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Social Security rejected my disabled daughter's CDB benefits claiming disability started after 22 - but she's had SSI since age 18

I'm at my wit's end with the Social Security Administration! My daughter (now 29) has been disabled since birth with severe autism and has received SSI since she was 18. I recently retired and applied for my retirement benefits, so I also applied for Childhood Disability Benefits (previously called DAC) for my daughter. Yesterday I got a denial letter saying she "doesn't qualify because she wasn't disabled before age 22" - which is absolutely FALSE. She's been on SSI for 11 years already! We have extensive medical documentation from psychiatrists dating back to when she was 7 years old, including three hospitalizations before she turned 22. Her SSI award letter clearly states her disability onset date as 6/2013 when she was 18. It seems like they didn't even look at the medical records we submitted with the application. Has anyone dealt with this kind of error before? Should I file a reconsideration, call the national number, or try to schedule an in-person appointment at our local office? I'm terrified this will drag on for months while she could be receiving higher benefits on my record.

I'd like to clarify something important: for Child's Disability Benefits (CDB, formerly called DAC), there are three main requirements: 1. The child must be unmarried 2. The child must be disabled according to SSA's definition before age 22 3. The parent must be receiving Social Security retirement or disability benefits, or be deceased In your case, since your daughter has been receiving SSI since age 18 and has an established onset date before age 22, you should focus your reconsideration on this fact. Request a copy of the "Disability Determination Explanation" from her SSI case if possible - this is different from just the award letter and contains the medical basis for her disability finding. Also, be aware that if she gets approved for CDB, her monthly benefit amount will likely be higher than SSI, and she may lose SSI eligibility due to the higher income (which is actually a good thing overall). However, she would maintain her Medicaid eligibility through special provisions for people who lose SSI due to receiving CDB benefits. Finally, CDB benefits can include back pay to the date of your retirement, so this is worth pursuing even if it takes some time.

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Thank you for this detailed explanation. Yes, we're aware she'd lose SSI with the higher CDB benefit, which is exactly what we want since the benefit would be substantially higher. I didn't know about requesting the "Disability Determination Explanation" - that's really helpful information!

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I'm so sorry you're dealing with this bureaucratic nightmare! As someone who works in disability advocacy, I see this type of error unfortunately often. The good news is that you have a very strong case since your daughter already has an established disability determination through SSI. Here's what I'd recommend doing immediately: 1. File the reconsideration within 60 days of the denial date 2. In your appeal, specifically state: "SSA has already determined my daughter was disabled before age 22 through her SSI approval in 2013" 3. Request that they access her complete SSI disability file and cross-reference it with the CDB application 4. Include copies of her SSI award letter showing the onset date Also consider reaching out to your local disability advocacy organization - many offer free help with SSA appeals and know exactly how to phrase these requests to get results. The fact that she's been receiving SSI for 11 years should make this a straightforward approval once the right person reviews the case. Don't let them wear you down - you're absolutely in the right here!

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Can I get higher ex-spouse Social Security benefits if I'm on SSI disability? Confused about filing at 62

I've been getting SSI disability payments for about 5 years now (around $943/month). I'm turning 62 next March and just found out I'll be required to apply for my Social Security retirement at that point. Looking at my SS statement online, my estimated benefit at 62 is only $587! That's way less than my current SSI. Here's where I'm confused... I was married for 14 years to my ex-husband before we divorced in 2022. According to his SS statement (he showed me before we split), his benefit at age 70 would be about $2,300 per month. I've heard something about claiming on an ex-spouse's record if you were married 10+ years, but I don't understand how that works with SSI disability or early retirement. Is there a specific formula for figuring out what my total monthly benefit will be when I'm forced to file at 62? Will I still get some SSI to supplement? Would it be better to claim on my own record or his? Really stressing about this because I can't afford to lose income when I'm already barely making ends meet.

Based on all the comments, here's a summary of your best approach: 1. Start the process 3 months before turning 62 2. Your total monthly income will likely be slightly higher after the transition (your $587 retirement + some supplemental SSI, minus the reduction) 3. You don't need your ex's cooperation - SSA can access his earnings record since you were married 10+ years 4. Explicitly ask about continued Medicaid eligibility in your state when you switch benefits 5. Request a written breakdown of your future benefits before any changes happen 6. If you receive any notices about benefit changes, respond immediately Many people actually end up slightly better off financially after this transition, but the key is ensuring everything is processed correctly and simultaneously to avoid gaps in coverage. The system is complex but you're asking all the right questions.

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Thank you for the encouraging words and clear summary! I feel much better about navigating this now. I'm going to call SSA next week to start the process since I'll be turning 62 in about 4 months. I'll update here if I run into any issues or learn anything that might help others in my situation.

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Victoria, I wanted to add something important that hasn't been mentioned yet - you should also ask SSA about potentially filing a "restricted application" strategy. Since you're disabled and receiving SSI, there might be specific timing considerations that could work in your favor. Also, when you do contact SSA, make sure to ask them to run scenarios for BOTH your own retirement benefit AND the divorced spouse benefit to see which gives you the higher total monthly income (including any remaining SSI). Sometimes the calculations aren't as straightforward as they seem, especially with the SSI income exclusions and state-specific Medicaid rules. One more tip: if you do end up going to the office, try to schedule an appointment rather than walking in. Many offices now allow you to schedule appointments online or by phone, which can save you hours of waiting time. Good luck with everything!

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Social Security benefits reduced by IRMAA while spouse still working - worth waiting to file?

I just got blindsided by how much IRMAA is cutting into my Social Security check because my husband (67) is still working full-time. His income in 2023 pushed us into a higher bracket, and I'm losing almost $270 monthly to Medicare premiums! He's planning to retire in March 2025 (next month). He's eligible for SS now but hasn't filed yet. We're thinking about having him wait until 2027 to apply for his benefits for several reasons: 1. By 2027, SSA will be looking at his 2025 income (mostly retirement) which should be WAY below the IRMAA threshold 2. Waiting would increase his monthly benefit amount significantly 3. When he does file, I should qualify for higher spousal benefits 4. Both of us would avoid the IRMAA surcharge (saves us about $5,400/year combined) We have enough retirement savings to bridge the gap for those 2 years. When we did the calculations, it looks like we'd come out ahead by almost $47,000 over 5 years by waiting! Has anyone else delayed filing specifically because of IRMAA considerations? Did your strategy work out as planned? Any pitfalls I'm not seeing?

my friend said he got his IRMMA reduced after he retired by filing some special form with social security. forgot what its called but worth looking into

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That would be Form SSA-44, "Medicare Income-Related Monthly Adjustment Amount - Life-Changing Event." Retirement itself isn't considered a qualifying life-changing event, but the resulting reduction in income in subsequent years will eventually lower IRMAA without needing to file this form. The qualifying life events include: death of spouse, marriage, divorce, work reduction, work stoppage (losing your job, not voluntary retirement), loss of income from income-producing property, and loss or reduction of certain kinds of pension income.

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Your strategy sounds really well thought out! I'm in a similar situation - my husband is 65 and still working, and we're considering delaying his SS filing partly because of IRMAA concerns. One thing I wanted to mention that might help with your planning: you can actually do Roth conversions during the gap years (2025-2026) while keeping your income low, then use those converted funds later without affecting IRMAA. Since you'll have lower income those years anyway, it might be a good opportunity to convert some traditional IRA funds at lower tax rates. Also, I've been tracking the IRMAA thresholds and they've been increasing slightly each year due to inflation adjustments. For 2025, the first threshold for married filing jointly went up to $206,000 (from $204,000 in 2024). So there's a chance the thresholds might be even higher by 2027, giving you a bit more breathing room. Have you considered what you'll do if one of the IRMAA thresholds gets eliminated or changed significantly before 2027? I know it's unlikely, but given all the talk about Medicare reform, it might be worth having a backup plan.

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Confused about Social Security tax withholding with dividend income - need to withhold separately?

I'm trying to figure out this whole tax withholding thing with my Social Security retirement benefits. I know exactly what my monthly SS payment will be this year, and I have a pretty solid estimate of my dividend income from investments (literally the only other income I'll have). I've spent hours on these online tax calculators and they're all telling me that about 5% of my Social Security benefits will be taxable and my total tax liability comes to around $600. I made sure to include my dividend income in all the calculator inputs. What's driving me crazy is that none of these calculators clearly explain if that $600 is my TOTAL tax liability (including taxes on the dividends) or if it's JUST the tax on the Social Security portion. Do I need to calculate taxes on the dividend income separately and add that to the $600? I want to have SS withhold the right amount so I don't end up with a surprise tax bill next April. Any help figuring this out would be greatly appreciated!

After reading through this thread, I just want to emphasize one thing: most online calculators are indeed calculating your TOTAL tax liability when they give you that final number (assuming you entered all income sources correctly). What confuses many people is that the calculator might break down how much of your Social Security is taxable (the 5% you mentioned), but the final tax number ($600) typically represents what you'll owe based on ALL your taxable income combined. I'd suggest double-checking by using the IRS's own calculator. If that also shows around $600, you can be confident that's your total federal tax liability for the year.

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Just wanted to add my experience from last year - I had almost the exact same situation with SS benefits and dividend income. The key thing that helped me was understanding that when you input both income sources into a tax calculator, the final number IS your total tax liability. What I did was use the IRS Tax Withholding Estimator (as Javier mentioned) and then cross-checked it with TurboTax's estimator. Both gave me similar results, which gave me confidence in the number. For the withholding part, I ended up going with the 7% option on Form W-4V since my tax liability was relatively small compared to my annual SS benefits. It's worked out perfectly - no surprises at tax time and no penalties. One tip: keep records of which calculator you used and what inputs you entered, so you can reference it later or use it to double-check if your situation changes mid-year.

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Will my higher earnings after age 60 replace my low income years for Social Security calculation?

I've got a question about how my Social Security retirement benefit will be calculated. My earnings history is pretty uneven - in my 20s (my first decade of work), I only made between $19K-$32K annually. Then in my 30s and 40s, I earned much better money ($85K-$110K range). Now I'm 61, and for the past few years and likely until I retire at 67, I'll be making around $75K-$85K annually. I'm confused about how SSA will use these earnings to calculate my benefit. Will my higher earnings now (after 60) replace those really low earnings from my 20s? Or does it not work that way? I've read something about SSA using your highest 35 years, but I'm not sure how the age 60 rule factors in. Does anyone understand how this actually works?

I want to thank everyone who replied! This has been incredibly helpful. I think I understand now that: 1. SSA will use my highest 35 years regardless of when I earned them 2. My current higher earnings will replace those low early years 3. Earnings after 60 aren't indexed but are still counted at face value I'm going to create my SSA account and look at my earnings history to get a better idea of what my benefit might be. This has cleared up a huge source of confusion for me!

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Glad we could help! The my Social Security account is definitely your best resource for seeing how all this applies to your specific situation. They even have calculators that let you estimate the impact of working longer or retiring early.

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This thread has been so educational! I'm in a somewhat similar boat - had years of part-time work in my early career while raising kids, then returned to full-time work in my 40s. I was worried those low-earning years would drag down my benefit forever. One thing I learned from my financial advisor that might help others: if you're still working and haven't filed for benefits yet, every additional year of higher earnings can potentially boost your benefit. So even if you're past your FRA, there can still be value in continuing to work if you enjoy it and the pay is good. The SSA website also has a neat feature where you can model different retirement scenarios - like what happens if you retire at 62 vs 67 vs 70. Really helpful for planning!

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