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I'm new to this community and going through a very similar situation with my disabled daughter's SSI application. Our representative also told us that property taxes and homeowners insurance weren't needed, which immediately seemed wrong to me since these are major housing expenses. Reading through all of your experiences has been incredibly helpful and confirms my suspicions that this is a widespread training issue across SSA offices. The consistency of representatives giving identical incorrect information is really concerning, especially when it affects benefit calculations for our most vulnerable children. Emma Wilson's insider perspective has been invaluable - having confirmation from someone who actually worked in the system that ALL housing expenses should be included gives me the confidence I need to call back and advocate properly. I had no idea Technical Experts who specialize in childhood SSI claims even existed, but I'm definitely going to ask for one when I call. It's frustrating that we have to become SSA policy experts just to ensure our disabled children get the benefits they're entitled to, but I'm grateful for this community support. The advice about documentation, POMS references, and being persistent but polite is exactly what I needed to hear. Rachel, I hope your call went well! Please update us when you can - your experience will definitely help guide the rest of us who are dealing with this same issue.
I'm new here but wanted to share that I went through something very similar with my disabled son's SSI application last year. Our initial representative told us the same thing about property taxes and insurance not being needed, and we ended up with a benefit calculation that seemed too low. After reading stories like yours in various forums, I called back and specifically asked for a Technical Expert. The difference was night and day - the TE immediately recognized that all housing costs should have been included and corrected our case. It took about 6 weeks to get the adjustment processed, but my son's monthly benefit increased significantly once they factored in our complete housing expenses. The key things that helped me were: 1) Being persistent but polite when asking for a specialist, 2) Having all my documentation ready (property tax bills, insurance statements, utility bills), and 3) asking them to note in the file that incomplete information was collected during the initial interview due to rep error, not parent oversight. Don't wait - call as soon as possible before they finalize the determination. Once it's processed incorrectly, fixing it takes much longer. Your grandson deserves the full benefit amount he's entitled to, and you're absolutely right to question this. Good luck!
Isaac, thank you so much for sharing your success story! It's incredibly encouraging to hear from someone who went through this exact situation and got it resolved. The fact that your son's benefit increased significantly once they included all housing expenses really drives home how important this issue is. Your advice about being persistent but polite when asking for a Technical Expert is spot-on - I think that's going to be key for all of us dealing with this. And having all the documentation ready beforehand is such a smart approach. I'm definitely going to follow your example and ask them to note that the incomplete information was due to rep error, not my oversight. The timeline you mentioned (6 weeks for adjustment) is really helpful to know too. While that seems long when you're waiting for benefits, it's much better than going through a full appeal process like some others have mentioned. Your point about not waiting until after they finalize the determination is crucial. I'm planning to call first thing tomorrow morning, and your success story gives me confidence that this can be resolved if I'm prepared and persistent. Thank you for taking the time to share your experience - it really helps to know that other families have successfully navigated this challenge!
Isaac, your success story gives me so much hope! It's exactly what I needed to hear right now. The fact that you were able to get your son's benefit amount corrected by working with a Technical Expert proves that persistence really does pay off when dealing with these issues. Your three-step approach is incredibly practical and I'm going to follow it exactly: be persistent but polite, have all documentation ready, and make sure they note the rep error in the file. The 6-week timeline for adjustment is also really helpful to know - while it's frustrating to wait that long, it's so much better than the appeal process that others have mentioned. I'm calling tomorrow morning and your experience gives me confidence that I can get this resolved before they finalize my grandson's determination. Thank you for taking the time to share your story - it's proof that advocating for our children really can make a difference in getting them the full benefits they deserve!
I'm dealing with the exact same situation! Applied online in mid-February for benefits starting in September 2025 (I'll be 66 and 4 months). Haven't heard a peep from SSA and my status has been stuck on "under review" for almost a month now. I was really starting to panic, especially after seeing so many posts about people getting calls within 48 hours of applying. But after reading through all these responses, I feel so much better! The explanation about SSA prioritizing immediate start cases first and then working backwards makes perfect sense. Since we're all still 5-6 months out from our benefit start dates, we're just not urgent cases right now. It's actually reassuring to know that no contact often means everything is proceeding normally for straightforward applications like ours. Thanks for posting this question - you've helped calm the nerves of quite a few of us who are in the same boat!
I'm so glad to see I'm not alone in this! I applied around the same time as you (mid-February) for benefits starting in August 2025, and I've been having the exact same worries. It's incredible how much anxiety we put ourselves through when everything is actually proceeding normally! Reading all these responses has been like a masterclass in how SSA really operates behind the scenes. The fact that so many people have shared nearly identical experiences - no calls, "under review" status for weeks, then everything processing smoothly - really drives home that this is just how the system works for delayed start applications. I think I'm going to bookmark this thread to come back to if I start getting anxious again before my August start date. Thanks to everyone who shared their experiences - it's made such a difference in my stress level!
I'm in almost the exact same situation and this thread has been a lifesaver for my anxiety! Applied online in early February for benefits starting in September 2025 (I'll be 66 and 2 months). Like so many others here, no call from SSA and my status has been "under review" for over a month. I was convinced I'd made some error on my application, especially after seeing posts about people getting calls within days. What really helped me understand was the explanation about SSA processing applications in different queues based on start date proximity. It makes total sense that they'd prioritize immediate benefit cases over those of us who are still 6+ months out. The fact that so many people here have shared nearly identical experiences - no contact, months of "under review" status, then smooth processing - really confirms this is just how the system works for delayed start applications. I'm definitely going to follow the advice about waiting until I'm about 3 months out before getting concerned. For now, I'll just check my mySocialSecurity account monthly instead of obsessing over it weekly. Thanks to everyone who shared their timelines - it's amazing how much peace of mind comes from knowing this is completely normal!
I'm getting so confused by all the different rules! Let me see if I understand correctly: 1. My husband can apply for spousal benefits based on my SSDI 2. He'll get either that OR his own benefit (whichever is higher) 3. If he claims at 63, he gets a reduced amount 4. If he's earning too much, they'll take some back So is there ANY advantage to him claiming early? Or should he just wait until his Full Retirement Age? His health isn't great either, so we're worried about waiting too long...
Whether to claim early is a personal decision based on your specific circumstances. The advantage of claiming early is getting benefits sooner - more total payments over time if longevity is a concern. The disadvantage is permanently reduced monthly amounts. With health concerns, sometimes claiming early makes sense. The typical break-even point is around age 80 - if he expects to live beyond that, waiting provides more lifetime benefits. If not, claiming earlier might be better. Given your situation, I'd recommend having that conversation with an SSA representative who can provide the exact dollar amounts for different scenarios.
Hey Sean! I went through something similar with my parents a few years ago. One thing that really helped us was creating a simple spreadsheet to compare the scenarios: 1. What he'd get claiming his own benefit at 63 (reduced) 2. What he'd get claiming spousal benefit at 63 (35% of your PIA) 3. What he'd get waiting until his FRA for either option We plugged in his estimated earnings from part-time work and factored in the earnings test deductions. It made the decision much clearer when we could see the actual dollar amounts side by side. Also, since you mentioned his health concerns - that's definitely a factor to consider. The "break-even" analysis is important, but peace of mind and having income now can be worth the reduction if you're worried about future health issues. Have you been able to find out what your actual PIA is? That's the key number you need to calculate the spousal benefit amounts. It should be on your SSDI award letter or your my Social Security account.
This spreadsheet idea is brilliant! I'm definitely going to try this approach. You're right that seeing the actual numbers side by side would make this so much clearer. I do have my SSDI award letter somewhere - I'll need to dig it up to find my PIA. That's the piece I was missing to calculate the spousal benefit amounts properly. The health factor is really weighing on us. It's hard to know what the right choice is when you're balancing guaranteed money now versus potentially more money later. Thanks for putting it in perspective about peace of mind - that's worth something too. Did your parents end up claiming early or waiting? How did that work out for them?
This has been such an incredibly informative discussion! As someone who works with seniors navigating Social Security benefits, I can't stress enough how valuable this real-world experience sharing is. What strikes me most is how TechNinja's success story demonstrates that persistence and knowledge really pay off - literally in this case! For anyone else reading this thread who might be in a similar situation, I'd add one more tip: if you're married and one spouse is receiving SSDI while the other is on retirement benefits, it's worth reviewing your situation annually. Sometimes people's circumstances change (like cost of living adjustments affecting benefit amounts) that could make spousal benefits newly available or more advantageous. Also, keep in mind that this spousal benefit eligibility works both ways - whether it's the older spouse on retirement and younger spouse on SSDI (like TechNinja's situation) or vice versa (like Dylan's upcoming situation). The $300 monthly increase TechNinja secured could amount to over $3,600 annually - that's significant money that many people are leaving on the table simply because they don't know these rules exist!
This is such excellent advice about reviewing benefits annually! As someone new to understanding Social Security, I hadn't considered that benefit amounts could change over time and potentially make spousal benefits newly available. The point about this working "both ways" regardless of which spouse is older really helps clarify the rules. Reading through everyone's experiences here has been eye-opening - I had no idea so many people were potentially missing out on additional benefits simply due to lack of awareness. The $3,600 annual impact you mentioned really puts it in perspective! I'm going to share this thread with my parents who are both on Social Security to see if they might be in a similar situation. Thank you to everyone who shared their experiences and expertise - this community is amazing for helping people navigate these complex benefit rules!
This thread has been absolutely invaluable! I'm in a very similar situation - my husband has been on SSDI for about 6 months (he's 58) and I've been collecting my own Social Security retirement since I turned 62 last year. My benefit is only $950 monthly while his SSDI is $2,200. Based on all the helpful information shared here, it sounds like I could potentially get an additional $150 per month (bringing me up to 50% of his $2,200 = $1,100). I had no idea this was even possible! I'm definitely going to call SSA next week to apply. One question though - since I took my retirement benefits early at 62 (before my full retirement age), will that affect my eligibility for spousal benefits in any way? I know there are different rules sometimes when you take early retirement, so I want to make sure I understand before I call. Thank you to everyone who shared their experiences - TechNinja's success story gives me so much hope that this will work out!
Your math looks right on the potential $150 monthly increase! Regarding your question about taking early retirement at 62 - the good news is that since you're already receiving your own retirement benefits, the early retirement reduction won't affect your eligibility for spousal benefits. The spousal benefit calculation is still based on 50% of your husband's SSDI amount, and you'd get the difference between that and your current benefit. However, there's one thing to keep in mind: if you had waited until your full retirement age to file for your own benefits, your personal benefit amount would have been higher, which could have affected the spousal benefit calculation. But that's water under the bridge now - what matters is your current situation, and you should definitely be eligible for that extra $150 monthly. The early filing only affects the benefit you're already receiving, not your eligibility for spousal benefits based on his SSDI record. Good luck with your call to SSA next week!
Ryan Young
Another important point: If you apply for spousal benefits now and your husband passes away later, you can switch to survivor benefits. The reduction in your survivor benefit would be based on your age at the time you apply for survivor benefits, not when you applied for spousal benefits. If you can manage financially, waiting until your full retirement age to claim spousal benefits would give you the full 50% of his PIA. However, there's always the time value of money to consider - getting some benefits for 4 years versus waiting for the full amount. I suggest creating a simple spreadsheet to calculate your lifetime expected benefits under different claiming scenarios. This can help you make a more informed decision based on your specific financial situation.
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Michael Adams
•I appreciate the detailed advice. I hadn't thought about creating a spreadsheet to compare the options - that's a great idea. I'll try to work through some numbers and see what makes the most sense for our situation.
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Miguel Harvey
I went through something very similar with my mom a few years ago! One thing that really helped us was getting her complete earnings record from SSA (not just the online summary) to make sure all her work history was captured. You can request this by calling or visiting a local office. Also, since you mentioned your husband just turned 65, his SSDI benefits will automatically convert to regular retirement benefits at his full retirement age, but the dollar amount stays exactly the same. This won't affect your spousal benefit calculations at all. For what it's worth, we decided to have my mom start her spousal benefits early because we needed the monthly income, even though it meant a permanent reduction. Every family's situation is different, but sometimes the guaranteed money now is worth more than the potential for higher payments later. The peace of mind was valuable too. Have you considered visiting your local SSA office in person? I know it's a hassle, but we found the face-to-face service was much better than trying to get through on the phone.
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Mason Kaczka
•Thank you for sharing your experience! That's really helpful to hear how it worked out for your family. I think you're right about visiting the local office - I've been putting it off because of the hassle, but it sounds like it might be worth the trip to get clear answers face-to-face. I'll also look into getting my complete earnings record like you suggested. The peace of mind factor is definitely something to consider too - sometimes knowing you have that monthly income coming in is worth more than optimizing for the highest possible amount later.
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