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Will Social Security SSDI benefits stop after completing Trial Work Period and Extended Period of Eligibility?

I've been on SSDI (not SSI) for about 5 years now due to my spinal condition. I started working part-time 4 years ago and have already completed my 9-month Trial Work Period. I've also worked through 36 months of what my counselor called the "Extended Period of Eligibility" while staying under SGA limits. I'm now approaching the end of those 36 months but my medical condition hasn't improved, and I still need my benefits. If I continue working part-time (always below SGA which is $1,530/month in 2025), will my SSDI benefits eventually terminate? The PASS specialist at my local office wasn't clear, and I'm getting conflicting information online. Some sources say benefits continue indefinitely as long as I stay below SGA, others say there's an absolute cut-off after the TWP + 36 EPE months regardless of earnings. I'm really anxious about this because I can't afford to lose my Medicare or monthly SSDI payment, but I also can't afford to stop working. Has anyone navigated this post-EPE situation successfully?

Good news - your SSDI benefits will NOT stop after the Extended Period of Eligibility (EPE) as long as you continue earning below the Substantial Gainful Activity (SGA) threshold. The EPE is just the 36-month safety net where you can go above SGA in some months and still have your benefits reinstated automatically in months you go below SGA. After the EPE ends, your benefits continue if you're below SGA, but if you ever go above SGA after EPE, your benefits would terminate and you'd need to reapply completely. Just keep documenting your earnings carefully and reporting to SSA.

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Thank you so much! That's such a relief. So just to be 100% clear - even after 5, 10, or 20 years post-EPE, as long as I stay under the SGA limit, my SSDI payments will continue? My Medicare too?

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THEY WILL CUT U OFF!!!! I went through this EXACT thing and lost EVERYTHING after my 36 month EPE ended even though I was under SGA the whole time!!!! The system is BROKEN and they DO NOT CARE about disabled ppl who try to work part time!!!!! Been fighting this for 8 months and still waiting on my appeal hearing. Now im 62 and had to apply for early retirement ss which is WAY LESS than my SSDI was!!!!

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I'm sorry you went through this, but there must have been something else going on with your case. The official SSA policy is clear that benefits continue after EPE as long as you stay below SGA. Did you possibly miss reporting earnings or medical reviews? Sometimes people get terminated for those reasons rather than the EPE ending.

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my cousin was on ssdi kept working under the limit for like 7 years after his trial period and extended period and still gets his check every month. the key is staying under the sga limit. thats what matters. dont let the other comment scare u.

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Thanks, that's reassuring to hear a real example. I'm definitely careful to stay under SGA - I track my hours meticulously and never go above about $1,400 even though the limit is $1,530 now. I just get nervous because it's my only safety net with my condition.

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The work incentives for SSDI can be confusing but I'll explain it clearly: 1. Trial Work Period (TWP): 9 months where you can earn any amount and still receive full benefits 2. Extended Period of Eligibility (EPE): The next 36 months where benefits are suspended in months you earn over SGA but automatically reinstated in months you earn under SGA 3. Post-EPE: After those 36 months, you continue receiving SSDI as long as you stay under SGA ($1,530 in 2025) The key difference in post-EPE is that if you ever earn over SGA even for one month, your benefits terminate completely instead of being suspended. You'd need to file a new application rather than having benefits automatically reinstated. Your Medicare continues for at least 93 months after your TWP regardless of your earnings, and after that you can purchase Medicare coverage even if your SSDI ends.

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This is wrong. After 36 months of EPE you lose SSDI if you work at all. Doesnt matter if under SGA or not. Look it up.

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@user6 - That's incorrect information. I've worked as a benefits counselor for 15 years, and the official SSA rule is exactly as I described. Here's the direct quote from SSA's Red Book: "If your benefits are stopped because your earnings go above the SGA level after your EPE, we can start your benefits again without a new application if you are earning below the SGA level and you are still disabled." You can find this on page 23 of the 2023 Red Book. The only scenario where working under SGA would cause termination is if someone medically improved and no longer met disability criteria.

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Ok maybe Im confused it with SSI then. SSI has different rules. Sorry bout that.

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Try getting thru to someone at SSA directly to confirm before ur 36 mths end... good luck tho!! I tried calling them 37 TIMES last month about my backpay and couldnt get a human!! Kept getting disconnected or 2+ hour wait times. So annoying.

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If you're having trouble getting through to SSA by phone, I'd recommend trying Claimyr. It's a service that connects you directly to an SSA agent without the endless waiting. I was skeptical but it worked great when I needed to sort out my medical review status. They have a video showing how it works at https://youtu.be/Z-BRbJw3puU - definitely worth checking out if you're in a time-sensitive situation like approaching the end of your EPE. Saved me hours of frustration!

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One more important thing to note - make sure you're documenting any Impairment-Related Work Expenses (IRWEs) you have. These are costs related to your disability that allow you to work. They can be deducted from your earnings when calculating if you're over SGA. For example, if the SGA is $1,530, but you have $200 in IRWEs each month, you could actually earn up to $1,730 before reaching SGA. This gives you more flexibility and can help ensure you stay below SGA limits even if you occasionally earn a bit more.

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Wow, I didn't know about this! I pay about $180/month for special orthopedic shoes and transportation to work (can't drive with my condition). Would those count as IRWEs? That would give me a bit more breathing room with my hours.

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Yes, those would definitely count as IRWEs! Specialized footwear prescribed for your condition and transportation costs because you can't drive due to your medical condition are classic examples of IRWEs. You should document these expenses carefully, keep receipts, and report them to SSA. They'll adjust your countable earnings accordingly. This could allow you to work more hours or earn a bit more while still staying under the SGA threshold for SSDI purposes.

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Thanks for confirming! This is so helpful. I'm going to start documenting these expenses immediately and will include them in my next earnings report to SSA.

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ya my sister gets disability too and says its rly important to keep ur pay stubs and report ur earnings each month even when ur under the limit that way they cant come back later and say u never told them u were working

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Good point. I've been reporting quarterly but maybe I should switch to monthly reporting to be extra safe. Thanks!

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