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Can I try working while on SSDI at 65 without losing benefits before FRA?

I've been receiving SSDI for about 4 years now (I'm 65½) and am considering testing the waters with part-time work again. My Full Retirement Age is approximately 14 months away, and I'm worried about jeopardizing my disability benefits if I try working but can't sustain it. I still maintain my professional certifications and could earn around $5,200-6,000 monthly if I worked even part-time, which would be a huge financial help with inflation these days. The problem is my condition is unpredictable - I might manage 2-3 months then need weeks to recover. Has anyone navigated returning to work on SSDI this close to FRA? Do I need to wait until I automatically convert to retirement benefits? I've heard about Trial Work Period but don't understand if it makes sense at my age. Any advice is appreciated!

You're in luck - you can absolutely test the waters using a Trial Work Period (TWP). Since you're on SSDI, you get 9 TWP months where you can earn ANY amount without affecting your benefits. A TWP month in 2025 is any month you earn more than $1,110. After using all 9 TWP months (which don't need to be consecutive), you'd enter your Extended Period of Eligibility for 36 months where you can keep benefits in any month you don't earn over Substantial Gainful Activity ($1,550/month in 2025 for non-blind individuals). The great thing in your situation is that once you hit your FRA, your SSDI automatically converts to retirement benefits, and the SGA earnings limit no longer applies. You'd only be subject to the retirement earnings test until you reach FRA, which is much more generous ($22,320/year in 2025 with $1 reduction for every $2 over).

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Thank you for that detailed explanation! So if I understand correctly, I could start using some TWP months now, and then by the time I might exhaust them, I'll be approaching FRA anyway? That seems like perfect timing. Do I need to notify SSA before I start working, or just report my earnings after the fact?

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Be SUPER careful with this!! My brother tried going back to work on SSDI and it turned into a NIGHTMARE. They didn't process his work reports correctly and suddenly claimed he owed $27,000 in overpayments!!! He had documented EVERYTHING and it still took 9 months to straighten out. The TWP sounds great in theory but the SSA's execution is HORRIBLE. If you do try working, document EVERYTHING and send your monthly earnings reports by certified mail!!!!

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Wow that sounds awful for your brother. Did he eventually get it resolved? I'm wondering if having proper documentation helped in the end or if it was just a bureaucratic mess regardless.

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just wanted to say good for you for trying! many of us dont even feel well enough to try working again. hope it goes well

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Thanks for the encouragement! It's definitely scary to consider, but financially it would make such a difference if I could manage even 15-20 hours a week.

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The previous advice about TWP is correct, but I'd add that your timing is actually perfect. Since you're only 14 months from FRA, even if you used up all 9 TWP months consecutively starting now (which would take you to about 9 months from FRA), you'd only have to navigate the Extended Period of Eligibility for a few months before aging into regular retirement benefits. One thing to consider: you should contact Social Security BEFORE you start working to set up proper earnings reporting. You can do this through your my Social Security account or by calling. Speaking of calling, if you have trouble reaching someone at SSA (very common), try using Claimyr.com - it's a service that navigates the SSA phone system for you and calls you back when they've reached an agent. Saved me hours when I needed to discuss my own return to work plan. They have a video demo at https://youtu.be/Z-BRbJw3puU showing how it works. Also, consider talking to a WIPA (Work Incentives Planning and Assistance) counselor - they provide free benefits counseling for SSDI recipients considering work.

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I've never heard of WIPA counselors before! That sounds like exactly what I need. And thanks for the tip about Claimyr - I've been disconnected multiple times trying to reach SSA about other questions. I'll definitely set up proper reporting before I start anything.

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my situation was different but i went back to work part time while on ssdi. my advice is KEEP RECORDS OF EVERYTHING. every paycheck, every report you submit to ssa, everything. take screenshots of your online submissions too.

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That seems to be the consensus - document everything! Did you use the SSA mobile app for reporting wages or did you call/mail them in?

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I think you're overthinking this. Once you hit FRA, the SSDI switches to retirement benefits automatically. You're 65 and a half, so you're almost there anyway. If I were you, I'd just wait the 14 months until FRA and then work as much as you want. Why risk messing up your benefits for just a year of partial work? The paperwork and stress probably isn't worth it.

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That's not entirely accurate. While waiting until FRA would indeed eliminate all earnings restrictions, the OP would be leaving significant money on the table. Using the TWP months now could provide 9+ months of BOTH full SSDI payments AND unlimited earnings from work. The retirement earnings test after TWP might reduce benefits somewhat if earnings are high, but they'd still come out far ahead financially compared to not working at all until FRA.

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One thing nobody mentioned - check with your state about health insurance!!!! If you're on Medicare but also have Medicaid as secondary because of low income, working could affect your Medicaid eligibility BEFORE it affects your SSDI. This happened to my cousin and she lost her help paying her Medicare premiums and suddenly had all these medical expenses she couldn't afford!!

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That's an excellent point I hadn't considered at all. I do have Medicare but no secondary insurance. I'll definitely need to calculate the impact of premiums and out-of-pocket costs if I start earning more.

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I went thru this few yrs back. The TWP is great but after that comes the Extended Period of Eligibility like others mentioned. Here's what nobody tells you - if you earn over SGA amount during EPE, benefits stop that month BUT can restart if earnings drop below SGA again. Thats why its good for you with unpredictable health. You can work when able, not work when not able, and benefits adjust accordingly. Just have to report earnings monthly.

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Thank you for sharing your experience! That flexibility during the EPE sounds perfect for my situation with unpredictable health. Did you find the monthly reporting process difficult to manage?

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good luck whatever u decide! its hard finding the balance between health and money

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Very true. And that's why the TWP and EPE were designed - to let people test their ability to work without immediately losing their safety net. It's one of the better features of the disability program, even if the implementation can sometimes be problematic.

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