

Ask the community...
CHECK HIS WORK CREDITS!!! my cousins husband got denied because he didn't have enough recent work credits even tho he worked for like 15 years but then took time off to be a stay at home dad for 3 years. you need to have worked 5 of the last 10 years i think
Thanks everyone for all this helpful info! I'm going to sit down with him this weekend to create a plan. We'll double-check his work credits, make sure his neurologist documents everything thoroughly with specific mention of the Compassionate Allowance List, and prepare for that 5-month waiting period. His MS symptoms have gotten really severe (mobility issues, extreme fatigue, cognitive problems), so hopefully that will help with getting approved faster. I'm also going to have him set up an appointment with SSA using that Claimyr service to get specific estimates for his situation. Really appreciate all the insights - this is such a stressful time for their family and having some idea of what to expect financially makes a huge difference.
One last tip - have him keep a detailed symptom journal documenting how his MS affects daily activities. Include good days AND bad days, noting when he's too fatigued to perform basic tasks, when cognitive issues interfere with concentration, detailed mobility limitations, etc. This documentation is GOLD during the application process, especially if he needs to appeal.
One more thing to be aware of - if you're enrolled in Medicare, your Part B premium is based on your income from 2 years ago (so your 2023 income determines your 2025 premium). This is called IRMAA (Income-Related Monthly Adjustment Amount). With your income level, you might pay a slightly higher premium than the standard amount. This has nothing to do with your actual Social Security benefit calculation though.
When I started collecting last year, I had to wait almost 3 months for my first payment! They backpaid me eventually, but just warning you it might not start next month like you expect. The SSA is EXTREMELY backed up right now.
Does anyone know if they look at your TAX RETURN from the previous year to determine your earnings? Or do they somehow track your current salary? I'm so confused about how they even know what you're making during the year when they calculate these deductions!!
Good question. SSA asks you to estimate your earnings for the year when you apply. They'll pay benefits based on that estimate. Later, when tax information becomes available, they'll compare your actual earnings to your estimate. If you earned more than estimated, you may have to repay some benefits. If you earned less, they may send you additional payments. If your earnings change significantly during the year, you should notify SSA to avoid potential overpayments or underpayments.
I just went through this exact situation! Few tips from my experience: 1) Apply for the survivor benefits even with your higher income. Yes, most will be withheld, but it establishes your eligibility and the withholdings aren't permanently lost. 2) SSA's online system won't let you apply for survivor benefits - you MUST call or visit in person. 3) Getting an appointment took me 3+ months, but I used Claimyr.com to reach an agent quickly who helped me complete everything by phone. 4) Have ALL your documents ready when you call: marriage certificate, divorce decree, death certificate, birth certificate, tax returns, etc. 5) The agent may encourage you to wait due to your income, but it's often better to have your application on file now. Hope this helps! Navigating this wasn't easy but definitely worth it for the long-term strategy.
Thank you for sharing your experience! I'll definitely have all my documents ready. Did they need original documents or were copies acceptable when you applied?
one more thing DONT FORGET to return the last check if SS deposited money for the month she died!! they will take it back later anyway and charge you interest or penalties. they did this to my brother and it was a huge mess cause he spent the money not realizing
That's a really good point - thank you! I'll check with my dad about this right away. Mom passed on the 14th of last month, so I'm not sure how that works with partial months.
For Social Security benefits (including SSDI), if the person passes away at any point during a month, they are NOT entitled to the payment for that month. So if your mother passed on the 14th, the payment received for that month would need to be returned. If benefits are directly deposited, SSA will usually attempt to reclaim the funds electronically. If they can't, they'll send a notice requesting repayment. As the previous commenter mentioned, it's best to be proactive about this to avoid complications.
so sorry about your mom :( my dad died last year and we had to deal with all this ss stuff too. really stressful time. we found out the funeral home actually reported his death to ssa for us, maybe yours did too? might wanna check
Freya Christensen
can someone explain in simple terms what WEP even is?? i keep hearing about this fairness act but dont understand if it affects me or not. i worked for the post office for 22 years and get a pension from that, then worked at walmart for 18 years paying into social security. do i need to do something different when i apply for SS next year??
0 coins
Isabella Costa
•Great question. WEP (Windfall Elimination Provision) reduced Social Security benefits for people who earned pensions from jobs not covered by Social Security (like many government jobs) but also worked enough in Social Security-covered jobs to qualify for benefits. As a postal worker, your pension was from a Social Security-covered job, so WEP never applied to you. You would have been affected by WEP only if your pension came from a job where you didn't pay Social Security taxes (like some state/local government positions, or foreign employment). When you apply next year, you'll get your full Social Security benefit based on your 18 years at Walmart without any WEP reduction.
0 coins
Javier Cruz
I'm confused about the retroactive benefits. I thought you could only get 6 months of back benefits once you're past FRA? But the OP's wife had been past FRA for about 8 months (May 2024 to January 2025). Shouldn't she have been able to get 8 months of back benefits instead of just 6?
0 coins
Isabella Costa
•You're right about the confusion, but the 6-month limit is correct. Even though you can apply after FRA and request retroactive benefits, SSA limits the retroactivity to 6 months maximum regardless of how long past FRA you are. It's in the POMS section GN 00204.030. So even if someone is 2 years past their FRA when they apply, they can still only get a maximum of 6 months of retroactive benefits. The OP's wife received exactly what was allowed under the rules.
0 coins
Javier Cruz
•Oh I see! Thanks for explaining. That's good to know since I'll be helping my sister apply soon and she's about 9 months past her FRA.
0 coins