Disabled daughter turning 18 - Will Social Security benefits change when switching from father's benefits to SSDI?
My daughter has a severe developmental disability from a genetic condition and can't live independently. We're in the middle of getting legal guardianship, and our attorney mentioned we should apply for SSDI for her when she turns 18 next month. Here's what I'm confused about - she currently receives Social Security benefits as a dependent under her father's record (he's 63 and collecting early retirement). Will her benefits amount change when we switch to SSDI? Do the benefits automatically convert or do I need to file a completely new application? Does anyone know if there's a specific form for disabled adult children? I'm worried about a gap in coverage during the transition since her medical expenses are significant.
21 comments
Mei Chen
You need to apply for Disabled Adult Child (DAC) benefits, not regular SSDI. This is a special category for people who become disabled before age 22. The good news is that she can potentially receive a higher benefit based on her father's work record than what she's getting now as a minor child. The benefit is 50% of his PIA while he's alive, and would increase to 75% as a survivor benefit if he passes away. You MUST apply before she turns 18 to avoid any gap in benefits. Take her birth certificate, the guardianship papers (even if not finalized), medical records documenting her disability, and her father's Social Security number to the appointment.
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Jamal Edwards
•Thank you so much! So it sounds like I need to apply for something specific called DAC benefits rather than regular SSDI? I had no idea there was a difference. Should I call and make an appointment now or can I do this application online?
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Liam O'Sullivan
my son has downs and we went thru this last year. its called Disabled Adult Child benefits not SSDI!!!! make sure u say that when u call. they tried to do regular disability for my son at first and its TOTALLY different thing with different rules
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Jamal Edwards
•Oh wow, thanks for the warning! I definitely don't want them to file the wrong type of application. Did your son's payment amount change when you switched to the adult benefits?
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Amara Okonkwo
I'm in a similar situation with my disabled son who just turned 19. Let me tell you, the process was a NIGHTMARE. We applied three months before his birthday and they STILL messed it up. He went two months with NO CHECKS because they terminated his child benefits before the adult disability was approved!!! Make sure you start IMMEDIATELY and call to check status every single week. The SSA is completely incompetent and doesn't communicate between departments!
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Giovanni Marino
•same thing happened to my niece! 3 months with no checks and my sister had to borrow money to pay rent. SSA is the worst
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Fatima Al-Sayed
When your daughter turns 18, you'll need to apply for benefits as an adult disabled before age 22 (what's known as a Disabled Adult Child or DAC). This is different from regular SSDI because it's based on the parent's work record, not your daughter's. Here's what you need to do: 1. Contact SSA immediately to schedule an appointment (do NOT wait until her birthday) 2. Bring medical records documenting her disability and its onset before age 22 3. Bring your guardianship paperwork, even if it's still in process 4. Request that they do a "protected filing date" to ensure no gap in benefits The benefit amount will likely be higher than what she currently receives as a minor child. If your daughter also has limited assets/income, also look into SSI as a supplemental benefit.
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Jamal Edwards
•This is so helpful, thank you! I'm going to call tomorrow. I had no idea there was a "protected filing date" option. Would they automatically terminate her current benefits when she turns 18 if I don't do anything?
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Dylan Hughes
I went through this exact situation with my disabled daughter last year. Getting through to SSA to set up the appointment was the hardest part - I spent DAYS trying to get past the busy signals. I finally used a service called Claimyr (claimyr.com) that held my place in line so I didn't have to keep calling back. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU Once I actually got the appointment, the process went pretty smoothly. My daughter's benefit actually increased slightly since she was now getting the full disabled adult child amount instead of the minor child benefit. The Claimyr service was definitely worth it to save my sanity after trying for days to get through.
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Giovanni Marino
•does that service really work? i've been calling ssa for 2 weeks trying to fix my address and they NEVER pick up
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Dylan Hughes
•It did for me! I was skeptical too but I was desperate after spending hours getting busy signals. The service called automatically and then connected me when they got through. Saved me a ton of time and frustration.
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NightOwl42
My brother gets DAC benefits. Its really important to know this benefit lets ur daughter keep getting benefits based on ur husband's work record. She doesn't need her own work credits. But u ABSOLUTELY need medical proof that her disability started before 22. My mom kept all the school IEPs and doctors reports from when my brother was little and that helped a lot. Good luck!!!
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Jamal Edwards
•I've kept everything from all her specialists since she was diagnosed at 18 months. Should I bring copies of all medical records to the appointment or will they just request them from her doctors?
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NightOwl42
•bring copies!!! don't trust them to request everything correctly. My mom brought a whole binder organized by year and the SSA person said it was super helpful and probably why my brother got approved right away
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Mei Chen
One thing no one has mentioned yet: if your daughter receives Medicare after being on SSDI/DAC for 2 years, she might also be eligible for a Medicare Savings Program to help with premiums and costs. And depending on your state, the income/asset limits for Medicaid might be different for disabled adult children than for other adults. Make sure to ask about all potential benefits during your appointment. Also, when you call to make the appointment, specifically request someone who specializes in disabled adult child benefits. Not all SSA representatives are equally knowledgeable about this specific benefit type.
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Jamal Edwards
•That's great advice about asking for a specialist. I hadn't thought about Medicare at all - she's currently on our private insurance plus Medicaid as secondary coverage. I'll definitely ask about the Medicare Savings Program when we go in.
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Liam O'Sullivan
did u get guardianship yet??? my friend waited to long and had all kinds of problems because technically her son could make his own decisions at 18 even tho he obviously couldn't really. the SSA made her start the application all over when she finally got guardianship
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Jamal Edwards
•We have a court date next week for the guardianship! The attorney said we're doing it just in time. I didn't realize SSA would make you restart the application without guardianship papers - that's really good to know. Thank you!
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Fatima Al-Sayed
Based on your updates in the comments, it sounds like you're on the right track. To summarize what you need to do: 1. Call SSA immediately to set up an appointment (use the Claimyr service if you have trouble getting through) 2. Request a specialist in Disabled Adult Child benefits 3. Bring organized medical records, birth certificate, guardianship paperwork 4. Specifically ask for a protected filing date 5. Clarify that you want DAC benefits, not regular SSDI Once approved, her benefits should continue seamlessly, and likely at a higher amount than she currently receives. The benefit will continue indefinitely as long as she remains disabled and doesn't marry (there are marriage restrictions with DAC benefits).
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Jamal Edwards
•Wait - there are marriage restrictions?? I hadn't heard about that. She's nowhere near that stage of life, but I should understand all the rules. Does that mean she would lose benefits if she ever got married in the future?
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Fatima Al-Sayed
•Yes, unfortunately DAC benefits generally terminate if the beneficiary marries, unless they marry someone who is also receiving certain types of Social Security benefits. It's one of those outdated rules that hasn't been updated. There are occasional exceptions, but it's definitely something to be aware of for future planning.
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