenses. Thank you for taking the time to offer such thoughtful guidance during what I know is a difficult topic to discuss.
Natasha Volkova
This is absolutely heartbreaking and unfortunately way too common. I work as a disability advocate and see these survivor benefit delays constantly - it's one of the most broken parts of the SSA system. A few additional suggestions that have worked for my clients: 1. If she can afford it, consider hiring a Social Security attorney who specializes in survivor benefits. Many work on contingency (they only get paid if she wins) and can often cut through the red tape faster than individuals can. 2. File a complaint with the SSA's Office of the Inspector General (OIG) online at oig.ssa.gov. This creates an official record and sometimes triggers faster action. 3. Contact your local legal aid organization - many have SSA advocates who can help for free or low cost. 4. Document her financial hardship thoroughly - utility shutoff notices, mortgage default letters, medical bills she can't pay. This strengthens her case for expedited processing. The fact that she hasn't even received the $255 death benefit suggests her application may have never been properly entered into their system. This is more common than people realize. Your friend is entitled to receive benefits retroactive to her application date, so she will eventually get that 7-month lump sum. Don't let them tell her otherwise. Stay strong and keep fighting - the system is designed to wear people down, but she has every right to these benefits.
0 coins
Oliver Zimmermann
•This is incredibly helpful information! I didn't know about the OIG complaint option or that many attorneys work on contingency for survivor benefits. The point about her application possibly never being properly entered into the system makes a lot of sense - that would explain why she hasn't received even the basic $255 death benefit. I'll definitely look into legal aid organizations in her area too. Thank you for taking the time to share your professional experience with this!
0 coins
Melody Miles
I'm so sorry your friend is going through this nightmare on top of grieving her husband's loss. Seven months without survivor benefits is completely unacceptable, especially when she's facing foreclosure. Based on what others have shared here, I'd strongly recommend she tries multiple approaches simultaneously: 1. Use that Claimyr service mentioned earlier to actually get through to a human at SSA without waiting hours 2. Contact her congressperson's office immediately - they have special liaisons who can expedite SSA cases 3. Request an "urgent critical need" appointment using the exact language Victoria provided 4. File complaints with both the SSA Office of Inspector General AND Office of Public Inquiries The fact that she hasn't received even the automatic $255 death benefit is a huge red flag that something went seriously wrong with her initial application. It may have never been properly processed at all. She should also gather documentation of her financial hardship (past due mortgage notices, utility bills, etc.) to strengthen her case for emergency processing. And definitely keep copies of EVERYTHING she submits going forward. This system is broken and it's designed to wear people down, but she has every legal right to these benefits. Don't let them make her feel like she's asking for charity - her husband paid into this system his entire working life specifically so she would be protected if something happened to him. Sending strength to both of you during this difficult time. Please update us on what works!
0 coins
Aiden Rodríguez
•Thank you for summarizing all the key action items so clearly! You're absolutely right that we need to tackle this from multiple angles at once. I'm meeting with my friend Wednesday and we're going to start with contacting her congressperson's office and using the Claimyr service to get through to SSA. The point about this being her legal right, not charity, really resonates - her husband worked 40+ years and paid into the system specifically for this protection. It's infuriating that she's being made to feel like she's begging for help when she's simply trying to claim benefits she's legally entitled to. I'll definitely keep everyone updated on what approaches end up breaking through the bureaucracy!
0 coins