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Can my 90-year-old mom apply for increased SS spousal benefits with back pay while homebound with Parkinsons?

My situation is getting desperate and I need advice about Social Security benefits for my elderly parents. My mom is 90 with advanced Parkinsons and completely homebound in her wheelchair. Dad is 92 with progressing dementia and can't properly care for her anymore, though they're still living independently which scares me daily. I recently discovered Mom might be eligible for higher spousal benefits since Dad's Social Security checks are significantly larger than hers. I'm pretty sure she never applied for the increased amount she'd be entitled to as his spouse. They're currently only on Medicare, but their limited income might qualify them for Medicaid too. Here's what I need to know: Can Mom apply for the increased spousal benefit online, or does she need to physically go to an SSA office (impossible in her condition)? And if she qualifies, would SSA provide any retroactive payments for benefits she should have been receiving? Any guidance would be deeply appreciated as I'm trying to improve their financial situation while managing their declining health.

Your mother can absolutely apply for the increased spousal benefit without going into an office! Since she's unable to visit in person due to her medical condition, SSA offers several alternatives: 1. She can apply by phone - call the main SSA number at 1-800-772-1213 to schedule a phone appointment (though wait times can be frustrating) 2. You might be able to help her apply online at ssa.gov (though the spousal benefit application sometimes requires direct contact) 3. In special circumstances like this, SSA may arrange a home visit As for back payments - yes, she may be eligible for up to 6 months of retroactive benefits from the date she applies. Unfortunately, they don't go back to when she first became eligible. I'd also strongly recommend looking into Medicaid - with their ages and medical conditions, they likely qualify. This could provide in-home care assistance which sounds critically needed in your situation.

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Thank you so much for this detailed information! I didn't realize SSA might do home visits in cases like this. Do you know if I need any special documentation about her medical condition to request that? And would I need to become her representative payee first, or can I just help her with the application process?

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Marcus Marsh

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my aunt was in similar situation. she got back pay for 4 months only not the whole time she coulda been getting more. they dont give u all the years back just a few months. good luck getting thru on phone tho its IMPOSSIBLE

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That's disappointing about the back pay, but still better than nothing I guess. Did your aunt have to provide a lot of documentation? I'm worried about gathering all the necessary paperwork from my parents' house - it's not in great order with Dad's memory issues.

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Hailey O'Leary

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In addition to what others have said, I'd strongly recommend that you look into becoming your parents' Representative Payee. Based on what you've described (dad with dementia, mom with advanced Parkinsons), they may need help managing their benefits. As a Rep Payee, you'd be authorized to receive their payments and use the money for their care and needs. For the spousal benefits application, call SSA directly but expect EXTREME wait times. When I tried helping my father with a similar situation last year, I was on hold for over 3 hours before being disconnected. Then tried again the next day and waited 2.5 hours. It's unbelievably frustrating. I finally used Claimyr.com to connect with an agent quickly - saved me hours of waiting. They have a video showing how it works at https://youtu.be/Z-BRbJw3puU. Was definitely worth it for me since I couldn't afford to spend entire days on hold. Also check with your local Area Agency on Aging - they often have benefit counselors who can help navigate both the SS and Medicaid applications simultaneously.

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Thank you for the Rep Payee suggestion - that's something I definitely need to look into given their conditions. And thanks for the Claimyr tip! I'll check out that video. I've already wasted so many hours trying to get through to SSA, so anything that helps with that would be a lifesaver right now.

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Cedric Chung

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Dont get your hopes up to high about backpay. My mom only got 4 months even though she shouldve been getting higher amount for YEARS!! The system is so unfair to seniors its disgusting. And medicaid has so much paperwork youll be drowning in it for months!!!!

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Talia Klein

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While it's true that retroactive benefits for retirement and spousal benefits are limited to 6 months maximum by law, Medicaid application processes have been significantly streamlined in many states. The documentation requirements vary by state, but most now offer application assistance programs specifically designed to help seniors navigate the process. It's definitely worth pursuing given the potential benefits, particularly for in-home supportive services that could help this family significantly.

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Talia Klein

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Social Security specialist here. Let me clarify a few points that might help: 1. For spousal benefits, your mother doesn't need to visit an office. Call SSA directly at 1-800-772-1213 and explain her homebound status. They can complete most of the application by phone. 2. Retroactive benefits: By law, spousal benefits can only be paid retroactively for a maximum of 6 months from the application date, regardless of how long she may have been eligible. 3. Representative Payee: Given your father's dementia and your mother's Parkinson's, you should consider becoming their Representative Payee. This requires Form SSA-11 and typically medical documentation confirming they need assistance managing benefits. 4. Medicaid eligibility: With their ages and medical conditions, they likely qualify for your state's Medicare Savings Program at minimum, which would cover Medicare premiums, and possibly full Medicaid which could provide critical in-home care services. 5. Request an "immediate need" designation when you call - this can sometimes expedite the process given their ages and conditions.

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Thank you for such specific information! This is incredibly helpful. I'll call SSA tomorrow and specifically mention the "immediate need" designation - I had no idea that existed. I'll also download the SSA-11 form tonight to get that process started. Do you know if the medical documentation needs to be recent, or would diagnoses from a year ago be sufficient?

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Has anyone here tried applying online for a parent? I tried doing this last month and the website kept crashing when I got to the medical information section. Wasted 2 hours just to start over. So frustrating!

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PaulineW

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YES! The SSA website is absolutely terrible! I tried three different browsers when helping my uncle and it kept giving errors. They really need to update their systems. I found that using Microsoft Edge (oddly enough) worked better than Chrome or Firefox for some reason. Also, try very early morning or late evening when their servers aren't as busy.

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PaulineW

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Something important no one has mentioned - make sure you get your mom's Medicare Savings Program application going ASAP too. With their situation, they likely qualify for QMB or SLMB programs that will pay their Medicare premiums, saving about $2200/year total for both of them. That's separate from full Medicaid but much easier to qualify for. For the Social Security spousal benefit increase, try calling right when they open (at 8am local time) - that's when wait times are shortest. Before calling, make sure you have both their Social Security numbers, benefit amounts, and dates of birth ready. When my mom needed a benefit adjustment at age 88, I found that our local SSA office was actually more helpful than the national number. You might try finding the direct number to your local office. Sometimes they can even arrange a phone appointment specifically for complex elderly cases like yours.

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Thank you for mentioning the Medicare Savings Program - I hadn't even heard of that! I'll definitely look into it. Do you know if that's something we apply for through the Medicaid office or directly through Medicare? And great tip about trying the local office - I'll try to find their direct number online.

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Marcus Marsh

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dont bother with the phone unless you want to wait 3 hours!!! go to the offfice in person and bring your mom's ID and your dad's too

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OP specifically mentioned their mother is homebound with Parkinson's and in a wheelchair, so visiting an office isn't a viable option for them. In these cases, SSA has protocols for handling applications without requiring in-person visits.

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Hailey O'Leary

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I went through something similar with my grandparents last year. One thing to consider - if your mom gets approved for the higher spousal benefit, make sure SSA knows where to deposit it. If she's been getting her own benefit via direct deposit, they should use the same account, but sometimes they mess up and send a paper check for the new amount which can cause confusion. Also, when you call SSA, specifically ask about their "Compassionate Allowances" process since both your parents have serious medical conditions. This won't affect the benefit amount but might expedite the processing. And definitely pursue the Medicaid application simultaneously - at their ages with those medical conditions, they'd likely qualify for home health aide services which would be life-changing given what you described.

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Thank you for the advice on the direct deposit - I wouldn't have thought about that! Mom still gets paper checks (old school) but I should probably set up direct deposit when applying for the increased amount. I'll definitely ask about Compassionate Allowances too - anything that speeds up the process would be helpful at this point.

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