Social Security Administration

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One important suggestion I should have mentioned earlier: your nephew should consider getting representation from the beginning of his application process, not just if he gets denied. A disability attorney or advocate who specializes in SSDI claims can make a huge difference in approval rates, especially with complex neurological conditions. Most work on contingency (they only get paid if he wins, typically 25% of backpay up to $7,500), so there's no upfront cost. They know exactly what medical evidence will be most persuasive, which doctors' statements help most, and how to properly document the functional limitations that will qualify him. The application process is intentionally difficult and the forms are designed to trip people up. Having someone guide him through can dramatically increase his chances of approval at the initial level, potentially saving years of appeals.

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100% THIS!!! I used an attorney from the start and that's why I got approved first try! My lawyer knew EXACTLY what forms to give my doctors and what specific info SSA looks for with seizure disorders. Best decision I made.

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Thank you all so much for the incredible advice and personal experiences. I feel much better equipped to have this conversation with my nephew now. I'm going to emphasize that: 1. He's paid into this system - it's insurance, not welfare 2. His children could potentially receive benefits too 3. He can still try working while on the path to SSDI 4. Getting representation from the start is crucial I think approaching it from the angle of caring for his family rather than focusing on his limitations will help. And hearing from others who've been through similar situations with the same reluctance is incredibly valuable. Thank you all for your compassion and wisdom!

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You're very welcome! One final thought: if your nephew does decide to apply, make sure he keeps a detailed journal documenting his seizures, MS symptoms, and how they affect his daily functioning. This kind of contemporaneous evidence can be extremely valuable during the application process. Wishing him and your family all the best!

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Regarding citizenship - for Social Security benefits purposes, citizenship is less important than residency status. Since the daughter is residing in Spain and is not a US citizen, she's treated as a nonresident alien under US tax law, subject to the treaty provisions between the US and Spain. One other important point about the Representative Payee situation - since the mother is a non-US citizen living abroad, SSA might require additional verification and documentation. This could include more frequent Representative Payee accounting reports. She should ask the FBU specifically about any special requirements for her situation. Also, make sure your friend keeps all documentation of how the benefits are spent on behalf of her daughter. Foreign Representative Payees sometimes face additional scrutiny.

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Thanks for clarifying about the citizenship vs. residency distinction. I'll make sure she understands the importance of keeping detailed records of how the benefits are used for her daughter. Would a dedicated bank account just for these benefits be advisable to keep the accounting cleaner?

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A dedicated bank account is definitely a good idea! Representative Payees are actually required to keep Social Security funds separate from their own money. The account should be titled in a way that shows the child owns the money but the mother manages it - something like "Maria Rodriguez, representative payee for Sofia Rodriguez, beneficiary." This makes it much easier to track how funds are spent and complete the annual Representative Payee Report. It also helps prevent any appearance of misuse of funds, which can be especially important in international cases where there might be more scrutiny.

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Perfect! I'll help her set up an account with the proper titling. This whole process is more complex than I initially thought, but it's worth it to make sure everything is handled correctly. Really appreciate all the advice everyone has shared!

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What about that thing where they increase ur benefit if they withhold some? My uncle said they recalculated his benefit when he hit retirement age and it went up because of the months they didn't pay him when he was working too much?? Anyone know about this?

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Yes, that's correct! When benefits are withheld due to the earnings test, SSA will recalculate your benefit amount when you reach Full Retirement Age. They essentially give you credit for the months when benefits were withheld by removing the early retirement reduction for those months. This is a commonly overlooked aspect of the earnings limit - the money isn't permanently lost, but rather deferred with an adjustment at FRA. However, most financial advisors still suggest waiting to claim if you know you'll exceed the earnings limit significantly.

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Based on everything shared here, it seems your best option is to: 1. Continue working through December 2. Apply for retirement benefits around October (for January start date) 3. Start benefits in January when you're no longer working This avoids the earnings limit issue entirely, prevents possible overpayments, and gives SSA enough processing time. Plus, waiting gives you a slightly higher benefit amount anyway due to delayed retirement credits.

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Thank you everyone for all this advice! I'm definitely going to wait until January to start benefits, but apply in October like suggested. This has been incredibly helpful - way more useful than the confusing SSA website!

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One more important thing: if your friend's husband worked in both SS-covered employment AND government employment not covered by SS, the SSA will need to carefully review his earnings record to calculate the correct benefit. Make sure she brings his complete work history if possible. Also, the fact that she receives a small SS benefit suggests she might have enough SS-covered work quarters to potentially reduce the GPO impact. The rules are extremely technical, which is why an in-person appointment with documentation is crucial.

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This is why the system is so broken! How is any normal person supposed to understand all these technical rules?? My mom got different answers from 3 different SS workers about her GPO calculation.

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Just to add - there's a movement to repeal GPO and WEP with multiple bills introduced in Congress over the years, but nothing has passed yet. The Social Security Fairness Act would eliminate both provisions, but it's been stalled for years despite bipartisan support. Public pension recipients should follow this legislation.

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I've been following those repeal efforts for years. Don't hold your breath - they keep introducing bills but they never get voted on. The issue affects teachers, firefighters, police officers and other public servants in many states. It's so frustrating!

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Social Security retirement filing mistake - switched from survivor benefits but now stuck in limbo for 2 months

I'm in a real mess with my Social Security benefits and don't know what to do anymore. I turned 72 this month and had filed for my retirement benefits back in May. When I got my determination letter in August, I was shocked to see it was about $525 less per month than I expected. I immediately went to my local SSA office where a rep showed me I'd actually get much more if I delayed my start date by just 3 months due to some earnings rule I didn't understand. The rep had me fill out an SSA-521 form to withdraw my retirement claim and keep my survivor benefits going in the meantime. They said they'd cancel my retirement application and restart my survivor benefits right away. That was 8 weeks ago! I've called at least 6 times. Last week someone told me my case was "transferred to the Payment Processing Center" but couldn't tell me anything else. Meanwhile, NOTHING is happening. My survivor benefits are still suspended, I've received no retirement payments, and Medicare is a complete disaster. I've had to pay $912 out of pocket for both my Medicare premium and my Advantage plan because they're not being deducted anymore. How much longer will this take? Will they automatically pay me the missed survivor benefits? And how do I get reimbursed for these Medicare payments I've had to make? The SSA office just keeps telling me to "be patient" but I'm burning through my savings waiting for this to resolve.

just wondering if u ever got this resolved? im in a similar boat and scared about how long it might take

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Not yet! It's been 9 weeks now. I did contact my Congressional rep's office as someone suggested here, and they've opened an inquiry. They said they typically hear back from SSA within 30 days on these inquiries, which isn't great but at least it's something. I also tried calling the payment center directly (different than the main SSA number) but couldn't get through to anyone helpful.

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After reading through this thread, I think contacting your Congressional representative was a smart move. Their constituent services can often push things forward much faster than we can as individuals. Just to confirm a few technical points: 1. The form you filed (SSA-521) requests withdrawal of a claim, which is different from simply changing your month of entitlement. If you only wanted to delay by 3 months, a withdrawal might have been more complicated than necessary. 2. For Social Security retirement benefits, changing your month of entitlement can affect your benefit amount due to the monthly delayed retirement credits you earn after Full Retirement Age until age 70. 3. When transitioning from survivor to retirement benefits, there's often confusion about the Medicare premium transfers, which is why you're experiencing the issues with having to pay out of pocket. Keep detailed records of all your out-of-pocket Medicare payments. When your case is resolved, you'll need to submit Form SSA-795 (Statement of Claimant) with copies of your receipts to request reimbursement. This won't happen automatically.

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Thank you for the additional information! You're right - it does seem like the SSA-521 withdrawal might have been more complicated than necessary if I just needed to change the start date. The rep at the office insisted this was the right approach, but now I'm wondering if there was a simpler way. I've started organizing all my Medicare payment receipts and bank statements showing the payments. Hopefully that will make the reimbursement process smoother when we finally get there.

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