Will marriage affect my fiancé's SSDI and Medicaid benefits with my income?
Hi everyone, I've been putting off marriage for 3 years because of benefit concerns, and I'm hoping someone has experience with this. My fiancé receives SSDI (about $1,250/month) and has Medicaid coverage that pays for his medications and treatments for a serious health condition. We want to finally get married this summer, but I'm terrified my income (I make about $58,000/year) will either reduce his disability payments or cause him to lose his Medicaid coverage entirely. I keep finding conflicting information online - some sites say SSDI isn't affected by spouse's income, but others mention something about family maximum limits? And everything I read about Medicaid suggests he'll definitely lose that coverage. We can't afford his medical expenses without insurance, and my employer's health plan has a $7,500 deductible which would be devastating for us financially. Has anyone here navigated this situation successfully? Are there any options that would let us marry without jeopardizing his benefits?
18 comments
Elijah Brown
Your fiancé's SSDI benefits will NOT be affected by your income after marriage. SSDI is based on the worker's previous earnings record and isn't means-tested. However, you're right to be concerned about Medicaid - that's where the problem usually comes in. If his Medicaid eligibility is tied to his SSI status (which is different from SSDI) or to income thresholds, then yes, your income would likely be counted in determining continued eligibility after marriage. I'd suggest contacting your state's Medicaid office directly to understand the specific rules in your state, as Medicaid regulations vary significantly by location.
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Zoe Walker
•Thank you so much for clarifying! He's definitely on SSDI, not SSI. That's a relief about the SSDI payments not being affected. Do you know if there are any special Medicaid programs or waivers for people with disabilities that might allow him to keep coverage even after marriage? I'll definitely contact our state Medicaid office, but it's so hard to get straight answers from them sometimes.
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Maria Gonzalez
I was in ALMOST the same boat 2 years ago!!! My now-husband has been on SSDI for 8 years (chronic kidney disease) and we worried about the EXACT same thing. When we got married, his SSDI checks stayed EXACTLY the same amount - not a penny difference!!! BUT - and this is the BIG problem - he DID lose his Medicaid within 3 months after our marriage. They counted our combined income and it was WAY over the limit. It has been a NIGHTMARE trying to get him affordable coverage since then. My work insurance is terrible for his conditions and we're paying almost $900/month for medications now. I really wish someone had warned us about this part before we got married!!!!
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Zoe Walker
•Oh no, I'm so sorry you went through that! This is exactly what I'm afraid of. $900/month for medications is impossible for us on top of regular bills. Did you look into any assistance programs or appeals with Medicaid? I'm wondering if there are any exceptions they make for people with serious health conditions.
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Natalie Chen
my cousin married his girlfriend last year and he gets disability too. they didnt have any problems with his payments but idk about the medicaid part. maybe you could just not get married officially? like have the ceremony but not sign the papers? thats what my neighbor did
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Zoe Walker
•We've thought about that option too, but we really want the legal protections of marriage, especially for hospital visitation rights and making medical decisions if needed. But it might come down to that if there's no other solution. Thanks for sharing about your cousin's experience!
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Santiago Martinez
To clarify some misinformation - SSDI (Social Security Disability Insurance) is NOT affected by spousal income as it's based on the disabled person's work history. However, Medicaid eligibility rules vary by state, and in most states, household income (including spouse's income) is counted. Here are some options to consider: 1. Look into your state's Medicaid Buy-In program for workers with disabilities (even if your fiancé can only work minimally) 2. Check if your state offers Medicaid spend-down programs that might allow higher income levels 3. See if your fiancé qualifies for Medicare (typically after 24 months on SSDI) and explore Medicare Part D for prescriptions plus a Medicare Supplement plan 4. Consult with a benefits planner who specializes in disability benefits - many Centers for Independent Living offer this service for free Before making any decisions, get specific information for your state. The general rules are similar, but the income thresholds and available programs vary significantly.
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Maria Gonzalez
•I wish someone had told us about these options! The Medicare Part D still leaves a huge gap in coverage though - my husband hits the "donut hole" by March every year and then we pay so much out of pocket until catastrophic coverage kicks in. It's an awful system!!
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Samantha Johnson
My wife and I dealt with this last year. Its infuriating how the system basically punishes people for getting married! We actually postponed our wedding for 5 years because of this issue. Have you considered talking to a disability lawyer? We found one who gave us a free consultation and explained all our options. Medicaid is definitely the bigger concern than the SSDI.
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Zoe Walker
•That's a good idea about the disability lawyer. Did you end up finding any solution that worked for you? Did your wife keep her benefits after marriage?
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Samantha Johnson
•We did find a partial solution. She did keep her SSDI but lost Medicaid. We ended up with her on my employer insurance and then applying for every patient assistance program available from the pharmaceutical companies that make her meds. It's a ton of paperwork every year but saves us about 60% on her most expensive medication.
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Nick Kravitz
Have you tried calling Social Security directly to get specific information for your situation? I had to call them recently about a retirement benefit question, and after trying for weeks and being on hold forever, I found this service called Claimyr that got me through to an agent in under 5 minutes. You might want to check it out at claimyr.com - they have a video showing how it works: https://youtu.be/Z-BRbJw3puU The SSA agent I spoke with was actually really helpful and gave me specific information for my state. Given how complicated your situation is with both SSDI and Medicaid considerations, talking directly with an agent might be your best bet to get accurate information before making such an important decision.
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Zoe Walker
•Thank you for this suggestion! I've tried calling SSA a few times and could never get through - either constant busy signals or being on hold for hours before getting disconnected. I'll definitely check out that service. Did you find the information you got from the agent was accurate and helpful?
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Nick Kravitz
•Yes, the information was accurate in my case. The key is getting to the right department. I'd recommend asking immediately to speak with someone who specializes in disability benefits and marriage questions. Have your fiancé on hand too, as they'll need to verify his identity to discuss his specific case. They helped explain exactly how my mother's benefits would work in her situation.
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Hannah White
Just wanted to share that i know several couples who just had commitment ceremonies but never legally married to avoid this exact problem. its not fair but sometimes you gotta do what you gotta do. the govt shouldnt be in our personal business anyway!
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Natalie Chen
•yeah thats what my neighbor did! they had a big wedding and everything but never filed the papers. nobody knows except family.
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Elijah Brown
One important thing to check: has your fiancé been on SSDI for at least 24 months? If so, he should qualify for Medicare regardless of Medicaid status. Medicare Part B + Part D + a Medicare Supplement plan, while not free like Medicaid, can provide good coverage. If he has low income (not counting your income before marriage), he might also qualify for Extra Help with Medicare prescription costs. For the most accurate information, I'd recommend: 1. Contacting your state's Health Insurance Assistance Program (SHIP) for free unbiased Medicare/Medicaid counseling 2. Speaking with a benefits planner at a local Center for Independent Living 3. Getting specifics from your state's Medicaid office about how marriage would affect his particular type of Medicaid coverage Every state handles their Medicaid programs differently, especially for disabled individuals, so general advice online won't be as helpful as state-specific guidance.
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Zoe Walker
•Yes, he's been on SSDI for about 5 years, so he does have Medicare, but he has Medicaid as his secondary insurance which covers all the costs Medicare doesn't cover. Without the Medicaid, we'd still have the 20% coinsurance for all his frequent doctor visits, plus the prescription costs that Medicare Part D doesn't fully cover, which would be thousands each year. I'll definitely look into the SHIP program and the Extra Help program - I haven't heard of those before. Thank you so much for these specific suggestions!
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