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Charlotte Jones

Can I get CalWORKs while caring for my son with disability? SSI application pending

I'm at my wits end trying to figure out our financial situation. My 3-year-old son was born with a spinal cord injury that requires round-the-clock care. I had to quit my job as a medical assistant to take care of him full-time. I tried starting a small online business selling handmade items, but I'm only making about $230-280 a month which isn't nearly enough. I applied for SSI for my son about 6 weeks ago but haven't heard anything back yet. His condition is permanent and requires ongoing medical appointments and therapy. Meanwhile, bills are piling up and I'm behind on rent. Can I apply for CalWORKs while waiting for his SSI decision? Will I be exempt from the Welfare to Work requirements since I need to be his caretaker? I'm a single parent and have no family support nearby to help with his care. Any advice would be so appreciated.

Yes, you absolutely should apply for CalWORKs right away! You don't need to wait for the SSI decision. The two programs are separate and you can potentially receive both (though his SSI amount might be reduced once approved). As for the Welfare to Work exemption - yes, you should qualify for a caretaker exemption if your child has a medical condition requiring your full-time care. You'll need to get a CW 61 form filled out by his doctor documenting his condition and why you need to be his caretaker. Make sure the doctor is very clear about why you need to be home caring for him full-time. I'd also recommend applying for CalFresh (food stamps) and Medi-Cal if you haven't already. You can do all these applications online through BenefitsCal.com or in person at your county office.

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Thank you so much for this information! I had no idea about the CW 61 form. Do you know if there's any limit to how long I can have this exemption? His condition is permanent, so I'm wondering if I'll need to keep getting new forms filled out.

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I was in a similar situation last yr with my daughter who has cerebral palsy. The wait for SSI is HORRIBLE - took us almost 9 months to get approved!!! BUT calworks was a lifesaver while waiting. One thing - when you go for ur calworks interview make sure to ask about the special needs supplement too. Its extra $ if ur child has special requiremnts. And def ask for the WTW exemption right away, dont wait for them to bring it up. Also apply for IHSS!!! In-Home Supportive Services can pay YOU as a caregiver for ur son. Its separate from calworks but you can get both. That helped me the most honestly.

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IHSS was going to be my suggestion too! My nephew gets it for his autism and my sister-in-law is his paid caregiver. Takes a while to get approved but it's backdated to when you applied. Really helps with the financial strain.

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The caretaker exemption for CalWORKs is definitely what you need. I'm a former eligibility worker, and this is exactly what this exemption is designed for. A few important points: 1. The exemption can be ongoing as long as the medical condition persists and requires your care 2. You'll still need to complete your Semi-Annual Reports (SAR 7) every six months 3. When your child's SSI is approved, you must report it within 10 days as it will affect your CalWORKs grant 4. The 48-month time limit on CalWORKs doesn't apply while you have this exemption Bring as much medical documentation as possible to your CalWORKs interview. The more evidence you have of your son's condition and care needs, the smoother the process will be. Good luck with everything!

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This is really helpful, thank you! I didn't know about the time limit exemption. Do I need to reapply for the caretaker exemption at certain intervals, or just make sure I mention it on my SAR 7 reports?

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applyin for calworks is a nightmare right now!! i been trying to reach someone for THREE WEEKS about my application and keep getting disconnected or waiting 2+ hours on hold just to get hung up on!!! the system is so broken

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I had the same problem last month trying to update my address after moving. Found this service called Claimyr that got me through to a worker in about 10 minutes when I'd been trying for days. They have a video showing how it works: https://youtu.be/jzISHxCPLwE Basically they wait on hold for you and call when a person picks up. You can apply online through BenefitsCal but for getting specific questions answered about exemptions and stuff, you'll probably need to talk to someone. Their website is claimyr.com - saved me hours of frustration!

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Hey there, dont get discouraged about the SSI process. My daughter got denied the first time even though she has severe autism and needs 24/7 supervision. We appealed and eventually got approved with backpay. The system is designed to reject people the first time IMO. For CalWORKs, make sure you tell them you have $0 income if the business isn't making any profit after expenses. They count net income not gross for self-employment. If you're spending more on supplies than you're making, that's $0 income as far as they're concerned. And definitely apply for IHSS like others mentioned!!!

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That's helpful to know about the SSI denials being common. I've heard that from others too. For my business, I'm actually making a small profit after expenses, but it's nowhere near enough to live on. I'll definitely look into IHSS too!

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idk why noone mentioned diaper assistance!!! If your 3yo isn't potty trained due to his condition (many kids with disabilities take longer), CalWORKs has a special $30/month diaper benefit for kids with disabilities who are over 2 and need diapers. Ask about it in your interview!

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Omg yes!! I forgot about this one. My worker never told me about it either, I had to specifically ask. The system doesn't volunteer these benefits, you gotta know to ask!!

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I think youre confused, CalWORKs is for people who work or are looking for work. If your caring for a disabled kid you want SSI not CalWORKs. My cousin tried to get cash aid and they made her do job search even with a sick kid.

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This isn't correct information. CalWORKs absolutely has exemptions for parents caring for children with disabilities. Your cousin may not have requested the exemption properly or provided sufficient medical documentation. The CW 61 form needs to be completed by a medical provider clearly stating why the parent needs to be the full-time caregiver. The OP should apply for both SSI for the child AND CalWORKs for the family, as these serve different purposes and she may qualify for both.

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One more important thing - when your son does get approved for SSI, his CalWORKs will be reduced but you can still receive some for yourself as his caretaker. The SSI is just for him, while CalWORKs can cover both of you. Also, ask about the housing assistance programs through CalWORKs since you mentioned being behind on rent. There's both a homeless assistance program if you're at risk of eviction and a housing support program that can help with ongoing rent. Hang in there - navigating these systems is exhausting but there is help available!

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Thank you so much everyone for all this information! I've made an appointment at the county office for next week. I'm bringing all his medical records and will ask about the CW 61 form, IHSS, the diaper benefit, and housing assistance. I feel much more prepared now about what to ask for specifically instead of just generally asking for help. I'll update once I know more!

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Good luck with your appointment! One thing I'd add - if possible, bring someone with you to the appointment to help advocate for you and take notes. The county workers are often rushed and it's easy to miss important information when you're stressed about your situation. Also, if they deny your caretaker exemption initially (which sometimes happens even with proper documentation), don't give up! You have the right to request a State Hearing to appeal their decision. I had to do this for my brother who cares for his autistic son, and we won the appeal. Make sure to ask for copies of everything they give you, and get the worker's name and contact info. Having a specific person to follow up with makes a huge difference. You're doing an amazing job caring for your son under such difficult circumstances!

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