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Social Security wrongly labeled my husband as disabled due to Fragile X carrier - do I need to correct this?

I just noticed something confusing on my daughter's Social Security paperwork. My 20-year-old daughter has severe Fragile X syndrome and receives disability benefits. On her SS paperwork listing household members, they labeled my husband as 'disabled' too - but he's completely fine and has no disabilities whatsoever. So I called SSA and told them it was a mistake. But after hanging up, I suddenly realized - wait, my husband IS technically a carrier of the Fragile X pre-mutation (confirmed through genetic testing years ago). Our daughter's genetic doctor explained she inherited Fragile X from him. Now I'm freaking out that I might have given SSA wrong information. Does being a genetic carrier of Fragile X count as 'disabled' in SSA's system even though he has zero symptoms and functions 100% normally? Should I call them back and explain the genetic carrier situation? I don't want to mess up my daughter's benefits by 'correcting' something that wasn't actually wrong!

I think ur overthinking this tbh. as long as ur daughters checks keep coming its fine

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Hugo Kass

Author

You're probably right. I just panic about anything that might affect her benefits!

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I understand your concern about the genetic carrier status! As someone who's dealt with similar genetic testing situations, I can share that being a Fragile X carrier typically doesn't meet SSA's disability criteria unless there are actual functional impairments. Many carriers of genetic conditions live completely normal lives without any symptoms that would affect their ability to work. SSA's disability determination is based on whether someone can perform "substantial gainful activity" - if your husband is working and functioning normally, the carrier status alone wouldn't qualify him as disabled under their definitions. The labeling on your daughter's paperwork was most likely either a clerical error or an internal coding issue related to family medical history tracking. You were right to correct it initially. If you're still concerned, a quick follow-up call to clarify the genetic carrier distinction might give you peace of mind, but it shouldn't impact your daughter's benefits since her own disability determination is separate from household member classifications.

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Can I earn $23,400 while on Social Security in 2025 if taking benefits at 63?

I'm planning to retire and start collecting Social Security benefits in February 2025, but I want to keep working part-time. I just turned 63 last month, so I know I'm not at my full retirement age yet. My HR department said something about an earnings limit, and I've been reading conflicting information online. If I collect Social Security starting in February, can I still earn up to $23,400 for the entire year from my job without affecting my benefits? Or is there some kind of monthly limit I need to worry about? My boss is flexible with my hours and I really want to maximize both my work income and SS benefits if possible. I don't want to accidentally trigger some penalty or reduction!

jus wanna say all these rules r why i waited till my FRA to start collecting. didnt wanna deal with all this complicated stuff. ss system is nuts

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Agree 100% - its like they intentionally make it confusing so people mess up. I'm still waiting til 70 so I don't even have to think about limits.

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Just wanted to add another perspective here - I'm a retired benefits counselor and worked with SSA for 15 years. A few additional tips that might help: 1. Keep detailed records of your monthly earnings throughout 2025. SSA sometimes makes mistakes in their calculations, and having your own records helps if you need to dispute anything. 2. Consider the timing of when you receive paychecks vs when you earn the money. SSA counts wages in the month you receive them, not when you earn them. So if you get paid on the 1st for the previous month's work, that income counts toward the month you receive it. 3. If you're close to the limit in any month, you can ask your employer to defer some income to the next month (like delaying a bonus) to stay under the threshold. 4. The "first year rule" that Amina mentioned is really important - make sure you understand exactly how it applies to your situation starting in February. Since the 2025 limits haven't been announced yet, I'd suggest calling SSA in January to get the official numbers before making any final decisions about your work schedule. Good luck with your retirement planning!

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Can I claim Social Security ex-spouse benefits if ex isn't collecting yet? Confused about top-off amounts

I recently found out I might qualify for additional Social Security benefits based on my ex-husband's record, but I'm completely lost on how this works! Here's my situation: I'm 63 and started collecting my own SS benefits last year at 62 (getting about $1,625/month). My ex and I were married for 14 years (divorced in 2000), and he makes WAY more than I ever did - around $150K yearly compared to my $57K. He's 65 but hasn't started taking his benefits yet. I tried applying online for these ex-spouse benefits but got some weird error message saying I couldn't complete it online? I thought that was an option? My main questions: 1. Can I even apply for these "top-off" benefits if my ex hasn't started collecting yet? 2. My Full Retirement Age is July 2025 - should I wait until then to apply for the ex-spouse benefits? (I'm still working but earn under the income limit) 3. Is there a calculator somewhere to estimate what I might get? I have no clue what his benefit amount would be. 4. Do I need to make an appointment since the online application didn't work? Really appreciate any guidance! This whole process is making me anxious.

To address your calculator question specifically - while there's no dedicated calculator for divorced spouse benefits, you can get a rough estimate. 1. Use the SSA's Quick Calculator to estimate what your ex-spouse's benefit would be at his FRA: https://www.ssa.gov/OACT/quickcalc/ 2. Take 50% of that amount 3. Compare it to your current benefit 4. The difference (if his 50% is higher) is approximately what you'd receive But there are reduction factors if you claim before your FRA. Since you're already receiving your own reduced benefit at 62, the calculations get complex. This is why speaking directly with SSA is important - they have access to both earning records and can calculate the exact amount.

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This is exactly what I was looking for! I'll try using that calculator with the information I have about his income. At least it will give me some ballpark idea before I call. Thank you!

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Just wanted to add one more important point that might help with your timing decision - since you're still working and earning under the limit, you should know that the earnings test applies differently to divorced spouse benefits versus your own benefits. If you claim the divorced spouse benefit before your FRA and you're still working, they'll reduce BOTH your own benefit AND the spousal portion based on your earnings. But once you reach FRA in July 2025, the earnings test disappears completely, so you could work and earn any amount without affecting your benefits. Given that you're only a few months away from your FRA, it really might make sense to wait. Plus, at FRA you'll get the unreduced spousal benefit calculation (though still offset by your own benefit amount). Also, when you do call SSA, ask them to do a "protective filing" - this can preserve your application date even if there are delays in processing. Good luck!

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Social Security survivor benefits processing time - applied in October but still stuck on level 2

I'm getting ready to retire and applied for my Social Security survivor benefits on October 21st. I thought it would be pretty straightforward since I've dealt with SSA before - my husband passed away about 15 years ago, and both my kids and I received benefits back then. Now I'm approaching my own retirement and planning to start collecting in January 2025, but my application seems stuck. The MySocialSecurity portal shows it's been on "level 2" since I submitted it. I'm starting to worry since January isn't that far away.Does anyone know how long survivor benefit applications typically take to process these days? Is there anything I should be doing to follow up? I figured it would be quick since SSA already has all my information from the previous claims.

Great update! This is actually a common issue - documents sometimes get separated from applications during processing. Make sure to keep a copy of everything you submit, and I'd recommend following up in exactly 10 business days if you don't see movement. Since you're planning to start benefits in January 2025, you're still well within the timeframe for everything to process smoothly.

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Glad to hear you made progress! It's frustrating how often documents get "lost" in their system, but at least you know what the issue was. I'm currently dealing with a similar situation with my retirement application - been waiting 6 weeks and just found out they need additional verification even though I submitted everything they asked for initially. The SSA really needs to improve their document tracking system. Hope your resubmission goes smoothly and you get approved soon!

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Social Security WEP reform effect on firefighter widow receiving pension and SS benefits

My mother is currently receiving her late husband's firefighter pension (about $2,800/month) plus her own Social Security benefits ($1,950/month). Dad passed away 3 years ago after serving with the fire department for 32 years. Mom worked as a nurse for almost 30 years and her Social Security benefit is higher than the widow's benefit she'd get from Dad's earnings, so she collects her own. I've been hearing about changes to the WEP (Windfall Elimination Provision) with the new reform legislation, but I don't really understand how WEP works or if it affects my mom at all. Does anyone know if these new changes would increase her benefits? She's 72 now and really struggling with the rising costs of everything.

As someone new to understanding these Social Security rules, this thread has been incredibly helpful! My grandmother is in a similar situation - she's a retired teacher receiving a pension and has been affected by WEP reductions on her own Social Security benefits. I had no idea there were two different provisions (WEP and GPO) that could affect people differently. It sounds like for widows like Luca's mom, the GPO is the main concern, while for people like my grandmother who worked in jobs that didn't pay into Social Security, it's the WEP that reduces their own benefits. Does anyone know if there are other resources besides calling Social Security directly to get personalized estimates of how the proposed changes might affect someone's specific situation? My grandmother is 78 and really struggles with phone calls, so I'd love to help her figure out what these potential changes could mean for her monthly income.

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Hi Maya! You're absolutely right about the two different provisions - it can be really confusing at first. For your grandmother's situation with WEP, you might want to check out the WEP calculator on the SSA website (ssa.gov/benefits/retirement/planner/anyPiaWepjs04.html) which can give you estimates based on her specific earnings history. Also, many AARP locations and senior centers have volunteers who are trained to help with Social Security questions and can walk through these calculations with seniors in person. That might be easier for your grandmother than trying to navigate phone calls. The National Association of Social Security Claimants' Representatives (NOSSCR) website also has good educational materials that break down WEP in simpler terms. If the Social Security Fairness Act passes, your grandmother could potentially see her full Social Security benefit restored without the WEP reduction, which could make a significant difference in her monthly income!

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Thank you all for this detailed discussion! I'm new to understanding these Social Security provisions and this has been so educational. I work with seniors through a local community organization and I'm constantly hearing confusion about WEP vs GPO - this thread really clarifies the differences. One thing I wanted to add for anyone in similar situations: if you're helping an elderly parent or relative navigate this, consider reaching out to your local Area Agency on Aging. Many of them have benefits counselors who specialize in Social Security issues and can provide free one-on-one assistance. They're often more patient than busy SSA offices and can help walk through all the "what if" scenarios if the legislation passes. Also, for those whose family members are struggling financially while waiting for potential changes, don't forget about programs like SNAP (food assistance), LIHEAP (utility assistance), and state pharmaceutical assistance programs. Many seniors who qualify don't realize these programs exist or think their income is "too high" when it actually isn't. Keeping my fingers crossed that this legislation finally makes it through - these provisions really do create unfair hardships for people who dedicated their careers to public service.

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@Tristan Carpenter Great question about tracking the bill! You can follow H.R. 82 s'progress on Congress.gov - just search for Social "Security Fairness Act or" the bill number. The site shows when it was introduced, committee actions, voting schedules, and full text of the legislation. You can also sign up for email alerts when there are updates. For contacting representatives, the website resistbot.io makes it really easy to send messages to your senators and house rep just by texting. Many advocacy groups like the National Committee to Preserve Social Security and Medicare also have action alerts you can sign up for that will notify you when it s'a good time to contact Congress about this specific issue. It s'encouraging to see so many people in this thread who care about fixing these unfair provisions. The more people who understand how WEP and GPO hurt retirees, the better chance we have of finally getting this fixed!

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You can track H.R. 82's progress on Congress.gov - just search for "Social Security Fairness Act" or the bill number. It shows committee actions, voting schedules, and current status. You can also sign up for email alerts when there are updates. For contacting representatives, the House and Senate websites have contact forms where you can express support. Many advocacy groups like the National Committee to Preserve Social Security and Medicare also have pre-written letters you can customize and send. The more constituent voices they hear supporting this, the better! @Zoey Bianchi is absolutely right about the Area Agency on Aging - they re'an incredible resource that s'often underutilized. Thanks for sharing those additional program suggestions too.

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