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Can I switch from Survivor Benefits to SSDI at 66? Confused about SSDI benefit amounts and Medicaid costs

I've been receiving Social Security survivor benefits since my husband passed three years ago (I'm now 66). Recently, my rheumatoid arthritis has gotten significantly worse, especially in my hands and wrists. Some days I can barely button my shirt or open a jar. I was talking with my neighbor who suggested I look into applying for SSDI instead of survivor benefits. I'm completely confused about how SSDI works at my age. Does SSDI have a standard benefit amount that everyone gets? Or is it calculated differently for each person? Also, would switching affect my Medicare coverage? Someone told me SSDI recipients have to pay for Medicaid, but that doesn't sound right to me. I tried calling the SSA office three times this week but couldn't get through to anyone. My local office is 45 minutes away and I'm having trouble driving that far with my condition. Any help would be appreciated!

There are a few misunderstandings I want to clear up for you. First, at age 66, you're already at Full Retirement Age (FRA), so you wouldn't apply for SSDI - that program is for people under FRA who become disabled. Once you reach FRA, disability benefits automatically convert to retirement benefits anyway. As for your current survivor benefits, they're based on your late husband's earnings record. You could potentially switch to your own retirement benefits if they would be higher, but that would depend on your own work history. Regarding Medicare vs. Medicaid: Medicare is what you get at 65+ or on SSDI (after 24 months). Medicaid is income/asset-based and varies by state. Medicare has premiums (Part B is $207.90/month in 2025 for most people) while Medicaid typically has minimal or no costs but stricter eligibility.

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Oh! I didn't realize SSDI wasn't an option at my age. Thank you for clarifying that. I worked part-time most of my life while raising our kids, so my own retirement benefit would probably be lower than what I'm getting on my husband's record. Is there any other program I should look into for my arthritis situation? Or am I basically stuck with what I have now?

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NeonNova

my sister got ssi disabilty for her artharitis but shes only 58 so maybe thats different??? dont they have the special low income medicare savings program thing too maybe check that out

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Thanks for responding. I think SSI is different from SSDI? I'm not low income enough for SSI I don't think. My sister-in-law mentioned something about a Medicare Savings Program too, but I wasn't sure if that applied to me. It's all so confusing!

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Since you're 66 and already at Full Retirement Age (FRA), the disability program (SSDI) isn't relevant for you anymore. SSDI benefit amounts are calculated the same way as retirement benefits - based on your lifetime earnings. They're not a set amount for everyone. At your age, you have two options: 1. Continue receiving survivor benefits based on your late husband's work record 2. Switch to your own retirement benefits if they would be higher You can actually request a benefit calculation from SSA to see which would be higher. As for Medicare vs. Medicaid - these are completely different programs. Medicare is federal health insurance that you qualify for at 65, while Medicaid is state-run assistance for those with limited income and resources. SSDI beneficiaries get Medicare after a 24-month waiting period, not Medicaid. You might want to look into assistance programs for your arthritis - perhaps contact the Arthritis Foundation for resources.

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This is so helpful, thank you! I'll definitely ask for that benefit calculation to compare. I do have Medicare already (Parts A and B), so at least that part is working correctly. I'll check out the Arthritis Foundation too - didn't even think about that resource. I really appreciate the clear explanation.

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The SSA system is TOTALLY BROKEN when it comes to helping seniors with disabilities!!! I had almost the EXACT same situation with my mother last year - she had severe arthritis and was on survivor benefits. We tried for MONTHS to figure out if she qualified for any additional help. Every time we called SS, we got disconnected or had to wait 2+ HOURS!!! One agent told us one thing, the next told us something completely different. It's a NIGHTMARE trying to get straight answers!!! Have you looked into applying for the Medicare Extra Help program? That at least helped my mom with prescription costs for her arthritis meds. The whole system is designed to confuse elderly people so they give up trying to get benefits they deserve!!

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I'm sorry your mother went through that! It is frustrating trying to get consistent information. I haven't looked into the Extra Help program - that's a good suggestion since my arthritis medications are getting expensive. I'll try to find information about that online since calling seems so difficult.

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I used to work for Social Security (retired now). Let me clarify: SSDI (Social Security Disability Insurance) is only for people under Full Retirement Age. Since you're 66, you're already at FRA, so disability benefits aren't applicable - you'd just receive regular retirement benefits. Also, there's a difference between Medicare and Medicaid: - Medicare: Federal health insurance program mainly for 65+ (you likely have this) - Medicaid: Need-based program run by states for people with limited income/resources If your arthritis is severely affecting your daily living, look into: 1. Medicare Extra Help for prescription costs 2. State assistance programs 3. Whether your own retirement benefit might be higher than your current survivor benefit

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This is really helpful information. I've been trying to call Social Security for weeks about my mom's Medicare coverage and can never get through! The hold times are ridiculous and I've been disconnected multiple times. Is there a better way to reach them? I discovered a service called Claimyr (claimyr.com) that got me through to an agent in under 20 minutes after weeks of failing. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU It really saved me so much frustration when dealing with my mom's benefits questions. Much better than spending hours on hold or driving to the office.

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ive been on ssdi for 10 yrs for back pain and just turned 65. my ssdi just automatically changed to regular retirement benefits at my full retirement age. nothing changed with the amount. medicare is what u get with ss after 65 not medicaid. medicaid is for really poor ppl and each state runs that different

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Thanks for sharing your experience. That helps me understand the automatic conversion better. I'm glad to hear the amount stayed the same during that transition.

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I wanted to add another important point: Since you're dealing with worsening arthritis, you should look into applying for assistance with daily living activities if needed. Some options to consider: 1. Check if your state has any Home and Community Based Services (HCBS) programs 2. Look into whether you qualify for any Medicare Advantage plans that offer additional services for people with chronic conditions 3. Contact your Area Agency on Aging for local resources These won't increase your Social Security benefit amount, but they might help with practical assistance for your arthritis symptoms.

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I hadn't thought about any of these options! I definitely could use some help with certain household tasks on my bad days. I'll contact the Area Agency on Aging this week. Thank you for these specific suggestions.

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NeonNova

my aunt got a special thing called medicare savings program that pays her medicare premium, maybe look into that??

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Just to summarize what you've learned: 1. At 66, you're already at Full Retirement Age, so SSDI isn't applicable (it automatically converts to retirement at FRA) 2. Your options are either survivor benefits OR your own retirement benefits (whichever is higher) 3. Medicare is what you have at 66, not Medicaid 4. Look into Extra Help program for prescription drug costs 5. Consider contacting your Area Agency on Aging for arthritis support services It sounds like staying on survivor benefits is likely your best option financially, but it's worth having SSA do a calculation to confirm this. The resources others have suggested for managing your arthritis costs are excellent next steps.

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Thank you so much for this clear summary! I feel much less confused now. I'll definitely have SSA compare the benefit amounts, look into the Extra Help program, and contact the Area Agency on Aging. Everyone here has been so helpful - I wish the official information was this clear!

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