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Social Security hearing date wait time for disabled adult child (DAC) claim - how to prepare my anxious daughter

Our family is navigating the SSDI appeals process for my 22-year-old daughter who has a rare chromosomal deletion that affects her intellectual and mental functioning. We just secured an attorney after the reconsideration denial, and now we're waiting for the ALJ hearing. Two questions I'm really struggling with: 1) How long do these hearing wait times typically take? Our attorney mentioned 6-9 months but wasn't certain. Anyone gone through this recently? 2) My daughter currently receives benefits on her disabled father's record, but I've been told she needs to qualify for SSDI on her own to be eligible for Disabled Adult Child (DAC) benefits. Is pursuing DAC benefits part of this same hearing process, or is that completely separate? My biggest worry is the hearing itself. My daughter gets extremely anxious around strangers, especially men, and can completely shut down during stressful conversations. She'll either not respond at all or just say whatever she thinks they want to hear. How much will she need to speak directly to the judge? Should we request a female judge if possible? Any tips for preparing someone with intellectual disabilities for this kind of hearing? The SSA already denied her at reconsideration saying they "don't have enough evidence" of disability, which is frustrating because her chromosomal deletion is documented and causes progressive issues. It feels like they're ignoring her actual condition.

I'm a disability advocate and wanted to share some additional insights that might help. The wait times vary significantly by hearing office - some are as short as 4-6 months while others can stretch to 12+ months. You can actually look up your specific hearing office's average processing time on SSA's website to get a better estimate. One thing I always tell families is to document EVERYTHING during this waiting period. Keep a daily log of your daughter's challenges, meltdowns, assistance she needs, etc. This real-time documentation can be incredibly powerful evidence that shows her consistent limitations rather than just a snapshot from medical appointments. For the hearing itself, I'd strongly recommend requesting accommodations in writing well before the hearing date. This should include having you present to assist with communication, allowing breaks if she becomes overwhelmed, and using simple language. Don't just rely on verbal requests the day of the hearing. Regarding DAC benefits - this is actually a separate application process, but the disability determination from your SSDI hearing can be used for the DAC claim. If approved, DAC benefits are often higher than what someone would get on their own record, especially for someone young with limited work history. Your attorney should be explaining all of this clearly. If they're not, don't hesitate to ask pointed questions or even consider getting a second opinion. You're your daughter's best advocate in this process!

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This is such comprehensive advice, thank you! I had no idea we could look up our specific hearing office's processing times - that's really helpful information. I'm definitely going to start keeping that daily log you mentioned. You're right that we need real-time documentation of her struggles rather than just relying on periodic medical appointments. The point about requesting accommodations in writing is crucial - I was planning to just mention it verbally but putting it in writing makes much more sense. And thank you for clarifying about the DAC benefits being a separate application. Our attorney really hasn't explained this well, and honestly after reading all these responses I'm wondering if we should be asking more pointed questions or even getting a second opinion like you suggested. It's reassuring to hear from a disability advocate that we're on the right track. This whole process has felt so overwhelming, but having specific action steps like the daily log and written accommodation requests makes me feel like we can actually prepare effectively. Thank you for taking the time to share your expertise!

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I'm going through a similar situation with my adult son who has autism and intellectual disability. We're about 6 months into our hearing wait after reconsideration denial, and I completely understand your anxiety about the process. A few things that have helped us prepare: First, I started keeping a detailed journal of his daily challenges and needs for assistance - things like needing reminders to eat, getting overwhelmed by changes in routine, difficulty with phone calls or paperwork. This documentation has been invaluable for showing his real-world limitations. For the hearing anxiety, our attorney suggested we could request a "pre-hearing conference" where we briefly meet the judge beforehand so my son can get familiar with them before the actual hearing. This might help your daughter feel less anxious about speaking to a stranger. Also, regarding your comment about her potentially saying what she thinks people want to hear - this is SO common with people who have intellectual disabilities. Make sure your attorney understands this "masking" behavior and can explain it to the judge. We've been practicing with my son that it's okay to say "I don't know" or "I need help with that" rather than just agreeing. One practical tip: bring a comfort item or fidget tool for your daughter if that helps her self-regulate during stressful situations. Most judges are understanding about these accommodations. The waiting is absolutely the hardest part, but you're doing everything right by getting an attorney and preparing thoroughly. Your advocacy for your daughter is clear in every word you've written.

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One final note: make sure when you speak with RRB that you specifically ask about the

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I'm in a similar situation and went through this process last year. The key thing to understand is that Railroad Retirement Tier 1 benefits are already coordinated with Social Security - you're essentially getting the Social Security equivalent through RRB. However, you should definitely check with RRB about your ex-husband's record since you were married 15 years. Even though you can't "double dip" and get full benefits from both systems, RRB will calculate if your ex-husband's Social Security earnings record would result in a higher benefit than what you're currently receiving. If so, you might be entitled to the difference. The Social Security Fairness Act that passed recently mainly affects WEP/GPO provisions for government workers, not Railroad Retirement beneficiaries. When you call RRB, ask them to run a "deemed filing" calculation using your ex-husband's Social Security record to see if you qualify for any additional amount.

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This is really helpful! I'm new to understanding these systems and this explanation makes so much more sense than what I was reading online. Can you clarify what "deemed filing" means exactly? Is that something I need to request specifically when I call RRB, or will they automatically check that for me? Also, about how long does it typically take for them to run those calculations? I'm trying to figure out if it's worth the effort given what others have said about RRB's long wait times.

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As someone who works in elder services, I want to emphasize that your brother's situation is actually quite common and manageable. The most critical thing is that he files for his Social Security benefits immediately - every month of delay is literally money out of his pocket that he can never recover. Here's what I typically advise clients in similar situations: 1) File the Social Security application online at ssa.gov right away, 2) Within a week of filing, contact both the child support enforcement agency and the IRS to proactively discuss payment arrangements before automatic garnishments begin, 3) Request hardship evaluations from both agencies if the combined garnishments would leave him below subsistence level. Most importantly, he should know that Social Security benefits can never be completely garnished - there are federal protections in place. Even in worst-case scenarios, he'll likely retain 35-50% of his benefits, which is infinitely better than the zero dollars he's receiving by avoiding the system. The fear of garnishment shouldn't prevent him from claiming benefits he's rightfully earned through decades of work.

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This is such reassuring advice from someone who works directly with people in these situations! The step-by-step plan you've laid out makes this feel much more manageable. I really appreciate you emphasizing that this is a common situation - my brother has been feeling like he's the only person who's ever gotten into this kind of mess. The timeline you suggest (file immediately, then contact agencies within a week) seems like the perfect balance between not delaying benefits any longer while still being proactive about the garnishment issue. It's also really helpful to know that even in worst-case scenarios, he'd likely keep 35-50% of his benefits. That percentage, while not ideal, would still give him a foundation to rebuild from. I'm going to share all of this advice with him this weekend and help him get his application started online. Thank you for taking the time to provide such practical, professional guidance!

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As a newcomer to this community, I want to thank everyone for sharing such detailed and helpful advice on this important topic. Reading through all these responses has been incredibly educational about how Social Security garnishments actually work in practice. The consensus seems very clear - your brother should absolutely file for his benefits immediately despite his debt concerns. What really stands out to me is how many people emphasized that he's losing money every single month he delays, and that even with garnishments, some income is infinitely better than no income. The practical advice about contacting agencies proactively to set up voluntary payment plans before automatic garnishments kick in seems especially valuable. I hope your brother takes action soon - it sounds like he has a much better path forward than he probably realizes!

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I completely agree - this thread has been such a valuable resource! As someone who's also new to understanding how Social Security and debt garnishments interact, I've learned so much from everyone's experiences and professional insights. The consistent message that filing immediately is better than continuing to delay really comes through loud and clear. What struck me most was learning about the federal protections that prevent 100% garnishment - I had no idea those safeguards existed. The practical timeline suggestions about filing first and then immediately contacting the agencies for voluntary payment arrangements also makes perfect sense. Your brother is lucky to have you advocating for him and helping him navigate this. Hopefully with all this great advice, he'll feel more confident about taking that first step and getting his application submitted!

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Thank you all for the thoughtful responses. After reading through everything, I think I'll take the following approach: 1. Talk to my doctor next week about whether my condition meets SSA's disability criteria and get their opinion on filing for SSDI 2. Make sure my part-time hours keep me under the SGA limit while applying 3. Begin the SSDI application process and see what happens 4. If denied, I'll still have my original plan of taking early retirement at 62 The potential financial difference between SSDI and early retirement seems significant enough to at least try applying. Even if it's a long process, I've still got almost 2 years before I turn 62, so there's time to navigate the system. I really appreciate all the personal experiences and expertise shared here!

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That sounds like a very sensible approach. One additional tip: when you apply, make sure to focus on how your medical condition impacts your ability to work full-time. Describe specific limitations (lifting restrictions, inability to sit/stand for long periods, concentration issues, etc.) rather than just listing diagnoses. SSA is primarily concerned with functional limitations affecting work ability. Best of luck with your application!

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As someone who recently went through a similar decision process, I'd strongly recommend documenting everything about your medical condition and work limitations NOW, before you apply. Keep a daily log of symptoms, bad days, how your condition affects your work performance, etc. I made the mistake of applying without thorough documentation and got denied initially. Had to go through the appeals process with much better records the second time around. Also, consider getting a functional capacity evaluation from your doctor - SSA really values objective medical evidence about what you can and can't do work-wise. Your plan sounds solid, but be prepared for the process to take longer than expected. I'd also suggest applying online rather than over the phone - the SSA website lets you save your progress and you have more control over the information you provide. Good luck! The financial difference really is worth pursuing, especially since you have that backup plan at 62.

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This is really helpful advice about documentation! I've been pretty casual about tracking my symptoms and limitations, but you're absolutely right that I should start keeping detailed records now. The functional capacity evaluation suggestion is particularly valuable - I hadn't thought about getting objective medical evidence beyond my regular doctor visits. Thanks for the tip about applying online too. Did you find the appeals process very stressful, or was it manageable once you had better documentation?

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I went through this exact calculation with my mom when my dad passed in 2019. She was born in 1957 so her survivor FRA was 66 and 6 months. What really helped us was creating a spreadsheet to compare the monthly benefit amounts at different claiming ages. Don't forget that once you start receiving survivor benefits, you'll also get annual cost-of-living adjustments (COLA), so starting a bit earlier might make sense depending on your financial situation. Also, survivor benefits aren't subject to the earnings test once you reach your survivor FRA, which is different from regular retirement benefits. The SSA representatives can run benefit estimates for you at different ages if you call with your husband's Social Security number and death certificate information.

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That's really helpful about the spreadsheet approach and the COLA adjustments! I hadn't thought about how the annual increases would compound over time. Can you clarify what you mean about the earnings test not applying to survivor benefits at FRA? I'm still working part-time and wasn't sure if that would affect my survivor benefits once I claim them.

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I work at a local SSA field office and deal with survivor benefit calculations daily. Yes, SSA absolutely prorates survivor benefits by month - there's no waiting until the next age milestone. However, I want to clarify something important that might be confusing you. The percentages you mentioned (91.86% at 65, 95.93% at 66) seem to be from a general chart, but your actual calculation depends on YOUR specific Full Retirement Age for survivor benefits based on your birth year. If you were born in 1958, your survivor FRA is 66 and 8 months, which means at 66 and 6 months you'd actually get about 99.125% of your husband's benefit (only a 0.875% reduction for being 2 months early). I'd recommend calling SSA with your husband's information to get your exact benefit estimate at different claiming ages - they can run scenarios for you. The difference between using the wrong FRA assumption versus your actual FRA could be significant over time.

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