The advice here is mostly good but I want to clarify something important: with ALS, there is NO 5-month waiting period for SSDI benefits like there is with other disabilities. Also, Medicare eligibility begins immediately after SSDI approval rather than the normal 24-month waiting period. Make sure your brother knows this as it's extremely important for covering medical costs. Also, has your brother checked if he has any private disability insurance through previous employers? Many people don't realize they might have coverage. With ALS, it's critical to secure all possible financial resources.

One more thing no one has mentioned - if his ex-wife has never worked, she should look at SSI (Supplemental Security Income) too, not just waiting for benefits based on your brother's record. She might qualify NOW based on need, age, and disability if she has any health issues herself. The rules are complicated but worth checking into.

So I'm now collecting at 70 (started last year) and was SHOCKED at tax time!!! I had no idea so much would be taxable. My neighbor told me only 85% MAX can be taxed, which was small comfort when I saw my tax bill. Just be prepared and maybe make quarterly estimated tax payments to avoid a surprise. I'm still glad I waited though - the bigger check each month is worth it.

One more consideration: Social Security at any age (62, FRA, or 70) counts toward your provisional income that determines Medicare IRMAA surcharges (those extra premium amounts for Parts B and D if your income is above certain thresholds). So if you're approaching 65, factor in how your total income including Social Security might affect your Medicare premiums too.

Based on what you've shared, here's a summary that might help you plan: 1. Your SSDI benefits will NOT change after marriage 2. His SSDI benefits will NOT change after marriage 3. His SSI ($110/month) will likely be reduced or eliminated after marriage 4. Any income-based benefits like SNAP, housing assistance, Medicaid, Extra Help for Medicare, etc. will need to be reassessed based on your combined income If losing the $110 in SSI and potentially some adjustments to other benefits is manageable for your budget, you should be in an okay position financially after marriage. I would recommend scheduling an appointment with SSA to get a precise calculation of how your specific benefits would be affected.

One more tip - after you get married (if you decide to), make sure you both contact Social Security right away to report the change. For the SSDI recipient, it's mostly just updating your name if you change it. For the SSI recipient, they need to report the marriage immediately to avoid overpayments. Those overpayment notices are a nightmare to deal with!

Did they tell u about taxes? I had NO idea survivors benefits could be taxable and got hit with a huge tax bill my first year. Up to 85% can be taxable depending on your other income. Just a warning so u can prepare...

my sister tried to get surviver benefits but they denied her because she was married for only 9 years not 10 years! so unfair!!!

I think they're changing their policy again. My nephew works at Social Security and he says they're getting new guidance every week about this. Some offices have the updated system and others don't yet. Maybe try a different office?

Quick update for everyone following this thread - the official policy change is outlined in SSA Emergency Message EM-23056, which officially limits recovery of most overpayments to 10% of monthly benefits. However, there are exceptions for fraud cases. The implementation date was March 15, 2025, but as others have noted, the actual rollout has been inconsistent across field offices. If you're getting resistance, specifically mention EM-23056 and request to speak with a Technical Expert or the Office Manager who should be familiar with this directive.